Click here 
to read Remembering Amy, a heartfelt story told by Amy’s mother, best friend and favorite teacher, of the wonderful life of a child with Progeria and the profound effect she had on everyone she met.
The children who passed away since 1999:
1999
Jesus, 20 years old, from Mexico
2000
Lukasz, 8 years old, from Poland
Mariluz, 12 years old, from Chile
Rachel, 9 years old, from United States
Svenja, 12 years old, from Germany
Andrew, 8 years old, from United States
Jonathon, 11 years old, from United States
Ngoc, 15 years old, from Vietnam 
2001
Joscha, 12 years old, from Germany
Stanislaw, 11 years old, from Poland
Juan, 15 years old, from Republic Argentina
Sabrina, 13 years old, from Switzerland
Mihailo, 13 years old, from Yugoslavia
2002
Loana-Lucia, 14 years old, from Romania
Glendis, 13 years old, from Venezuela
2003
Fleur, 2 years old, from England
Christopher, 12 years old, from United States
Nigel, 10 years old, from The Netherlands
Susana, 22 years old, from Mexico
Christopher, 20 years old, from Australia
2004
John, 16 years old, from the United States
Clinton, 6 years old, from the United States
2005
Kieran, 8 years old, from England
Claire, 14 years old, from Scotland
Saim, 14 years old, from Turkey
Ronny, from Venezuela, 3 days before his 17th birthday
Stuart, from Australia, 18 years old
Sacha, 9 years old, from France
2006
Zach, 3 ½ years old, from the United States
Kristian, 3 ½ years old, from the United States
Mirko, age 21, from Argentina
Juan Carlos, age 10, from Columbia
Michaela, 11 years old, from England
Wiradianty, “Ranti”, 11 years old, from Indonesia
Zoe, 13 years old, from Puerto Rico
Ory, 10 years old, from the United States
2007
Seth, 13 ½ years old, from the United States
Burcu, 20 years old, from Turkey
Maria, 9 years old, from Mexico
2008
Sarah, 14 years old, from Austria
Megane, 15 years old, from France
2009
Ashley, 17 years old, from Canada
2010
John, 18 years old, from the United States
Watch this video of Ashley who, in just 90 seconds, shines with her bright personality and insightful advice to other children with Progeria – Ashley will live on in our hearts.