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NORD (National Organization of Rare Disorders)

This well-known organization is committed to "working toward the prevention, treatment and cure for rare diseases". Type in "Progeria" in the search box of the home page and access a description of Hutchinson-Gilford Progeria Syndrome

MedExplorer.com
A health and medical information source providing you with objective health and medical website reviews and health news.

OMIM: Online Mendelian Inheritance in Man
This database is a catalog of human genes and genetic disorders authored and edited by Dr. Victor A. McKusick and his colleagues at Johns Hopkins and elsewhere, and developed for the World Wide Web by NCBI, the National Center for Biotechnology Information. The database contains textual information, pictures, and reference information. It also contains copious links to NCBI's Entrez database of MEDLINE articles and sequence information.

Gene Review
The Gene Tests website is a publicly funded medical genetics information resource developed for physicians other health care providers, researchers, and the general public. On this site, GeneReviews are expert-authored, peer-reviewed, current disease descriptions that apply genetic testing to the diagnosis, management, and genetic counseling of patients and families with specific inherited conditions.

The Genetic Alliance
The Genetic Alliance is an international coalition comprised of millions of individuals with genetic conditions and more than 600 advocacy, research and health care organizations. The Alliance builds partnerships to promote healthy lives for all those living with genetic conditions.

Are you interested in medical science? Visit The-Science-Lab.com for a comprehensive directory of science related websites.

Web Sites of Families of Children with Progeria

*The Progeria Research Foundation links to other sites that may be of interest to those who use our site. The Progeria Research Foundation is not responsible for the content of such websites or of the accuracy of the information contained therein.

 

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