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Progeria is one of the rarest diseases on earth, so raising awareness of it and PRF’s work is vital to our efforts to find all children affected by it, and to gather as many supporters as possible. As word of Progeria and our tremendous progress spreads worldwide, the public’s fascination with these special children continues to grow, with widespread coverage of Progeria children and the research that will lead to a cure. Click here for highlights from just a few of the many media outlets with a keen interest in Progeria and PRF’s work.
Our 2016 Newsletter and Annual Report is here!
Read all about PRF’s research updates, events, financials, and MORE! Happy reading and THANK YOU for your support.
July 11, 2016
Results of Triple Drug Trial for Progeria Published
The journal Circulation published the Progeria triple drug trial results, wherein two additional drugs, pravastatin and zoledronic acid, were added to the already successful drug lonafarnib. PRF continues to identify promising drug candidates that may offer children with Progeria longer, healthier lives – like our new two-drug trial.
New, 2-Drug Clinical Trial Begins!
Our mission to cure Progeria continues: the drug everolimus is being added to the current lonafarnib treatment regimen, with the hope that the two drugs together will be even more effective than lonafarnib alone. Click here for exciting details.
February 18, 2016
TEDx talks hit 1 billion views; Sam Berns’ talk featured in global TED announcement
He has taught millions how to live a happy life. And now, with TEDx celebrating the milestone of one billion views total, they have chosen Sam’s as one of 15 “amazing talks” to highlight. Check out our special campaign and what you can do to help. #LiveLikeSam
Shop in Our Store
Don’t forget to check out the PRF store for last minute gifts. Choose from our wristbands, water bottles, baseball hats and more! (Please order by December 18 to guarantee Christmas delivery.)