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Progeria is one of the rarest diseases on earth, so raising awareness of it and PRF’s work is vital to our efforts to find all children affected by it, and to gather as many supporters as possible. As word of Progeria and our tremendous progress spreads worldwide, the public’s fascination with these special children continues to grow, with widespread coverage of Progeria children and the research that will lead to a cure. Click here for highlights from just a few of the many media outlets with a keen interest in Progeria and PRF’s work.
Did you miss the HBO premiere of Life According to Sam? Now you can watch it any time ON DEMAND! See Sam and his parents (PRF co-founders) Leslie and Scott in this riveting documentary about love, life and hope for children with Progeria. Tune in and watch the film everyone is talking about!!
October 15, 2013
Watch The Katie Show!
As if this month wasn’t exciting enough, on Tuesday, Oct. 15, Sam, his parents (PRF co-founders) Leslie and Scott, and the Directors of Life According to Sam will be the leading story on Katie Couric’s daytime show! Tune in for this exciting look into the movie and PRF’s founding family!
October 24, 2013
WE DID IT!
After seeing Life According to Sam, our generous friend Robert Kraft issued a Matching Gift Challenge to help Sam and his friends, up to $500,000 from October 8-23rd to jump-start our $4 million campaign for the triple trial. Thanks to thousands of generous people, we raised $678,262. With the Kraft Challenge match that's nearly $1.18 million so that more children can participate in our clinical trials, and more research can go into finding the cure. THANK YOU THANK YOU THANK YOU!
July 30, 2013: Check out PRF’s Latest Newsletter!
Enjoy this 20-page edition that highlights the expansion of the Triple Trial, our recent workshop, funded research projects, past and upcoming events, and lots more!
April 24, 2013
PRF’s 2013 Scientific Workshop
April 24 – 26, 2013 in Bethesda, MD: “Hand in Hand: Basic & Clinical Science Working Together Toward the Cure” was held in Bethesda, MD. A record number of clinicians and researchers gathered from all over the world to share the latest data, and set the stage for future efforts to get us to treatments and the cure.
Special Edition Newsletter!
Enjoy this 8-page piece that provides more details on the clinical trial and is dedicated to all the courageous children and their families who helped make it possible.
The Next Phase…
We’ve come so far in such a short period of time. But FTIs are a treatment, not a cure. PRF is using the knowledge gained from this trial to push research forward, testing other drugs in larger, more costly clinical trials. With our proven, fast-paced record of success and your support, Together, We WILL Find The Cure. DONATE NOW to help children with Progeria lead longer, healthier lives.
A Special Thank You…
The wonderful news of an effective treatment is being heard around the world, as families, researchers, and PRF supporters celebrate this historic milestone. We pay tribute to the many wonderful people and organizations that helped make this day possible.
The World Learns of Progeria Treatment
News of the first-ever treatment for Progeria is spreading around the globe, with dozens of media outlets reporting on this remarkable advancement. Click here to get to links on dozens of articles, radio clips and TV airings!
Click here to read our special newsletter on the findings.
September 24, 2012
WE DID IT! First-ever Treatment for Progeria Discovered!!
History has been made, with every child in the first-ever Progeria clinical drug trial showing improvement in one or more areas of their condition, proving that the FTI drug lonafarnib is the first known, effective treatment for children with Progeria.