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Progeria is one of the rarest diseases on earth, so raising awareness of it and PRF’s work is vital to our efforts to find all children affected by it, and to gather as many supporters as possible. As word of Progeria and our tremendous progress spreads worldwide, the public’s fascination with these special children continues to grow, with widespread coverage of Progeria children and the research that will lead to a cure. Click here for highlights from just a few of the many media outlets with a keen interest in Progeria and PRF’s work.
March 08, 2010
The Dr. Oz Show aired a very special segment on Progeria!
Click Here to read about the show featuring Dr. Leslie Gordon, PRF's Medical Director and Kaylee Halko, and Here to support Kaylee and the research.
February 28, 2010
Rare Diseases Celebrated Around the World
There are nearly 8000 rare diseases in the world today affecting millions. Please join in raising awareness: Alone we are Rare. Together we are Strong.
Rare Disease Day US
February 20, 2010
PRF's Leadership to air on Spike TV this weekend!
Progeria and PRF's work will be shown on Saturday, February 20th and Sunday the 21st , at 12:30 pm EST on Spike TV during the "PowerBlock" show MuscleCar
January 29, 2010
Progeria Triple Drug Trial Fully Enrolled!
It took less than 6 months to get all 45 children from 24 countries started, thanks to the remarkable teamwork of the families, their doctors, PRF and its trial partners.
PRF's Global Campaign to Find All Children with Progeria: IT'S WORKING!
PRF’s global effort to find all children with Progeria throughout the world has resulted in finding an astonishing 14 more since October 2009. Now more children than ever can get the support they need.
April 14, 2010
PRF's 10th Anniversary Workshop Showcases Progress and Stimulates New Directions
Titled From Bench to Bedside in a Decade, this 6th PRF scientific conference deemed "exciting and provocative” by attendees.
October 25, 2009
We know of 54 children with Progeria in 30 countries, but experts believe there are 150 more. Find out what PRF is doing to “find the other 150” so they can get the support they need.
To find out more, please visit www.findtheother150.org.
August 10, 2009
Moving Ahead at Lightening Speed as The Progeria Triple Drug Trial Begins!
As the first Progeria clinical trial draws to a close, PRF and Children's Hospital Boston begin a 3-drug combination trial.
PRF's 10th Anniversary Workshop to be Held April 2010
This 6th scientific conference, titled From Bench to Bedside in a Decade, promises to be an exciting meeting of clinicians and researchers, all gathered to promote collaboration and progress in Progeria research.
June 09, 2009
Ten years ago PRF's Board of Directors held their first meeting. PRF Celebrates a "Decade of Dreams", reflecting on the past ten years of accomplishments.