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Progeria is one of the rarest diseases on earth, so raising awareness of it and PRF’s work is vital to our efforts to find all children affected by it, and to gather as many supporters as possible. As word of Progeria and our tremendous progress spreads worldwide, the public’s fascination with these special children continues to grow, with widespread coverage of Progeria children and the research that will lead to a cure. Click here for highlights from just a few of the many media outlets with a keen interest in Progeria and PRF’s work.
March 01, 2007
PRF's CA Chapter member Chip Foose featured on Front Page of USA Today
Famous car designer and proud PRF supporter receives accolades from Jay Leno and other car enthusiasts.
January 29, 2007
PRF on Front Page of Wall Street Journal!
After months of interviews with leading Wall Street Journal health reporter Amy Dockser Marcus, PRF is featured in a front page article in a recent issue of the publication. Click here to access the Wall Street Journal article online.
December 01, 2006
Simon Cowell Learns of “Voices of Tomorrow” CD!
American Idol's Simon Cowell meets Hayley Okines are the UK's CHILDREN OF COURAGE awards.
PRF-Funded Studies Provide Support for Drug Trial
PRF Reaches $1.4 of the $2 Million Needed to Fund Trial! In July, UCLA researchers Loren Fong and Stephen Young published findings from PRF-funded studies with Progeria mice, testing a potential drug treatment for children with Progeria. The FTI drug improved some signs of the disease in the mice! These and other recent studies have paved the way for PRF to begin a clinical trial with the children. Join our Clinical Trial Campaign and help make the trial happen!
July 18, 2006
Famous Actor Couple Join the Fight Against Progeria
The recognizable voices of Ted Danson and Mary Steenburgen are featured in a public service campaign launched this summer by PRF. Proud supporters since 2003, the couple lend their time and talent to help.
July 02, 2006
DATELINE NBC FEATURED PROGRAM ON PROGERIA
We hope you tuned in to Dateline for a wonderful show dedicated to Progeria and the Seattle-based Cook family, which featured PRF’s medical director discussing the latest in science and research surrounding the disease.
April 27, 2006
Research Suggests Link Between Progeria and Normal Aging
April 16, 2006
PRF's Medical Director Receives Working Mother of the Year Award
Looking for "gutsy go-getters whose innovative thinking, intrepid spirit and influential lives make you feel as if anything is possible," Working Mother magazine has selected Dr. Leslie Gordon, co-founder of The Progeria Research Foundation and mother of 9-year-old Sam, as one of their 2006 Working Mothers of the Year.
March 28, 2006
Clarification: UK Documentary features Indian Children with Progeroid Syndrome
On Monday, February 13th, the UK's Channel 4 aired a documentary entitled, "Bodyshock: The 80-Year-Old Children" that follows a family in India whose five children all have a form of a progeroid syndrome that is not the classic, Hutchinson-Gilford Progeria Syndrome (HGPS) that PRF is involved with.
February 16, 2006
Three studies released that bring us closer than ever to understanding Progeria and to disease treatment
PRF-funded, UCLA researchers have taken a Progeria-like mouse model and tested a potential drug treatment for children with Progeria. Their study released in Science Feb.16th has found that this FTI drug improves some signs of the disease. Human clinical trials of the drug are closer than ever!