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Progeria is one of the rarest diseases on earth, so raising awareness of it and PRF’s work is vital to our efforts to find all children affected by it, and to gather as many supporters as possible. As word of Progeria and our tremendous progress spreads worldwide, the public’s fascination with these special children continues to grow, with widespread coverage of Progeria children and the research that will lead to a cure. Click here for highlights from just a few of the many media outlets with a keen interest in Progeria and PRF’s work.
January 01, 2006
Progeria on Good Morning America
12-year-old Seth Cook was featured on ABC's Good Morning America, giving viewers an inside look into the life of a child living with Progeria.
September 29, 2005
Exciting News on Potential Drug Treatments
Researchers have published studies that support a potential drug treatment for children with Progeria. Farnesyltransferase inhibitors (FTIs), originally developed for cancer, are capable of reversing the dramatic nuclear structure abnormalities that are the hallmark of cells from children with Progeria.
July 01, 2005
Blocking protein farnesyltransferase improves nuclear blebbing in mouse fibroblasts containing a targeted Hutchinson-Gil
Blocking protein improves nuclear blebbing in mouse fibroblasts containing a targeted Hutchinson-Gilford Progeria syndrome mutation.
March 21, 2005
abcnews.com Healthology Article Highlights Latest Findings
Reporter Christine Haran provides a top-line overview of Progeria and the current research findings reported in Nature and Journal of Pediatrics.
March 06, 2005
Reversal of the cellular phenotype in the premature aging disease HGPS
Cells from patients with Hutchinson-Gilford Progeria Syndrome (HGPS) can be made healthy again, according to findings by scientists at the National Cancer Institute, part of the National Institutes of Health. Using specially modified short segments of DNA, NCI researchers Paola Scaffidi, PhD, and Tom Misteli, PhD (both 2003 PRF Workshop participants), reversed the defects seen in HGPS cells by eliminating the lamin A protein that is faulty in HGPS. By demonstrating that HGPS cellular phenotypes are reversible, this study brings scientists one step closer to curing this devastating childhood disease.
February 05, 2005
Dr. Leslie Gordon Interviewed on CNN
Millions tuned in to CNN Live Weekend on Saturday, February 5th to watch a captivating interview with PRF Medical Director Dr. Leslie Gordon.
January 30, 2005
Racing with Sam
The January 30th issue of the New York Times Magazine features the compelling story of PRF Medical Director Dr. Leslie Gordon, her husband Dr. Scott Berns, and their son Sam. The story, “Racing with Sam,” highlights the challenges faced by the Gordon and Berns family upon learning of Sam’s diagnosis of Progeria.
December 01, 2004
PRF President A. Gordon Honored as a 2004 N. of Boston Bussiness & Professional Woman of the Year
We are both pleased and proud to share the news that Audrey Gordon, the President and Executive Director of The Progeria Research Foundation has been named one of the 2004 North of Boston Business and Professional Women of the Year, in the nonprofit business category. Audrey's selection was based upon her tireless work for PRF and her outstanding accomplishments made on our behalf.
June 08, 2004
Gene Mutation Causes Progressive Changes to Cell Structure in Children with Progeria
Researchers today announced that a mutation of the Lamin A gene gradually causes devastating effects on cellular structure and function in children with Hutchinson-Gilford Progeria Syndrome (HGPS or Progeria). The study was published in this week's Proceedings of the National Academy of Sciences (PNAS). Progeria is a rare, fatal genetic condition characterized by an appearance of accelerated aging in children.
June 01, 2004
Work of The Progeria Research Foundation Highlighted on Medical Research Website
The Progeria Research Foundation was featured in the June 23, 2004 issue of SAGE KE - an online resource for researchers who are working in the field of aging.The article, "Racing Against Time," featured The Progeria Research Foundation's journey to drive the research behind the Progeria gene discovery.