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Progeria is one of the rarest diseases on earth, so raising awareness of it and PRF’s work is vital to our efforts to find all children affected by it, and to gather as many supporters as possible. As word of Progeria and our tremendous progress spreads worldwide, the public’s fascination with these special children continues to grow, with widespread coverage of Progeria children and the research that will lead to a cure. Click here for highlights from just a few of the many media outlets with a keen interest in Progeria and PRF’s work.
May 18, 2004
Seattle Newspaper Tells the Story of a Child Living with Progeria
The September issue of the Seattle Post-Intelligencer featured a very Special Report: "A Time to Live - A Boy Embraces Life as a Rare Disease Hastens His Aging." This article presented a rare and heartwarming personal look at a year in the life of a child and family living with Progeria.
April 01, 2004
PRF Featured by Healthy Mothers, Healthy Babies Coalition
Each month the HMHB website features a personal Question & Answer interview with experts in the fields of maternal and child health. PRF Medical Director Leslie Gordon shared PRF's story in the April edition.
February 01, 2004
Time Magazine Article Profiles the efforts of Dr. L. Gordon and PRF to save children with Progeria
In the May 10th issue of TIME magazine (Connections Bonus Section) PRF co-founder and Medical Director Dr. Leslie Gordon is highlighted for her efforts towards finding the cause, treatment and cure of Hutchinson-Gilford Progeria Syndrome.
October 16, 2003
Progeria goes Primetime!
We hope you joined the millions of people around the country to watch the inspiring story of how The Progeria Research Foundation was created - a story of hope, courage and determination of one family who turned a tragedy into something positive and helpful for children with Progeria.
June 01, 2003
Identification of Gene Gives Hope to Children with Progeria
[Boston, MA - April 16, 2003] - The Progeria Research Foundation (PRF), along with the National Institutes of Health (NIH), today announced the discovery of the gene that causes Hutchinson-Gilford Progeria Syndrome
April 16, 2003
Progeria Gene Discovered
On April 16, 2003, a press conference was held at the National Press Club in Washington, D.C. to announce the discovery of the Progeria gene. Leading the announcement was PRF Medical Director Dr. Leslie Gordon. The panel of speakers included Dr. Francis Collins, Head of the Human Genome Project, Dr. W. Ted Brown, world expert on Progeria, and John Tacket, PRF's Youth Ambassador.
April 01, 2003
Media Coverage of Progeria Gene Discovery
Many major media outlets reported the historic Progeria Gene discovery.