
Worldwide Coverage Promotes Public Awareness and Scientific Progress
Read all about PRF's Headline News
Since the 2003 gene discovery, PRF’s story has appeared on CNN, Primetime Live, The Today Show, in Time Magazine, People magazine, The New York Times, and dozens of other media outlets that have a keen interest in Progeria and PRF’s work. This has led to more children being diagnosed earlier, so they get proper medical care and enter our programs, and more scientists becoming involved. This is how the research field of Progeria mushrooms, as we see more children identified and more high-level scientists producing data that will help to better understand Progeria and develop treatments in the future. Read below for excerpts from these major media stories, and about the latest scientific breakthroughs, and
click here for highlights from just a few of the many media outlets with a keen interest in Progeria and PRF’s work.
September 2010
PRF’s Mid-Year Report is IN!
Enjoy this 6-page account of our impressive accomplishments and goals.
September 07, 2010
New Study Links Progeria to Aging in the General Population
Today, The Wall Street Journal reports on a landmark study, led by PRF’s Medical Director, that demonstrates the Progeria-causing protein Progerin increases in everyone as we age, suggesting a possible new risk factor for heart disease.
August 18, 2010
CDC's 2010 National Conference to feature poster presentation on the success of "Find the Other 150 Campaign."
July 01, 2010
ONEpossible ™ Campaign Raises $182,000!
Exceeding our goal by over $30,000, hundreds prove they are each ONE who makes a cure POSSIBLE.
March 08, 2010
The Dr. Oz Show aired a very special segment on Progeria!
Click Here to read about the show featuring Dr. Leslie Gordon, PRF's Medical Director and Kaylee Halko, and Here to support Kaylee and the research.
February 28, 2010
Rare Diseases Celebrated Around the World
There are nearly 8000 rare diseases in the world today affecting millions. Please join in raising awareness: Alone we are Rare. Together we are Strong.
Rare Disease Day US
January 29, 2010
Progeria Triple Drug Trial Fully Enrolled!
It took less than 6 months to get all 45 children from 24 countries started, thanks to the remarkable teamwork of the families, their doctors, PRF and its trial partners.
May 19, 2010
PRF's Global Campaign to Find All Children with Progeria: IT'S WORKING!
PRF’s global effort to find all children with Progeria throughout the world has resulted in finding an astonishing 11 more since October 2009. Now more children than ever can get the support they need.
April 14, 2010
PRF's 10th Anniversary Workshop Showcases Progress and Stimulates New Directions
Titled From Bench to Bedside in a Decade, this 6th PRF scientific conference deemed "exciting and provocative” by attendees.