Worldwide Coverage Promotes Public Awareness Education Outreach
Promotes Scientific Progress
Since the 2003 gene discovery, PRF’s story has appeared on CNN, Primetime Live, The Today Show, in Time Magazine, People magazine, The New York Times, and dozens of other media outlets that have a keen interest in Progeria and PRF’s work. This has led to more children being diagnosed earlier, so they get proper medical care and enter our programs, and more scientists becoming involved. This is how the research field of Progeria mushrooms, as we see more children identified and more high-level scientists producing data that will help to better understand Progeria and develop treatments in the future. Read below for excerpts from these major media stories, and about the latest scientific breakthroughs.
What's New
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January 29, 2010 Progeria Triple Drug Trial Fully Enrolled! It took less than 6 months to get all 45 children from 30 countries started, thanks to the remarkable teamwork of the families, their doctors, PRF and its trial partners. |
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January 21, 2010 PRF's Global Campaign to Find All Children with Progeria: IT'S WORKING! Launched just 3 months ago, we have found 3 more of the 150 believed to be unidentified: 2 in Brazil, 1 in Turkey. Let's keep the momentum going: please visit www.findtheother150.org and continue to spread the word! |
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April 11, 2010 PRF's 10th Anniversary Workshop to be Held Titled From Bench to Bedside in a Decade, featuring a plenary speech by NIH Director Francis Collins, and presentation of the first-ever Progeria clinical treatment trial results. |
Fundraising Events
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March 27, 2010: Play Poker for Progeria in Peabody, MA! | |
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August 2009: Baja Fresh Gives Fresh Hope to Children with Progeria with collection boxes in stores nationwide! |