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15-year-old Sam Berns captivates the crowd with his views on what it's like to live with Progeria and participate in clinical drug trials.
|Sam Berns and NIH Director Dr. Francis Collins
talk about living with Progeria.
Speaking to a local audience of nearly 1,500 people at the April 2012 TEDMED conference in Washington, DC, and thousands more through satellite feeds across the country, Sam Berns took center stage as he talked about what it's like to live with Progeria and his views on participating in clinical drug trials.
Click here to view video.
Sam, a freshman in high school and son of PRF Medical Director Leslie Gordon and PRF Board Chair Scott Berns, shared the stage with Dr. Francis Collins, Director of the National Institutes of Health and long-time supporter of Progeria research during
Collins' keynote speech entitled, "From Discovery to Health: Does It Have to Be a Long and Winding Road?" Along with The Progeria Research Foundation, Dr. Collins discovered the Progeria gene and recently identified a potential drug treatment that is being considered for inclusion in the next Progeria clinical trial that PRF will fund.**
"Clinical trials are rigorous", says Sam, "but I remind myself I'm helping researchers develop treatments for myself and other kids with Progeria, and that drives me along."
Once a year, TEDMED holds a prestigious gathering where leaders from all sectors of society come together to explore the promise of technology and the potential of human achievement. It is an honor to be invited to speak, and we congratulate Sam on a great presentation that has been reported by several media outlets, including ABC News.
** To support PRF's efforts to find the cure, click here.