The Faces of Progeria

The Faces of Progeria

 

 
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Children with progeria have a remarkably similar appearance throughout their lives.  We hope these age-categorized photos and videos will help people recognize Progeria more readily, so that the children can receive the unique help they need from PRF and its partners.   

THE EARLY YEARS: Under 1 year old


Enzo

Zoey

Allesandro

Carly

TODDLERS: 2-5 years old


Zach

Carly

Lindsay

Adalia

YOUNG CHILDREN: 6-12 years old


Zach

Lindsay

Cam

Rafaely

TEENAGERS: 13-18 YEARS old


Megan and Meghan

Sammy

Nihal

Claudia

This video was made in 2009, when the first-ever Progeria clinical drug trial was taking place.  We are thrilled to report that the results from that trial were published on September 24, 2012, confirming that the drug being tested  - lonafarnib - is the first-known treatment for Progeria, improving many conditions including weight gain, stronger bones and, most importantly, stronger hearts.  In May 2014, further study revealed that lonafarnib has been shown to extend the children’s lives.  Currently and thanks to our generous supporters, PRF has extended and expanded the trial so that all children with Progeria can have access to this experimental drug.    




This is a more recent, 2014 video depicting lots of images of these beautiful children.



 

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