The World Learns of Progeria Treatment

The World Learns of Progeria Treatment

News of the first-ever treatment for Progeria is spreading around the globe, with dozens of media outlets reporting on this remarkable advancement. Click here to get to links on dozens of articles, radio clips and TV airings!

Click here to read our special newsletter on the findings. 

 
Home » News » News Archive » 2012 News Archive » The World Learns of Progeria Treatment

Devin from Canada during a 2008
visit to Boston Children’s Hospital
for the Progeria clinical drug trial.


Extra! Extra! Read All About It!

The public’s fascination with Progeria and its relation to aging continues to rise, as word of the first treatment for children with Progeria spreads.  Check out these stories on-line and on-air from top-tier outlets.  Be the first to know as more stories appear-like us on Facebook, follow us on Twitter, or send us your email address.

 

What people are saying…

 “the result of a scientific sprint” – Robert Siegel, NPR

“there’s been an unexpected payoff for the rest of humanity...some…will be looking for ways to use this new information to ward off a range of disease associated with aging…perhaps the most remarkable thing about the new treatment is how fast it was developed.” – Jon Hamilton, NPR

“Now, we not only have our first treatment, but we know for the first time that Progeria can be improved, and this inspires us to work harder and faster toward additional treatments that could work in conjunction with Lonafarnib to make a difference in the health of children with Progeria.”- PRF’s Medical Director Dr. Leslie Gordon, CNN Health

The first time anyone has done anything that in any way, shape of from altered the natural history of this disease. – Progeria Drug trial Chair Dr. Mark Kieran, The Boston Globe  

 [these results] show the dedication parents and non-profits have in the rare disease community to get things done when all seems lost…this study is a great example of how a small non-profit can help stimulate and translate basic biomedical and genetic research into a human treatment. James Radke PhD, Rare Disease Report

It’s huge, It’s a miracle. Devin has new hope, dreams, his saying is, “Dream big or go home” – Jamie, CNN Health

“The continuing story of conquering Progeria is a glorious illustration of the value of basic research in discovering how something happens – and that’s the heart and soul of science.” Ricki Lewis, PhD, PLOS  LINK: http://blogs.plos.org/dnascience/2012/10/11/from-rapid-aging-to-common-heart-disease/ 

Spectrums Frannie Marmorstein excitedly holds the Sept. 25, 2012 edition of the Wall Street Journal,
showing the trial results article above the fold on the front page!

See complete articles here…

WBF 88.7 – NPR News –LISTEN to Robert Siegel’s “All Things Considered” interview with PRF’s Medical Director and her son Sam!

 

 

WATCH the news report on Boston’s local abc affiliate, WCVB-TV

 

Wall Street Journal - Market Watch

First-Ever Treatment For Rare Childhood Aging Disease Shows Improvement In All Trial Participant

Study of Rare Disease Helps in Search for Clues on Aging /  Drug Slows Damage in Children That Also Is Linked to Heart Problems in Others 

 

 

CNN Health

Advances in kids' early aging disease 

 

WCVB.com

New trial targets rapid-aging childhood disease 

 

Science Daily

Drug Originally Developed for Cancer Proves Effective for Children With Progeria 

 

 90.9 WBUR CommonHealth

First Treatment Found For Rapid-Aging Disease In Children

 

 

We are eternally grateful to the fantastic team at Spectrum for their tireless efforts to spread the word about Progeria and PRF’s work. 

 

  

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