The Progeria Research Foundation

For the Children ♥ For the Cure

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Vision

Our vision is a world in which every child with Progeria is cured.

Mission

To discover treatments and the cure for Progeria and its aging-related disorders, including heart disease.

Vision

Our vision is a world in which every child with Progeria is cured.

Mission

To discover treatments and the cure for Progeria and its aging-related disorders, including heart disease.

News

Exciting research milestones in treatment evaluation and life extension!

Mar 15, 2023

Our research team has discovered a vital new way to measure progerin, the toxic protein that causes Progeria. With this discovery, scientists also found that the long-term benefit of lonafarnib for children with Progeria is greater than we thought.
What do these two findings mean for the Progeria community?

We’re Hiring!

Mar 3, 2023

PRF is seeking an experienced Donor Database Manager to join our team. This is a full-time, hybrid role, where the applicant would need to be able to reliably commute to our Peabody office. We are looking for a passionate, enthusiastic, and analytical individual who is excited about data integrity, loves to improve workflow, and can reform donor data processes.

PRF’s 11th International Scientific Workshop was a success!

Nov 15, 2022

Thank you to all of those who attended The Progeria Research Foundation’s 11th International Scientific Workshop – RACE Progeria to the Cure!

Sam Berns TEDx Talk Hits 50 Million Views!!

Nov 7, 2022

Wow – exciting news! Sam Berns’ TEDx talk, ‘My Philosophy for a Happy Life,’ has inspired millions around the world, and today hit a new milestone: 50 million views on TEDx.com alone (with a grand total of 95 million times, including on TED.com).

Get PRF’s 2022 Newsletter here!

Oct 31, 2022

The word is out! PRF’s 2022 Newsletter and Annual Report are headed your way – rife with many exciting updates on PRF’s progress toward worldwide awareness and the CURE!

Get Involved

Our lonafarnib clinical trials enrolled 100 children from 40 different countries to test this now-FDA-approved treatment. Because of your support, these children and young adults are living longer, healthier lives.