{"id":17925,"date":"2023-10-23T08:29:01","date_gmt":"2023-10-23T12:29:01","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=17925"},"modified":"2025-02-15T17:43:00","modified_gmt":"2025-02-15T22:43:00","slug":"global-launch-pc","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/ar\/2023\/10\/23\/global-launch-pc\/","title":{"rendered":"\u0627\u0644\u0625\u0637\u0644\u0627\u0642 \u0627\u0644\u0639\u0627\u0644\u0645\u064a \u0644\u0645\u0646\u0635\u0629 \u0627\u0644\u0645\u0634\u0627\u0631\u0643\u0629 \u0627\u0644\u0639\u0627\u0626\u0644\u064a\u0629 \u0627\u0644\u062c\u062f\u064a\u062f\u0629 \u0645\u0646 PRF\u060c Progeria Connect!"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;section&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;0px|||||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row admin_label=&#8221;row&#8221; _builder_version=&#8221;4.16&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_image src=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/10\/Screenshot-2023-10-20-122807.png&#8221; title_text=&#8221;Screenshot 2023-10-20 122807&#8243; align=&#8221;center&#8221; _builder_version=&#8221;4.22.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_text _builder_version=&#8221;4.22.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>In partnership with Sciensus, The Progeria Research Foundation (PRF) is officially launching <em>Progeria Connect<\/em> to our <strong>full global community<\/strong> of families. We created this platform to help our small but diverse community make personal connections, have access to the latest research news, and build lifelong ties throughout their journey with Progeria.<\/p>\n<p><strong><span style=\"color: #800080;\"><em>Progeria Connect<\/em><\/span><\/strong> enables you and your family to easily and securely communicate with PRF and others from around the world who may share similar experiences, regardless of your language or location.<\/p>\n<p><strong>As this is a truly private site, we invite only the following groups to register:<\/strong><\/p>\n<ul>\n<li>Parents\/legal guardian(s) of those with Progeria;<\/li>\n<li>Siblings;<\/li>\n<li>Grandparents;<\/li>\n<\/ul>\n<p><strong>Platform benefits include:<\/strong><\/p>\n<ul>\n<li>Private groups to share ideas and stories, including Teens with Progeria, Young Adults 18+, and Parents of Children with Progeria;<\/li>\n<li>Periodic updates on clinical trials and the latest research findings;<\/li>\n<li>Private messaging to other members of <em>Progeria Connect<\/em>;<\/li>\n<li>Information on events and fundraisers;<\/li>\n<li>Live Zoom video chat capability, including real-time test translations for multi-language calls;<\/li>\n<li>Our very own <em>Progeria Connect<\/em> mobile app \u2013 available both in the App Store and Google Store to engage with your community while on-the-go!<\/li>\n<\/ul>\n<p><strong>Register here for your free account: <\/strong><a href=\"http:\/\/www.progeriaconnect.sciensus.com\"><strong>www.progeriaconnect.sciensus.com<\/strong><\/a><\/p>\n<p><em>Once you register, you\u2019ll hear from us within 5 days to confirm your account to this exclusive, families and caregivers-only network. <\/em><\/p>\n<p>[\/et_pb_text][et_pb_image src=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/10\/Progeria-Connect-Launch-ph.1B-Flyer-791&#215;1024.jpg&#8221; title_text=&#8221;Progeria Connect Launch ph.1B Flyer&#8221; align=&#8221;center&#8221; _builder_version=&#8221;4.22.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u0646\u062f\u0627\u0621 \u0625\u0644\u0649 \u062c\u0645\u064a\u0639 \u0627\u0644\u0623\u0633\u0631 \u0627\u0644\u0645\u062a\u0636\u0631\u0631\u0629 \u0645\u0646 \u0645\u0631\u0636 \u0627\u0644\u0634\u064a\u062e\u0648\u062e\u0629 \u0627\u0644\u0645\u0628\u0643\u0631\u0629! \u0644\u0642\u062f \u062d\u0627\u0646 \u0627\u0644\u0648\u0642\u062a \u0644\u0644\u062a\u0648\u0627\u0635\u0644 - \u0644\u0644\u062a\u0639\u0644\u0645 \u0645\u0646 \u0628\u0639\u0636\u0646\u0627 \u0627\u0644\u0628\u0639\u0636 \u0648\u0645\u0646 \u0645\u0624\u0633\u0633\u0629 PRF\u060c \u0648\u0645\u0634\u0627\u0631\u0643\u0629 \u0627\u0644\u0645\u0648\u0627\u0631\u062f \u0648\u0627\u0644\u062e\u0628\u0631\u0627\u062a\u060c \u0648\u0627\u0644\u0627\u0632\u062f\u0647\u0627\u0631 \u0643\u0645\u062c\u062a\u0645\u0639\u060c \u0628\u063a\u0636 \u0627\u0644\u0646\u0638\u0631 \u0639\u0646 \u0645\u0643\u0627\u0646 \u0625\u0642\u0627\u0645\u062a\u0643 \u0641\u064a \u0627\u0644\u0639\u0627\u0644\u0645. <\/p>","protected":false},"author":2,"featured_media":17934,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2,1],"tags":[],"class_list":["post-17925","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-uncategorized"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Progeria Connect | The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/ar\/2023\/10\/23\/global-launch-pc\/\" \/>\n<meta property=\"og:locale\" content=\"ar_AR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Progeria Connect | The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"Calling all families impacted by Progeria! It\u2019s time to get connected \u2013 to learn from each other and from PRF, share resources and experiences, and thrive as a community, no matter where in the world you live.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.progeriaresearch.org\/ar\/2023\/10\/23\/global-launch-pc\/\" \/>\n<meta property=\"og:site_name\" content=\"The Progeria Research Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/ProgeriaResearch\/\" \/>\n<meta property=\"article:published_time\" content=\"2023-10-23T12:29:01+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-02-15T22:43:00+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/10\/PCpostteaser-copy.png\" \/>\n\t<meta property=\"og:image:width\" content=\"800\" \/>\n\t<meta property=\"og:image:height\" content=\"800\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" 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