{"id":11093,"date":"2020-09-11T10:37:15","date_gmt":"2020-09-11T14:37:15","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=11093"},"modified":"2023-06-21T11:30:15","modified_gmt":"2023-06-21T15:30:15","slug":"prf-family-quotes","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/bn\/prf-family-quotes\/","title":{"rendered":"PRF \u09aa\u09be\u09b0\u09bf\u09ac\u09be\u09b0\u09bf\u0995 \u0989\u09a6\u09cd\u09a7\u09c3\u09a4\u09bf"},"content":{"rendered":"

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PRF Family Quotes<\/h1>\n

[\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=”1″ module_class=”handprint-bg” _builder_version=”4.16″ background_image=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/blue-handprint-only.png” parallax=”on” parallax_method=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ custom_margin=”0px||0px||false|false” custom_padding=”0px||0px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_text _builder_version=”4.16″ text_font_size=”20px” header_3_text_align=”right” vertical_offset_tablet=”0″ horizontal_offset_tablet=”0″ text_orientation=”right” z_index_tablet=”500″ text_text_shadow_horizontal_length_tablet=”0px” text_text_shadow_vertical_length_tablet=”0px” text_text_shadow_blur_strength_tablet=”1px” link_text_shadow_horizontal_length_tablet=”0px” link_text_shadow_vertical_length_tablet=”0px” link_text_shadow_blur_strength_tablet=”1px” ul_text_shadow_horizontal_length_tablet=”0px” ul_text_shadow_vertical_length_tablet=”0px” ul_text_shadow_blur_strength_tablet=”1px” ol_text_shadow_horizontal_length_tablet=”0px” ol_text_shadow_vertical_length_tablet=”0px” ol_text_shadow_blur_strength_tablet=”1px” quote_text_shadow_horizontal_length_tablet=”0px” quote_text_shadow_vertical_length_tablet=”0px” quote_text_shadow_blur_strength_tablet=”1px” header_text_shadow_horizontal_length_tablet=”0px” header_text_shadow_vertical_length_tablet=”0px” header_text_shadow_blur_strength_tablet=”1px” header_2_text_shadow_horizontal_length_tablet=”0px” header_2_text_shadow_vertical_length_tablet=”0px” header_2_text_shadow_blur_strength_tablet=”1px” header_3_text_shadow_horizontal_length_tablet=”0px” header_3_text_shadow_vertical_length_tablet=”0px” header_3_text_shadow_blur_strength_tablet=”1px” header_4_text_shadow_horizontal_length_tablet=”0px” header_4_text_shadow_vertical_length_tablet=”0px” header_4_text_shadow_blur_strength_tablet=”1px” header_5_text_shadow_horizontal_length_tablet=”0px” header_5_text_shadow_vertical_length_tablet=”0px” header_5_text_shadow_blur_strength_tablet=”1px” header_6_text_shadow_horizontal_length_tablet=”0px” header_6_text_shadow_vertical_length_tablet=”0px” header_6_text_shadow_blur_strength_tablet=”1px” box_shadow_horizontal_tablet=”0px” box_shadow_vertical_tablet=”0px” box_shadow_blur_tablet=”40px” box_shadow_spread_tablet=”0px” global_colors_info=”{}”]<\/p>\n

A few words on PRF from the families in our community<\/strong><\/span><\/h3>\n

We asked parents what PRF has meant to them, and were overwhelmed by their responses! <\/strong><\/span><\/p>\n

This is why we do what we do<\/em>.<\/strong><\/span><\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][et_pb_sidebar area=”et_pb_widget_area_12″ disabled_on=”on|on|off” admin_label=”Meet the kids sidebar” module_class=”subpage-sidebars sidebar-secondary-nav” _builder_version=”4.16″ animation_style=”fade” z_index_tablet=”500″ border_width_right=”5px” locked=”off” global_colors_info=”{}”] [\/et_pb_sidebar][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/08\/zach-and-tina.png” title_text=”zach-and-tina” admin_label=”Zach & Tina 2″ _builder_version=”4.16″ width=”75%” custom_margin=”|0px|10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Z&T Caption” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]Zach and his mom, Tina; USA<\/strong> [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Zach & Tina quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||50px||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u201cConnecting with PRF filled us with such relief \u2013 someone was out there who cared about my son, who was fighting for a cure. They give us peace of mind, knowing there are world-class researchers in our corner, working to cure this fatal disease. I\u2019m so grateful to PRF for fighting for Zach every day, and for making Zach and our family\u2019s future brighter.\u201d<\/p>\n

\u2013 Tina, Zach\u2019s mom<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Enzo-and-family.png” title_text=”Enzo-and-family” admin_label=”Enzo & Family” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”||0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Z&T Caption” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Enzo & his parents; Australia<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Enzo & Catherina quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||50px||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0\u201cWe are so lucky to have The Progeria Research Foundation \u2013 they give us hope\u2026 thank you to all the people who support us, making our journey with Progeria lighter.\u201d<\/p>\n

\u2013 Catherina, Enzo\u2019s mom<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Cam-and-Stephanie-OP-2020.png” title_text=”Cam-and-Stephanie-OP-2020″ admin_label=”Cam & Mom” _builder_version=”4.16″ width=”80%” custom_padding=”|20px||10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Cam&Mom Caption” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Cam and his mom; USA<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Cam & Stephanie’s quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||50px||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u201cI don\u2019t know how to thank you for all that you do and have done for Progeria families. I frequently tell people who don\u2019t know about PRF how lucky we are to have you helping our kids. Please know that you have made a huge difference in our lives.\u201d<\/p>\n

– Stephanie, Cam\u2019s mom<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Meghan-and-family.png” title_text=”Meghan-and-family” admin_label=”Meghan and her parents” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Meghan and parent caption” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″]<\/p>\n

Meghan & her parents; USA<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Meghan & Bill quote” _builder_version=”4.21.0″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” hover_enabled=”0″ global_colors_info=”{}” width__hover_enabled=”on|desktop” sticky_enabled=”0″ width__hover=”100%”]<\/p>\n

\u201cWhen we first found out that Meghan had Progeria (at age 2), the average life expectancy was 13 years old\u2026 we thought 13 years was a long way away, and it came so fast! And now she\u2019s 19, she\u2019s healthy, she\u2019s strong, she puts her mind to what she wants to accomplish in her life and she just goes for it.<\/p>\n

When we found The Progeria Research Foundation, I had an extreme moment of relief, comforted by the fact that there was someone in our corner working on this problem. They approach solving the problem with such excellence that I know together we WILL find the cure!\u201d<\/p>\n

\u2013 Bill, Meghan\u2019s dad, 2021<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Terry-and-Zach.png” title_text=”Terry-and-Zach” admin_label=”Zach and his friend, Terry” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”||0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Zach and his friend, Terry caption” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Zach & his friend, Terry; USA <\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Zach & Terry quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0\u201cWhile I wish PRF had existed for my daughter Amy, who passed away in 1985, I was blessed to have her, and it\u2019s a blessing that PRF is now here for the children and their parents. \u201d<\/p>\n

\u2013 Terry, Amy\u2019s mom<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Erin-and-Brennan-1.png” title_text=”Erin-and-Brennan-(1)” admin_label=”Erin and Brennan” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Brennen & his mom;USA” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Brennen & his mom; USA<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Brennan & Erin quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0\u201cPRF has blessed us with the gift of hope in our fight to find a cure for Progeria. When Brennen was first diagnosed, we were lost and distraught, not knowing where to turn to next, but the caring staff and loving families we\u2019ve met through PRF have stood beside us every step of the way. We have truly gained a Progeria community family.\u201d<\/p>\n

\u2013 Erin, Brennen\u2019s mom<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Alexandra-parents.png” title_text=”Alexandra–parents” admin_label=”Alexandra and her parents” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”||0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Alexandra & her parents; Spain” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Alexandra & her parents; Spain<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Zach & Tina quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0\u201cWe’re eternally grateful to PRF for giving us the light and hope we needed when we realized that our 2-year-old daughter, Alexandra, was the only case of Progeria in Spain. The wonderful PRF team and their network of incredible professionals welcomed us with open arms \u2013 they gave us all their love and support and have accompanied us on this hard journey, including Alexandra in their clinical trials, giving us guidelines to improve her quality of life and investigating without rest to find a cure for our daughter. To those who\u2019ve supported PRF along the way, we greatly appreciate your collaboration with PRF so that Alexandra and her peers have a bright future.\u201d<\/p>\n

\u2013 Cedric, Alexandra\u2019s dad<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/kaylee-17th-bday-1.png” title_text=”kaylee-17th-bday-(1)” admin_label=”Kaylee celebrates her 17th birthday” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Kaylee celebrates her 17th birthday;USA” _builder_version=”4.21.0″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″]<\/p>\n

Kaylee celebrates her 17th<\/sup> birthday in 2021; USA<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Marla, Kaylee\u2019s mom quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0\u201cTo me, The Progeria Research Foundation means hope and support. It’s scary dealing with a rare disease, and I know that if I have any questions, they’ll do their best to help. They’ve also helped parents with Progeria connect to share their experiences. I know they\u2019re working hard to find new treatments and a cure, and I can’t imagine life without The Progeria Research Foundation.\u201d<\/p>\n

\u2013 Marla, Kaylee\u2019s mom<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/shreyash-3.png” title_text=”shreyash-3″ admin_label=”Shreyash and his family; India” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Shreyash & his family;India” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Shreyash & his family; India<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Arvind, Shreyash\u2019s dad quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0\u201cIn 2017, we learned about PRF and that our son, Shreyash, could get treated. PRF came as a ray of hope and has supported us in so many ways. They considered each and every detail during our trip to Boston so that we were comfortable, including accommodations and travel, as well as covering our trip back to India. Because of PRF, we have hope. Also, the love that Shreyash gets from PRF is impeccable. I don\u2019t think anyone has ever done so much.”<\/p>\n

– Arvind, Shreyash\u2019s dad<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Zoey-family-.png” title_text=”Zoey-family-” admin_label=”Zoey and her parents; USA” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Zoey & her parents;USA” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Zoey & her parents; USA<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Laura, Zoey\u2019s mom quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0\u201cPRF is our lifeline\u2026 a family\u2026 our hope for amazing things to come.\u201d<\/p>\n

\u2013 Laura, Zoey\u2019s mom<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Nathan-Bennett-and-fam.png” title_text=”Nathan-&-Bennett-and-fam” admin_label=”Nathan and Bennett and family; USA” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Nathan, Bennett & family;USA” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Nathan, Bennett & family; USA<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Laura, Zoey\u2019s mom quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0\u201cWe want the same as everyone else \u2013 we want our boys to grow up\u2026 PRF is our hope and keeps us going.\u201d\u00a0<\/p>\n

– Phyllis (Nathan and Bennett\u2019s mom)<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Aahan.png” title_text=”Aahan” admin_label=”Aahan and his parents; India” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Aahan & his parents;India” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Aahan & his parents; India<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Manish Maheshwari, Aahan\u2019s Dad” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0\u201cThe Progeria Research Foundation and their clinical team are doing a terrific job and they have a very good sense of service. They have done a lot for us and we extend our heartfelt gratitude and best wishes to them.\u201d<\/p>\n

– Manish Maheshwari, Aahan\u2019s Dad<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Prachi-2.png” title_text=”Prachi-2″ admin_label=”Prachi and her dad, India” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Prachi & her dad;India” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Prachi & her dad; India<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Bikash, Prachi\u2019s dad quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0\u201cAfter visiting Mumbai for Prachi’s check-up initially, we first learned about Progeria, and we were worried. But that timely call from PRF helped us to be at peace. Once we visited Boston (for Prachi\u2019s clinical trial), we realized the phenomenal work done by PRF, who has over the years become a strong support system for us. I am thankful to them and hope to see them fulfill all of Prachi\u2019s dreams.\u201d\u00a0<\/p>\n

– Bikash, Prachi\u2019s dad<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Sammy-and-parents.gif” title_text=”Sammy-and-parents” admin_label=”Sammy and his parents, Italy” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Sammy & his parents;Italy” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Sammy & his parents; Italy<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Amerigo and Laura, Sammy’s dad and mom quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

<\/div>\n
“When the doctors diagnosed Sammy with Progeria, we knew nothing about this disease, so we searched online, and we found PRF. We met Audrey Gordon in 2000, along with Leslie, Scott, and Sam, and we became fast friends. In 2006, they invited Sammy for Progeria clinical testing, followed by the first Progeria clinical trial. It was like a door, full of hope, was opening for us…<\/div>\n
<\/div>\n
PRF did and is doing exceptional things. We knew from the start that they put their heart and soul into helping all the teens and children with this disease. We immediately gained a great family.<\/div>\n
<\/div>\n
For us, PRF is such a lifeline… PRF gives us great hope. When we come to Boston, we feel safe, we have no fear for the clinical trials, nor for the new drugs… because we know that they are working also with their own heart, and this is very important to us!<\/div>\n
<\/div>\n
-Amerigo and Laura, Sammy’s dad and mom<\/strong><\/div>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Zein-with-his-mom.png” title_text=”Zein-with-his-mom” admin_label=”Zein and his mom; Egypt” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Zein & his mom;Egypt” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Zein & his mom; Egypt<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Dina, Zein\u2019s mom quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0\u201cI cannot find words to describe how happy I felt during this trip [to Boston, for Zein\u2019s lonafarnib treatment], with the encouragement and hope of every person I met. I thank you for giving us the power to fight Progeria.\u201d<\/p>\n

\u2013 Dina, Zein\u2019s mom<\/strong><\/p>\n

 <\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/aaditya.png” title_text=”aaditya” admin_label=”Aaditya and his family; India” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Aaditya & his family;India” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Aaditya & his family; India<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Dina, Zein\u2019s mom quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0“We learned Aaditya had Progeria in 2014. The Progeria Research Foundation was a blessing coming into our life. With their help, we\u2019ve been able to successfully provide our child with medical assistance that we never would have known about. Over the past few years, PRF\u2019s support has helped him physically, as well as emotionally. We are very thankful to them. My son, Aaditya keeps talking about his trip and carries good memories from the USA.”<\/p>\n

– Uttam, Aaditya\u2019s dad<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ module_class=”footer” _builder_version=”4.21.0″ background_color=”#29327a” custom_margin=”-2px|||||” custom_padding=”0|0px|0|0px|false|false” z_index_tablet=”500″ border_width_top=”12px” border_color_top=”#00b2e2″ global_module=”133″ locked=”off” global_colors_info=”{}”][et_pb_row column_structure=”1_4,1_4,1_2″ make_equal=”on” module_class=” et_pb_row_fullwidth” _builder_version=”4.16″ width=”89%” width_tablet=”80%” width_phone=”” width_last_edited=”on|desktop” max_width=”89%” max_width_tablet=”80%” max_width_phone=”” max_width_last_edited=”on|desktop” z_index_tablet=”500″ make_fullwidth=”on” width_unit=”off” custom_width_percent=”100%” global_colors_info=”{}”][et_pb_column type=”1_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_cta button_url=”https:\/\/www.progeriaresearch.org\/newsletter-signup\/” button_text=”Sign Up Now” admin_label=”Sign Up for Newsletter” module_class=”sign-btn” _builder_version=”4.16″ header_font_size=”25px” background_color=”#29327a” animation_style=”slide” animation_direction=”left” animation_intensity_slide=”25%” header_font_size_tablet=”” header_font_size_phone=”30px” header_font_size_last_edited=”on|desktop” z_index_tablet=”500″ border_radii=”on|25px|25px|25px|25px” global_colors_info=”{}” button_bg_color__hover_enabled=”on” button_bg_color__hover=”#8fd2ed” button_border_color__hover_enabled=”on”]<\/p>\n

Sign Up<\/h2>\n

for Our<\/h2>\n

Newsletter!<\/h2>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_cta button_url=”https:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR” button_text=”Donate Now” admin_label=”Together, we will find the cure!” module_class=”sign-btn” _builder_version=”4.16″ header_font_size=”25px” background_color=”#29327a” animation_style=”slide” animation_direction=”left” animation_intensity_slide=”25%” header_font_size_tablet=”” header_font_size_phone=”30px” header_font_size_last_edited=”on|desktop” body_font_size_tablet=”” body_font_size_phone=”” body_font_size_last_edited=”on|desktop” z_index_tablet=”500″ border_radii=”on|25px|25px|25px|25px” global_colors_info=”{}” button_bg_color__hover_enabled=”on” button_bg_color__hover=”#8fd2ed” button_border_color__hover_enabled=”on”]<\/p>\n

Together, we<\/h2>\n

WILL<\/em><\/h2>\n

find the cure!<\/h2>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2022\/11\/footerstrip2022-1200-\u00d7-300-px-1.png” title_text=”footerstrip2022 (1200 \u00d7 300 px) (1)” _builder_version=”4.18.1″ _module_preset=”default” custom_margin=”35px||||false|false” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"

\u0986\u09ae\u09be\u09a6\u09c7\u09b0 \u09b8\u09ae\u09cd\u09aa\u09cd\u09b0\u09a6\u09be\u09af\u09bc\u09c7\u09b0 \u09aa\u09b0\u09bf\u09ac\u09be\u09b0\u09c7\u09b0 \u0995\u09be\u099b \u09a5\u09c7\u0995\u09c7 PRF \u09b8\u09ae\u09cd\u09aa\u09b0\u09cd\u0995\u09c7 \u0995\u09bf\u099b\u09c1 \u09b6\u09ac\u09cd\u09a6 \u0986\u09ae\u09b0\u09be \u0985\u09ad\u09bf\u09ad\u09be\u09ac\u0995\u09a6\u09c7\u09b0 \u099c\u09bf\u099c\u09cd\u099e\u09be\u09b8\u09be \u0995\u09b0\u09c7\u099b\u09bf \u09a4\u09be\u09a6\u09c7\u09b0 \u0995\u09be\u099b\u09c7 PRF \u09ac\u09b2\u09a4\u09c7 \u0995\u09c0 \u09ac\u09cb\u099d\u09be\u09af\u09bc, \u098f\u09ac\u0982 \u09a4\u09be\u09a6\u09c7\u09b0 \u09aa\u09cd\u09b0\u09a4\u09bf\u0995\u09cd\u09b0\u09bf\u09af\u09bc\u09be \u09a6\u09c7\u0996\u09c7 \u0985\u09ad\u09bf\u09ad\u09c2\u09a4 \u09b9\u09af\u09bc\u09c7\u099b\u09bf!<\/p>","protected":false},"author":1,"featured_media":12103,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-11093","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"\nPRF Family Quotes | The Progeria Research Foundation<\/title>\n<meta name=\"description\" content=\"A few words on PRF from the families in our communityWe asked parents what PRF has meant to them, and were overwhelmed by their responses!\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/bn\/prf-family-quotes\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" 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