{"id":12877,"date":"2022-11-15T11:20:35","date_gmt":"2022-11-15T16:20:35","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=12877"},"modified":"2026-04-13T16:57:30","modified_gmt":"2026-04-13T20:57:30","slug":"prfs-11th-international-scientific-workshop","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/bn\/2022\/11\/15\/prfs-11th-international-scientific-workshop\/","title":{"rendered":"PRF \u098f\u09b0 11 \u09a4\u09ae \u0986\u09a8\u09cd\u09a4\u09b0\u09cd\u099c\u09be\u09a4\u09bf\u0995 \u09ac\u09c8\u099c\u09cd\u099e\u09be\u09a8\u09bf\u0995 \u0995\u09b0\u09cd\u09ae\u09b6\u09be\u09b2\u09be \u098f\u0995\u099f\u09bf \u09b8\u09ab\u09b2 \u099b\u09bf\u09b2!"},"content":{"rendered":"

[et_pb_section fb_built=”1″ fullwidth=”on” disabled_on=”off|off|off” _builder_version=”4.16″ border_width_bottom=”55px” border_color_bottom=”#29327a” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_fullwidth_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2021\/11\/2022-Banner-NewDates.jpg” title_text=”2022 Banner NewDates” _builder_version=”4.16″ custom_padding=”20px|||” z_index_tablet=”500″ global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_fullwidth_image][\/et_pb_section][et_pb_section fb_built=”1″ use_custom_gutter=”on” gutter_width=”1″ specialty=”on” padding_left_1=”35px” padding_left_2=”35px” padding_2_tablet=”|||0px” padding_2_phone=”|||0px” padding_2_last_edited=”on|desktop” module_class_1=”sidebar-secondary-nav” module_class=”handprint-bg” _builder_version=”4.16″ background_image=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/blue-handprint-only.png” parallax=”on” parallax_method=”off” inner_width=”100%” inner_max_width=”100%” custom_padding=”0|0px|0px|0px|false|false” z_index_tablet=”500″ border_width_top=”10px” border_color_top=”#8fd2ed” use_custom_width=”on” width_unit=”off” custom_width_percent=”100%” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”1_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||” theme_builder_area=”post_content”][et_pb_sidebar area=”et_pb_widget_area_24″ disabled_on=”on|on|off” admin_label=”Scientific meetings sidebar” module_class=”subpage-sidebars” _builder_version=”4.16″ text_orientation=”left” animation_style=”fade” z_index_tablet=”500″ border_width_right=”5px” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_sidebar][\/et_pb_column][et_pb_column type=”3_4″ specialty_columns=”3″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||” theme_builder_area=”post_content”][et_pb_row_inner custom_padding_last_edited=”on|phone” _builder_version=”4.16″ custom_padding=”39.4375px|35px|35px|12px|false|false” custom_padding_tablet=”|35px||35px||true” custom_padding_phone=”” animation_direction=”top” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

PRF\u2019s 2022 PRF International Scientific Workshop<\/strong> \u2013 Race Progeria to the Cure,<\/em> was an overwhelming success, bringing together 124 registrants from 14 countries<\/strong>. Leading physicians, researchers, and families with Progeria met in Boston, MA, to share the latest findings in Progeria research and set the stage for future efforts to discover new treatments and the cure for children and young adults with Progeria.<\/p>\n

We kicked off opening night with our first-ever panel moderated by an adult with Progeria<\/strong>, 27-year-old Sammy Basso, of Tezze sul Brenta, Italy. The panel also featured two others living with Progeria, Meg and Carlos, who captivated the audience by sharing the new and exciting activities they\u2019ve recently accomplished in the past year. Quite excitingly, Meg graduated from college early, a month after the workshop! Opening night also a included a live zoom with children around the world<\/strong>, followed by a surprise musical performance by Dr. Francis Collins<\/strong>, Science Advisor to the President of the U.S. and whose lab led the discovery of the Progeria gene. Dr. Collins serenaded the audience with several popular songs with modified lyrics about PRF\u2019s progress toward the cure. How special!<\/p>\n

Profound progress and collaboration like this can only happen when a deeply committed scientific community comes together as we have for 11 international meetings.<\/strong><\/p>\n

The love and passion to help these children and young adults was expressed in each and every presentation, and has already resulted in many cross-continental collaborations to explore additional treatments and pathways to a cure.<\/p>\n

We\u2019re thrilled to share this first night with you.<\/p>\n

[\/et_pb_text][et_pb_button button_url=”https:\/\/www.youtube.com\/watch?v=dkADdswqWN0″ button_text=”Click Here to Watch the Opening Night of the 2022 Workshop” admin_label=”wkshp video” _builder_version=”4.19.5″ _module_preset=”default” button_text_color=”#FFFFFF” button_bg_color=”#00B2E2″ button_border_width=”6px” button_border_color=”#00B2E2″ background_layout=”dark” custom_margin=”30px||30px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_text _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Days two and three of the workshop centered around 28 oral scientific presentations and 26 posters<\/strong>. We began day three with a new addition to the workshop: the Sunrise Session, which connected junior investigators with senior leaders in the field in a small group setting, inciting compelling dialogue among the various groups of researchers.<\/p>\n

Bringing back another workshop favorite, our lightning round gave poster presenters a platform to deliver their peers a dynamic teaser of the posters they would later present that evening. These presentations highlighted the latest developments in clinical research on Progeria, including a deep dive into the transformational progress of RNA therapeutics and gene editing<\/strong> in preclinical studies, as well as a cardiac session that highlighted intervention strategies for critical aortic stenosis<\/strong> in young adults with Progeria. The presentations and posters detailed the depth of progress with potential Progeria treatments, and inspired future collaboration between the research and medical communities.<\/p>\n

In addition, several attendees took advantage of the continuing medical education (CME) credits offered through Lifespan Rhode Island Hospital\u2019s CME office.<\/p>\n

[\/et_pb_text][et_pb_text _builder_version=”4.19.5″ _module_preset=”default” custom_padding=”||3px|||” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Examples of some of the workshop feedback are as follows:<\/strong><\/p>\n

[\/et_pb_text][et_pb_testimonial _builder_version=”4.18.1″ _module_preset=”default” background_color=”#8FD2ED” custom_padding=”||0px|||” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

\"\"<\/p>\n

\u201cAwesome meeting. I thought Wednesday night was fantastic. Leslie gave an awesome talk. It was great to have a progeria patient lead the panel. Panel is always a highlight. Thank you for asking Francis to come back to sing. I love that part as well! Meeting was so well organized. Thank you!\u201d<\/strong><\/p>\n

\u201cI always look forward to this meeting. The [workshop location] Royal Sonesta is an exceptional space for the meeting; every aspect was perfectly planned!\u201d<\/strong><\/p>\n

\u201cEvery time, I can see improvement\u2026 just continue in this way! It was very impressive the \u201cfamily atmosphere\u201d able to make everyone more relaxed and more comfortable to learn and ask questions. Fun and instructive, such a great injection of hope!\u201d<\/strong><\/p>\n

\u201cExcellent conference with phenomenal speakers!\u201d<\/strong><\/p>\n

\u201cAs always, outstanding Workshop, can’t be missed!\u201d<\/strong><\/p>\n

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Sammy and Carlos talking before they give their panel presentation<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column_inner][et_pb_column_inner type=”1_2″ saved_specialty_column_type=”3_4″ _builder_version=”4.18.1″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2022\/12\/Collinsguitar2022.jpg” title_text=”Collinsguitar2022″ align=”center” admin_label=”FrancisCollinsguitar” _builder_version=”4.18.1″ _module_preset=”default” custom_margin=”||16px|||” custom_padding=”|94px||||” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_image][et_pb_text _builder_version=”4.18.1″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Francis Collins, MD, PhD performing for the audience several popular songs<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=”4.18.1″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.18.1″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2022\/12\/2022Group-Photo.jpg” title_text=”2022Group Photo” align=”center” admin_label=”Group photo” _builder_version=”4.18.1″ _module_preset=”default” custom_margin=”||12px|||” custom_padding=”|23px||||” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_image][et_pb_text _builder_version=”4.18.1″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Researchers, clinicians, and Progeria families from around the world convened at PRF\u2019s 11th<\/sup> International Scientific Workshop.<\/strong><\/p>\n

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The volunteer Medical Research Committee met before the conference to review new and exciting grant proposals.<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text disabled_on=”off|off|off” _builder_version=”4.18.1″ _module_preset=”default” custom_margin=”||-40px|||” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Thank you to our Sponsors:<\/h3>\n

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\u09af\u09be\u09b0\u09be \u09aa\u09cd\u09b0\u09cb\u099c\u09c7\u09b0\u09bf\u09af\u09bc\u09be \u09b0\u09bf\u09b8\u09be\u09b0\u09cd\u099a \u09ab\u09be\u0989\u09a8\u09cd\u09a1\u09c7\u09b6\u09a8\u09c7\u09b0 11 \u09a4\u09ae \u0986\u09a8\u09cd\u09a4\u09b0\u09cd\u099c\u09be\u09a4\u09bf\u0995 \u09ac\u09c8\u099c\u09cd\u099e\u09be\u09a8\u09bf\u0995 \u0995\u09b0\u09cd\u09ae\u09b6\u09be\u09b2\u09be\u09af\u09bc \u0985\u0982\u09b6 \u09a8\u09bf\u09af\u09bc\u09c7\u099b\u09bf\u09b2\u09c7\u09a8 \u09a4\u09be\u09a6\u09c7\u09b0 \u09b8\u09ac\u09be\u0987\u0995\u09c7 \u09a7\u09a8\u09cd\u09af\u09ac\u09be\u09a6 \u2013 RACE Progeria to the Cure!<\/p>","protected":false},"author":2,"featured_media":13885,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2,1],"tags":[],"class_list":["post-12877","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-uncategorized"],"yoast_head":"\nPRF\u2019s 11th International Scientific Workshop | The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/bn\/2022\/11\/15\/prfs-11th-international-scientific-workshop\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"PRF\u2019s 11th International Scientific Workshop | The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"Thank you to all of those who attended The Progeria Research Foundation\u2019s 11th International Scientific Workshop \u2013 RACE Progeria to the Cure!\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.progeriaresearch.org\/bn\/2022\/11\/15\/prfs-11th-international-scientific-workshop\/\" \/>\n<meta property=\"og:site_name\" content=\"The Progeria Research Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/ProgeriaResearch\/\" \/>\n<meta property=\"article:published_time\" content=\"2022-11-15T16:20:35+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-04-13T20:57:30+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2021\/05\/CoolKid2.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"388\" \/>\n\t<meta property=\"og:image:height\" 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