No family should navigate Progeria alone. PRF offers several ways to meet other families, stay informed, and find community — wherever you are in the world.

Group Family Video Conference

Hosted annually, these video conferences bring PRF families together to connect, ask questions, and hear directly from PRF's Medical Director, Dr. Leslie Gordon, on research progress and upcoming clinical trial plans.

• Introduce yourself and meet other registered families
• Hear updates on past and future clinical trial plans
• Ask questions in a safe, open space — your doctor is welcome too

When do calls happen?

Once a year, typically in the Fall.

What languages are offered?

Multi-language calls use Zoom's AI closed captioning. You're also welcome to bring your own translator.

Can my doctor join?

Yes — please let us know when you respond to your invite so we can plan accordingly.

How do I join?

PRF will reach out to you directly with an invitation.

Interested in being notified?

Please reach out to Darrien Marazzo at [email protected].