{"id":732,"date":"2017-02-25T21:00:58","date_gmt":"2017-02-25T21:00:58","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=732"},"modified":"2026-01-20T13:52:52","modified_gmt":"2026-01-20T18:52:52","slug":"quick-facts","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/de\/quick-facts\/","title":{"rendered":"Schnelle Fakten"},"content":{"rendered":"<p>[et_pb_section fb_built=\u201d1\u2033 fullwidth=\u201don\u201d disabled_on=\u201doff|off|off\u201d _builder_version=\u201d4.16\u2033 border_width_bottom=\u201d55px\u201d border_color_bottom=\u201d#29327a\u201d global_colors_info=\u201d{}\u201d][et_pb_fullwidth_header _builder_version=\u201d4.16\u2033 title_font_size=\u201d55\u2033 background_color=\u201d#29327a\u201d background_image=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/About-Header.jpg\u201d background_position=\u201dcenter_left\u201d custom_padding=\u201d9vw||9vw||true\u201d custom_padding_tablet=\u201d\u201d custom_padding_phone=\u201d|56px||\u201d custom_padding_last_edited=\u201dauf|Desktop\u201d title_font_size_tablet=\u201d45px\u201d title_font_size_phone=\u201d40px\u201d title_font_size_last_edited=\u201dauf|Telefon\u201d z_index_tablet=\u201d500\u2033 custom_css_main_element=\u201dHintergrundposition: Mitte 18% !wichtig;\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<h1>Progerie<\/h1>\n<h1>Schnelle Fakten<\/h1>\n<p>[\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 specialty=\u201don\u201d padding_left_1=\u201d35px\u201d padding_left_2=\u201d35px\u201d padding_2_tablet=\u201d|||0px\u201d padding_2_phone=\u201d|||0px\u201d padding_2_last_edited=\u201don|desktop\u201d module_class_1=\u201dsidebar-secondary-nav\u201d module_class=\u201dhandprint-bg\u201d _builder_version=\u201d4.16\u2033 background_image=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/blue-handprint-only.png\u201d parallax=\u201don\u201d parallax_method=\u201doff\u201d inner_width=\u201d100%\u201d inner_max_width=\u201d100%\u201d custom_padding=\u201d0|0px|54px|0px|false|false\u201d z_index_tablet=\u201d500\u2033 border_width_top=\u201d10px\u201d border_color_top=\u201d#8fd2ed\u201d use_custom_width=\u201dan\u201d width_unit=\u201daus\u201d custom_width_percent=\u201d100%\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_sidebar area=\u201det_pb_widget_area_16\u2033 disabled_on=\u201dan|an|aus\u201d module_class=\u201dUnterseiten-Seitenleisten\u201d _builder_version=\u201d4.16\u2033 animation_style=\u201dverblassen\u201d z_index_tablet=\u201d500\u2033 border_width_right=\u201d5px\u201d global_colors_info=\u201d{}\u201d]<br \/>\n[\/et_pb_sidebar][\/et_pb_column][et_pb_column Typ=\u201d3_4\u2033 Spezialspalten=\u201d3\u2033 _builder_version=\u201d4.16\u2033 benutzerdefiniertes_Padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_row_inner column_structure=\u201d1_2,1_2\u2033 custom_padding_last_edited=\u201dam|Telefon\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d39.4375px|35px|0px||false|false\u201d custom_padding_tablet=\u201d|35px||35px||true\u201d custom_padding_phone=\u201d\u201d animation_direction=\u201doben\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner type=\u201d1_2\u2033 saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dPRF IN ZAHLEN \u201d _builder_version=\u201d4.27.4\u2033 header_4_font_size=\u201d24px\u201d animation_direction=\u201dtop\u201d hover_enabled=\u201d0\u2033 z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d sticky_enabled=\u201d0\u2033]<\/p>\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">\n<h4><strong>PRF IN ZAHLEN\u00a0<\/strong><\/h4>\n<p><em>Stand: 31. Dezember 2025<\/em><\/p>\n<ul>\n<li>Identifizierte Kinder\/junge Erwachsene mit Progerie und progeroiden Laminopathien: 213* in 51 L\u00e4ndern<\/li>\n<li>*155 dieser Kinder\/jungen Erwachsenen haben das Hutchinson-Gilford-Progerie-Syndrom (HGPS oder Progerie), die anderen 58 haben progeroide Laminopathien.<\/li>\n<li>PRF-finanzierte klinische Arzneimittelstudien zu Progerie: 5<\/li>\n<li>Finanzierte Zusch\u00fcsse: 85, insgesamt $9,3 Millionen<\/li>\n<li>Zelllinien in der PRF Zell- und Gewebebank: 211<\/li>\n<li>Kinder in der medizinischen Forschungsdatenbank von PRF: 224<\/li>\n<li>Internationale wissenschaftliche Tagungen zum Thema Progerie: 15<\/li>\n<li>Anzahl der Sprachen, in die die Programm- und medizinischen Versorgungsmaterialien von PRF \u00fcbersetzt werden: 37<\/li>\n<\/ul>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column_inner][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_cta title=&#8221;Mission&#8221; button_url=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2026\/01\/Quick-Facts-December-31-2025-FINAL.pdf&#8221; url_new_window=&#8221;on&#8221; button_text=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rIiwic2V0dGluZ3MiOnsiYmVmb3JlIjoiIiwiYWZ0ZXIiOiIiLCJ0ZXh0IjoicG9zdF90aXRsZSIsImN1c3RvbV90ZXh0IjoiIn19@&#8221; admin_label=&#8221;Fact sheet pdf &#038; Call to Action&#8221; _builder_version=&#8221;4.27.4&#8243; _dynamic_attributes=&#8221;button_text&#8221; background_color=&#8221;#29327a&#8221; custom_margin=&#8221;|||35px&#8221; custom_margin_tablet=&#8221;|||0px&#8221; custom_margin_phone=&#8221;&#8221; custom_margin_last_edited=&#8221;on|desktop&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;right&#8221; animation_intensity_slide=&#8221;25%&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p>Entdeckung von Behandlungsm\u00f6glichkeiten und Heilmitteln f\u00fcr die Hutchinson-Gilford-Progerie und ihre altersbedingten St\u00f6rungen, einschlie\u00dflich Herzerkrankungen.<\/p>\n<p>&nbsp;<\/p>\n<p>[\/et_pb_cta][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;0px|35px|35px||false|false&#8221; custom_padding_tablet=&#8221;|35px||35px||true&#8221; custom_padding_phone=&#8221;&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text admin_label=&#8221;What is Progeria? &#8221; _builder_version=&#8221;4.27.4&#8243; header_4_font_size=&#8221;24px&#8221; custom_margin=&#8221;30px||30px||true&#8221; animation_direction=&#8221;top&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">\n<h4><strong>Was ist Progerie?\u00a0<\/strong><\/h4>\n<p>Progerie, auch bekannt als Hutchinson-Gilford-Progerie-Syndrom (HGPS), ist eine seltene, t\u00f6dliche genetische Erkrankung, die zu \u201eschnellem Altern\u201c bei Kindern f\u00fchrt. Ohne Behandlung mit Lonafarnib (Zokinvy) sterben alle Kinder mit Progerie an derselben Herzkrankheit, die Millionen normal alternder Erwachsener betrifft (Arteriosklerose), allerdings im Durchschnittsalter von nur 14,5 Jahren. Bemerkenswerterweise ist ihr Intellekt nicht beeintr\u00e4chtigt, und trotz erheblicher k\u00f6rperlicher Ver\u00e4nderungen in ihren jungen K\u00f6rpern sind diese au\u00dfergew\u00f6hnlichen Kinder intelligent, mutig und voller Leben.<\/p>\n<p>Weitere Informationen zu den Ursachen von Progerie erhalten Sie hier: <a href=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/02\/What-is-Progeria-from-LATS.mp4\" target=\"_blank\" rel=\"noopener noreferrer\">Hier<\/a> um ein kurzes \u00dcbersichtsvideo mit Kommentaren von Dr. Leslie Gordon anzusehen, entnommen aus <em>Das Leben nach Sam<\/em> (2013).<\/p>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][et_pb_text admin_label=&#8221;Text&#8221; _builder_version=&#8221;4.27.4&#8243; header_font=&#8221;||||||||&#8221; header_4_font=&#8221;||||||||&#8221; header_4_font_size=&#8221;24px&#8221; animation_direction=&#8221;top&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">\n<h4><strong>\u00dcber PRF<\/strong><\/h4>\n<p>Die Progeria Research Foundation (PRF) wurde 1999 gegr\u00fcndet von\u00a0<a href=\"mailto:lgordon@progeriaresearch.org\">Dr. Leslie Gordon<\/a> Scott Berns, die Eltern eines Kindes mit Progerie, und viele engagierte Freunde und Familienmitglieder erkannten den Bedarf an einer medizinischen Forschungsressource f\u00fcr \u00c4rzte, Patienten und Angeh\u00f6rige von Progerie-Betroffenen. Seitdem ist die PRF die treibende Kraft hinter der Entdeckung des Progerie-Gens und der Entwicklung des ersten Medikaments gegen Progerie. Die PRF hat Programme und Dienstleistungen entwickelt, um Betroffene und Wissenschaftler, die Progerie-Forschung betreiben, zu unterst\u00fctzen. Heute ist die PRF die einzige gemeinn\u00fctzige Organisation, die sich ausschlie\u00dflich der Suche nach Therapien und einer Heilung f\u00fcr Progerie widmet. Die PRF gilt als Paradebeispiel f\u00fcr eine erfolgreiche translationale Forschungsorganisation, die innerhalb von nur 13 Jahren von der Gr\u00fcndung \u00fcber die Genentdeckung bis hin zur Entwicklung des ersten Medikaments alles erreicht hat.<\/p>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=\u201d1_2,1_2\u2033 custom_padding_last_edited=\u201dam|Telefon\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d0px|35px|0px||false|false\u201d custom_padding_tablet=\u201d|35px|50px|35px||true\u201d custom_padding_phone=\u201d\u201d animation_direction=\u201doben\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner type=\u201d1_2\u2033 saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dGesamt gesammelte Dollar\u201d _builder_version=\u201d4.16\u2033 header_text_align=\u201dcenter\u201d header_font_size=\u201d41px\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n<h1>Gesamtumsatz<\/h1>\n<p>[\/et_pb_text][et_pb_number_counter title=&#8221;1999 through December 31, 2025&#8243; number=&#8221;103,569,806&#8243; percent_sign=&#8221;off&#8221; disabled_on=&#8221;on|on|off&#8221; admin_label=&#8221;Number Counter&#8221; module_class=&#8221;dollar&#8221; _builder_version=&#8221;4.27.4&#8243; title_level=&#8221;h5&#8243; number_font_size=&#8221;65px&#8221; custom_margin=&#8221;36px||36px||true&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<br \/>\n[\/et_pb_number_counter][et_pb_number_counter title=&#8221;1999 through December 31, 2025&#8243; number=&#8221;103,569,806&#8243; percent_sign=&#8221;off&#8221; disabled_on=&#8221;off|off|on&#8221; module_class=&#8221;dollar&#8221; _builder_version=&#8221;4.27.4&#8243; title_level=&#8221;h5&#8243; title_font=&#8221;||||||||&#8221; number_font=&#8221;||||||||&#8221; number_font_size=&#8221;60px&#8221; custom_margin=&#8221;36px||36px||true&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<br \/>\n[\/et_pb_number_counter][\/et_pb_column_inner][et_pb_column_inner Typ=\u201d1_2\u2033 gespeicherte_Spezialit\u00e4t_Spaltentyp=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 benutzerdefinierte_Padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d benutzerdefinierte_Padding__hover=\u201d|||\u201d][et_pb_text _builder_version=\u201d4.24.0\u2033 benutzerdefinierte_Padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p>Mehr als 801 Millionen Tonnen der j\u00e4hrlichen Ausgaben der PRF flie\u00dfen konsequent in deren Programme und Dienste \u2013 ein Faktor, der uns zehn Jahre in Folge die begehrte 4-Sterne-Bewertung von Charity Navigator eingebracht hat.<\/p>\n<p>Die Unterst\u00fctzung, die wir erhalten haben, hat die Entdeckung des Progeria-Gens, die klinischen Studien zu Progeria und all unsere anderen au\u00dfergew\u00f6hnlichen Fortschritte m\u00f6glich gemacht. Mit der Hilfe aktueller und neuer Unterst\u00fctzer k\u00f6nnen wir\u00a0<em>Wille<\/em>\u00a0Gewinnen Sie diesen Wettlauf gegen die Zeit und finden Sie Behandlungsm\u00f6glichkeiten und Heilung f\u00fcr diese besonderen Kinder. Dar\u00fcber hinaus k\u00f6nnen Entdeckungen zur Behandlung von Progerie auch Millionen von Menschen mit Herzerkrankungen und der gesamten alternden Bev\u00f6lkerung helfen.<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=\u201d4.16\u2033 Hintergrundfarbe=\u201d#29327a\u201d benutzerdefinierter_Rand=\u201d41px||\u201d benutzerdefinierter_Rand_Tablet=\u201d0px||\u201d custom_margin_phone=\u201d\u201d custom_margin_last_edited=\u201dam|Telefon\u201d custom_padding=\u201d39.4375px|20px|35px|20px|false|true\u201d Animationsstil=\u201dFolie\u201d Animationsrichtung=\u201drechts\u201d Animationsintensit\u00e4tsfolie=\u201d25%\u201d z_index_tablet=\u201d500\u2033 Rahmenbreite_unten=\u201d10px\u201d Rahmenfarbe_unten=\u201d#8fd2ed\u201d Boxschattenstil=\u201dVoreinstellung1\u2033 Boxschattenblur=\u201d38px\u201d Boxschattenspread=\u201d-12px\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dPRF-Programme und -Dienste\u201d _builder_version=\u201d4.16\u2033 text_orientation=\u201dcenter\u201d background_layout=\u201ddark\u201d custom_padding=\u201d|10px||10px||true\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n<h1 data-fontsize=\"34\" data-lineheight=\"48\">Programme und Dienste von PRF<\/h1>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=&#8221;1_2,1_2&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;39.4375px|35px|0px||false|false&#8221; custom_padding_tablet=&#8221;|35px||35px||true&#8221; custom_padding_phone=&#8221;&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text admin_label=&#8221;First-Ever Progeria Clinical Drug Trials and Treatment&#8221; _builder_version=&#8221;4.27.4&#8243; link_text_color=&#8221;#00b2e2&#8243; header_4_font_size=&#8221;24px&#8221; custom_margin=&#8221;|||&#8221; custom_padding_tablet=&#8221;||35px&#8221; custom_padding_phone=&#8221;&#8221; custom_padding_last_edited=&#8221;on|desktop&#8221; animation_direction=&#8221;top&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">\n<h4><strong>Erste Progerie\u00a0<a href=\"https:\/\/www.progeriaresearch.org\/de\/clinical-trials\/\">Klinische Arzneimittelstudien<\/a><\/strong>\u00a0<strong>und Behandlung<\/strong><\/h4>\n<p>Im Rahmen der von der PRF gef\u00f6rderten klinischen Arzneimittelstudien werden Kinder aus aller Welt mit vielversprechenden Behandlungen versorgt, die zur Linderung der Krankheit und zur Verl\u00e4ngerung des Lebens von Kindern mit Progerie beitragen k\u00f6nnen.<\/p>\n<p><i>Im Jahr 2020 wurde Geschichte geschrieben: Die US-amerikanische Arzneimittelbeh\u00f6rde FDA erteilte die Zulassung f\u00fcr Lonafarnib (Handelsname Zokinvy\u2122), einen Farnesyltransferase-Inhibitor (FTI), als erste Behandlungsmethode f\u00fcr Progerie und progeroide Laminopathien. Lonafarnib verbessert nachweislich viele Aspekte der Erkrankung, darunter das lebenswichtige Gef\u00e4\u00dfsystem, und verl\u00e4ngert die durchschnittliche \u00dcberlebenszeit um 4,3 Jahre. F\u00fcr weitere Informationen zu dieser wichtigen Neuigkeit klicken Sie hier. <a href=\"https:\/\/www.progeriaresearch.org\/de\/2023\/03\/15\/progerinbiomarker\/\">Hier<\/a>. <\/i><\/p>\n<p>Im Jahr 2016 leitete PRF eine Studie mit zwei Medikamenten ein, bei der auch Everolimus hinzukam. In der Hoffnung, dass die Kombination der beiden Medikamente noch wirksamer sei als Lonafarnib allein. <i>Dies sind bemerkenswerte Fortschritte auf der Suche nach einer Heilung.\u00a0<\/i><\/p>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column_inner][et_pb_column_inner type=\u201d1_2\u2033 saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta title=\u201dLasst uns die Heilung finden!\u201d button_url=\u201dhttps:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR\u201d button_text=\u201dJetzt spenden\u201d _builder_version=\u201d4.16\u2033 header_font=\u201d||||||||\u201d Hintergrundfarbe = \u201e#00b2e2\u201c benutzerdefinierte Schaltfl\u00e4che = \u201eein\u201c Schaltfl\u00e4chentextfarbe = \u201e#ffffff\u201c Schaltfl\u00e4chenschriftart = \u201e|||||||||\u201c globale Farbinfo = \u201e{}\u201c]<\/p>\n<div id=\"pastingspan1\">\n<article>Ihre Spende hilft der Progeria Research Foundation\u00a0<\/article>\n<article><em><strong>behandeln<\/strong><\/em>\u00a0Kinder mit Progerie heute<\/article>\n<\/div>\n<div>Und\u00a0<em><strong>Heilung<\/strong><\/em><strong>\u00a0<\/strong>sie in der Zukunft.<\/div>\n<p>[\/et_pb_cta][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=\u201dam|Telefon\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d39.4375px|35px|0px||false|false\u201d custom_padding_tablet=\u201d|35px||35px||true\u201d custom_padding_phone=\u201d\u201d animation_direction=\u201doben\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_toggle title=\u201dInternationales Progerie-Register \u201d open=\u201don\u201d open_toggle_background_color=\u201d#f7f7f7\u2033 closed_toggle_text_color=\u201d#ffffff\u201d closed_toggle_background_color=\u201d#00b2e2\u2033 icon_color=\u201d#ffc15e\u201d open_icon_color=\u201d#ffc15e\u201d admin_label=\u201dInternationales Progerie-Register \u201d _builder_version=\u201d4.16\u2033 title_text_color=\u201d#00b2e2\u2033 background_color=\u201d#ffffff\u201d custom_margin=\u201d10px||10px||true\u201d custom_padding=\u201d|50px||50px||true\u201d Animationsstil=\u201dFolie\u201d Animationsrichtung=\u201doben\u201d Animationsintensit\u00e4t_Folie=\u201d25%\u201d z_index_tablet=\u201d500\u2033 border_width_all=\u201d0px\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p>Verwaltet zentral Informationen \u00fcber Kinder und Familien, die mit Progerie leben. Dies gew\u00e4hrleistet eine schnelle Verbreitung aller neuen Informationen, die den Kindern von Nutzen sein k\u00f6nnen.<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/de\/international-registry\/\" target=\"_blank\" rel=\"noopener noreferrer\">Mehr erfahren<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=\u201dZell- und Gewebebank\u201d open_toggle_background_color=\u201d#f7f7f7\u2033 closed_toggle_text_color=\u201d#ffffff\u201d closed_toggle_background_color=\u201d#00b2e2\u2033 icon_color=\u201d#ffc15e\u201d open_icon_color=\u201d#ffc15e\u201d admin_label=\u201dZell- und Gewebebank\u201d _builder_version=\u201d4.16\u2033 title_text_color=\u201d#00b2e2\u2033 background_color=\u201d#ffffff\u201d custom_margin=\u201d10px||10px||true\u201d custom_padding=\u201d|50px||50px||true\u201d animation_style=\u201dslide\u201d animation_direction=\u201doben\u201d animation_intensity_slide=\u201d25%\u201d z_index_tablet=\u201d500\u2033 border_width_all=\u201d0px\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p>Die PRF-Bank stellt Forschern genetisches und biologisches Material von Progeriepatienten und ihren Familien zur Verf\u00fcgung, damit Forschungen zu Progerie und anderen altersbedingten Krankheiten durchgef\u00fchrt werden k\u00f6nnen, die uns der Heilung n\u00e4her bringen. PRF hat beeindruckende 214 Zelllinien von betroffenen Kindern und ihren Familienangeh\u00f6rigen aus aller Welt gesammelt, darunter 10 induzierte pluripotente Stammzelllinien (iPSC).<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/de\/cell-and-tissue-bank\/\">Mehr erfahren<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=\u201dDatenbank f\u00fcr Medizin und Forschung\u201d open_toggle_background_color=\u201d#f7f7f7\u2033 closed_toggle_text_color=\u201d#ffffff\u201d closed_toggle_background_color=\u201d#00b2e2\u2033 icon_color=\u201d#ffc15e\u201d open_icon_color=\u201d#ffc15e\u201d admin_label=\u201dDatenbank f\u00fcr Medizin und Forschung\u201d _builder_version=\u201d4.16\u2033 title_text_color=\u201d#00b2e2\u2033 background_color=\u201d#ffffff\u201d custom_margin=\u201d10px||10px||true\u201d custom_padding=\u201d|50px||50px||true\u201d animation_style=\u201dslide\u201d animation_direction=\u201doben\u201d animation_intensity_slide=\u201d25%\u201d z_index_tablet=\u201d500\u2033 border_width_all=\u201d0px\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p>Die Datenbank ist eine zentrale Sammlung medizinischer Informationen von Progeriepatienten aus aller Welt. Die Daten werden sorgf\u00e4ltig analysiert, damit wir mehr \u00fcber Progerie erfahren und Behandlungsempfehlungen entwickeln k\u00f6nnen. Im Jahr 2010 floss diese Analyse in das umfassende Gesundheitshandbuch der PRF zu Progerie ein, das auf die Optimierung der Lebensqualit\u00e4t abzielt. Das Handbuch ist auf Englisch, Spanisch, Portugiesisch, Russisch und Italienisch erh\u00e4ltlich.<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/de\/medical-database\/\">Mehr erfahren<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=\u201dDiagnosetests\u201d open_toggle_background_color=\u201d#f7f7f7\u2033 closed_toggle_text_color=\u201d#ffffff\u201d closed_toggle_background_color=\u201d#00b2e2\u2033 icon_color=\u201d#ffc15e\u201d open_icon_color=\u201d#ffc15e\u201d admin_label=\u201dDiagnosetests\u201d _builder_version=\u201d4.19.4\u2033 title_text_color=\u201d#00b2e2\u2033 background_color=\u201d#ffffff\u201d custom_margin=\u201d10px||10px||true\u201d custom_padding=\u201d|50px||50px||true\u201d animation_style=\u201dslide\u201d animation_direction=\u201doben\u201d animation_intensity_slide=\u201d25%\u201d z_index_tablet=\u201d500\u2033 border_width_all=\u201d0px\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p>Dieses Programm wurde im Zuge der Genentdeckung im Jahr 2003 entwickelt, damit Kinder, ihre Familien und medizinisches Personal eine definitive, wissenschaftliche Diagnose erhalten k\u00f6nnen. Dies kann zu einer fr\u00fcheren Diagnose, weniger Fehldiagnosen und einer fr\u00fchzeitigen medizinischen Intervention f\u00fchren, um den Kindern eine bessere Lebensqualit\u00e4t zu gew\u00e4hrleisten.<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/de\/the-prf-diagnostic-testing-program\/\">Mehr erfahren<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;Scientific Workshops on Progeria&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;Scientific Workshops on Progeria&#8221; _builder_version=&#8221;4.27.4&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<ul>\n<li>Die PRF hat 14 wissenschaftliche Konferenzen organisiert, die Wissenschaftler und Kliniker aus aller Welt zusammengebracht haben, um ihr Fachwissen und neueste wissenschaftliche Erkenntnisse auszutauschen. Diese Workshops f\u00f6rdern die Zusammenarbeit im Kampf gegen diese verheerende Krankheit.<\/li>\n<\/ul>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/de\/scientific-meetings\/\">Mehr erfahren<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=\u201dForschungsstipendien\u201d open_toggle_background_color=\u201d#f7f7f7\u2033 closed_toggle_text_color=\u201d#ffffff\u201d closed_toggle_background_color=\u201d#00b2e2\u2033 icon_color=\u201d#ffc15e\u201d open_icon_color=\u201d#ffc15e\u201d admin_label=\u201dForschungsstipendien\u201d _builder_version=\u201d4.16\u2033 title_text_color=\u201d#00b2e2\u2033 background_color=\u201d#ffffff\u201d custom_margin=\u201d10px||10px||true\u201d custom_padding=\u201d|50px||50px||true\u201d animation_style=\u201dslide\u201d animation_direction=\u201doben\u201d animation_intensity_slide=\u201d25%\u201d z_index_tablet=\u201d500\u2033 border_width_all=\u201d0px\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p>Durch Peer-Review durch unser freiwilliges medizinisches Forschungskomitee hat PRF Projekte auf der ganzen Welt finanziert, die zu wichtigen Entdeckungen \u00fcber Progerie, Herzkrankheiten und Alterung gef\u00fchrt haben. Das Forschungsprogramm von PRF wurde im September 2018 aktualisiert, um den aktuellen Forschungsbedarf in den Bereichen Progerie, Alterung und Herzkrankheiten widerzuspiegeln.<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/de\/grants-funded\/\">Mehr erfahren<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=\u201dVer\u00f6ffentlichungen &amp; Forschung\u201d open_toggle_background_color=\u201d#f7f7f7\u2033 closed_toggle_text_color=\u201d#ffffff\u201d closed_toggle_background_color=\u201d#00b2e2\u2033 icon_color=\u201d#ffc15e\u201d open_icon_color=\u201d#ffc15e\u201d admin_label=\u201dVer\u00f6ffentlichungen &amp; Forschung\u201d _builder_version=\u201d4.16\u2033 title_text_color=\u201d#00b2e2\u2033 background_color=\u201d#ffffff\u201d custom_margin=\u201d10px||10px||true\u201d custom_padding=\u201d|50px||50px||true\u201d animation_style=\u201dslide\u201d animation_direction=\u201doben\u201d animation_intensity_slide=\u201d25%\u201d z_index_tablet=\u201d500\u2033 border_width_all=\u201d0px\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p>Sowohl klinische als auch Grundlagenforscher haben die PRF-Zusch\u00fcsse, Zellen und Gewebe sowie die Datenbank genutzt; ihre Entdeckungen werden in erstklassigen wissenschaftlichen Zeitschriften ver\u00f6ffentlicht. Die durchschnittliche j\u00e4hrliche Anzahl wissenschaftlicher Ver\u00f6ffentlichungen zu Progerie ist seit 2002 mehr als 20 Mal so hoch wie in den vorangegangenen 50 Jahren!<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/de\/scientific-publications\/\">Mehr erfahren<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=\u201dPRF-\u00dcbersetzungsprogramm\u201d open_toggle_background_color=\u201d#f7f7f7\u2033 closed_toggle_text_color=\u201d#ffffff\u201d closed_toggle_background_color=\u201d#00b2e2\u2033 icon_color=\u201d#ffc15e\u201d open_icon_color=\u201d#ffc15e\u201d admin_label=\u201dPRF-\u00dcbersetzungsprogramm\u201d _builder_version=\u201d4.16\u2033 title_text_color=\u201d#00b2e2\u2033 background_color=\u201d#ffffff\u201d custom_margin=\u201d10px||10px||true\u201d custom_padding=\u201d|50px||50px||true\u201d animation_style=\u201dslide\u201d animation_direction=\u201doben\u201d animation_intensity_slide=\u201d25%\u201d z_index_tablet=\u201d500\u2033 border_width_all=\u201d0px\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p><strong><em>In Kontakt mit der Welt<\/em><\/strong>. Mit seiner starken globalen Pr\u00e4senz beseitigt PRF Kommunikationsbarrieren f\u00fcr Patienten und ihre Familien auf der ganzen Welt. Im Rahmen dieser Initiative konnten PRF-Programme und medizinisches Pflegematerial erfolgreich in 38 Sprachen \u00fcbersetzt werden.<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/de\/translators-needed\/\">Mehr erfahren<\/a><\/p>\n<p>[\/et_pb_toggle][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=\u201d1_2,1_2\u2033 custom_padding_last_edited=\u201dam|Telefon\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d39.4375px|35px|0px||false|false\u201d custom_padding_tablet=\u201d|35px||35px||true\u201d custom_padding_phone=\u201d\u201d animation_direction=\u201doben\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner type=\u201d1_2\u2033 saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d custom_css_main_element=\u201dwidth: 30% !important;\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/Sammy-Basso-in-USA-Square.jpg\u201d align=\u201dcenter\u201d align_tablet=\u201dcenter\u201d align_phone=\u201d\u201d align_last_edited=\u201don|desktop\u201d _builder_version=\u201d4.16\u2033 border_radii=\u201don|100%|100%|100%|100%\u201d global_colors_info=\u201d{}\u201d]<br \/>\n[\/et_pb_image][\/et_pb_column_inner][et_pb_column_inner type=\u201d1_2\u2033 saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d custom_css_main_element=\u201dwidth: 70% !important;\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text _builder_version=\u201d4.27.4\u2033 text_font=\u201d||||||||\u201d link_font=\u201d||||||||\u201d link_text_color=\u201d#00b2e2\u2033 header_font=\u201d||||||||\u201d header_4_font=\u201d||||||||\u201d header_4_font_size=\u201d24px\u201d custom_margin=\u201d|||\u201d custom_margin_tablet=\u201d|||25px\u201d custom_margin_phone=\u201d\u201d custom_margin_last_edited=\u201don|desktop\u201d custom_padding=\u201d||50px\u201d animation_direction=\u201dtop\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">\n<h4>\u00d6ffentliches Bewusstsein<\/h4>\n<p>Auf unserer Website finden Sie die neuesten Informationen zur Progerieforschung und Unterst\u00fctzung f\u00fcr Familien. <strong><a href=\"https:\/\/www.facebook.com\/ProgeriaResearch\">auf facebook.<\/a>,\u00a0<a href=\"https:\/\/www.tiktok.com\/@progeriaresearch\">TikTok, <\/a><a href=\"https:\/\/www.instagram.com\/progeriaresearch\/\">Instagram<\/a>, <a href=\"http:\/\/www.youtube.com\/progeriaresearchorg\">YouTube<\/a>, <a href=\"https:\/\/www.linkedin.com\/company\/3520192\">LinkedIn<\/a>, <\/strong>und anderen Medien erreicht PRF direkt \u00fcber 1 Million Menschen in den sozialen Medien. PRFs Geschichte wurde auf CNN, ABC News, Primetime, Dateline, der Katie Couric Show, NPR, Associated Press und der Today Show, in den Zeitschriften Time und People, der New York Times, dem Wall Street Journal und vielen anderen weit verbreiteten Medien ver\u00f6ffentlicht. Dar\u00fcber hinaus wurde der preisgekr\u00f6nte HBO-Film von 2013 <a href=\"https:\/\/www.progeriaresearch.org\/de\/life-according-to-sam\/\"><strong><em>Das Leben nach Sam<\/em><\/strong><\/a> hat auf einzigartige und inspirierende Weise das Bewusstsein gesch\u00e4rft. PRF verwaltet auch\u00a0<strong><a href=\"https:\/\/www.progeriaresearch.org\/de\/find-the-children\/\" target=\"_blank\" rel=\"noopener noreferrer\">Finde die Kinder<\/a><\/strong>, eine globale Aufkl\u00e4rungskampagne, um weltweit Kinder mit Progerie zu finden, damit sie die einzigartige Hilfe bekommen, die sie brauchen.<\/p>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=\u201d4.16\u2033 Hintergrundfarbe=\u201d#29327a\u201d benutzerdefinierter_Margin=\u201d41px||\u201d benutzerdefinierter_Margin_Tablet=\u201d0px||\u201d custom_margin_phone=\u201d\u201d custom_margin_last_edited=\u201dam|Telefon\u201d custom_padding=\u201d39.4375px|20px|35px|20px|false|true\u201d Animationsstil=\u201dFolie\u201d Animationsrichtung=\u201drechts\u201d Animationsintensit\u00e4tsfolie=\u201d25%\u201d z_index_tablet=\u201d500\u2033 Rahmenbreite_unten=\u201d10px\u201d Rahmenfarbe_unten=\u201d#8fd2ed\u201d Boxschattenstil=\u201dVoreinstellung1\u2033 Boxschattenblur=\u201d38px\u201d Boxschattenspread=\u201d-12px\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dWer ist wer bei PRF?\u201d _builder_version=\u201d4.16\u2033 text_orientation=\u201dcenter\u201d background_layout=\u201ddark\u201d custom_padding=\u201d|10px||10px||true\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n<h1 data-fontsize=\"34\" data-lineheight=\"48\">Wer ist wer bei PRF?<\/h1>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=\u201dam|Telefon\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d39.4375px|35px|0px||false|false\u201d custom_padding_tablet=\u201d|35px||35px||true\u201d custom_padding_phone=\u201d\u201d animation_direction=\u201doben\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_team_member name=\u201d Audrey Gordon, Esq.\u201d position=\u201dPr\u00e4sidentin und Gesch\u00e4ftsf\u00fchrerin\u201d image_url=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/Audrey-gala-09-square.jpg\u201d admin_label=\u201d Audrey Gordon, Esq.\u201d module_class=\u201dprf-person-module\u201d _builder_version=\u201d4.16\u2033 custom_margin=\u201d||45px\u201d link_option_url=\u201dmailto:agordon@progeriaresearch.org\u201d link_option_url_new_window=\u201don\u201d z_index_tablet=\u201d500\u2033 locked=\u201doff\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p>In enger Zusammenarbeit mit dem Vorstand, den leitenden Angestellten, dem Personal und den Freiwilligen ist Frau Gordon f\u00fcr das Tagesgesch\u00e4ft und die Sicherstellung des finanziellen Wachstums und der Programmentwicklung der Progeria Research Foundation verantwortlich.<\/p>\n<p>[\/et_pb_team_member][et_pb_team_member name=\u201dLeslie Gordon, MD, PhD\u201d position=\u201d\u00c4rztlicher Direktor\u201d image_url=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/Lelsiesp.jpg\u201d admin_label=\u201dLeslie Gordon, MD, PhD\u201d module_class=\u201dprf-person-module\u201d _builder_version=\u201d4.16\u2033 custom_margin=\u201d||45px\u201d link_option_url=\u201dmailto:Leslie_Gordon@brown.edu\u201d link_option_url_new_window=\u201don\u201d z_index_tablet=\u201d500\u2033 locked=\u201doff\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p>Dr. Gordon gr\u00fcndete PRF zusammen mit Freunden und Familie, nachdem bei ihrem Sohn Sam Progerie diagnostiziert wurde. Dr. Gordon beaufsichtigt die forschungsbezogenen Programme von PRF und ist Co-Vorsitzende der klinischen Arzneimittelstudien zu Progerie. Sie ist au\u00dferordentliche Professorin f\u00fcr p\u00e4diatrische Forschung an der Warren Alpert Medical School der Brown University und am Hasbro Children&#039;s Hospital in Providence, RI, und wissenschaftliche Mitarbeiterin am Boston Children&#039;s Hospital und der Harvard Medical School.<\/p>\n<p>[\/et_pb_team_member][et_pb_team_member name=&#8221;Scott D. Berns, MD, MPH, FAAP&#8221; position=&#8221;Chair, Board of Directors&#8221; image_url=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/Scott-Berns.jpg&#8221; admin_label=&#8221;Scott D. Berns, MD, MPH, FAAP&#8221; module_class=&#8221;prf-person-module&#8221; _builder_version=&#8221;4.27.4&#8243; custom_margin=&#8221;||45px&#8221; link_option_url=&#8221;mailto:sberns@progeriaresearch.org&#8221; link_option_url_new_window=&#8221;on&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p>Dr. Berns, Sams Vater, ist Mitbegr\u00fcnder der Progeria Research Foundation und deren Vorstandsvorsitzender. Er ist Facharzt f\u00fcr Kinderheilkunde und klinischer Professor f\u00fcr P\u00e4diatrie an der Alpert Medical School der Brown University.<br \/>Er ist vor Kurzem als Pr\u00e4sident und CEO des National Institute for Children&#039;s Health Quality, einer unabh\u00e4ngigen, gemeinn\u00fctzigen Organisation, die sich f\u00fcr die Verbesserung der Kindergesundheit einsetzt, in den Ruhestand getreten.<\/p>\n<p>[\/et_pb_team_member][et_pb_team_member name=&#8221;Carlos Luiz Silva&#8221; position=&#8221;PRF Ambassador&#8221; image_url=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2025\/03\/Carlos-WhatsApp-from-Tatiana-3-12-25.jpeg&#8221; admin_label=&#8221;Carlos&#8221; module_class=&#8221;prf-person-module&#8221; _builder_version=&#8221;4.27.4&#8243; position_font=&#8221;|700|||||||&#8221; position_text_color=&#8221;#00B2E2&#8243; custom_margin=&#8221;||45px&#8221; hover_enabled=&#8221;0&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p align=\"left\">Carlos engagiert sich als Jugendbotschafter der PRF und teilt seine einzigartigen Erfahrungen mit Progerie in verschiedenen Medien. Seit seiner Diagnose mit vier Jahren begeistert er sich f\u00fcr Spielzeug, das mit Bauen und Konstruieren zu tun hat. Carlos ist bekannt f\u00fcr seine au\u00dfergew\u00f6hnliche Freundlichkeit und Intelligenz und bringt mit seiner Herzlichkeit und seinem Humor die Menschen stets zum L\u00e4cheln. Heute besucht er die neunte Klasse einer Privatschule in Cambridge, Massachusetts, wo er Naturwissenschaften und Geschichte liebt und plant, sp\u00e4ter entweder einen naturwissenschaftlichen oder einen juristischen Abschluss zu machen. Carlos ist ein sehr mutiger und willensstarker Mensch, der alles, was er sich vornimmt, mit gro\u00dfem Einsatz angeht und seine Tr\u00e4ume niemals aufgibt.<\/p>\n<p>[\/et_pb_team_member][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 module_class=\u201dfooter\u201d _builder_version=\u201d4.21.0\u2033 background_color=\u201d#29327a\u201d custom_margin=\u201d-2px|||||\u201d custom_padding=\u201d0|0px|0|0px|false|false\u201d z_index_tablet=\u201d500\u2033 border_width_top=\u201d12px\u201d border_color_top=\u201d#00b2e2\u2033 global_module=\u201d133\u2033 locked=\u201doff\u201d global_colors_info=\u201d{}\u201d][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 make_equal=\u201don\u201d module_class=\u201d et_pb_row_fullwidth\u201d _builder_version=\u201d4.16\u2033 width=\u201d89%\u201d width_tablet=\u201d80%\u201d width_phone=\u201d\u201d width_last_edited=\u201don|desktop\u201d max_width=\u201d89%\u201d max_width_tablet=\u201d80%\u201d max_width_phone=\u201d\u201d max_width_last_edited=\u201dauf|Desktop\u201d z_index_tablet=\u201d500\u2033 make_fullwidth=\u201dan\u201d width_unit=\u201daus\u201d custom_width_percent=\u201d100%\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/lp.constantcontactpages.com\/sl\/88gWWwz\u201d button_text=\u201dJetzt anmelden\u201d admin_label=\u201dF\u00fcr Updates anmelden\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.27.4\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d link_option_url=\u201dhttps:\/\/lp.constantcontactpages.com\/sl\/88gWWwz\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201dan|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201dan|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201dan\u201d button_bg_color__hover=\u201d#8fd2ed\u201d button_border_color__hover_enabled=\u201dan\u201d]<\/p>\n<h2>Melden Sie sich an<\/h2>\n<h2>f\u00fcr unsere<\/h2>\n<h2>Neuigkeiten!<\/h2>\n<p>[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR\u201d button_text=\u201dJetzt spenden\u201d admin_label=\u201dGemeinsam werden wir die Heilung finden!\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d body_font_size_tablet=\u201d\u201d body_font_size_phone=\u201d\u201d body_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201don|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201don\u201d button_bg_color__hover=\u201d#8fd2ed\u201d button_border_color__hover_enabled=\u201dein\u201d]<\/p>\n<h2>Gemeinsam<\/h2>\n<h2><em>WILLE<\/em><\/h2>\n<h2>Finde die Heilung!<\/h2>\n<p>[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2025\/05\/2025-strip-for-website-footer-no-years.png\u201d title_text=\u201d2025-Streifen f\u00fcr Website-Fu\u00dfzeile ohne Jahresangaben\u201d _builder_version=\u201d4.27.4\u2033 _module_preset=\u201ddefault\u201d custom_margin=\u201d35px||||false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"<p>Die Progeria Research Foundation hat umfangreiche Forschungsarbeiten durchgef\u00fchrt, um weltweit auf das Thema aufmerksam zu machen. Erfahren Sie mehr in unserem kurzen Faktenblatt.<\/p>","protected":false},"author":1,"featured_media":638,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<p>[vc_row][vc_column][vc_custom_heading text=\"Progeria Quick Facts\" font_container=\"tag:h1|text_align:center\" use_theme_fonts=\"yes\" link=\"url:https%3A%2F%2Fwww.progeriaresearch.org%2Fwp-content%2Fuploads%2F2017%2F02%2FPRF-QUICKFACTS-as-of-July-1.pdf||\"][vc_column_text]<\/p><p style=\"text-align: left;\" align=\"center\"><strong><img class=\"alignnone size-full wp-image-1469\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/04\/iconPDF.gif\" alt=\"\" width=\"34\" height=\"20\" \/> <a href=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/3REVISED-PRF-QUICKFACTS-as-of-April-1-2019.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">QUICK FACTS<\/a><\/strong><\/p><p style=\"text-align: left;\" align=\"center\"><strong>MISSION: <\/strong>To Discover Treatments and the Cure for Hutchinson-Gilford Progeria Syndrome and its Aging-related Disorders, Including Heart Disease.<\/p><p><strong>PRF BY THE NUMBERS\u00a0<\/strong>as of April 1, 2019<\/p><ul><li>Identified children living with Progeria: 157* in 49 countries<\/li><li>PRF-sponsored Progeria Clinical Drug Trials: 5<\/li><li>Grants funded: 70, totaling $7.7 million<\/li><li>Cell lines in the PRF Cell & Tissue Bank: 212<\/li><li>Children in PRF\u2019s Medical & Research Database:\u00a0 178<\/li><li>International Scientific Meetings on Progeria: 11<\/li><li>Number of languages into which PRF\u2019s program and medical care materials are translated: 38<\/li><\/ul><p>*Includes 37 children in the Progeroid Laminopathy category who have\u00a0a mutation in the Lamin pathway, but do not produce progerin.[\/vc_column_text][vc_column_text]<\/p><h1>What is Progeria?<\/h1><p>Progeria, also known as Hutchinson-Gilford Progeria Syndrome (HGPS), is a rare, fatal genetic condition of accelerated aging in children. Children with Progeria die of the same heart disease that affects millions of normally aging adults (arteriosclerosis), but at an average age of just 14 years. Remarkably, their intellect is unaffected, and despite significant physical changes in their young bodies, these extraordinary children are intelligent, courageous, and full of life.[\/vc_column_text][vc_column_text]<\/p><h1>About PRF<\/h1><p>The Progeria Research Foundation (PRF) was established in 1999 by\u00a0<a href=\"mailto:lgordon@progeriaresearch.org\">Drs. Leslie Gordon<\/a> and Scott Berns,\u00a0the parents of a child with Progeria,\u00a0along with many dedicated friends and family who saw the need for a medical research resource for the doctors, patients, and families of those with Progeria.\u00a0 Since that time, PRF has been the driving force behind the Progeria gene discovery and the first-ever Progeria drug treatment. PRF has developed programs and services to aid those affected by Progeria and the scientists who conduct Progeria research.\u00a0 Today, PRF is the only non-profit organization solely dedicated to finding treatments and the cure for Progeria. PRF is hailed as a prime example of a successful translational research organization, moving from creation, to gene discovery, to first-ever drug treatment in just 13 years.[\/vc_column_text][vc_column_text]<\/p><h1>Total Dollars Raised<\/h1><p style=\"text-align: left;\" align=\"center\"><em>1999 through December 31, 2018<\/em>: <strong>$29,821,446<\/strong><\/p><p>More than 80% of PRF\u2019s annual expenses are consistently dedicated to its programs and services - one factor in our achieving a coveted 4-star rating from Charity Navigator five years in a row.<\/p><p>The support we have received made the Progeria gene discovery, the Progeria clinical trials and all of our other extraordinary progress possible.\u00a0 With the help of current and new supporters, we <em>will<\/em> win this race against time and find treatments and the cure for these special children. Moreover, Progeria treatment discoveries may also help millions with heart disease and the entire aging population.[\/vc_column_text][vc_column_text css=\".vc_custom_1549556944835{background-color: #ffffff !important;}\"]<\/p><h1>PRF\u2019S PROGRAMS & SERVICES<\/h1><ul><li><strong>First-Ever Progeria <a href=\"https:\/\/www.progeriaresearch.org\/clinical-trials\/\">Clinical Drug Trials<\/a><\/strong> <strong>and Treatment<\/strong><strong>:<\/strong>\u00a0 PRF-Sponsored Clinical Drug Trials bring children from around the world for promising treatments that may help to improve disease and extend the lives of children with Progeria. \u00a0<i>In 2012, history was made with the discovery that lonafarnib, a farnesyltransferase inhibitor, or FTI, is the first-ever treatment for Progeria, improving many aspects of the disease including the vital vascular system . More recent studies conclude that lonafarnib extends estimated lifespan. <\/i>In 2016, PRF initiated a two-drug trial, adding Everolimus, with the hope that the two drugs together will be even more effective than lonafarnib alone.\u00a0<i>These are remarkable steps forward in the pursuit of a cure.\u00a0<\/i><\/li><\/ul><ul><li><a href=\"https:\/\/www.progeriaresearch.org\/international-progeria-registry\/\"><strong>International Progeria Registry<\/strong>\u00a0<\/a> maintains centralized information on children and families living with Progeria.\u00a0 This assures rapid distribution of any new information that may benefit the children.<\/li><\/ul><ul><li><strong><a href=\"https:\/\/www.progeriaresearch.org\/cell-and-tissue-bank\/\">Cell & Tissue Bank:<\/a> <\/strong>PRF\u2019s Bank provides researchers with genetic and biological material from Progeria patients and their families so research on Progeria and other aging-related diseases can be performed to bring us closer to the cure.\u00a0 PRF has collected an impressive 212 cell lines from affected children and their family members worldwide including 10 Induced Pluripotent Stem Cell (iPSC) lines.<\/li><\/ul><ul><li><strong><a href=\"https:\/\/www.progeriaresearch.org\/medical-database\/\">Medical & Research Database:<\/a> <\/strong>The Database is a centralized collection of medical information from Progeria patients worldwide.\u00a0 The data is rigorously analyzed to help us understand more about Progeria and devise treatment recommendations. In 2010, this analysis contributed to PRF\u2019s comprehensive healthcare Handbook on Progeria aimed at optimizing quality of life. The Handbook is available in English, Spanish and Portuguese, Russian & Italian.<\/li><\/ul><ul><li><a href=\"https:\/\/www.progeriaresearch.org\/the-prf-diagnostic-testing-program\/\"><strong>Diagnostic Testing<\/strong>:<\/a> This program was developed in the wake of the 2003 gene discovery so that children, their families and medical caretakers can get a definitive, scientific diagnosis.\u00a0 This can translate into earlier diagnosis, fewer misdiagnoses and early medical intervention to ensure a better quality of life for the children.<\/li><\/ul><ul><li><strong><a href=\"https:\/\/www.progeriaresearch.org\/scientific_meetings\/\">Scientific Workshops on Progeria:<\/a> <\/strong>PRF has organized 12 scientific conferences that have brought together scientists and clinicians from all over the world to share their expertise and cutting edge scientific data. \u00a0These workshops foster collaboration in the fight against this devastating disease. \u00a0The\u00a0next meeting is September 20-22, 2018 in Boston, MA.<\/li><\/ul><ul><li><a href=\"https:\/\/www.progeriaresearch.org\/grants-funded\/\"><strong>Research Grants:<\/strong><\/a>\u00a0Through peer review by our volunteer Medical Research Committee, PRF has funded projects throughout the world that have led to important discoveries about Progeria, heart disease and aging. PRF\u2019s research program has been updated as of September 2018 to reflect current research needs within the fields of Progeria, aging and heart disease.<\/li><\/ul><ul><li><strong><a href=\"https:\/\/www.progeriaresearch.org\/scientific-publications\/\">Publications and Research:<\/a> <\/strong>Both clinical and basic scientists have utilized the PRF grants, cells and tissues, and database; their discoveries are published in top-notch scientific journals.\u00a0 The average annual number of scientific publications on Progeria since 2002 is more than 20 times that of the previous 50 years!<\/li><\/ul><ul><li><strong><a href=\"https:\/\/www.progeriaresearch.org\/translators-needed\/\">PRF Translation Program:<\/a> <\/strong><strong><em>In touch with the world<\/em><\/strong>.\u00a0 With a prominent global presence, PRF eliminates barriers to communication for patients and their families, from around the world.\u00a0 This initiative has succeeded in translating PRF program and medical care materials into 38 languages.<\/li><\/ul><ul><li><strong>Public Awareness:<\/strong>\u00a0progeriaresearch.org provides access to the latest information on Progeria research and support for families. \u00a0Through <strong><a href=\"https:\/\/www.facebook.com\/ProgeriaResearch\">Facebook<\/a>, <a href=\"https:\/\/twitter.com\/Progeria\">Twitter<\/a><\/strong> and other mediums, PRF\u2019s direct social media reach is over 1 million. PRF\u2019s story has appeared on CNN, ABC News, Primetime, Dateline, The Katie Couric Show, and The Today Show, in Time and People magazines, The New York Times, The Wall Street Journal and many other widely-read media outlets. In addition, the award-winning 2013 HBO film <a href=\"https:\/\/www.progeriaresearch.org\/life-according-to-sam\/\"><strong><em>Life According to Sam<\/em><\/strong><\/a>\u00a0has raised awareness in a unique and inspiring way.\u00a0\u00a0PRF also manages\u00a0<strong><a href=\"https:\/\/www.findtheother150.org\/\">Find the Other 150<\/a><\/strong>,\u00a0a global awareness campaign to find children with Progeria worldwide, so they can get the unique help they need.<\/li><\/ul><p>[\/vc_column_text][vc_column_text]<\/p><h1>WHO\u2019S WHO AT PRF?<\/h1><p><strong><a href=\"mailto:agordon@progeriaresearch.org\">Audrey Gordon, Esq., President and Executive <b>Director<\/b><\/a><br \/><\/strong>Working closely with the Board of Directors, officers, staff, and volunteers, Ms. Gordon is responsible for day-to-day management and for ensuring The Progeria Research Foundation's financial growth and program development.<\/p><p><a href=\"mailto:Leslie_Gordon@brown.edu\"><strong>Leslie B. Gordon, MD, PhD, Medical Director, Co-Founder<\/strong><\/a><br \/>Dr. Gordon co-founded PRF with friends and family after her son, Sam, was diagnosed with Progeria. Dr. Gordon oversees PRF\u2019s research-related programs, and is a co-chair for the Progeria clinical drug trials.\u00a0 She is an Associate Professor of Pediatrics Research at the Warren Alpert Medical School of Brown University and Hasbro Children\u2019s Hospital in Providence, RI, and a Staff Scientist at Boston Children\u2019s Hospital and Harvard Medical School.<\/p><p><a href=\"mailto:sberns@progeriaresearch.org\"><strong>Scott D. Berns, MD, MPH, FAAP, PRF Chairman of the Board, Co-Founder<\/strong><\/a><br \/>Dr. Berns, Sam\u2019s father, is a co-founder of The Progeria Research Foundation and serves as Chairman of the Board.\u00a0 He is a Board Certified Pediatrician and Clinical Professor of Pediatrics at the Alpert Medical School of Brown University. He is also President and CEO of the National Institute for Children\u2019s Health Quality, an independent, nonprofit organization working to improve children\u2019s health.<\/p><p><b>Meghan Waldron, PRF\u2019s Youth Ambassador<br \/><\/b>Meghan serves as a spokesperson for PRF, from the perspective of a youth with Progeria. Accomplished cellist and violinist, high school cross country and track team athlete, published poet \u2013 Meghan is a talented and busy 18-year-old living in Massachusetts.[\/vc_column_text][\/vc_column][\/vc_row]<\/p>","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-732","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Quick Facts | The Progeria Research Foundation<\/title>\n<meta name=\"description\" content=\"The Progeria Research Foundation has done extensive research to bring awareness across the globe. Learn more through our quick facts sheet.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/de\/quick-facts\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Quick Facts | The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"The Progeria Research Foundation has done extensive research to bring awareness across the globe. Learn more through our quick facts sheet.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.progeriaresearch.org\/de\/quick-facts\/\" \/>\n<meta property=\"og:site_name\" content=\"The Progeria Research Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/ProgeriaResearch\/\" \/>\n<meta property=\"article:modified_time\" content=\"2026-01-20T18:52:52+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2016\/03\/Sammy-Basso-in-USA.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1280\" \/>\n\t<meta property=\"og:image:height\" content=\"960\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:title\" content=\"Quick Facts | The Progeria Research Foundation\" \/>\n<meta name=\"twitter:description\" content=\"The Progeria Research Foundation has done extensive research to bring awareness across the globe. Learn more through our quick facts sheet.\" \/>\n<meta name=\"twitter:image\" content=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2016\/03\/Sammy-Basso-in-USA.jpg\" \/>\n<meta name=\"twitter:site\" content=\"@Progeria\" \/>\n<meta name=\"twitter:label1\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"8 Minuten\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.progeriaresearch.org\/quick-facts\/\",\"url\":\"https:\/\/www.progeriaresearch.org\/quick-facts\/\",\"name\":\"Quick Facts | The Progeria Research Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/quick-facts\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/quick-facts\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2016\/03\/Sammy-Basso-in-USA.jpg\",\"datePublished\":\"2017-02-25T21:00:58+00:00\",\"dateModified\":\"2026-01-20T18:52:52+00:00\",\"description\":\"The Progeria Research Foundation has done extensive research to bring awareness across the globe. Learn more through our quick facts sheet.\",\"breadcrumb\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/quick-facts\/#breadcrumb\"},\"inLanguage\":\"de\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.progeriaresearch.org\/quick-facts\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"de\",\"@id\":\"https:\/\/www.progeriaresearch.org\/quick-facts\/#primaryimage\",\"url\":\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2016\/03\/Sammy-Basso-in-USA.jpg\",\"contentUrl\":\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2016\/03\/Sammy-Basso-in-USA.jpg\",\"width\":1280,\"height\":960,\"caption\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.progeriaresearch.org\/quick-facts\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.progeriaresearch.org\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Quick Facts\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#website\",\"url\":\"https:\/\/www.progeriaresearch.org\/ta\/\",\"name\":\"The Progeria Research Foundation\",\"description\":\"For the Children \u2665 For the Cure\",\"publisher\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.progeriaresearch.org\/ta\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"de\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#organization\",\"name\":\"The Progeria Research Foundation\",\"url\":\"https:\/\/www.progeriaresearch.org\/ta\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"de\",\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/05\/PRF_Logo_2019_optimized.png\",\"contentUrl\":\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/05\/PRF_Logo_2019_optimized.png\",\"width\":300,\"height\":86,\"caption\":\"The Progeria Research Foundation\"},\"image\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/ProgeriaResearch\/\",\"https:\/\/x.com\/Progeria\",\"https:\/\/www.instagram.com\/progeriaresearch\/\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Kurzinfo | Die Progerie-Forschungsstiftung","description":"Die Progeria Research Foundation hat umfangreiche Forschungsarbeiten durchgef\u00fchrt, um weltweit auf das Thema aufmerksam zu machen. Erfahren Sie mehr in unserem kurzen Faktenblatt.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.progeriaresearch.org\/de\/quick-facts\/","og_locale":"de_DE","og_type":"article","og_title":"Quick Facts | The Progeria Research Foundation","og_description":"The Progeria Research Foundation has done extensive research to bring awareness across the globe. Learn more through our quick facts sheet.","og_url":"https:\/\/www.progeriaresearch.org\/de\/quick-facts\/","og_site_name":"The Progeria Research Foundation","article_publisher":"https:\/\/www.facebook.com\/ProgeriaResearch\/","article_modified_time":"2026-01-20T18:52:52+00:00","og_image":[{"width":1280,"height":960,"url":"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2016\/03\/Sammy-Basso-in-USA.jpg","type":"image\/jpeg"}],"twitter_card":"summary_large_image","twitter_title":"Quick Facts | The Progeria Research Foundation","twitter_description":"The Progeria Research Foundation has done extensive research to bring awareness across the globe. Learn more through our quick facts sheet.","twitter_image":"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2016\/03\/Sammy-Basso-in-USA.jpg","twitter_site":"@Progeria","twitter_misc":{"Est. reading time":"8 Minuten"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/www.progeriaresearch.org\/quick-facts\/","url":"https:\/\/www.progeriaresearch.org\/quick-facts\/","name":"Kurzinfo | Die Progerie-Forschungsstiftung","isPartOf":{"@id":"https:\/\/www.progeriaresearch.org\/ta\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.progeriaresearch.org\/quick-facts\/#primaryimage"},"image":{"@id":"https:\/\/www.progeriaresearch.org\/quick-facts\/#primaryimage"},"thumbnailUrl":"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2016\/03\/Sammy-Basso-in-USA.jpg","datePublished":"2017-02-25T21:00:58+00:00","dateModified":"2026-01-20T18:52:52+00:00","description":"Die Progeria Research Foundation hat umfangreiche Forschungsarbeiten durchgef\u00fchrt, um weltweit auf das Thema aufmerksam zu machen. Erfahren Sie mehr in unserem kurzen Faktenblatt.","breadcrumb":{"@id":"https:\/\/www.progeriaresearch.org\/quick-facts\/#breadcrumb"},"inLanguage":"de","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.progeriaresearch.org\/quick-facts\/"]}]},{"@type":"ImageObject","inLanguage":"de","@id":"https:\/\/www.progeriaresearch.org\/quick-facts\/#primaryimage","url":"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2016\/03\/Sammy-Basso-in-USA.jpg","contentUrl":"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2016\/03\/Sammy-Basso-in-USA.jpg","width":1280,"height":960,"caption":""},{"@type":"BreadcrumbList","@id":"https:\/\/www.progeriaresearch.org\/quick-facts\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.progeriaresearch.org\/"},{"@type":"ListItem","position":2,"name":"Quick Facts"}]},{"@type":"WebSite","@id":"https:\/\/www.progeriaresearch.org\/ta\/#website","url":"https:\/\/www.progeriaresearch.org\/ta\/","name":"Die Progeria Research Foundation","description":"F\u00fcr die Kinder \u2665 F\u00fcr die Heilung","publisher":{"@id":"https:\/\/www.progeriaresearch.org\/ta\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.progeriaresearch.org\/ta\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"de"},{"@type":"Organization","@id":"https:\/\/www.progeriaresearch.org\/ta\/#organization","name":"Die Progeria Research Foundation","url":"https:\/\/www.progeriaresearch.org\/ta\/","logo":{"@type":"ImageObject","inLanguage":"de","@id":"https:\/\/www.progeriaresearch.org\/ta\/#\/schema\/logo\/image\/","url":"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/05\/PRF_Logo_2019_optimized.png","contentUrl":"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/05\/PRF_Logo_2019_optimized.png","width":300,"height":86,"caption":"The Progeria Research Foundation"},"image":{"@id":"https:\/\/www.progeriaresearch.org\/ta\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/ProgeriaResearch\/","https:\/\/x.com\/Progeria","https:\/\/www.instagram.com\/progeriaresearch\/"]}]}},"_links":{"self":[{"href":"https:\/\/www.progeriaresearch.org\/de\/wp-json\/wp\/v2\/pages\/732","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.progeriaresearch.org\/de\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.progeriaresearch.org\/de\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.progeriaresearch.org\/de\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.progeriaresearch.org\/de\/wp-json\/wp\/v2\/comments?post=732"}],"version-history":[{"count":0,"href":"https:\/\/www.progeriaresearch.org\/de\/wp-json\/wp\/v2\/pages\/732\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.progeriaresearch.org\/de\/wp-json\/wp\/v2\/media\/638"}],"wp:attachment":[{"href":"https:\/\/www.progeriaresearch.org\/de\/wp-json\/wp\/v2\/media?parent=732"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}