{"id":9181,"date":"2019-12-24T19:32:53","date_gmt":"2019-12-24T19:32:53","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=9181"},"modified":"2024-04-22T09:35:55","modified_gmt":"2024-04-22T13:35:55","slug":"international-registry-2","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/de\/international-registry-2\/","title":{"rendered":"Internationales Registrierungsprogramm"},"content":{"rendered":"

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Die PRF <\/span><\/span><\/h1>\n

Internationales <\/span><\/span><\/h1>\n

Progerie-Patient <\/span><\/span><\/h1>\n

Registrierung<\/span><\/span><\/span><\/h1>\n

<\/span><\/span><\/p>\n

 <\/p>\n

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\n[\/et_pb_sidebar][\/et_pb_column][et_pb_column Typ=\u201d3_4\u2033 Spezialspalten=\u201d3\u2033 _builder_version=\u201d4.16\u2033 benutzerdefinierte_Padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d benutzerdefinierte_Padding__hover=\u201d|||\u201d][et_pb_row_inner benutzerdefinierte_Padding_last_edited=\u201dam|Telefon\u201d deaktiviert_an=\u201dan|an|\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d39.4375px|35px|0px||false|false\u201d custom_padding_tablet=\u201d|35px||35px||true\u201d custom_padding_phone=\u201d\u201d animation_direction=\u201doben\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d][et_pb_column_inner saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dSEITENEINF\u00dcHRUNG FORSCHUNGSPROGRAMME\u201d _builder_version=\u201d4.24.3\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d hover_enabled=\u201d0\u2033 z_index_tablet=\u201d500\u2033 box_shadow_horizontal_tablet=\u201d0px\u201d box_shadow_vertical_tablet=\u201d0px\u201d box_shadow_blur_tablet=\u201d40px\u201d box_shadow_spread_tablet=\u201d0px\u201d global_colors_info=\u201d{}\u201d sticky_enabled=\u201d0\u2033]<\/p>\n

Die Progeria Research Foundation ist die globale Ressource f\u00fcr Progerieforschung und -aufkl\u00e4rung. Progerie ist eine \u00e4u\u00dferst seltene Erkrankung. Um die Pathologie und den nat\u00fcrlichen Verlauf des Syndroms besser zu verstehen, haben wir ein internationales Registrierungsprogramm eingerichtet.<\/p>\n

Das Register stellt Ressourcen f\u00fcr die Erforschung von Progerie bereit und pflegt eine zentrale Datenbank zu Kindern mit Progerie aus der ganzen Welt. Gleichzeitig dient es dazu, den Ideenaustausch zwischen Forschern zu verbessern und eine schnelle Verbreitung neuer Informationen zu gew\u00e4hrleisten, die den Patienten und ihren Familien von Nutzen sein k\u00f6nnen.<\/p>\n

Das Register kann in Situationen wie der Arzneimittelentwicklung durch Regierungsbeh\u00f6rden wie die US-amerikanische Food and Drug Administration gepr\u00fcft werden.<\/p>\n

Wir sind Ihnen f\u00fcr Ihre Mitarbeit bei der Registrierung und beim Einbringen von Informationen \u00fcber Kinder mit Progerie in das Register sehr dankbar. Wenn Sie Eltern, \u00c4rzte oder andere Vertreter eines Kindes mit Progerie sind, f\u00fcllen Sie bitte ein Registrierungsformular aus und senden Sie es an\u00a0<\/span>info@progeriaresearch.org<\/a>.<\/strong><\/p>\n

Vielen Dank im Voraus f\u00fcr die Teilnahme an Das internationale Progerie-Patientenregister der PRF<\/span>.<\/p>\n

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Melden Sie sich an<\/h2>\n

f\u00fcr unsere<\/h2>\n

Newsletter!<\/h2>\n

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Gemeinsam<\/h2>\n

WILLE<\/em><\/h2>\n

Finde die Heilung!<\/h2>\n

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Das internationale Progerie-Patientenregister der PRF Die Progeria Research Foundation ist die globale Ressource f\u00fcr Progerieforschung und -aufkl\u00e4rung. Progerie ist eine extrem seltene Erkrankung. Um die Pathologie und den nat\u00fcrlichen Verlauf des Syndroms besser zu verstehen, haben wir ein internationales Registrierungsprogramm eingerichtet. Das Register stellt Ressourcen f\u00fcr die Erforschung von Progerie bereit und pflegt [\u2026]<\/p>","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-9181","page","type-page","status-publish","hentry"],"yoast_head":"\nInternational registry | The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/de\/international-registry-2\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"International registry | The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"The PRF International Progeria Patient Registry   The Progeria Research Foundation is the global resource for Progeria research and education. Progeria is an ultra-rare condition. In order to better understand the pathology and natural course of the syndrome, we established an International Registry Program. 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