{"id":17925,"date":"2023-10-23T08:29:01","date_gmt":"2023-10-23T12:29:01","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=17925"},"modified":"2025-02-15T17:43:00","modified_gmt":"2025-02-15T22:43:00","slug":"global-launch-pc","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/de\/2023\/10\/23\/global-launch-pc\/","title":{"rendered":"Weltweite Einf\u00fchrung der brandneuen Familienbeteiligungsplattform Progeria Connect von PRF!"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;section&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;0px|||||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row admin_label=&#8221;row&#8221; _builder_version=&#8221;4.16&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_image src=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/10\/Screenshot-2023-10-20-122807.png&#8221; title_text=&#8221;Screenshot 2023-10-20 122807&#8243; align=&#8221;center&#8221; _builder_version=&#8221;4.22.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_text _builder_version=&#8221;4.22.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>In Zusammenarbeit mit Sciensus startet die Progeria Research Foundation (PRF) offiziell <em>Progeria Connect<\/em> zu unserem <strong>vollst\u00e4ndige globale Gemeinschaft<\/strong> von Familien. Wir haben diese Plattform geschaffen, um unserer kleinen, aber vielf\u00e4ltigen Gemeinschaft zu helfen, pers\u00f6nliche Kontakte zu kn\u00fcpfen, Zugang zu den neuesten Forschungsnachrichten zu erhalten und lebenslange Bindungen w\u00e4hrend ihrer Reise mit Progerie aufzubauen.<\/p>\n<p><strong><span style=\"color: #800080;\"><em>Progeria Connect<\/em><\/span><\/strong> erm\u00f6glicht Ihnen und Ihrer Familie eine einfache und sichere Kommunikation mit PRF und anderen Personen auf der ganzen Welt, die m\u00f6glicherweise \u00e4hnliche Erfahrungen gemacht haben, unabh\u00e4ngig von Ihrer Sprache oder Ihrem Standort.<\/p>\n<p><strong>Da dies eine wirklich private Site ist, laden wir nur die folgenden Gruppen zur Registrierung ein:<\/strong><\/p>\n<ul>\n<li>Eltern\/Erziehungsberechtigte von Personen mit Progerie;<\/li>\n<li>Geschwister;<\/li>\n<li>Gro\u00dfeltern;<\/li>\n<\/ul>\n<p><strong>Zu den Vorteilen der Plattform geh\u00f6ren:<\/strong><\/p>\n<ul>\n<li>Private Gruppen zum Austausch von Ideen und Geschichten, darunter Teenager mit Progerie, junge Erwachsene ab 18 Jahren und Eltern von Kindern mit Progerie;<\/li>\n<li>Regelm\u00e4\u00dfige Updates zu klinischen Studien und den neuesten Forschungsergebnissen;<\/li>\n<li>Private Nachrichten an andere Mitglieder von <em>Progeria Connect<\/em>;<\/li>\n<li>Informationen zu Veranstaltungen und Spendenaktionen;<\/li>\n<li>Live-Zoom-Video-Chat-Funktion, einschlie\u00dflich Echtzeit-Test\u00fcbersetzungen f\u00fcr mehrsprachige Anrufe;<\/li>\n<li>Unser ganz eigenes <em>Progeria Connect<\/em> Mobile App \u2013 sowohl im App Store als auch im Google Store erh\u00e4ltlich, um auch unterwegs mit Ihrer Community zu interagieren!<\/li>\n<\/ul>\n<p><strong>Registrieren Sie sich hier f\u00fcr Ihren kostenlosen Account: <\/strong><a href=\"http:\/\/www.progeriaconnect.sciensus.com\"><strong>www.progeriaconnect.sciensus.com<\/strong><\/a><\/p>\n<p><em>Sobald Sie sich registriert haben, erhalten Sie innerhalb von 5 Tagen eine Nachricht von uns, um Ihr Konto f\u00fcr dieses exklusive Netzwerk nur f\u00fcr Familien und Betreuer zu best\u00e4tigen. <\/em><\/p>\n<p>[\/et_pb_text][et_pb_image src=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/10\/Progeria-Connect-Launch-ph.1B-Flyer-791&#215;1024.jpg&#8221; title_text=&#8221;Progeria Connect Launch ph.1B Flyer&#8221; align=&#8221;center&#8221; _builder_version=&#8221;4.22.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"<p>Aufruf an alle von Progerie betroffenen Familien! Es ist Zeit, sich zu vernetzen \u2013 voneinander und von PRF zu lernen, Ressourcen und Erfahrungen auszutauschen und als Gemeinschaft zu wachsen, ganz gleich, wo auf der Welt Sie leben. <\/p>","protected":false},"author":2,"featured_media":17934,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2,1],"tags":[],"class_list":["post-17925","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-uncategorized"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Progeria Connect | The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/de\/2023\/10\/23\/global-launch-pc\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Progeria Connect | The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"Calling all families impacted by Progeria! It\u2019s time to get connected \u2013 to learn from each other and from PRF, share resources and experiences, and thrive as a community, no matter where in the world you live.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.progeriaresearch.org\/de\/2023\/10\/23\/global-launch-pc\/\" \/>\n<meta property=\"og:site_name\" content=\"The Progeria Research Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/ProgeriaResearch\/\" \/>\n<meta property=\"article:published_time\" content=\"2023-10-23T12:29:01+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-02-15T22:43:00+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/10\/PCpostteaser-copy.png\" \/>\n\t<meta property=\"og:image:width\" content=\"800\" \/>\n\t<meta property=\"og:image:height\" content=\"800\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" 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