{"id":2025,"date":"2012-05-15T23:01:02","date_gmt":"2012-05-15T23:01:02","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=2025"},"modified":"2020-12-10T18:32:09","modified_gmt":"2020-12-10T23:32:09","slug":"number-of-children-identified-continues-to-soar","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/de\/2012\/05\/15\/number-of-children-identified-continues-to-soar\/","title":{"rendered":"Zahl der identifizierten Kinder steigt weiterhin rasant an"},"content":{"rendered":"<p>[et_pb_section fb_built=\u201d1\u2033 _builder_version=\u201d3.22\u2033][et_pb_row _builder_version=\u201d3.25\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dwiederholen\u201d][et_pb_column type=\u201d4_4\u2033 _builder_version=\u201d3.25\u2033 custom_padding=\u201d|||\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text _builder_version=\u201d4.6.5\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dwiederholen\u201d hover_enabled=\u201d0\u2033 sticky_enabled=\u201d0\u2033]<\/p>\n<p>Dank an PRF&#039;s <a href=\"https:\/\/www.progeriaresearch.org\/de\/find-the-children\/\">\u201eFinde die anderen 150\u201c <\/a>(jetzt Find the Children) Initiative, die globale Kampagne zur Suche nach allen Kindern mit Progerie, hat zu einem erstaunlichen Anstieg der identifizierten Kinder um 85% gef\u00fchrt. Jetzt k\u00f6nnen mehr Kinder als je zuvor die Unterst\u00fctzung bekommen, die sie brauchen.<\/p>\n<div id=\"secondary-header-content\">\n<p><strong>PRF hat das Bewusstsein auf neue Ebenen und in neue Gebiete der Welt gelenkt, was zu einem erstaunlichen Anstieg von 46 f\u00fchrte: von 54 auf 100 Kinder** in etwas mehr als drei Jahren. Vor der Kampagne lag die Zahl der neu identifizierten Kinder bei weniger als 3 pro Jahr!!\u00a0<\/strong><\/p>\n<p>**10 der 90 haben nicht-Progerin-produzierende progeroide Laminopathien (Progerien, die kein Progerin produzieren)<\/p>\n<p>Im Oktober 2009 startete PRF seine <a href=\"https:\/\/www.progeriaresearch.org\/de\/find-the-children\/\">\u201eFinde die anderen 150\u201c <\/a>(jetzt Find the Children) Kampagne in Partnerschaft mit <a href=\"https:\/\/www.globalhealthpr.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">GlobalHealthPR<\/a>, eine weltweite Gesundheitskommunikationsgruppe mit Niederlassungen in den Vereinigten Staaten, Asien, Westeuropa und Lateinamerika. Ihr Ziel: weltweit nach Kindern mit der \u00e4u\u00dferst seltenen Krankheit Progerie zu suchen, damit sie die einzigartige Pflege erhalten, die sie brauchen, und die klinische Forschung zu Progerie voranbringen. Durch proaktive \u00d6ffentlichkeitsarbeit und eine spezielle Website mit Informationen in 20 Sprachen \u00fcbertrifft der Erfolg dieser Kampagne unsere Erwartungen bei weitem!<\/p>\n<\/div>\n<blockquote>\n<p>Die Gesamtzahl der weltweit bekannten lebenden Kinder mit Progerie betr\u00e4gt mittlerweile 100. Die Kinder leben auf f\u00fcnf Kontinenten und sind zwischen 8 Monaten und 20 Jahren alt.<\/p>\n<\/blockquote>\n<div id=\"attachment_2026\" style=\"width: 585px\" class=\"wp-caption aligncenter\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-2026\" class=\"size-full wp-image-2026\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/05\/Child-Map-as-of-Nov-9-2012-100-kids-3.jpg\" alt=\"\" width=\"575\" height=\"356\" srcset=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/05\/Child-Map-as-of-Nov-9-2012-100-kids-3.jpg 575w, https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/05\/Child-Map-as-of-Nov-9-2012-100-kids-3-300x186.jpg 300w\" sizes=\"(max-width: 575px) 100vw, 575px\" \/><p id=\"caption-attachment-2026\" class=\"wp-caption-text\">Die bisherigen Ergebnisse der Kampagne \u00fcberwanden Sprach- und geografische Barrieren und sind ein echter Beweis f\u00fcr die Macht der globalen Zusammenarbeit.<\/p><\/div>\n<p>\u201eBeim Start der Kampagne sagten wir, dass die Kampagne ein Erfolg w\u00e4re, wenn wir auch nur ein Kind finden w\u00fcrden\u201c, sagte <a href=\"https:\/\/www.progeriaresearch.org\/de\/officers-and-staff\/\">Audrey Gordon<\/a>, Pr\u00e4sident und Gesch\u00e4ftsf\u00fchrer der PRF. \u201eWir wissen jetzt, dass wir durch unsere anhaltenden weltweiten Bem\u00fchungen noch mehr Kinder mit Progerie finden k\u00f6nnen, um ihnen einzigartige und wichtige medizinische Dienste und Betreuung zukommen zu lassen und die medizinische Forschung zur Entwicklung von Behandlungsmethoden und Heilmitteln deutlich voranzutreiben.\u201c<\/p>\n<p>Lassen Sie uns die Dynamik beibehalten! <strong>Wie k\u00f6nnen Sie dazu beitragen, dass dies gelingt?<\/strong><\/p>\n<p>\u2666 Ermutigen Sie Ihre Freunde, Familie, Gesch\u00e4ftskollegen und alle in Ihrem Adressbuch, uns zu besuchen. <a href=\"https:\/\/www.progeriaresearch.org\/de\/find-the-children\/\">Finde die anderen 150 <\/a>(jetzt Finde die Kinder) <a href=\"https:\/\/www.findtheother150.org\">,<\/a> wo Informationen \u00fcber die Krankheit in mehreren Sprachen enthalten sind.<\/p>\n<p>\u2666 Folgen Sie den Updates von PRF durch <a href=\"https:\/\/www.facebook.com\/ProgeriaResearch\/\" target=\"_blank\" rel=\"noopener noreferrer\">auf facebook.<\/a> Und <a href=\"https:\/\/twitter.com\/progeria\" target=\"_blank\" rel=\"noopener noreferrer\">\u00dej\u00f3rs\u00e1rden<\/a>, und ermutigen Sie andere, diese Seiten zu nutzen, um weitere Informationen zu erhalten.<\/p>\n<p>\u2666 Wenn Sie Medienkontakte in China, Osteuropa und anderen L\u00e4ndern haben, in denen die globale Kommunikation eingeschr\u00e4nkt ist, nehmen Sie bitte Kontakt mit uns auf.<\/p>\n<p align=\"center\"><strong>Wir danken Ihnen ALLEN, dass Sie uns geholfen haben, diese besonderen Kinder zu finden!<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;3.22&#8243;][et_pb_row _builder_version=&#8221;3.25&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;3.25&#8243; custom_padding=&#8221;|||&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.6.5&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; hover_enabled=&#8221;0&#8243; sticky_enabled=&#8221;0&#8243;] Thanks to PRF&#8217;s &#8220;Find the Other 150&#8221; (now Find the Children) initiative, the global campaign to find all children with Progeria has helped attain an astonishing 85% increase in those identified. Now more children than ever can get [&hellip;]<\/p>","protected":false},"author":1,"featured_media":2026,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<p>Thanks to PRF's <a href=\"https:\/\/www.findtheother150.org\/\">\"Find the Other 150\" <\/a>initiative, the global campaign to find all children with Progeria has helped attain an astonishing 85% increase in those identified. Now more children than ever can get the support they need.<\/p><div id=\"secondary-header-content\"><p><strong>PRF has brought awareness to new heights and areas of the world, resulting in an astonishing increase of 46:\u00a0 from 54 to 100 children** in just over three years. \u00a0Prior to the campaign, the number of new children identified was less than 3 per year!!\u00a0<\/strong><\/p><p>**10 of the 90 have non-progerin-producing progeroid laminopathies (Progerias that do not produce Progerin)<\/p><p>In October 2009, PRF launched its <a href=\"https:\/\/www.findtheother150.org\">\"Find the Other 150\" <\/a>campaign in partnership with <a href=\"https:\/\/www.globalhealthpr.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">GlobalHealthPR<\/a>, a worldwide health communications group with offices in the United States, Asia, Western Europe and Latin America. Its goal: search globally for children with the extremely rare disease Progeria, so they can receive the unique the care they need and help advance clinical science for Progeria. Through proactive outreach and a dedicated web site with information in 20 languages (<a href=\"https:\/\/www.findtheother150.org\/\">www.findtheother150.org<\/a>), this campaign is succeeding far beyond our expectations!<\/p><\/div><blockquote><p>The total number of known living children with Progeria is now 100 worldwide. The children span five continents, and range in age from 8 months to 20 years.<\/p><\/blockquote>[caption id=\"attachment_2026\" align=\"aligncenter\" width=\"575\"]<img class=\"size-full wp-image-2026\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/05\/Child-Map-as-of-Nov-9-2012-100-kids-3.jpg\" alt=\"\" width=\"575\" height=\"356\" \/> Stretching across language and geographic barriers, the campaign's results to date are a true testament to the power of global collaboration.[\/caption]<p>\"At the launch of the campaign, we said that finding even one child would make the campaign a success,\" said <a href=\"https:\/\/www.progeriaresearch.org\/officersandstaff.html\">Audrey Gordon<\/a>, President and Executive Director, PRF. \" We now know that through our continued global efforts, we can find even more children with Progeria to provide them with unique and essential medical services and care, and significantly further medical research to develop treatments and a cure.\"<\/p><p>Let's keep the momentum going! <strong>How can you help make this happen?<\/strong><\/p><p>\u2666 Encourage your friends, family, business colleagues and everyone in your address book to visit <a href=\"https:\/\/www.findtheother150.org\">www.findtheother150.org,<\/a> where information about the disease is included in several languages.<\/p><p>\u2666 Follow updates from PRF through <a href=\"https:\/\/www.causes.com\/causes\/183613?m=071cdb23\" target=\"_blank\" rel=\"noopener noreferrer\">Facebook<\/a> and <a href=\"https:\/\/twitter.com\/progeria\" target=\"_blank\" rel=\"noopener noreferrer\">Twitter<\/a>, and encourage others to use these pages to find out more information.<\/p><p>\u2666 If you have media contacts in China, Eastern Europe and other countries in which global communication is limited, please contact us.<\/p><p align=\"center\"><strong>Thank you ALL for helping us find these special children!<\/strong><\/p>","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2],"tags":[],"class_list":["post-2025","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Number of Children Identified Continues to Soar - The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/de\/2012\/05\/15\/number-of-children-identified-continues-to-soar\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Number of Children Identified Continues to Soar - The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;3.22&#8243;][et_pb_row _builder_version=&#8221;3.25&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;3.25&#8243; custom_padding=&#8221;|||&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.6.5&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; hover_enabled=&#8221;0&#8243; sticky_enabled=&#8221;0&#8243;] Thanks to PRF&#8217;s &#8220;Find the Other 150&#8221; (now Find the Children) initiative, the global campaign to find all children with Progeria has helped attain an astonishing 85% increase in those identified. Now more children than ever can get [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.progeriaresearch.org\/de\/2012\/05\/15\/number-of-children-identified-continues-to-soar\/\" \/>\n<meta property=\"og:site_name\" content=\"The Progeria Research Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/ProgeriaResearch\/\" \/>\n<meta property=\"article:published_time\" content=\"2012-05-15T23:01:02+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2020-12-10T23:32:09+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/05\/Child-Map-as-of-Nov-9-2012-100-kids-3.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"575\" \/>\n\t<meta property=\"og:image:height\" content=\"356\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"gravoc\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@Progeria\" \/>\n<meta name=\"twitter:site\" content=\"@Progeria\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"gravoc\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 Minuten\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.progeriaresearch.org\/2012\/05\/15\/number-of-children-identified-continues-to-soar\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/2012\/05\/15\/number-of-children-identified-continues-to-soar\/\"},\"author\":{\"name\":\"gravoc\",\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#\/schema\/person\/a3c935a81e92242c6a77ae0018542928\"},\"headline\":\"Number of Children Identified Continues to Soar\",\"datePublished\":\"2012-05-15T23:01:02+00:00\",\"dateModified\":\"2020-12-10T23:32:09+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/2012\/05\/15\/number-of-children-identified-continues-to-soar\/\"},\"wordCount\":463,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/2012\/05\/15\/number-of-children-identified-continues-to-soar\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/05\/Child-Map-as-of-Nov-9-2012-100-kids-3.jpg\",\"articleSection\":[\"News\"],\"inLanguage\":\"de\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\/\/www.progeriaresearch.org\/2012\/05\/15\/number-of-children-identified-continues-to-soar\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.progeriaresearch.org\/2012\/05\/15\/number-of-children-identified-continues-to-soar\/\",\"url\":\"https:\/\/www.progeriaresearch.org\/2012\/05\/15\/number-of-children-identified-continues-to-soar\/\",\"name\":\"Number of Children Identified Continues to Soar - 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The Progeria Research Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.progeriaresearch.org\/de\/2012\/05\/15\/number-of-children-identified-continues-to-soar\/","og_locale":"de_DE","og_type":"article","og_title":"Number of Children Identified Continues to Soar - The Progeria Research Foundation","og_description":"[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;3.22&#8243;][et_pb_row _builder_version=&#8221;3.25&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;3.25&#8243; custom_padding=&#8221;|||&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.6.5&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; hover_enabled=&#8221;0&#8243; sticky_enabled=&#8221;0&#8243;] Thanks to PRF&#8217;s &#8220;Find the Other 150&#8221; (now Find the Children) initiative, the global campaign to find all children with Progeria has helped attain an astonishing 85% increase in those identified. 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