{"id":2037,"date":"2012-09-24T12:11:18","date_gmt":"2012-09-24T12:11:18","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=2037"},"modified":"2020-12-11T11:41:51","modified_gmt":"2020-12-11T16:41:51","slug":"the-world-learns-of-progeria-treatment","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/de\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/","title":{"rendered":"Die Welt erf\u00e4hrt von der Behandlung von Progerie"},"content":{"rendered":"

[et_pb_section fb_built=\u201d1\u2033 _builder_version=\u201d3.22\u2033][et_pb_row _builder_version=\u201d3.25\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dwiederholen\u201d][et_pb_column type=\u201d4_4\u2033 _builder_version=\u201d3.25\u2033 custom_padding=\u201d|||\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text _builder_version=\u201d4.6.5\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dwiederholen\u201d hover_enabled=\u201d0\u2033 sticky_enabled=\u201d0\u2033]<\/p>\n

Die Nachricht \u00fcber die erste Behandlungsmethode f\u00fcr Progerie verbreitet sich rund um den Globus und Dutzende Medien berichten \u00fcber diesen bemerkenswerten Fortschritt. klicken Sie hier<\/a> um die Ank\u00fcndigung zu lesen. Weiter unten finden Sie Links zu Dutzenden von Artikeln, Radioclips und Fernsehausstrahlungen!<\/p>\n

klicken Sie hier<\/a> um unseren Sondernewsletter zu den Ergebnissen zu lesen. <\/b>Extra! Extra! Lesen Sie alles dar\u00fcber!<\/strong><\/p>\n

Die Faszination der \u00d6ffentlichkeit f\u00fcr Progerie und ihren Zusammenhang mit dem Altern nimmt weiter zu, w\u00e4hrend sich die Nachricht von der ersten Behandlung f\u00fcr Kinder mit Progerie verbreitet. Lesen Sie diese Geschichten online und im Fernsehen bei f\u00fchrenden Medien.\u00a0 Seien Sie der Erste, der von neuen Geschichten erf\u00e4hrt<\/strong>: \u201eGef\u00e4llt mir\u201c auf auf facebook.<\/a>, folgen Sie uns auf \u00dej\u00f3rs\u00e1rden<\/a>, oder Senden Sie uns Ihre E-Mail-Adresse<\/a>.<\/p>\n

\"\"

Devin aus Kanada w\u00e4hrend eines Besuchs im Boston Children's Hospital im Jahr 2008 im Rahmen der klinischen Arzneimittelstudie zu Progerie.<\/p><\/div>\n

Was die Leute sagen \u2026<\/p>\n

\u201edas Ergebnis von ein wissenschaftlicher Sprint<\/strong>\u201d \u2013 Robert Siegel, NPR<\/em><\/p>\n

\u201eEs gab eine unerwartete Belohnung f\u00fcr den Rest der Menschheit<\/strong>\u2026manche\u2026werden nach M\u00f6glichkeiten suchen, diese neuen Informationen zu nutzen, um eine Reihe von mit dem Alter verbundenen Krankheiten abzuwehren\u2026das vielleicht Bemerkenswerteste an der neuen Behandlung ist, wie schnell sie entwickelt wurde.\u201c \u2013 Jon Hamilton, NPR<\/em><\/p>\n

\u201eJetzt haben wir nicht nur unsere erste Behandlung, sondern wir wissen auch zum ersten Mal, dass Progerie gelindert werden kann, und das inspiriert uns, h\u00e4rter und schneller zu arbeiten<\/strong> f\u00fcr zus\u00e4tzliche Behandlungen, die in Kombination mit Lonafarnib einen Unterschied bei der Gesundheit von Kindern mit Progerie bewirken k\u00f6nnten.\u201d\u00a0 \u00a0<\/em>\u2013 PRFs medizinischer Direktor Dr. Leslie Gordon, CNN Health<\/em><\/p>\n

\u201eDas erste Mal, dass jemand etwas getan hat, das in irgendeiner Art und Weise ver\u00e4nderte den nat\u00fcrlichen Verlauf dieser Krankheit<\/strong>.\u201d \u2013 Vorsitzender der Progeria-Medikamentenstudie, Dr. Mark Kieran,<\/em> Der Boston Globe<\/em><\/p>\n

\u201e[Diese Ergebnisse] zeigen das Engagement von Eltern und gemeinn\u00fctzigen Organisationen in der Gemeinschaft der seltenen Krankheiten, um Dinge zu erledigen, wenn alles verloren scheint \u2026 diese Studie ist ein tolles Beispiel<\/strong> wie eine kleine gemeinn\u00fctzige Organisation dazu beitragen kann, grundlegende biomedizinische und genetische Forschung anzuregen und in eine Behandlungsmethode f\u00fcr Menschen umzusetzen.\u201c \u2013 <\/em>James Radke PhD<\/em>, Bericht \u00fcber seltene Krankheiten<\/em><\/p>\n

\u201eEs ist riesigEs ist ein Wunder<\/strong>Devin hat neue Hoffnung und Tr\u00e4ume. Sein Motto lautet: \u201eTr\u00e4ume gro\u00df oder geh nach Hause.\u201c \u2013 Jamie,<\/em> CNN Gesundheit<\/em><\/p>\n

\u201eDie fortlaufende Geschichte von Die \u00dcberwindung von Progeria ist ein wunderbares Beispiel f\u00fcr den Wert der Grundlagenforschung bei der Entdeckung, wie etwas passiert <\/strong>\u2013 und das ist das Herz und die Seele der Wissenschaft.\u201c \u2013 <\/em>Ricki Lewis, PhD, PLOS<\/em><\/a>\u00a0 LINK: https:\/\/blogs.plos.org\/dnascience\/2012\/10\/11\/from-rapid-aging-to-common-heart-disease\/<\/a><\/p>\n

\"\"

Frannie Marmorstein von Spectrum Health h\u00e4lt aufgeregt die Ausgabe des Wall Street Journal vom 25. September 2012 in den H\u00e4nden und zeigt den Artikel mit den Studienergebnissen \u00fcber dem Falz der Titelseite!<\/p><\/div>\n

Vollst\u00e4ndige Artikel finden Sie hier \u2026<\/strong><\/p>\n

\"\"<\/strong><\/p>\n

WBF 88.7 \u2013 NPR News \u2013 H\u00d6REN Sie sich Robert Siegels \u201eAll Things Considered\u201c-Interview mit der medizinischen Direktorin von PRF und ihrem Sohn Sam an! (Link nicht mehr verf\u00fcgbar)<\/strong><\/p>\n

\"\"<\/p>\n

SEHEN Sie sich den Nachrichtenbericht auf Bostons lokalem ABC-Partnersender WCVB-TV an (Link nicht mehr verf\u00fcgbar)<\/strong><\/p>\n

\"\"<\/p>\n

Wall Street Journal \u2013 Market Watch (Link nicht mehr verf\u00fcgbar)<\/strong><\/p>\n

Erste-<\/strong>Behandlung seltener Alterskrankheiten im Kindesalter zeigt bei allen Studienteilnehmern Verbesserungen (Link nicht mehr verf\u00fcgbar)<\/strong><\/p>\n

Studie zu seltener Krankheit hilft bei der Suche nach Hinweisen auf Alterungsprozess \/ Medikament verlangsamt bei Kindern Sch\u00e4den, die bei anderen auch mit Herzproblemen in Verbindung gebracht werden<\/strong><\/a><\/p>\n

\"\"<\/strong><\/p>\n

CNN Gesundheit<\/a><\/strong><\/p>\n

Fortschritte bei fr\u00fchzeitigen Alterskrankheiten bei Kindern<\/strong><\/a><\/p>\n

\"\"<\/strong><\/p>\n

Neue Studie zielt auf rasche Alterung bei Kindern ab (Link nicht mehr verf\u00fcgbar) <\/strong><\/p>\n

\"\"
<\/strong>Wissenschaft t\u00e4glich: <\/a><\/strong>Urspr\u00fcnglich gegen Krebs entwickeltes Medikament erweist sich bei Kindern mit Progerie als wirksam<\/strong><\/a><\/p>\n

\"\"
90,9 WBUR CommonHealth: <\/strong>Erste Behandlung f\u00fcr rasches Altern bei Kindern gefunden (Link nicht mehr verf\u00fcgbar) <\/strong><\/p>\n\n\n\n
\n

Wir sind dem fantastischen Team von unendlich dankbar Spektrum<\/a> f\u00fcr ihre unerm\u00fcdlichen Bem\u00fchungen, Proger bekannt zu machen<\/strong>ia und PRFs <\/strong>arbeiten.\u00a0<\/strong><\/p>\n

\u00a0<\/strong>\"\"<\/a><\/p>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

\u00a0<\/strong>\u00a0<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”3.22″][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.6.5″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” hover_enabled=”0″ sticky_enabled=”0″] News of the first-ever treatment for Progeria is spreading around the globe, with dozens of media outlets reporting on this remarkable advancement. Click here to read the announcement, and see below for links on dozens of articles, radio […]<\/p>","protected":false},"author":1,"featured_media":2039,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"

News of the first-ever treatment for Progeria is spreading around the globe, with dozens of media outlets reporting on this remarkable advancement. Click here<\/a> to read the announcement, and see below for links on dozens of articles, radio clips and TV airings!<\/p>

Click here<\/a> to read our special newsletter on the findings. <\/b>Extra! Extra! Read All About It!<\/strong><\/p>

The public\u2019s fascination with Progeria and its relation to aging continues to rise, as word of the first treatment for children with Progeria spreads. Check out these stories on-line and on-air from top-tier outlets.\u00a0 Be the first to know as more stories appear<\/strong>: 'like' us on Facebook<\/a>, follow us on Twitter<\/a>, or send us your email address<\/a>.<\/p>[caption id=\"attachment_2038\" align=\"alignleft\" width=\"225\"]\"\" Devin from Canada during a 2008 visit to Boston Children\u2019s Hospital for the Progeria clinical drug trial.[\/caption]

What people are saying\u2026<\/p>

\u201cthe result of a scientific sprint<\/strong>\u201d \u2013 Robert Siegel, NPR<\/em><\/p>

\u201cThere\u2019s been an unexpected payoff for the rest of humanity<\/strong>...some\u2026will be looking for ways to use this new information to ward off a range of diseases associated with aging\u2026 perhaps the most remarkable thing about the new treatment is how fast it was developed.\u201d\u00a0 \u2013 Jon Hamilton, NPR<\/em><\/p>

\u201cNow, we not only have our first treatment, but we know for the first time that Progeria can be improved, and this inspires us to work harder and faster<\/strong> toward additional treatments that could work in conjunction with Lonafarnib to make a difference in the health of children with Progeria.\u201d\u00a0 \u00a0<\/em>- PRF\u2019s Medical Director Dr. Leslie Gordon, CNN Health<\/em><\/p>

\"The first time anyone has done anything that in any way, shape or form altered the natural history of this disease<\/strong>.\" \u2013 Progeria Drug trial Chair Dr. Mark Kieran,<\/em> The Boston Globe<\/em><\/p>

\"[These results] show the dedication parents and non-profits have in the rare disease community to get things done when all seems lost\u2026 this study is a great example<\/strong> of how a small non-profit can help stimulate and translate basic biomedical and genetic research into a human treatment.\" \u2013 <\/em>James Radke PhD<\/em>, Rare Disease Report<\/em><\/p>

\"It\u2019s huge, It\u2019s a miracle<\/strong>. Devin has new hope, dreams, his saying is, \u201cDream big or go home\u201d \u2013 Jamie,<\/em> CNN Health<\/em><\/p>

\u201cThe continuing story of conquering Progeria is a glorious illustration of the value of basic research in discovering how something happens <\/strong>\u2013 and that\u2019s the heart and soul of science.\u201d \u2013 <\/em>Ricki Lewis, PhD, PLOS<\/em><\/a>\u00a0 LINK: https:\/\/blogs.plos.org\/dnascience\/2012\/10\/11\/from-rapid-aging-to-common-heart-disease\/<\/a><\/p>[caption id=\"attachment_2039\" align=\"aligncenter\" width=\"432\"]\"\" Spectrum Health's Frannie Marmorstein excitedly holds the Sept. 25, 2012 edition of the Wall Street Journal, showing the trial results article above the fold on the front page![\/caption]

See complete articles here\u2026<\/strong><\/p>

\"\"<\/strong><\/p>

WBF 88.7 \u2013 NPR News \u2013<\/a>LISTEN<\/a> to Robert Siegel\u2019s \u201cAll Things Considered\u201d interview with PRF\u2019s Medical Director and her son Sam!<\/a><\/strong><\/p>

\u00a0<\/p>

\"\"<\/p>

\u00a0<\/p>

WATCH the news report on Boston\u2019s local abc affiliate, WCVB-TV<\/a><\/strong><\/p>

\u00a0<\/p>

\"\"<\/p>

Wall Street<\/a> Journal - Market Watch<\/a><\/strong><\/p>

First-<\/strong><\/a>Ever Treatment For Rare Childhood Aging Disease Shows Improvement In All Trial Participant<\/strong><\/a><\/p>

Study of Rare Disease Helps in Search for Clues on Aging \/\u00a0 Drug Slows Damage in Children That Also Is Linked to Heart Problems in Others<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/strong><\/p>

\u00a0<\/p>

CNN Health<\/a><\/strong><\/p>

Advances in kids' early aging disease<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/strong><\/p>

WCVB.com<\/a><\/strong><\/p>

New trial targets rapid-aging childhood disease<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/strong><\/p>

Science Daily<\/a><\/strong><\/p>

Drug Originally Developed for Cancer Proves Effective for Children With Progeria<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/p>

90.9 WBUR CommonHealth<\/a><\/strong><\/p>

First Treatment Found For Rapid-Aging Disease In Children<\/strong><\/a><\/p>

\u00a0<\/p>

\u00a0<\/p>

We are eternally grateful to the fantastic team at Spectrum<\/a> for their tireless efforts to spread the word about Proger<\/strong>ia and PRF\u2019s <\/strong>work.\u00a0<\/strong><\/p>

\u00a0<\/strong>\"\"<\/a><\/p><\/td><\/tr><\/tbody><\/table>

\u00a0<\/strong>\u00a0<\/strong><\/p>","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2],"tags":[],"class_list":["post-2037","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"yoast_head":"\nThe World Learns of Progeria Treatment - The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/de\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The World Learns of Progeria Treatment - The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"[et_pb_section fb_built=”1″ _builder_version=”3.22″][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.6.5″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” hover_enabled=”0″ sticky_enabled=”0″] News of the first-ever treatment for Progeria is spreading around the globe, with dozens of media outlets reporting on this remarkable advancement. 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