{"id":8800,"date":"2019-09-30T16:22:23","date_gmt":"2019-09-30T16:22:23","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=8800"},"modified":"2020-12-13T17:44:07","modified_gmt":"2020-12-13T22:44:07","slug":"hot-off-the-press-prfs-2019-newsletter","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/de\/2019\/09\/30\/hot-off-the-press-prfs-2019-newsletter\/","title":{"rendered":"PRF-Newsletter 2019"},"content":{"rendered":"<p>[et_pb_section fb_built=\u201d1\u2033 _builder_version=\u201d3.22\u2033][et_pb_row _builder_version=\u201d3.25\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dwiederholen\u201d][et_pb_column type=\u201d4_4\u2033 _builder_version=\u201d3.25\u2033 custom_padding=\u201d|||\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text _builder_version=\u201d4.6.5\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dwiederholen\u201d hover_enabled=\u201d0\u2033 sticky_enabled=\u201d0\u2033]<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-8806 alignleft\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/full-cover-page-for-landing-newsletter-teaser-229x300.png\" alt=\"\" width=\"229\" height=\"300\" \/><\/p>\n<h3>Lonafarnib Managed Access-Programm gestartet!<\/h3>\n<p>F\u00fcr die meisten Kinder ist die Teilnahme an Studien und die Reise nach Boston nicht mehr erforderlich, um diese Behandlung zu erhalten.<\/p>\n<p><strong>Wir freuen uns, bekannt zu geben <\/strong>dass das Lonafarnib Managed Access Program (MAP) jetzt l\u00e4uft. PRF und der Lonafarnib-Hersteller Eiger BioPharmaceuticals haben bei der Entwicklung dieses Programms zusammengearbeitet. Das MAP erm\u00f6glicht berechtigten Kindern und jungen Erwachsenen mit Progerie, das Medikament Lonafarnib \u00fcber ihre \u00f6rtlichen \u00c4rzte in L\u00e4ndern zu erhalten, in denen das MAP angeboten werden darf.<\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\">Sehen Sie sich unten das vollst\u00e4ndige PDF an.<\/p>\n<p>[\/et_pb_text][et_pb_button button_url=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/2019-Newletter-For-Web.pdf&#8221; button_text=&#8221;Read More&#8221; button_alignment=&#8221;center&#8221; _builder_version=&#8221;4.6.5&#8243; _module_preset=&#8221;default&#8221; background_layout=&#8221;dark&#8221; hover_enabled=&#8221;0&#8243; sticky_enabled=&#8221;0&#8243;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"<p>Erhalten Sie spannende Neuigkeiten zu unseren Fortschritten im vergangenen Jahr, erfahren Sie, warum wir die von uns betreute Zielgruppe jetzt als Kinder \u2013 und junge Erwachsene \u2013 mit Progerie bezeichnen, sehen Sie sich die Menschen, die Wissenschaft und die Ereignisse an, die uns dorthin gebracht haben, wo wir heute sind, und NOCH VIEL MEHR!<\/p>","protected":false},"author":2,"featured_media":8806,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<p><img class=\"size-medium wp-image-8806 alignleft\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/full-cover-page-for-landing-newsletter-teaser-229x300.png\" alt=\"\" width=\"229\" height=\"300\" \/><\/p><h3>Lonafarnib Managed Access Program Launched!<\/h3><p>Trial participation and travel to Boston no longer required for most children in order to access this treatment.<\/p><p><strong>We are thrilled to announce <\/strong>that the lonafarnib Managed Access Program (MAP) is now up and running. PRF and lonafarnib manufacturer, Eiger BioPharmaceuticals, have worked together to create this Program. The MAP enables eligible children and young adults with Progeria to obtain the drug lonafarnib through their local physicians in countries that allow the MAP to be offered.<\/p><p>Read more by viewing the full PDF below.<\/p><p>[button link=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/2019-Newletter-For-Web.pdf\" type=\"big\" color=\"orange\" newwindow=\"yes\"] Read More[\/button]<\/p>","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2],"tags":[],"class_list":["post-8800","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>PRF&#039;s 2019 Newsletter - The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/de\/2019\/09\/30\/hot-off-the-press-prfs-2019-newsletter\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"PRF&#039;s 2019 Newsletter - 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