{"id":11093,"date":"2020-09-11T10:37:15","date_gmt":"2020-09-11T14:37:15","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=11093"},"modified":"2023-06-21T11:30:15","modified_gmt":"2023-06-21T15:30:15","slug":"prf-family-quotes","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/es\/prf-family-quotes\/","title":{"rendered":"Citas de la familia PRF"},"content":{"rendered":"

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Citas de la familia PRF<\/h1>\n

[\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=”1″ module_class=”handprint-bg” _builder_version=”4.16″ background_image=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/blue-handprint-only.png” parallax=”on” parallax_method=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ custom_margin=”0px||0px||false|false” custom_padding=”0px||0px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_text _builder_version=”4.16″ text_font_size=”20px” header_3_text_align=”right” vertical_offset_tablet=”0″ horizontal_offset_tablet=”0″ text_orientation=”right” z_index_tablet=”500″ text_text_shadow_horizontal_length_tablet=”0px” text_text_shadow_vertical_length_tablet=”0px” text_text_shadow_blur_strength_tablet=”1px” link_text_shadow_horizontal_length_tablet=”0px” link_text_shadow_vertical_length_tablet=”0px” link_text_shadow_blur_strength_tablet=”1px” ul_text_shadow_horizontal_length_tablet=”0px” ul_text_shadow_vertical_length_tablet=”0px” ul_text_shadow_blur_strength_tablet=”1px” ol_text_shadow_horizontal_length_tablet=”0px” ol_text_shadow_vertical_length_tablet=”0px” ol_text_shadow_blur_strength_tablet=”1px” quote_text_shadow_horizontal_length_tablet=”0px” quote_text_shadow_vertical_length_tablet=”0px” quote_text_shadow_blur_strength_tablet=”1px” header_text_shadow_horizontal_length_tablet=”0px” header_text_shadow_vertical_length_tablet=”0px” header_text_shadow_blur_strength_tablet=”1px” header_2_text_shadow_horizontal_length_tablet=”0px” header_2_text_shadow_vertical_length_tablet=”0px” header_2_text_shadow_blur_strength_tablet=”1px” header_3_text_shadow_horizontal_length_tablet=”0px” header_3_text_shadow_vertical_length_tablet=”0px” header_3_text_shadow_blur_strength_tablet=”1px” header_4_text_shadow_horizontal_length_tablet=”0px” header_4_text_shadow_vertical_length_tablet=”0px” header_4_text_shadow_blur_strength_tablet=”1px” header_5_text_shadow_horizontal_length_tablet=”0px” header_5_text_shadow_vertical_length_tablet=”0px” header_5_text_shadow_blur_strength_tablet=”1px” header_6_text_shadow_horizontal_length_tablet=”0px” header_6_text_shadow_vertical_length_tablet=”0px” header_6_text_shadow_blur_strength_tablet=”1px” box_shadow_horizontal_tablet=”0px” box_shadow_vertical_tablet=”0px” box_shadow_blur_tablet=”40px” box_shadow_spread_tablet=”0px” global_colors_info=”{}”]<\/p>\n

Algunas palabras sobre PRF de las familias de nuestra comunidad<\/strong><\/span><\/h3>\n

Preguntamos a los padres qu\u00e9 ha significado PRF para ellos y \u00a1quedamos abrumados por sus respuestas! <\/strong><\/span><\/p>\n

Por eso hacemos lo que hacemos<\/em>.<\/strong><\/span><\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][et_pb_sidebar area=”et_pb_widget_area_12″ disabled_on=”on|on|off” admin_label=”Meet the kids sidebar” module_class=”subpage-sidebars sidebar-secondary-nav” _builder_version=”4.16″ animation_style=”fade” z_index_tablet=”500″ border_width_right=”5px” locked=”off” global_colors_info=”{}”] [\/et_pb_sidebar][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/08\/zach-and-tina.png” title_text=”zach-and-tina” admin_label=”Zach & Tina 2″ _builder_version=”4.16″ width=”75%” custom_margin=”|0px|10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Z&T Caption” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]Zach y su mam\u00e1, Tina; Estados Unidos<\/strong> [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Zach & Tina quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||50px||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u201cConectarnos con PRF nos llen\u00f3 de un gran alivio: hab\u00eda alguien que se preocupaba por mi hijo, que estaba luchando por encontrar una cura. Nos dan tranquilidad, saber que hay investigadores de primer nivel de nuestro lado, que trabajan para curar esta enfermedad mortal. Estoy muy agradecida con PRF por luchar por Zach todos los d\u00edas y por hacer que el futuro de Zach y de nuestra familia sea m\u00e1s brillante\u201d.<\/p>\n

\u2013 Tina, la mam\u00e1 de Zach<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Enzo-and-family.png” title_text=”Enzo-and-family” admin_label=”Enzo & Family” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”||0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Z&T Caption” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Enzo y sus padres; Australia<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Enzo & Catherina quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||50px||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0\u201cTenemos mucha suerte de contar con la Fundaci\u00f3n para la Investigaci\u00f3n de la Progeria. Nos dan esperanza... gracias a todas las personas que nos apoyan y hacen que nuestro camino con la progeria sea m\u00e1s liviano\u201d.<\/p>\n

\u2013 Catherina, la mam\u00e1 de Enzo<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Cam-and-Stephanie-OP-2020.png” title_text=”Cam-and-Stephanie-OP-2020″ admin_label=”Cam & Mom” _builder_version=”4.16″ width=”80%” custom_padding=”|20px||10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Cam&Mom Caption” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Cam y su mam\u00e1; Estados Unidos<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Cam & Stephanie’s quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||50px||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u201cNo s\u00e9 c\u00f3mo agradecerles todo lo que hacen y han hecho por las familias con progeria. Con frecuencia les digo a las personas que no conocen PRF lo afortunados que somos de tenerlos para ayudar a nuestros ni\u00f1os. Sepan que han hecho una gran diferencia en nuestras vidas\u201d.<\/p>\n

\u2013 Stephanie, la mam\u00e1 de Cam<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Meghan-and-family.png” title_text=”Meghan-and-family” admin_label=”Meghan and her parents” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Meghan and parent caption” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″]<\/p>\n

Meghan y sus padres; Estados Unidos<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Meghan & Bill quote” _builder_version=”4.21.0″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” hover_enabled=”0″ global_colors_info=”{}” width__hover_enabled=”on|desktop” sticky_enabled=”0″ width__hover=”100%”]<\/p>\n

\u201cCuando nos enteramos de que Meghan ten\u00eda progeria (a los 2 a\u00f1os), la esperanza de vida promedio era de 13 a\u00f1os\u2026 pensamos que 13 a\u00f1os era mucho tiempo, \u00a1y lleg\u00f3 tan r\u00e1pido! Y ahora tiene 19 a\u00f1os, est\u00e1 sana, es fuerte, se propone lo que quiere lograr en su vida y simplemente lo intenta.<\/p>\n

Cuando encontramos la Fundaci\u00f3n para la Investigaci\u00f3n de la Progeria, sent\u00ed un gran alivio, reconfortada por el hecho de que hab\u00eda alguien de nuestro lado trabajando en este problema. Abordan la soluci\u00f3n del problema con tanta excelencia que s\u00e9 que juntos ENCONTRAREMOS la cura\u201d.<\/p>\n

\u2013 Bill, el padre de Meghan, 2021<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Terry-and-Zach.png” title_text=”Terry-and-Zach” admin_label=”Zach and his friend, Terry” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”||0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Zach and his friend, Terry caption” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Zach y su amigo Terry; Estados Unidos <\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Zach & Terry quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0\u201cSi bien desear\u00eda que PRF hubiera existido para mi hija Amy, quien falleci\u00f3 en 1985, tuve la suerte de tenerla, y es una bendici\u00f3n que PRF est\u00e9 ahora aqu\u00ed para los ni\u00f1os y sus padres\u201d.<\/p>\n

\u2013 Terry, la mam\u00e1 de Amy<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Erin-and-Brennan-1.png” title_text=”Erin-and-Brennan-(1)” admin_label=”Erin and Brennan” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Brennen & his mom;USA” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Brennen y su mam\u00e1; Estados Unidos<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Brennan & Erin quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0\u201cPRF nos ha bendecido con el don de la esperanza en nuestra lucha por encontrar una cura para la progeria. Cuando diagnosticaron a Brennen por primera vez, est\u00e1bamos perdidos y angustiados, sin saber a qui\u00e9n recurrir a continuaci\u00f3n, pero el personal atento y las familias amorosas que conocimos a trav\u00e9s de PRF nos han acompa\u00f1ado en cada paso del camino. Realmente hemos ganado una familia comunitaria con progeria\u201d.<\/p>\n

\u2013 Erin, la mam\u00e1 de Brennen<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Alexandra-parents.png” title_text=”Alexandra–parents” admin_label=”Alexandra and her parents” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”||0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Alexandra & her parents; Spain” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Alexandra y sus padres; Espa\u00f1a<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Zach & Tina quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0\u201cEstamos eternamente agradecidos a PRF por darnos la luz y la esperanza que necesit\u00e1bamos cuando supimos que nuestra hija de 2 a\u00f1os, Alexandra, era el \u00fanico caso de progeria en Espa\u00f1a. El maravilloso equipo de PRF y su red de incre\u00edbles profesionales nos recibieron con los brazos abiertos, nos dieron todo su amor y apoyo y nos han acompa\u00f1ado en este duro camino, incluyendo a Alexandra en sus ensayos cl\u00ednicos, d\u00e1ndonos pautas para mejorar su calidad de vida e investigando sin descanso para encontrar una cura para nuestra hija. A quienes hab\u00e9is apoyado a PRF en este camino, agradecemos enormemente vuestra colaboraci\u00f3n con PRF para que Alexandra y sus compa\u00f1eros tengan un futuro brillante\u201d.<\/p>\n

\u2013 Cedric, el padre de Alexandra<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/kaylee-17th-bday-1.png” title_text=”kaylee-17th-bday-(1)” admin_label=”Kaylee celebrates her 17th birthday” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Kaylee celebrates her 17th birthday;USA” _builder_version=”4.21.0″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″]<\/p>\n

Kaylee celebra sus 17 a\u00f1osEl<\/sup> cumplea\u00f1os en 2021; Estados Unidos<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Marla, Kaylee\u2019s mom quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0\u201cPara m\u00ed, The Progeria Research Foundation significa esperanza y apoyo. Da miedo lidiar con una enfermedad rara y s\u00e9 que, si tengo alguna pregunta, har\u00e1n todo lo posible por ayudarme. Tambi\u00e9n han ayudado a padres con progeria a conectarse para compartir sus experiencias. S\u00e9 que est\u00e1n trabajando arduamente para encontrar nuevos tratamientos y una cura, y no puedo imaginar la vida sin The Progeria Research Foundation\u201d.<\/p>\n

\u2013 Marla, la mam\u00e1 de Kaylee<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/shreyash-3.png” title_text=”shreyash-3″ admin_label=”Shreyash and his family; India” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Shreyash & his family;India” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Shreyash y su familia; India<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Arvind, Shreyash\u2019s dad quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0\u201cEn 2017, nos enteramos de la existencia de PRF y de que nuestro hijo, Shreyash, pod\u00eda recibir tratamiento. PRF fue un rayo de esperanza y nos ha apoyado de muchas maneras. Consideraron todos y cada uno de los detalles durante nuestro viaje a Boston para que estuvi\u00e9ramos c\u00f3modos, incluido el alojamiento y el viaje, adem\u00e1s de cubrir nuestro viaje de regreso a la India. Gracias a PRF, tenemos esperanza. Adem\u00e1s, el amor que Shreyash recibe de PRF es impecable. No creo que nadie haya hecho tanto antes\u201d.<\/p>\n

\u2013 Arvind, el padre de Shreyash<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Zoey-family-.png” title_text=”Zoey-family-” admin_label=”Zoey and her parents; USA” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Zoey & her parents;USA” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Zoey y sus padres; Estados Unidos<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Laura, Zoey\u2019s mom quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0\u201cPRF es nuestro sustento\u2026 una familia\u2026 nuestra esperanza de que vengan cosas maravillosas\u201d.<\/p>\n

\u2013 Laura, la mam\u00e1 de Zoey<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Nathan-Bennett-and-fam.png” title_text=”Nathan-&-Bennett-and-fam” admin_label=”Nathan and Bennett and family; USA” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Nathan, Bennett & family;USA” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Nathan, Bennett y familia; Estados Unidos<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Laura, Zoey\u2019s mom quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0\u201cQueremos lo mismo que todos los dem\u00e1s: que nuestros hijos crezcan\u2026 PRF es nuestra esperanza y nos permite seguir adelante\u201d.\u00a0<\/p>\n

\u2013 Phyllis (la mam\u00e1 de Nathan y Bennett)<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Aahan.png” title_text=”Aahan” admin_label=”Aahan and his parents; India” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Aahan & his parents;India” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Aahan y sus padres; India<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Manish Maheshwari, Aahan\u2019s Dad” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0\u201cLa Fundaci\u00f3n para la Investigaci\u00f3n de la Progeria y su equipo cl\u00ednico est\u00e1n haciendo un trabajo fant\u00e1stico y tienen un gran sentido del servicio. Han hecho mucho por nosotros y les expresamos nuestro m\u00e1s sincero agradecimiento y nuestros mejores deseos\u201d.<\/p>\n

\u2013 Manish Maheshwari, padre de Aahan<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Prachi-2.png” title_text=”Prachi-2″ admin_label=”Prachi and her dad, India” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Prachi & her dad;India” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Prachi y su padre; India<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Bikash, Prachi\u2019s dad quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0\u201cDespu\u00e9s de visitar Mumbai para el control inicial de Prachi, nos enteramos de la progeria y est\u00e1bamos preocupados. Pero esa llamada oportuna de PRF nos ayud\u00f3 a estar tranquilos. Una vez que visitamos Boston (para el ensayo cl\u00ednico de Prachi), nos dimos cuenta del trabajo fenomenal que realiza PRF, que a lo largo de los a\u00f1os se ha convertido en un s\u00f3lido sistema de apoyo para nosotros. Les estoy agradecido y espero verlos cumplir todos los sue\u00f1os de Prachi\u201d.\u00a0<\/p>\n

\u2013 Bikash, el padre de Prachi<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Sammy-and-parents.gif” title_text=”Sammy-and-parents” admin_label=”Sammy and his parents, Italy” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Sammy & his parents;Italy” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Sammy y sus padres; Italia<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Amerigo and Laura, Sammy’s dad and mom quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

<\/div>\n
\u201cCuando los m\u00e9dicos diagnosticaron a Sammy con progeria, no sab\u00edamos nada sobre esta enfermedad, as\u00ed que buscamos en Internet y encontramos PRF. Conocimos a Audrey Gordon en 2000, junto con Leslie, Scott y Sam, y nos hicimos amigos r\u00e1pidamente. En 2006, invitaron a Sammy a participar en las pruebas cl\u00ednicas de progeria, seguidas del primer ensayo cl\u00ednico de progeria. Fue como si se abriera una puerta llena de esperanza para nosotros\u2026<\/div>\n
<\/div>\n
PRF hizo y sigue haciendo cosas excepcionales. Sab\u00edamos desde el principio que pon\u00edan el coraz\u00f3n y el alma en ayudar a todos los adolescentes y ni\u00f1os con esta enfermedad. De inmediato nos convertimos en una gran familia.<\/div>\n
<\/div>\n
Para nosotros, PRF es un salvavidas\u2026 PRF nos da una gran esperanza. Cuando venimos a Boston, nos sentimos seguros, no tenemos miedo de los ensayos cl\u00ednicos, ni de los nuevos medicamentos\u2026 porque sabemos que ellos tambi\u00e9n est\u00e1n trabajando con el coraz\u00f3n, \u00a1y eso es muy importante para nosotros!<\/div>\n
<\/div>\n
-Amerigo y Laura, pap\u00e1 y mam\u00e1 de Sammy<\/strong><\/div>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/Zein-with-his-mom.png” title_text=”Zein-with-his-mom” admin_label=”Zein and his mom; Egypt” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Zein & his mom;Egypt” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Zein y su mam\u00e1; Egipto<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Dina, Zein\u2019s mom quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0\u201cNo encuentro palabras para describir lo feliz que me sent\u00ed durante este viaje [a Boston, para el tratamiento con lonafarnib de Zein], con el aliento y la esperanza de cada persona que conoc\u00ed. Les agradezco por darnos el poder para luchar contra la progeria\u201d.<\/p>\n

\u2013 Dina, la mam\u00e1 de Zein<\/strong><\/p>\n

 <\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ use_custom_gutter=”on” gutter_width=”1″ make_equal=”on” _builder_version=”4.16″ width=”100%” max_width=”2560px” global_colors_info=”{}”][et_pb_column type=”1_4″ module_class=”sidebar-secondary-nav” _builder_version=”4.16″ custom_padding=”|||50px|false|false” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/09\/aaditya.png” title_text=”aaditya” admin_label=”Aaditya and his family; India” _builder_version=”4.16″ width=”75%” custom_margin=”||10px||false|false” custom_padding=”|0px|0px|10px|false|false” global_colors_info=”{}”][\/et_pb_image][et_pb_text admin_label=”Aaditya & his family;India” _builder_version=”4.16″ text_font_size=”12px” custom_margin=”0px||||false|false” custom_padding=”0px|||10px|false|false” global_colors_info=”{}”]<\/p>\n

Aaditya y su familia; India<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|50px||0px|false|false” global_colors_info=”{}”][et_pb_testimonial admin_label=”Dina, Zein\u2019s mom quote” _builder_version=”4.16″ width=”100%” max_width=”100%” module_alignment=”right” custom_margin=”||||false|false” custom_padding=”50px||||false|false” global_colors_info=”{}” width__hover_enabled=”on|desktop” width__hover=”100%”]<\/p>\n

\u00a0\u201cNos enteramos de que Aaditya ten\u00eda progeria en 2014. La Fundaci\u00f3n para la Investigaci\u00f3n de la Progeria fue una bendici\u00f3n en nuestra vida. Con su ayuda, pudimos brindarle a nuestro hijo asistencia m\u00e9dica que nunca hubi\u00e9ramos conocido. En los \u00faltimos a\u00f1os, el apoyo de la Fundaci\u00f3n para la Investigaci\u00f3n de la Progeria lo ayud\u00f3 tanto f\u00edsica como emocionalmente. Les estamos muy agradecidos. Mi hijo, Aaditya, no deja de hablar de su viaje y tiene buenos recuerdos de los EE. UU.\u201d.<\/p>\n

\u2013 Uttam, el padre de Aaditya<\/strong><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ module_class=”footer” _builder_version=”4.21.0″ background_color=”#29327a” custom_margin=”-2px|||||” custom_padding=”0|0px|0|0px|false|false” z_index_tablet=”500″ border_width_top=”12px” border_color_top=”#00b2e2″ global_module=”133″ locked=”off” global_colors_info=”{}”][et_pb_row column_structure=”1_4,1_4,1_2″ make_equal=”on” module_class=” et_pb_row_fullwidth” _builder_version=”4.16″ width=”89%” width_tablet=”80%” width_phone=”” width_last_edited=”on|desktop” max_width=”89%” max_width_tablet=”80%” max_width_phone=”” max_width_last_edited=”on|desktop” z_index_tablet=”500″ make_fullwidth=”on” width_unit=”off” custom_width_percent=”100%” global_colors_info=”{}”][et_pb_column type=”1_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_cta button_url=”https:\/\/www.progeriaresearch.org\/newsletter-signup\/” button_text=”Sign Up Now” admin_label=”Sign Up for Newsletter” module_class=”sign-btn” _builder_version=”4.16″ header_font_size=”25px” background_color=”#29327a” animation_style=”slide” animation_direction=”left” animation_intensity_slide=”25%” header_font_size_tablet=”” header_font_size_phone=”30px” header_font_size_last_edited=”on|desktop” z_index_tablet=”500″ border_radii=”on|25px|25px|25px|25px” global_colors_info=”{}” button_bg_color__hover_enabled=”on” button_bg_color__hover=”#8fd2ed” button_border_color__hover_enabled=”on”]<\/p>\n

Inscribirse<\/h2>\n

Para nuestro<\/h2>\n

\u00a1Hoja informativa!<\/h2>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR\u201d button_text=\u201dDonar ahora\u201d admin_label=\u201d\u00a1Juntos encontraremos la cura!\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d body_font_size_tablet=\u201d\u201d body_font_size_phone=\u201d\u201d body_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201don|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201don\u201d bot\u00f3n_bg_color__hover=\u201d#8fd2ed\u201d bot\u00f3n_border_color__hover_enabled=\u201don\u201d]<\/p>\n

Juntos, nosotros<\/h2>\n

VOLUNTAD<\/em><\/h2>\n

\u00a1Encuentra la cura!<\/h2>\n

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A few words on PRF from the families in our communityWe asked parents what PRF has meant to them, and were overwhelmed by their responses!<\/p>","protected":false},"author":1,"featured_media":12103,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-11093","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"\nPRF Family Quotes | The Progeria Research Foundation<\/title>\n<meta name=\"description\" content=\"A few words on PRF from the families in our communityWe asked parents what PRF has meant to them, and were overwhelmed by their responses!\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/es\/prf-family-quotes\/\" \/>\n<meta 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