{"id":7752,"date":"2019-08-19T19:57:56","date_gmt":"2019-08-19T19:57:56","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=7752"},"modified":"2023-09-22T10:11:48","modified_gmt":"2023-09-22T14:11:48","slug":"workshop2018","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/es\/workshop2018\/","title":{"rendered":"Septiembre de 2018 en Cambridge, MA: Noveno taller cient\u00edfico internacional de PRF, \u201cMUCHOS CAMINOS, UN OBJETIVO\u201d"},"content":{"rendered":"

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\n[\/et_pb_fullwidth_image][\/et_pb_section][et_pb_section fb_built=”1″ use_custom_gutter=”on” gutter_width=”1″ specialty=”on” padding_left_1=”35px” padding_left_2=”35px” padding_2_tablet=”|||0px” padding_2_phone=”|||0px” padding_2_last_edited=”on|desktop” module_class_1=”sidebar-secondary-nav” module_class=”handprint-bg” _builder_version=”4.16″ background_image=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/blue-handprint-only.png” parallax=”on” parallax_method=”off” inner_width=”100%” inner_max_width=”100%” custom_padding=”0|0px|54px|0px|false|false” z_index_tablet=”500″ border_width_top=”10px” border_color_top=”#8fd2ed” use_custom_width=”on” width_unit=”off” custom_width_percent=”100%” global_colors_info=”{}”][et_pb_column type=”1_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_sidebar area=”et_pb_widget_area_24″ disabled_on=”on|on|off” admin_label=”Scientific meetings sidebar” module_class=”subpage-sidebars” _builder_version=”4.16″ text_orientation=”left” animation_style=”fade” z_index_tablet=”500″ border_width_right=”5px” global_colors_info=”{}”][\/et_pb_sidebar][\/et_pb_column][et_pb_column type=”3_4″ specialty_columns=”3″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_row_inner custom_padding_last_edited=”on|phone” _builder_version=”4.16″ custom_padding=”39.4375px|35px|35px||false|false” custom_padding_tablet=”|35px||35px||true” custom_padding_phone=”” animation_direction=”top” global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/01\/PRF_Group_photo_2018-2.jpg” align=”center” admin_label=”group” _builder_version=”4.16″ global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.16″ text_font_size=”12px” global_colors_info=”{}”]<\/p>\n

Cient\u00edficos, m\u00e9dicos y familias de pacientes con progeria de todo el mundo se reunieron en el taller de PRF de septiembre de 2018.<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=”on|phone” _builder_version=”4.16″ custom_padding=”39.4375px|35px|35px||false|false” custom_padding_tablet=”|35px||35px||true” custom_padding_phone=”” animation_direction=”top” global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.16″ text_text_color=”#000000″ header_font=”||on||||||” header_text_color=”#29327a” background_size=”initial” background_position=”top_left” background_repeat=”repeat” z_index_tablet=”500″ global_colors_info=”{}”]<\/p>\n

El Taller Cient\u00edfico Internacional PRF 2018 fue un \u00e9xito rotundo, con 163 inscriptos de 14 pa\u00edses diferentes. M\u00e9dicos, cient\u00edficos e investigadores precl\u00ednicos destacados, junto con familias de ni\u00f1os con progeria, se reunieron para compartir la informaci\u00f3n m\u00e1s actualizada sobre la investigaci\u00f3n de la progeria y sentar las bases para futuros esfuerzos por encontrar nuevos tratamientos y la cura para los ni\u00f1os con progeria.<\/p>\n

Las presentaciones incluyeron un debate sobre la perspectiva de los ni\u00f1os y los padres que viven con progeria, 28 presentaciones orales y 52 p\u00f3steres (\u00a1un r\u00e9cord hist\u00f3rico!). Las presentaciones y los p\u00f3steres mostraron importantes hallazgos cient\u00edficos, presentaron el progreso en la identificaci\u00f3n de posibles tratamientos terap\u00e9uticos e inspiraron futuras colaboraciones entre las comunidades m\u00e9dica y de investigaci\u00f3n.<\/p>\n

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El taller comenz\u00f3 con una sesi\u00f3n de panel familiar enfocada en crear una conexi\u00f3n en persona entre las familias que viven con progeria y la comunidad de investigaci\u00f3n. Las presentaciones cient\u00edficas luego destacaron los \u00faltimos avances en investigaci\u00f3n biol\u00f3gica y cl\u00ednica sobre la progeria, incluidas herramientas de investigaci\u00f3n esenciales como biomarcadores, as\u00ed como nuevos datos sobre posibles tratamientos con mol\u00e9culas peque\u00f1as, terapias de ARN y edici\u00f3n gen\u00e9tica.<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n
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Por primera vez, hubo presentaciones de un minuto de duraci\u00f3n a cargo de los presentadores de carteles, lo que les dio la oportunidad de presentarse y experimentar el desaf\u00edo de atraer a los asistentes del taller hacia sus carteles para debates en profundidad. Adem\u00e1s, varios asistentes aprovecharon los cr\u00e9ditos de educaci\u00f3n m\u00e9dica continua (CME) ofrecidos a trav\u00e9s de la oficina de CME de la Universidad de Brown. Tal vez el mejor indicador del \u00e9xito del taller sea la evaluaci\u00f3n medible de sus participantes. Estamos orgullosos de compartir algunos puntos destacados de la evaluaci\u00f3n:<\/p>\n

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  • 99%\u00a0<\/strong>Calific\u00f3 la reuni\u00f3n como Excelente (82%) o Muy Buena (17%)<\/li>\n
  • Calificaciones similares para el proceso de registro, el lugar, los materiales de la conferencia, el formato de la reuni\u00f3n y la sesi\u00f3n de ronda rel\u00e1mpago<\/li>\n<\/ul>\n

    Seleccione comentarios t\u00edpicos:<\/p>\n

      \n
    • Un taller muy bien planificado y ejecutado. \u00a1Muy motivador!<\/li>\n
    • Excelente reuni\u00f3n, con informaci\u00f3n de alto nivel, ambiente colaborativo.<\/li>\n
    • Muy bien organizado y profesionalmente con charlas fant\u00e1sticas, un intercambio emocionante y estimulante entre m\u00e9dicos e investigadores b\u00e1sicos.<\/li>\n<\/ul>\n

      Estamos profundamente agradecidos a todos los que participaron en este taller. El apoyo y el inter\u00e9s en la progeria aumentan cada a\u00f1o y esperamos con ansias las siguientes fases de progreso hacia una cura, juntos, en el pr\u00f3ximo taller de PRF.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

      [\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=”1_2,1_2″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column_inner type=”1_2″ saved_specialty_column_type=”3_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2018\/02\/DSC_7210-300×214.jpg” align=”center” admin_label=”Podium Meghan” _builder_version=”4.16″ global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.16″ text_font_size=”12px” global_colors_info=”{}”]<\/p>\n

      La embajadora juvenil de PRF, Meghan Waldron, se dirige a los participantes durante la cautivadora sesi\u00f3n del Panel Familiar.<\/strong><\/p>\n

      [\/et_pb_text][\/et_pb_column_inner][et_pb_column_inner type=”1_2″ saved_specialty_column_type=”3_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/01\/Poster-Room-3-1.jpg” align=”center” admin_label=”poster” _builder_version=”4.16″ global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.16″ text_font_size=”12px” global_colors_info=”{}”]<\/p>\n

      Carteles en exposici\u00f3n para debates en profundidad<\/strong><\/p>\n

      [\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=”1_2,1_2″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column_inner type=”1_2″ saved_specialty_column_type=”3_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/01\/Collins-1.jpg” align=”center” admin_label=”Collins” _builder_version=”4.16″ global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.16″ text_font_size=”12px” global_colors_info=”{}”]<\/p>\n

      El orador, Dr. Francis Collins, director de los Institutos Nacionales de Salud, toca la guitarra para Alptug, de 2 a\u00f1os, y Meghan, de 17, antes de subir al escenario en la primera noche de la conferencia.<\/strong><\/p>\n

      [\/et_pb_text][\/et_pb_column_inner][et_pb_column_inner type=”1_2″ saved_specialty_column_type=”3_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/01\/Lander.jpg” align=”center” admin_label=”Landers” _builder_version=”4.16″ global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.16″ text_font_size=”12px” global_colors_info=”{}”]<\/p>\n

      Eric S. Lander \u2013 Instituto Broad de Harvard y MIT, MIT, Facultad de Medicina de Harvard presenta \u201cNuevos enfoques gen\u00f3micos para comprender las enfermedades\u201d<\/strong><\/p>\n

      [\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/01\/Meeting-Room-1.jpg” align=”center” admin_label=”meeting room” _builder_version=”4.16″ global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.16″ text_font_size=”12px” global_colors_info=”{}”]<\/p>\n

      Las presentaciones fueron excelentes e informativas.<\/strong><\/p>\n

      [\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 clase_m\u00f3dulo=\u201dpie de p\u00e1gina\u201d _builder_version=\u201d4.21.0\u2033 color_de_fondo=\u201d#29327a\u201d margen_personalizado=\u201d-2px|||||\u201d padding_personalizado=\u201d0|0px|0|0px|falso|falso\u201d z_index_tablet=\u201d500\u2033 border_width_top=\u201d12px\u201d border_color_top=\u201d#00b2e2\u2033 global_module=\u201d133\u2033 bloqueado=\u201ddesactivado\u201d global_colors_info=\u201d{}\u201d][et_pb_row estructura_columna=\u201d1_4,1_4,1_2\u2033 make_equal=\u201dactivado\u201d module_class=\u201det_pb_row_fullwidth\u201d _builder_version=\u201d4.16\u2033 ancho=\u201d89%\u201d ancho_tablet=\u201d80%\u201d ancho_tel\u00e9fono=\u201d\u201d ancho_\u00faltima_edici\u00f3n=\u201dactivado|escritorio\u201d ancho_m\u00e1ximo=\u201d89%\u201d ancho_m\u00e1ximo_tablet=\u201d80%\u201d max_width_phone=\u201d\u201d max_width_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 make_fullwidth=\u201don\u201d width_unit=\u201doff\u201d custom_width_percent=\u201d100%\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/www.progeriaresearch.org\/newsletter-signup\/\u201d button_text=\u201dReg\u00edstrese ahora\u201d admin_label=\u201dSuscr\u00edbase al bolet\u00edn informativo\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 radio_borde=\u201dactivado|25px|25px|25px|25px\u201d informaci\u00f3n_colores_global=\u201d{}\u201d color_bot\u00f3n_fondo__hover_habilitado=\u201dactivado\u201d color_bot\u00f3n_fondo__hover=\u201d#8fd2ed\u201d color_borde_bot\u00f3n__hover_habilitado=\u201dactivado\u201d]<\/p>\n

      Inscribirse<\/h2>\n

      Para nuestro<\/h2>\n

      \u00a1Hoja informativa!<\/h2>\n

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      Juntos, nosotros<\/h2>\n

      VOLUNTAD<\/em><\/h2>\n

      \u00a1Encuentra la cura!<\/h2>\n

      [\/et_pb_cta][\/et_pb_column][et_pb_column tipo=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 relleno_personalizado=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/06\/2023-footer-strip-5.png\u201d title_text=\u201dFranja de pie de p\u00e1gina 2023 5\u2033 _builder_version=\u201d4.21.0\u2033 _module_preset=\u201ddefault\u201d custom_margin=\u201d35px||||false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"

      Scientists, clinicians, and Progeria families from around the world convened at PRF\u2019s September 2018 Workshop.The 2018 PRF International Scientific Workshop was an overwhelming success, with 163 registrants from 14 different countries. Leading physicians, scientists and preclinical investigators, joined by families of children with Progeria, came together to share the most current information on Progeria research […]<\/p>","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-7752","page","type-page","status-publish","hentry"],"yoast_head":"\n2018 workshop | The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/es\/workshop2018\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"2018 workshop | The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"Scientists, clinicians, and Progeria families from around the world convened at PRF\u2019s September 2018 Workshop.The 2018 PRF International Scientific Workshop was an overwhelming success, with 163 registrants from 14 different countries. 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