{"id":8682,"date":"2019-09-17T22:46:47","date_gmt":"2019-09-17T22:46:47","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=8682"},"modified":"2026-05-12T07:30:57","modified_gmt":"2026-05-12T11:30:57","slug":"find-the-children","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/es\/find-the-children\/","title":{"rendered":"Encuentra a los ni\u00f1os"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; fullwidth=&#8221;on&#8221; disabled_on=&#8221;off|off|off&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;0px|0px|0px|0|false|false&#8221; border_width_bottom=&#8221;55px&#8221; border_color_bottom=&#8221;#29327a&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_fullwidth_header background_overlay_color=&#8221;rgba(0,0,0,0)&#8221; _builder_version=&#8221;4.16&#8243; title_font_size=&#8221;55px&#8221; background_color=&#8221;#29327a&#8221; background_image=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/Mio-Map-4-Dec-2017-e1569347002496.jpg&#8221; 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custom_padding_phone=&#8221;&#8221; custom_padding_last_edited=&#8221;on|desktop&#8221; header_font_size_tablet=&#8221;&#8221; header_font_size_phone=&#8221;&#8221; header_font_size_last_edited=&#8221;on|desktop&#8221; header_2_font_size_tablet=&#8221;25px&#8221; header_2_font_size_phone=&#8221;&#8221; header_2_font_size_last_edited=&#8221;on|tablet&#8221; header_4_font_size_tablet=&#8221;&#8221; header_4_font_size_phone=&#8221;19px&#8221; header_4_font_size_last_edited=&#8221;on|phone&#8221; header_4_line_height_tablet=&#8221;&#8221; header_4_line_height_phone=&#8221;1.2em&#8221; header_4_line_height_last_edited=&#8221;on|phone&#8221; z_index_tablet=&#8221;500&#8243; box_shadow_horizontal_tablet=&#8221;0px&#8221; box_shadow_vertical_tablet=&#8221;0px&#8221; box_shadow_blur_tablet=&#8221;40px&#8221; box_shadow_spread_tablet=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2 style=\"text-align: center;\" data-fontsize=\"18\" data-lineheight=\"27\">\u00bfQu\u00e9 es la campa\u00f1a \u201cEncuentra a los Ni\u00f1os\u201d?<\/h2>\n<p>[\/et_pb_text][et_pb_testimonial author=&#8221;Dr. Leslie Gordon&#8221; 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position_text_shadow_vertical_length_tablet=&#8221;0px&#8221; position_text_shadow_blur_strength_tablet=&#8221;1px&#8221; company_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; company_text_shadow_vertical_length_tablet=&#8221;0px&#8221; company_text_shadow_blur_strength_tablet=&#8221;1px&#8221; body_link_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; body_link_text_shadow_vertical_length_tablet=&#8221;0px&#8221; body_link_text_shadow_blur_strength_tablet=&#8221;1px&#8221; body_ul_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; body_ul_text_shadow_vertical_length_tablet=&#8221;0px&#8221; body_ul_text_shadow_blur_strength_tablet=&#8221;1px&#8221; body_ol_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; body_ol_text_shadow_vertical_length_tablet=&#8221;0px&#8221; body_ol_text_shadow_blur_strength_tablet=&#8221;1px&#8221; body_quote_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; body_quote_text_shadow_vertical_length_tablet=&#8221;0px&#8221; body_quote_text_shadow_blur_strength_tablet=&#8221;1px&#8221; border_width_all=&#8221;4px&#8221; border_width_all_portrait=&#8221;3px&#8221; border_color_all_portrait=&#8221;#330c0c&#8221; border_style_all_portrait=&#8221;dashed&#8221; box_shadow_style=&#8221;preset1&#8243; box_shadow_vertical_tablet=&#8221;0px&#8221; box_shadow_blur_tablet=&#8221;40px&#8221; box_shadow_style_image=&#8221;preset5&#8243; text_shadow_horizontal_length_tablet=&#8221;0px&#8221; text_shadow_vertical_length_tablet=&#8221;0px&#8221; text_shadow_blur_strength_tablet=&#8221;1px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p>\u201cLa campa\u00f1a &quot;Encuentra a los ni\u00f1os&quot; de PRF es nuestra b\u00fasqueda global de ni\u00f1os con progeria. Si podemos ENCONTRAR a los ni\u00f1os, podemos AYUDARLOS, proporcion\u00e1ndoles un tratamiento que prolongue su vida, acceso a futuros ensayos cl\u00ednicos y conexiones con otras familias de ni\u00f1os. <span>y adultos j\u00f3venes <\/span>con progeria.\u201d<\/p>\n<p>[\/et_pb_testimonial][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;||11px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;intro&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;|20px|||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-18766 alignleft size-medium\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/05\/Progeria-logo-Worlwide-260x300.png\" alt=\"\" width=\"226\" height=\"261\" \/>La conciencia p\u00fablica sobre una enfermedad ultra rara como la progeria es fundamental para educar a los m\u00e9dicos, las familias, los investigadores y el p\u00fablico en general sobre la enfermedad y la misi\u00f3n de PRF.<\/p>\n<p style=\"font-weight: 400;\">&#039; de PRF<em>Encuentra el<\/em><em>y Ni\u00f1os<\/em>La campa\u00f1a es una iniciativa de concientizaci\u00f3n estrat\u00e9gica enfocada en encontrar ni\u00f1os en \u00e1reas del mundo donde creemos que muchos viven sin diagnosticar ni tratar. Pero para <strong>ayuda<\/strong> los ni\u00f1os, debemos<strong> encontrar<\/strong> Los ni\u00f1os.<\/p>\n<p style=\"font-weight: 400;\">Con ese fin, hemos creado materiales informativos sobre la progeria y el emocionante progreso de PRF para generar conciencia, educar y ayudar a las familias, sus m\u00e9dicos, investigadores y el p\u00fablico en general sobre el s\u00edndrome de progeria de Hutchinson-Gilford. A continuaci\u00f3n, se encuentran disponibles en varios idiomas. Puede ver y descargar una infograf\u00eda sobre la progeria y los programas relacionados con la investigaci\u00f3n de PRF, as\u00ed como una hoja informativa de doble cara m\u00e1s completa (para imprimir).<\/p>\n<p style=\"font-weight: 400;\"><strong>\u00a1Ay\u00fadanos a generar un impacto!<\/strong> Comparta esta informaci\u00f3n ampliamente para informar a las personas de su pa\u00eds o regi\u00f3n sobre nuestra misi\u00f3n vital de ayudar a todos los ni\u00f1os del mundo con progeria. Si bien hemos logrado avances asombrosos en la detecci\u00f3n, el diagn\u00f3stico y el tratamiento de muchos ni\u00f1os, todav\u00eda hay aproximadamente entre 150 y 250 ni\u00f1os en todo el mundo con progeria que a\u00fan no se han detectado, tratado y, alg\u00fan d\u00eda, curado. <strong>\u00a1Con tu ayuda seguiremos adelante hasta encontrarlos a todos!<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=&#8221;1_3,1_3,1_3&#8243; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner type=&#8221;1_3&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;English&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3>Ingl\u00e9s<\/h3>\n<p>[\/et_pb_text][et_pb_button button_url=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/05\/English-infographic-2024.pdf&#8221; 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link_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; link_text_shadow_vertical_length_tablet=&#8221;0px&#8221; link_text_shadow_blur_strength_tablet=&#8221;1px&#8221; ul_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; ul_text_shadow_vertical_length_tablet=&#8221;0px&#8221; ul_text_shadow_blur_strength_tablet=&#8221;1px&#8221; ol_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; ol_text_shadow_vertical_length_tablet=&#8221;0px&#8221; ol_text_shadow_blur_strength_tablet=&#8221;1px&#8221; quote_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; quote_text_shadow_vertical_length_tablet=&#8221;0px&#8221; quote_text_shadow_blur_strength_tablet=&#8221;1px&#8221; header_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; header_text_shadow_vertical_length_tablet=&#8221;0px&#8221; header_text_shadow_blur_strength_tablet=&#8221;1px&#8221; header_2_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; header_2_text_shadow_vertical_length_tablet=&#8221;0px&#8221; header_2_text_shadow_blur_strength_tablet=&#8221;1px&#8221; header_3_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; header_3_text_shadow_vertical_length_tablet=&#8221;0px&#8221; header_3_text_shadow_blur_strength_tablet=&#8221;1px&#8221; header_4_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; header_4_text_shadow_vertical_length_tablet=&#8221;0px&#8221; header_4_text_shadow_blur_strength_tablet=&#8221;1px&#8221; header_5_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; header_5_text_shadow_vertical_length_tablet=&#8221;0px&#8221; header_5_text_shadow_blur_strength_tablet=&#8221;1px&#8221; header_6_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; header_6_text_shadow_vertical_length_tablet=&#8221;0px&#8221; header_6_text_shadow_blur_strength_tablet=&#8221;1px&#8221; box_shadow_horizontal_tablet=&#8221;0px&#8221; box_shadow_vertical_tablet=&#8221;0px&#8221; box_shadow_blur_tablet=&#8221;40px&#8221; box_shadow_spread_tablet=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>A marzo de 2026, aqu\u00ed es donde viven los 157 ni\u00f1os y adultos j\u00f3venes con s\u00edndrome de progeria de Hutchinson-Gilford (HGPS), todos con una mutaci\u00f3n productora de progerina en el gen LMNA; y 84 personas en la categor\u00eda de laminopat\u00eda progeroide (PL), que tienen mutaciones en la v\u00eda de las laminas pero no producen progerina; en un total de 52 pa\u00edses.<\/p>\n<p>[\/et_pb_text][et_pb_image src=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2026\/03\/March-2026-Map.jpg&#8221; title_text=&#8221;March 2026 Map&#8221; align=&#8221;center&#8221; admin_label=&#8221;Map&#8221; _builder_version=&#8221;4.27.5&#8243; vertical_offset_tablet=&#8221;0&#8243; horizontal_offset_tablet=&#8221;0&#8243; width=&#8221;100%&#8221; min_height=&#8221;602px&#8221; custom_margin=&#8221;0px||20px||false|false&#8221; custom_padding=&#8221;0px||20px||false|false&#8221; z_index_tablet=&#8221;0&#8243; box_shadow_horizontal_tablet=&#8221;0px&#8221; box_shadow_vertical_tablet=&#8221;0px&#8221; box_shadow_blur_tablet=&#8221;40px&#8221; box_shadow_spread_tablet=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=&#8221;1_2,1_2&#8243; custom_padding_last_edited=&#8221;on|tablet&#8221; padding_left_right_link_1=&#8221;false&#8221; padding_left_right_link_2=&#8221;true&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;0|35px|16px||false|false&#8221; custom_padding_tablet=&#8221;||0px|35px||false&#8221; custom_padding_phone=&#8221;||0px|20px||false&#8221; animation_direction=&#8221;right&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; custom_padding_tablet=&#8221;&#8221; custom_padding_phone=&#8221;||30px&#8221; custom_padding_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_cta title=&#8221;What Can You Do?&#8221; button_url=&#8221;mailto:info@progeriaresearch.org&#8221; button_text=&#8221;Contact Us&#8221; admin_label=&#8221;What Can You Do?&#8221; _builder_version=&#8221;4.16&#8243; background_color=&#8221;#00b2e2&#8243; max_width=&#8221;95%&#8221; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Si alguien que usted conoce o un paciente que usted trata tiene caracter\u00edsticas similares a la progeria, comun\u00edquese con nosotros en\u00a0<a style=\"color: white;\" href=\"mailto:info@progeriaresearch.org\">info@progeriaresearch.org<\/a>.<\/p>\n<p>[\/et_pb_cta][\/et_pb_column_inner][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|20px|30px|20px&#8221; custom_padding_tablet=&#8221;&#8221; custom_padding_phone=&#8221;||30px&#8221; custom_padding_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text admin_label=&#8221;Read Exciting Campaign Updates&#8221; _builder_version=&#8221;4.24.3&#8243; z_index_tablet=&#8221;500&#8243; box_shadow_horizontal_tablet=&#8221;0px&#8221; box_shadow_vertical_tablet=&#8221;0px&#8221; box_shadow_blur_tablet=&#8221;40px&#8221; box_shadow_spread_tablet=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h4><strong>Lea actualizaciones interesantes sobre la campa\u00f1a<\/strong><\/h4>\n<p>Nuestras campa\u00f1as anteriores \u201cFind the Other 150 \/ Find the Children\u201d (2009, 2015 y 2019) tuvieron un \u00e9xito tremendo. Consulta los enlaces a continuaci\u00f3n para obtener m\u00e1s informaci\u00f3n.<\/p>\n<p><a href=\"https:\/\/www.theweek.in\/wire-updates\/business\/2019\/09\/19\/pwr10--the%20progeria%20research%20foundation.html\">Septiembre de 2019 \u2013 La campa\u00f1a &#039;Find the Children \u2013 60 in India With Progeria&#039; reaviva la b\u00fasqueda de ni\u00f1os con progeria en India (The Week)<\/a><\/p>\n<p><a href=\"https:\/\/www.hindustantimes.com\/india-news\/more-than-60-kids-in-india-may-suffer-from-rare-progeria-medical-experts\/story-jqs6lPnYCDyEfrLEkxkHTN.html\">Noviembre de 2016 \u2013 La campa\u00f1a de concienciaci\u00f3n &#039;Encontrar a los otros 60&#039; cobra fuerza en la India (Hindustan Times)<\/a><\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/es\/number-of-children-identified-continues-to-soar\/\">Noviembre de 2012 \u2013 El n\u00famero de ni\u00f1os identificados sigue aumentando y llegamos a 100<\/a><\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/es\/prf-and-boston-bruins-team-up-to-find-the-other-150\/\">Agosto de 2011: Los jugadores de hockey de la NHL de los Boston Bruins ampl\u00edan nuestro alcance a sus pa\u00edses de origen<\/a><\/p>\n<p>&nbsp;<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 module_class=\u201dfooter\u201d _builder_version=\u201d4.21.0\u2033 background_color=\u201d#29327a\u201d custom_margin=\u201d-2px|||||\u201d Relleno personalizado = 0 | 0 px | 0 | 0 px | falso | falso. \u00cdndice z de la tableta = 500. 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&quot;izquierda&quot; Intensidad de la animaci\u00f3n = &quot;25%&quot; URL de la opci\u00f3n del enlace = &quot;https:\/\/lp.constantcontactpages.com\/sl\/88gWWwz&quot; Tama\u00f1o de fuente del encabezado para tableta = &quot;Tama\u00f1o de fuente del encabezado para tel\u00e9fono = &quot;30px&quot; tama\u00f1o de fuente del encabezado, \u00faltima edici\u00f3n = \u00abactivado | escritorio\u00bb \u00edndice z de la tableta = \u00ab500\u00bb radio del borde = \u00abactivado | 25 px | 25 px | 25 px\u00bb informaci\u00f3n de colores globales = \u00ab{}\u00bb color de fondo del bot\u00f3n __hover habilitado = \u00abactivado\u00bb color de fondo del bot\u00f3n __hover = \u00ab#8fd2ed\u00bb color del borde del bot\u00f3n __hover habilitado = \u00abactivado\u00bb]<\/p>\n<h2>Inscribirse<\/h2>\n<h2>Para nuestro<\/h2>\n<h2>\u00a1Actualizaciones!<\/h2>\n<p>[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d 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