{"id":9181,"date":"2019-12-24T19:32:53","date_gmt":"2019-12-24T19:32:53","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=9181"},"modified":"2024-04-22T09:35:55","modified_gmt":"2024-04-22T13:35:55","slug":"international-registry-2","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/es\/international-registry-2\/","title":{"rendered":"Programa de Registro Internacional"},"content":{"rendered":"

[et_pb_section fb_built=\u201d1\u2033 fullwidth=\u201don\u201d deshabilitado_encendido=\u201dapagado|apagado|apagado\u201d _builder_version=\u201d4.16\u2033 border_width_bottom=\u201d55px\u201d border_color_bottom=\u201d#29327a\u201d bloqueado=\u201dapagado\u201d colapsado=\u201dencendido\u201d global_colors_info=\u201d{}\u201d][et_pb_fullwidth_header _builder_version=\u201d4.24.0\u2033 t\u00edtulo_fuente=\u201d||||||||\u201d title_font_size=\u201d55\u2033 background_color=\u201d#29327a\u201d background_image=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/12\/Prachi.jpg\u201d background_position=\u201dcenter_left\u201d custom_padding=\u201d9vw||9vw||true\u201d custom_padding_tablet=\u201d\u201d custom_padding_phone=\u201d|56px||\u201d custom_padding_last_edited=\u201don|desktop\u201d title_font_size_tablet=\u201d45px\u201d title_font_size_phone=\u201d40px\u201d title_font_size_last_edited=\u201don|phone\u201d z_index_tablet=\u201d500\u2033 custom_css_main_element=\u201dbackground-position: center 18% !important;\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

El PRF <\/span><\/span><\/h1>\n

Internacional <\/span><\/span><\/h1>\n

Paciente con progeria <\/span><\/span><\/h1>\n

Registro<\/span><\/span><\/span><\/h1>\n

<\/span><\/span><\/p>\n

 <\/p>\n

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\n[\/et_pb_sidebar][\/et_pb_column][et_pb_column type=\u201d3_4\u2033 speciality_columns=\u201d3\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_row_inner custom_padding_last_edited=\u201don|phone\u201d disabled_on=\u201don|on|\u201d _builder_version=\u201d4.16\u2033 custom_padding=\u201d39.4375px|35px|0px||false|false\u201d custom_padding_tablet=\u201d|35px||35px||true\u201d custom_padding_phone=\u201d\u201d animation_direction=\u201dtop\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d][et_pb_column_inner save_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dINTRODUCCI\u00d3N A LA P\u00c1GINA DE PROGRAMAS DE INVESTIGACI\u00d3N\u201d _builder_version=\u201d4.24.3\u2033 background_size=\u201dinicial\u201d background_position=\u201dsuperior_izquierda\u201d background_repeat=\u201drepetir\u201d hover_enabled=\u201d0\u2033 z_index_tablet=\u201d500\u2033 box_shadow_horizontal_tablet=\u201d0px\u201d box_shadow_vertical_tablet=\u201d0px\u201d box_shadow_blur_tablet=\u201d40px\u201d box_shadow_spread_tablet=\u201d0px\u201d global_colors_info=\u201d{}\u201d sticky_enabled=\u201d0\u2033]<\/p>\n

La Fundaci\u00f3n para la Investigaci\u00f3n de la Progeria es un recurso global para la investigaci\u00f3n y la educaci\u00f3n sobre la progeria. La progeria es una enfermedad extremadamente rara. Para comprender mejor la patolog\u00eda y el curso natural del s\u00edndrome, hemos establecido un Programa de Registro Internacional.<\/p>\n

El Registro proporciona recursos para el estudio de la progeria y mantiene una base de datos centralizada sobre ni\u00f1os con progeria de todo el mundo, al tiempo que sirve para mejorar la comunicaci\u00f3n de ideas entre investigadores, para asegurar una r\u00e1pida distribuci\u00f3n de cualquier informaci\u00f3n nueva que pueda beneficiar a los pacientes y sus familias.<\/p>\n

El Registro puede ser auditado por agencias gubernamentales, como la Administraci\u00f3n de Alimentos y Medicamentos de los EE. UU., en situaciones como el desarrollo de medicamentos.<\/p>\n

Se agradece enormemente su cooperaci\u00f3n para registrarse y contribuir con informaci\u00f3n sobre ni\u00f1os con progeria al Registro. Si usted es el padre, el m\u00e9dico u otro representante de un ni\u00f1o con progeria, complete un Formulario de Registro y env\u00edelo a\u00a0<\/span>info@progeriaresearch.org<\/a>.<\/strong><\/p>\n

Gracias de antemano por participar en Registro internacional de pacientes con progeria de la PRF<\/span>.<\/p>\n

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Inscribirse<\/h2>\n

Para nuestro<\/h2>\n

\u00a1Hoja informativa!<\/h2>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR\u201d button_text=\u201dDonar ahora\u201d admin_label=\u201d\u00a1Juntos encontraremos la cura!\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d body_font_size_tablet=\u201d\u201d body_font_size_phone=\u201d\u201d body_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201don|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201don\u201d bot\u00f3n_bg_color__hover=\u201d#8fd2ed\u201d bot\u00f3n_border_color__hover_enabled=\u201don\u201d]<\/p>\n

Juntos, nosotros<\/h2>\n

VOLUNTAD<\/em><\/h2>\n

\u00a1Encuentra la cura!<\/h2>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column tipo=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 relleno_personalizado=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/02\/2024-strip-footer-strip-.png\u201d title_text=\u201dFranja de pie de p\u00e1gina de 2024\u201d _builder_version=\u201d4.24.0\u2033 _module_preset=\u201ddefault\u201d custom_margin=\u201d35px||||false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"

Registro Internacional de Pacientes con Progeria de la PRF La Fundaci\u00f3n para la Investigaci\u00f3n de la Progeria es el recurso mundial para la investigaci\u00f3n y la educaci\u00f3n sobre la progeria. La progeria es una enfermedad extremadamente rara. Para comprender mejor la patolog\u00eda y el curso natural del s\u00edndrome, hemos establecido un Programa de Registro Internacional. El Registro proporciona recursos para el estudio de la progeria y mantiene [\u2026]<\/p>","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-9181","page","type-page","status-publish","hentry"],"yoast_head":"\nInternational registry | The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/es\/international-registry-2\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"International registry | The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"The PRF International Progeria Patient Registry   The Progeria Research Foundation is the global resource for Progeria research and education. Progeria is an ultra-rare condition. In order to better understand the pathology and natural course of the syndrome, we established an International Registry Program. 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