{"id":12877,"date":"2022-11-15T11:20:35","date_gmt":"2022-11-15T16:20:35","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=12877"},"modified":"2026-04-13T16:57:30","modified_gmt":"2026-04-13T20:57:30","slug":"prfs-11th-international-scientific-workshop","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/es\/2022\/11\/15\/prfs-11th-international-scientific-workshop\/","title":{"rendered":"\u00a1El 11\u00ba Taller Cient\u00edfico Internacional de PRF fue un \u00e9xito!"},"content":{"rendered":"

[et_pb_section fb_built=”1″ fullwidth=”on” disabled_on=”off|off|off” _builder_version=”4.16″ border_width_bottom=”55px” border_color_bottom=”#29327a” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_fullwidth_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2021\/11\/2022-Banner-NewDates.jpg” title_text=”2022 Banner NewDates” _builder_version=”4.16″ custom_padding=”20px|||” z_index_tablet=”500″ global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_fullwidth_image][\/et_pb_section][et_pb_section fb_built=”1″ use_custom_gutter=”on” gutter_width=”1″ specialty=”on” padding_left_1=”35px” padding_left_2=”35px” padding_2_tablet=”|||0px” padding_2_phone=”|||0px” padding_2_last_edited=”on|desktop” module_class_1=”sidebar-secondary-nav” module_class=”handprint-bg” _builder_version=”4.16″ background_image=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/blue-handprint-only.png” parallax=”on” parallax_method=”off” inner_width=”100%” inner_max_width=”100%” custom_padding=”0|0px|0px|0px|false|false” z_index_tablet=”500″ border_width_top=”10px” border_color_top=”#8fd2ed” use_custom_width=”on” width_unit=”off” custom_width_percent=”100%” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”1_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||” theme_builder_area=”post_content”][et_pb_sidebar area=”et_pb_widget_area_24″ disabled_on=”on|on|off” admin_label=”Scientific meetings sidebar” module_class=”subpage-sidebars” _builder_version=”4.16″ text_orientation=”left” animation_style=”fade” z_index_tablet=”500″ border_width_right=”5px” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_sidebar][\/et_pb_column][et_pb_column type=”3_4″ specialty_columns=”3″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||” theme_builder_area=”post_content”][et_pb_row_inner custom_padding_last_edited=”on|phone” _builder_version=”4.16″ custom_padding=”39.4375px|35px|35px|12px|false|false” custom_padding_tablet=”|35px||35px||true” custom_padding_phone=”” animation_direction=”top” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

PRF Taller cient\u00edfico internacional PRF 2022<\/strong> \u2013 La raza progeria hacia la cura,<\/em> Fue un \u00e9xito rotundo, reuniendo 124 inscritos de 14 pa\u00edses<\/strong>M\u00e9dicos, investigadores y familias l\u00edderes con progeria se reunieron en Boston, Massachusetts, para compartir los \u00faltimos hallazgos en la investigaci\u00f3n sobre la progeria y sentar las bases para futuros esfuerzos encaminados a descubrir nuevos tratamientos y la cura para ni\u00f1os y adultos j\u00f3venes con progeria.<\/p>\n

Comenzamos la noche de apertura con nuestro Primer panel moderado por un adulto con progeria<\/strong>, Sammy Basso, de 27 a\u00f1os, de Tezze sul Brenta, Italia. El panel tambi\u00e9n cont\u00f3 con la participaci\u00f3n de otras dos personas que viven con progeria, Meg y Carlos, quienes cautivaron a la audiencia al compartir las nuevas y emocionantes actividades que han realizado recientemente durante el a\u00f1o pasado. \u00a1Lo m\u00e1s emocionante fue que Meg se gradu\u00f3 de la universidad antes de tiempo, un mes despu\u00e9s del taller! La noche de apertura tambi\u00e9n incluy\u00f3 una Zoom en vivo con ni\u00f1os de todo el mundo<\/strong>, seguido de una sorpresa Actuaci\u00f3n musical del Dr. Francis Collins<\/strong>, asesor cient\u00edfico del presidente de los EE. UU. y cuyo laboratorio condujo al descubrimiento del gen de la progeria. El Dr. Collins deleit\u00f3 a la audiencia con varias canciones populares con letras modificadas sobre el progreso del PRF hacia la cura. \u00a1Qu\u00e9 especial!<\/p>\n

Un progreso y una colaboraci\u00f3n tan profundos como \u00e9ste s\u00f3lo pueden producirse cuando una comunidad cient\u00edfica profundamente comprometida se re\u00fane, como lo hemos hecho durante 11 reuniones internacionales.<\/strong><\/p>\n

El amor y la pasi\u00f3n por ayudar a estos ni\u00f1os y j\u00f3venes se expresaron en todas y cada una de las presentaciones, y ya han dado lugar a muchas colaboraciones transcontinentales para explorar tratamientos adicionales y caminos hacia una cura.<\/p>\n

Estamos encantados de compartir esta primera noche con vosotros.<\/p>\n

[\/et_pb_text][et_pb_button button_url=”https:\/\/www.youtube.com\/watch?v=dkADdswqWN0″ button_text=”Click Here to Watch the Opening Night of the 2022 Workshop” admin_label=”wkshp video” _builder_version=”4.19.5″ _module_preset=”default” button_text_color=”#FFFFFF” button_bg_color=”#00B2E2″ button_border_width=”6px” button_border_color=”#00B2E2″ background_layout=”dark” custom_margin=”30px||30px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_text _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Los d\u00edas dos y tres del taller se centraron en 28 presentaciones cient\u00edficas orales y 26 posters<\/strong>Comenzamos el tercer d\u00eda con una nueva incorporaci\u00f3n al taller: la Sesi\u00f3n Sunrise, que conect\u00f3 a investigadores j\u00f3venes con l\u00edderes experimentados en el campo en un entorno de grupos peque\u00f1os, incitando un di\u00e1logo interesante entre los diversos grupos de investigadores.<\/p>\n

Para recuperar otro de los favoritos del taller, nuestra ronda rel\u00e1mpago brind\u00f3 a los presentadores de carteles una plataforma para presentarles a sus pares un avance din\u00e1mico de los carteles que presentar\u00edan m\u00e1s tarde esa noche. Estas presentaciones destacaron los \u00faltimos avances en la investigaci\u00f3n cl\u00ednica sobre la progeria, incluido un an\u00e1lisis profundo de la Progreso transformador de la terapia del ARN y la edici\u00f3n gen\u00e9tica<\/strong> en estudios precl\u00ednicos, as\u00ed como una Sesi\u00f3n card\u00edaca que destac\u00f3 las estrategias de intervenci\u00f3n para la estenosis a\u00f3rtica cr\u00edtica<\/strong> en adultos j\u00f3venes con progeria. Las presentaciones y los carteles detallaron el alcance del progreso en los posibles tratamientos para la progeria e inspiraron la colaboraci\u00f3n futura entre las comunidades m\u00e9dica y de investigaci\u00f3n.<\/p>\n

Adem\u00e1s, varios asistentes aprovecharon los cr\u00e9ditos de educaci\u00f3n m\u00e9dica continua (CME) ofrecidos a trav\u00e9s de la oficina de CME de Lifespan Rhode Island Hospital.<\/p>\n

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A continuaci\u00f3n se muestran algunos ejemplos de los comentarios del taller:<\/strong><\/p>\n

[\/et_pb_text][et_pb_testimonial _builder_version=”4.18.1″ _module_preset=”default” background_color=”#8FD2ED” custom_padding=”||0px|||” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

\"\"<\/p>\n

\u201cLa reuni\u00f3n fue incre\u00edble. La del mi\u00e9rcoles por la noche fue fant\u00e1stica. Leslie dio una charla incre\u00edble. Fue genial que un paciente con progeria dirigiera el panel. El panel siempre es un momento destacado. Gracias por pedirle a Francis que volviera a cantar. \u00a1Tambi\u00e9n me encanta esa parte! La reuni\u00f3n estuvo muy bien organizada. \u00a1Gracias!\u201d<\/strong><\/p>\n

\u201cSiempre espero con ansias esta reuni\u00f3n. El Royal Sonesta [el lugar del taller] es un espacio excepcional para la reuni\u00f3n; \u00a1cada aspecto estaba perfectamente planificado!\u201d<\/strong><\/p>\n

\u201cCada vez veo una mejora\u2026 \u00a1sigo as\u00ed! Fue muy impresionante el \u201cambiente familiar\u201d que hizo que todos estuvieran m\u00e1s relajados y c\u00f3modos para aprender y hacer preguntas. \u00a1Fue divertido e instructivo, una gran inyecci\u00f3n de esperanza!\u201d<\/strong><\/p>\n

\u201c\u00a1Excelente conferencia con ponentes fenomenales!\u201d<\/strong><\/p>\n

\u201cComo siempre, un taller excelente, \u00a1no te lo puedes perder!\u201d<\/strong><\/p>\n

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Sammy y Carlos hablando antes de dar su presentaci\u00f3n en el panel.<\/strong><\/p>\n

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Francis Collins, MD, PhD interpretando para el p\u00fablico varias canciones populares<\/strong><\/p>\n

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Investigadores, m\u00e9dicos y familias de pacientes con progeria de todo el mundo se reunieron en la 11.\u00aa reuni\u00f3n de la PRFEl<\/sup> Taller cient\u00edfico internacional.<\/strong><\/p>\n

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El Comit\u00e9 de Investigaci\u00f3n M\u00e9dica voluntario se reuni\u00f3 antes de la conferencia para revisar propuestas de subvenciones nuevas e interesantes.<\/strong><\/p>\n

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Gracias a nuestros patrocinadores:<\/h3>\n

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\u00a1Gracias a todos los que asistieron al 11\u00ba Taller Cient\u00edfico Internacional de la Fundaci\u00f3n de Investigaci\u00f3n de Progeria \u2013 RACE Progeria to the Cure!<\/p>","protected":false},"author":2,"featured_media":13885,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2,1],"tags":[],"class_list":["post-12877","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-uncategorized"],"yoast_head":"\nPRF\u2019s 11th International Scientific Workshop | The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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