{"id":16689,"date":"2023-04-06T09:34:51","date_gmt":"2023-04-06T13:34:51","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=16689"},"modified":"2023-04-24T11:06:03","modified_gmt":"2023-04-24T15:06:03","slug":"team-prf-runs-boston-marathon","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/es\/2023\/04\/06\/team-prf-runs-boston-marathon\/","title":{"rendered":"\u00a1El equipo PRF corre nuevamente el marat\u00f3n de Boston!"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.16″ custom_padding=”0px||0px|||” locked=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.19.5″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”]<\/p>\n

\"\"El lunes 17 de abril de 2023, la Fundaci\u00f3n para la Investigaci\u00f3n de la Progeria animar\u00e1 a dos simpatizantes de la PRF que saldr\u00e1n a las calles en el Marat\u00f3n de Boston en nombre de la comunidad de la progeria: Paul Michienzie de Foxboro (derecha) y Bobby Nadeau (izquierda) de Mansfield. Los buenos amigos emprender\u00e1n la codiciada carrera de 26,2 millas para recaudar fondos para la cura de la progeria.<\/p>\n

Paul corre el marat\u00f3n en nombre de PRF por tercer a\u00f1o consecutivo, pero en realidad se entren\u00f3 para cuatro maratones (la primera se cancel\u00f3 debido al COVID). Paul y su familia eran buenos amigos y vecinos de los doctores Leslie Gordon y Scott Berns (cofundadores de PRF) y su hijo Sam Berns, que ten\u00eda progeria y falleci\u00f3 en 2014. Sam dej\u00f3 un legado de inspiraci\u00f3n que ahora impulsa a PRF y a sus seguidores a continuar la b\u00fasqueda de una cura.<\/p>\n

 <\/p>\n

[\/et_pb_text][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/04\/BM2023.png” title_text=”BM2023″ align=”center” _builder_version=”4.19.5″ _module_preset=”default” width=”50%” max_width=”50%” global_colors_info=”{}”][\/et_pb_image][et_pb_testimonial portrait_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/04\/PaulBM-289×300.png” quote_icon_color=”#FFFFFF” quote_icon_background_color=”#00B2E2″ portrait_width=”115px” portrait_height=”115px” admin_label=”Paul quote” _builder_version=”4.19.5″ _module_preset=”default” background_color=”#8FD2ED” link_option_url=”https:\/\/www.givengain.com\/activist\/417713\/” global_colors_info=”{}”]<\/p>\n

Paul dice: \u201cSeguir\u00e9 esforz\u00e1ndome para que podamos recaudar dinero para ayudar a estos ni\u00f1os y encontrar una cura para la progeria #. Si puedes, \u00a1por favor dona a mi proyecto de recaudaci\u00f3n de fondos en GivenGain! Gracias.<\/p>\n

Haz una donaci\u00f3n a Paul aqu\u00ed<\/a><\/strong><\/span><\/p>\n

[\/et_pb_testimonial][et_pb_testimonial portrait_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/04\/Bobby-and-sons.png” quote_icon_color=”#FFFFFF” quote_icon_background_color=”#00B2E2″ portrait_width=”115px” portrait_height=”115px” admin_label=”Bobby quote” _builder_version=”4.19.5″ _module_preset=”default” background_color=”#8FD2ED” link_option_url=”https:\/\/www.givengain.com\/activist\/694229\/” global_colors_info=”{}”]<\/p>\n

Bobby Nadeau est\u00e1 muy emocionado por la oportunidad de correr su primer marat\u00f3n de Boston en representaci\u00f3n de PRF y dice:<\/p>\n

"Cuando ten\u00eda 28 a\u00f1os, me diagnosticaron una enfermedad renal, ten\u00eda sobrepeso y llevaba un estilo de vida poco saludable. He utilizado el ejercicio f\u00edsico en mi camino para transformar mi cintura y, como resultado, obtuve un certificado de buena salud. Desde entonces, he aprendido que puedo hacer todo lo que me proponga y he tenido el sue\u00f1o de correr el marat\u00f3n de Boston a los 45 a\u00f1os. \u00a1No hay mejor manera de celebrar este hito que recaudar fondos para una causa tan importante como la progeria!"<\/p>\n

Haz una donaci\u00f3n a Bobby aqu\u00ed<\/a><\/strong><\/span><\/p>\n

[\/et_pb_testimonial][et_pb_text _builder_version=”4.19.5″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”]<\/p>\n

\"\"<\/p>\n

 <\/p>\n

Los fondos recaudados por TEAM PRF en el Marat\u00f3n de Boston financian directamente la investigaci\u00f3n vital para ayudar a las personas con progeria en todo el mundo a vivir vidas m\u00e1s largas y saludables. Este a\u00f1o, planeamos comenzar un ensayo cl\u00ednico con un medicamento completamente nuevo llamado Progerinin, mientras continuamos explorando terapias gen\u00e9ticas de vanguardia.<\/p>\n

Por favor, demuestre algo de amor donando a sus p\u00e1ginas de recaudaci\u00f3n de fondos a continuaci\u00f3n:<\/p>\n

[\/et_pb_text][et_pb_button button_url=”https:\/\/www.givengain.com\/activist\/417713\/” button_text=”Paul Michienzie\u2019s fundraising page ” admin_label=”Paul” _builder_version=”4.19.5″ _module_preset=”default” custom_button=”on” button_text_color=”#FFFFFF” button_bg_color=”#00B2E2″ button_border_color=”#00B2E2″ background_layout=”dark” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”https:\/\/www.givengain.com\/activist\/694229\/” button_text=”Bobby Nadeau\u2019s fundraising page ” admin_label=”Bobby” _builder_version=”4.19.5″ _module_preset=”default” custom_button=”on” button_text_color=”#FFFFFF” button_bg_color=”#00B2E2″ button_border_color=”#00B2E2″ background_layout=”dark” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"

El lunes 17 de abril de 2023, la Fundaci\u00f3n de Investigaci\u00f3n de Progeria animar\u00e1 a dos partidarios de la PRF desde hace mucho tiempo que saldr\u00e1n a las calles en el Marat\u00f3n de Boston en nombre de la comunidad de progeria.<\/p>","protected":false},"author":2,"featured_media":16730,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[3,2,1],"tags":[],"class_list":["post-16689","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-events","category-news","category-uncategorized"],"yoast_head":"\nPRF runs Boston Marathon | The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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