{"id":18802,"date":"2024-07-24T12:33:03","date_gmt":"2024-07-24T16:33:03","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=18802"},"modified":"2025-01-29T09:22:01","modified_gmt":"2025-01-29T14:22:01","slug":"nytarticle2024","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/es\/2024\/07\/24\/nytarticle2024\/","title":{"rendered":"New York Times | 24 de julio de 2024: Una cura para la progeria podr\u00eda estar en el horizonte"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/05\/NYTarticle.png” title_text=”NYTarticle” url=”https:\/\/www.charitynavigator.org\/ein\/043460220″ align=”center” admin_label=”NYT Article photo” _builder_version=”4.24.3″ _module_preset=”default” width=”50%” max_width=”50%” global_colors_info=”{}”][\/et_pb_image][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/05\/NY-Times-headline-screen-shot.png” align=”center” _builder_version=”4.24.3″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.24.3″ text_font_size=”18px” background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”]<\/p>\n

En un Art\u00edculo publicado hoy en el New York Times<\/strong><\/a>La directora m\u00e9dica de PRF, la Dra. Leslie Gordon, y sus colegas compartieron la fenomenal historia de las colaboraciones cient\u00edficas que llevaron a avances recientes en la edici\u00f3n gen\u00e9tica en la progeria.<\/p>\n

Las asociaciones con los amigos y colegas de PRF desde hace mucho tiempo, el ex director del NIH, Dr. Francis Collins, y el experto en edici\u00f3n gen\u00e9tica, Dr. David Liu de Harvard\/MIT, han producido hallazgos extraordinarios previamente publicado en la revista <\/strong><\/a>Naturaleza<\/em><\/strong><\/a>, sobre los poderes potencialmente curativos de la edici\u00f3n de base.<\/p>\n

Obtenga la historia completa aqu\u00ed: Una enfermedad que hace que los ni\u00f1os envejezcan r\u00e1pidamente est\u00e1 cada vez m\u00e1s cerca de curarse<\/a><\/em><\/strong><\/p>\n

[\/et_pb_text][et_pb_testimonial quote_icon_color=”#8FD2ED” quote_icon_background_color=”#29327A” _builder_version=”4.27.0″ _module_preset=”default” body_font_size=”20px” background_color=”#00B2E2″ background_layout=”dark” custom_margin=”||25px||false|false” custom_padding=”0px||0px||false|false” border_radii=”on|40px|40px|40px|40px” global_colors_info=”{}”]<\/p>\n

<\/em><\/strong><\/p>\n

Los nuevos tipos de edici\u00f3n gen\u00e9tica son \u201cpotencialmente la respuesta a un sue\u00f1o que todos queremos hacer realidad\u201d,<\/em><\/strong><\/p>\n

Dr. Francis Collins<\/em><\/strong><\/p>\n

[\/et_pb_testimonial][et_pb_testimonial quote_icon_color=”#8FD2ED” quote_icon_background_color=”#29327A” _builder_version=”4.27.0″ _module_preset=”default” body_font_size=”20px” background_color=”#00B2E2″ background_layout=”dark” custom_margin=”||0px||false|false” custom_padding=”0px||0px||false|false” border_radii=”on|40px|40px|40px|40px” global_colors_info=”{}”]<\/p>\n

<\/em><\/strong><\/p>\n

Vea algunos de los maravillosos comentarios de los lectores:<\/b><\/p>\n

\u201cTecnolog\u00eda de edici\u00f3n, empalme y reescritura de ADN\u2026 una lectura que te dejar\u00e1 con la boca abierta. \u00a1Guau!\u201d<\/em><\/p>\n

\u201cPara entender mejor esta enfermedad, vea la pel\u00edcula \u201cLa vida seg\u00fan Sam\u201d en HBO. Le sorprender\u00e1 la dedicaci\u00f3n de los padres de Sam a descubrir una cura para la progeria. Le sorprender\u00e1 Sam, a quien tuve la suerte de conocer mientras exploraba la posibilidad de tocar timbales en una orquesta sinf\u00f3nica durante un campamento de m\u00fasica de verano. Era un estudiante comprometido, curioso y con m\u00faltiples talentos que logr\u00f3 mucho en su corta vida\u201d.<\/em><\/p>\n

\u201c\u00a1Un art\u00edculo inspirador! Gracias, reportero del Times, por dirigir nuestra atenci\u00f3n a las luchas que vale la pena librar. \u00a1Las buenas luchas! Declaremos la guerra a las enfermedades y los trastornos en lugar de luchar entre humanos. Invirtamos dinero en matar virus, no en matarnos entre nosotros. Por favor, sigan haci\u00e9ndonos m\u00e1s conscientes de todas las buenas luchas que se est\u00e1n librando en los laboratorios y los hospitales. \u00a1Lo necesitamos! \u00a1Gracias!\u201d<\/em><\/p>\n

\u201cEs muy conmovedor leerlo. El Dr. Collins es un h\u00e9roe estadounidense. Estos cient\u00edficos que est\u00e1n en la c\u00faspide merecen nuestra financiaci\u00f3n y nuestra admiraci\u00f3n. Los pacientes, sobre todo, merecen nuestro apoyo. Qu\u00e9 grupo de personas tan valientes viven con esta enfermedad debilitante. Esperamos que pronto se produzca un gran avance\u201d.<\/em><\/p>\n

\u201c\u00a1Me encant\u00f3 este art\u00edculo! Gracias NYT. Es fant\u00e1stico leer sobre algo tan prometedor que ayudar\u00e1 a tantas personas. Bravo al Dr. Collin y sus colegas\u201d.<\/em><\/p>\n

\u201c\u00a1Qu\u00e9 art\u00edculo tan maravilloso y qu\u00e9 tesoro americano son Francis Collins y David Liu! Estoy muy agradecido por su dedicaci\u00f3n desinteresada a estas enfermedades gen\u00e9ticas raras\u201d.<\/em><\/p>\n

\u201cAbsolutamente fascinante. Espero que pronto obtengan la aprobaci\u00f3n para el ensayo cl\u00ednico. Gran trabajo\u201d.<\/em><\/p>\n

\u201cEsto es fenomenal. De ni\u00f1o me interesaba mucho la medicina y ve\u00eda documentales sobre todo tipo de enfermedades raras. La progeria siempre me llam\u00f3 la atenci\u00f3n. Me alegra mucho ver que se hace este tipo de trabajo. Espero que sirva para curar a los ni\u00f1os que padecen esta enfermedad y que pueda utilizarse para curar a muchos m\u00e1s\u201d.<\/em><\/p>\n

\u201cEn la d\u00e9cada de 1990, era redactora cient\u00edfica en un laboratorio de gen\u00e9tica de mam\u00edferos. En aquel entonces, las palabras \u201cedici\u00f3n de bases in vivo\u201d me habr\u00edan hecho caer de la silla con un grito de alegr\u00eda. Comparto la expresi\u00f3n \u201cGUAU\u201d del Dr. Collins y estoy muy agradecida por la claridad y el optimismo de este art\u00edculo\u201d.<\/em><\/p>\n

\u201cGracias al autor por cubrir este importante avance cient\u00edfico. Felicitaciones enormes al Dr. Collins y a todos en PRF por su incansable trabajo. Tuve la suerte y el honor de haber estado all\u00ed cuando PRF comenz\u00f3 y con gusto me ofrec\u00ed como voluntario para muchas de sus iniciativas de recaudaci\u00f3n de fondos para ayudar a apoyar sus incre\u00edbles esfuerzos. Tuve la suerte de haber conocido a Sam varias veces; era una persona maravillosa. Ver el \u00e9xito que todo este arduo trabajo ha logrado y sigue logrando es una verdadera alegr\u00eda\u201d.<\/em><\/p>\n

\u201cEl Dr. Collins es el tipo de cient\u00edfico que necesitamos. No busca sacar provecho de un tratamiento farmacol\u00f3gico millonario, sino que est\u00e1 feliz de vivir de su salario del NIH mientras realiza investigaciones fundamentales que salvar\u00e1n vidas. \u00a1M\u00e1s cient\u00edficos como \u00e9l, por favor!\u201d<\/em><\/p>\n

\u201cEsto es maravilloso y esperanzador. Tuve la suerte de conocer a Sam y a sus padres. Todav\u00eda pienso en \u00e9l: en su coraje, su tenacidad y su esp\u00edritu incre\u00edble. \u00a1Sin duda, te est\u00e1 animando desde el lugar donde lo ha llevado su viaje!\u201d<\/em><\/p>\n

[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"

La investigaci\u00f3n se est\u00e1 intensificando: como inform\u00f3 el New York Times, \u00a1la cura de la progeria podr\u00eda estar en el horizonte! Nuestras colaboraciones con las mentes m\u00e1s brillantes en edici\u00f3n gen\u00e9tica est\u00e1n dando sus frutos y, en palabras del ex director del NIH, el Dr. Francis Collins, pueden ser \u201cla respuesta a un sue\u00f1o que todos queremos que se haga realidad\u201d.<\/p>","protected":false},"author":2,"featured_media":19157,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2,1],"tags":[],"class_list":["post-18802","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-uncategorized"],"yoast_head":"\nNYT Article I The Progeria Research Foundation<\/title>\n<meta name=\"description\" content=\"Remarkable Progeria gene editing progress featured in NY Times.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, 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