Nos complace anunciar que a partir de las 8 p. m. del 3 de marzo de 2015, la p\u00e1gina de Facebook de la Fundaci\u00f3n para la Investigaci\u00f3n de la Progeria ha... 1.000.000 de seguidores: \u00a1INCRE\u00cdBLE!<\/strong>\u00a1Con su ayuda, estamos difundiendo la misi\u00f3n de PRF en todo el mundo, lo que dar\u00e1 como resultado m\u00e1s seguidores, m\u00e1s ni\u00f1os con progeria identificados en todo el mundo y m\u00e1s avances hacia una cura!<\/p>\n \u00danase a nuestra comunidad en Facebook<\/a><\/strong>y trae a tus amigos para compartir nuestro mensaje de esperanza para los ni\u00f1os con progeria.<\/p>\n Una canci\u00f3n especial en honor a Sam Berns\u2026<\/strong><\/p>\n Sam y Pat en 2004<\/p><\/div>\n Pat McGee, partidario del PRF desde hace mucho tiempo y aclamado m\u00fasico, escribi\u00f3: \u201cToma el camino largo\u201d<\/strong>, una canci\u00f3n en honor a su amigo Sam Berns, quien falleci\u00f3 por complicaciones de progeria el 10 de enero de 2014. Grabada en una sola toma, la canci\u00f3n presenta a muchos de los miembros originales de la banda que conocieron a Sam, as\u00ed como otros m\u00fasicos de estudio legendarios que se sintieron profundamente conmovidos por la historia de Sam. Se escucha a Sam tocando el tambor de marcha al principio y al final. <\/i>grabaciones tomadas de pel\u00edculas caseras grabadas previamente.<\/i><\/p>\n ESCUCHA LA CANCI\u00d3N EN SOUNDCLOUD AQU\u00cd<\/a>, Y COMPRA LA CANCI\u00d3N AQU\u00cd<\/a>.<\/strong><\/p>\n La letra, escrita en primera persona, es la interpretaci\u00f3n de McGee de la infinita sabidur\u00eda y el amor de Sam por su familia y amigos; algunas palabras est\u00e1n inspiradas en la reciente canci\u00f3n de Sam. Charla TEDX, <\/a>El documental de HBO La vida seg\u00fan Sam<\/i><\/a>, y de los sinceros comentarios pronunciados en el funeral de Sam por aquellos que lo conocieron y lo amaron.<\/p>\n \u201cSam fue y siempre ser\u00e1 una inspiraci\u00f3n para m\u00ed, mi familia y los miembros de mi banda\u201d, dice Pat. \u201cEl coraje, la abnegaci\u00f3n, el profundo amor y el aprecio de Sam por todo lo bueno del mundo es una forma de vida que se compartir\u00e1 y transmitir\u00e1 a los dem\u00e1s m\u00e1s de lo que Sam jam\u00e1s podr\u00eda haber so\u00f1ado\u201d.<\/p>\n<\/div>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":" [et_pb_section fb_built=”1″ _builder_version=”3.22″][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.6.5″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” hover_enabled=”0″ sticky_enabled=”0″] In a wonderful display of global support for children with Progeria, 1 million people are following PRF through its dynamic and informative Facebook page. Follow and share so everyone can be part of our quest for the cure! […]<\/p>","protected":false},"author":1,"featured_media":2012,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":" [vc_custom_heading text=\"PRF's Facebook reaches 1 MILLION FOLLOWERS!\" font_container=\"tag:h1|text_align:left\" use_theme_fonts=\"yes\"]<\/p> In a wonderful display of global support for children with Progeria, 1 million people are following PRF through its dynamic and informative Facebook page. Follow<\/a> and share so everyone can be part of our quest for the cure! In recognition of this milestone and all the people Sam Berns inspired, click here<\/a> for \u201cTake the Long Way\u201d, a special musical tribute to Sam.<\/p><\/div><\/div> We are thrilled to announce that as of 8 PM on March 3rd, 2015, The Progeria Research Foundation Facebook page has 1,000,000 followers - AMAZING<\/strong>!\u00a0With your help we are spreading awareness of PRF's mission across the globe, resulting in more supporters, more children with Progeria identified around the world, and more progress toward a cure.<\/p> Please join our community on Facebook<\/a><\/strong>, and bring your friends along to share our message of hope for children with Progeria.<\/p> A Special Song Honoring Sam Berns\u2026<\/strong><\/p>[caption id=\"\" align=\"alignright\" width=\"200\"] Long-time PRF supporter and acclaimed musician Pat McGee wrote \u201cTake The Long Way\u201c<\/strong>, a song in honor of his friend Sam Berns, who passed away from complications of Progeria on January 10, 2014.\u00a0 Recorded in just one take, the song features many of the original band members who knew Sam, as well as other legendary studio musicians who were profoundly moved by Sam's story. Sam is heard playing the marching snare drum in the very beginning and end <\/i>recordings taken from previously recorded home movies.<\/i><\/p> HEAR THE SONG ON SOUNDCLOUD HERE<\/a>, AND BUY THE SONG HERE<\/a>.<\/strong><\/p> The lyrics, written in first person, are McGee's interpretation of Sam's infinite wisdom and love for his family and friends-- some words are inspired from Sam's recent TedX talk, <\/a>the HBO Documentary Life According to Sam<\/i><\/a>, and from heartfelt remarks spoken at Sam's funeral by those who knew and loved him.<\/p> \u201cSam was and will always be an inspiration to me, my family and my band members\u201d, says Pat. \u201cSam's courage, selflessness & deep love and appreciation for all the good in the world is a way of life that will be shared and paid forward more than Sam could have ever dreamed.\u201d<\/p><\/div>","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2],"tags":[],"class_list":["post-2001","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"yoast_head":"\n![\"\"](\"https:\/\/web.archive.org\/web\/20170216034240im_\/https:\/\/www.progeriaresearch.org\/assets\/images\/news_images\/Sam-PatMcGee-Dec2004.jpg\")
Sam and Pat in 2004[\/caption]