{"id":18292,"date":"2025-11-01T13:59:13","date_gmt":"2025-11-01T17:59:13","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=18292"},"modified":"2026-05-07T16:51:27","modified_gmt":"2026-05-07T20:51:27","slug":"workshop2025","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/fr\/workshop2025\/","title":{"rendered":"Atelier 2025"},"content":{"rendered":"<p>[et_pb_section fb_built=\u201d1\u2033 fullwidth=\u201don\u201d disabled_on=\u201doff|off|off\u201d _builder_version=\u201d4.16\u2033 border_width_bottom=\u201d55px\u201d border_color_bottom=\u201d#29327a\u201d locked=\u201doff\u201d global_colors_info=\u201d{}\u201d][et_pb_fullwidth_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/09\/PRF_ScientificMeetingBanner_2025_Final.jpg\u201d title_text=\u201dPRF_ScientificMeetingBanner_2025_Final\u201d _builder_version=\u201d4.27.0\u2033 z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<br \/>\n[\/et_pb_fullwidth_image][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; 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_builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_sidebar area=&#8221;et_pb_widget_area_32&#8243; disabled_on=&#8221;off|off|off&#8221; admin_label=&#8221;Workshop 2025&#8243; module_class=&#8221;subpage-sidebars&#8221; _builder_version=&#8221;4.24.0&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; animation_style=&#8221;fade&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wb3N0Iiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjEyODc3In19@&#8221; z_index_tablet=&#8221;500&#8243; border_width_right=&#8221;5px&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<br \/>\n[\/et_pb_sidebar][\/et_pb_column][et_pb_column type=&#8221;3_4&#8243; specialty_columns=&#8221;3&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_row_inner custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.16&#8243; min_height=&#8221;1112.5px&#8221; custom_padding=&#8221;39.4375px|35px|35px||false|false&#8221; custom_padding_tablet=&#8221;|35px||35px||true&#8221; custom_padding_phone=&#8221;&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text disabled_on=&#8221;off|off|off&#8221; _builder_version=&#8221;4.27.5&#8243; text_text_color=&#8221;#000000&#8243; header_font=&#8221;||on||||||&#8221; header_text_color=&#8221;#00b2e2&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; custom_margin=&#8221;|30px|30px||false|false&#8221; z_index_tablet=&#8221;500&#8243; border_color_bottom=&#8221;#8FD2ED&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><strong><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2026\/05\/d9a7ab76-443d-4ada-9d2c-a0f356c8cd4f-1024x679.jpg\" width=\"414\" height=\"275\" alt=\"\" class=\"wp-image-21699 aligncenter size-large\" style=\"float: right;\" \/>12e atelier scientifique international de la PRF\u00a0: Perc\u00e9es, communaut\u00e9 et espoir<\/strong><\/p>\n<p>En octobre 2025, <strong>118<\/strong> m\u00e9decins, scientifiques et d\u00e9fenseurs de <strong>12<\/strong> Les pays participants se sont r\u00e9unis \u00e0 Boston pour le 12e atelier scientifique international de la Fondation pour la recherche sur la prog\u00e9ria \u2014 deux jours et demi de d\u00e9couvertes scientifiques majeures, de liens humains forts et d&#039;un engagement renouvel\u00e9 dans la recherche d&#039;un rem\u00e8de.<\/p>\n<p><strong>Quand la science rencontre l&#039;humanit\u00e9<\/strong> L&#039;atelier s&#039;est ouvert sur une premi\u00e8re historique\u00a0: une table ronde r\u00e9unissant exclusivement de jeunes adultes atteints de prog\u00e9ria. Merlin, Kaylee, Amber et Michiel ont partag\u00e9 des t\u00e9moignages poignants sur leur participation aux essais cliniques et leur quotidien avec la prog\u00e9ria, de l&#039;enfance \u00e0 l&#039;\u00e2ge adulte. Leur discussion franche a captiv\u00e9 l&#039;attention, touch\u00e9 les c\u0153urs et inspir\u00e9 tous les participants. Ces derniers ont \u00e9galement \u00e9t\u00e9 \u00e9mus par un hommage rendu \u00e0 Sammy Basso, patient et militant d\u00e9vou\u00e9, dont les mots ont \u00e9t\u00e9 diffus\u00e9s dans un film r\u00e9alis\u00e9 par son meilleur ami, Riccardo. La soir\u00e9e s&#039;est conclue par une prestation musicale du Dr Francis Collins, ancien directeur des NIH et contributeur de 20 ans \u00e0 la recherche sur la prog\u00e9ria.<\/p>\n<p>[\/et_pb_text][et_pb_button button_url=&#8221;https:\/\/youtu.be\/ImBKc6uCnk8&#8243; button_text=&#8221;View the panel discussion here&#8221; _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; button_text_size=&#8221;18px&#8221; button_bg_color=&#8221;#00B2E2&#8243; button_border_color=&#8221;#8FD2ED&#8221; background_layout=&#8221;dark&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;][\/et_pb_button][et_pb_text disabled_on=&#8221;off|off|off&#8221; admin_label=&#8221;cutting edge&#8221; _builder_version=&#8221;4.27.5&#8243; text_text_color=&#8221;#000000&#8243; header_font=&#8221;||on||||||&#8221; header_text_color=&#8221;#00b2e2&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; custom_margin=&#8221;|20px|||false|false&#8221; z_index_tablet=&#8221;500&#8243; border_color_bottom=&#8221;#8FD2ED&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><span style=\"color: #000000;\"><strong>Recherche de pointe expos\u00e9e<\/strong> Plus de 50 pr\u00e9sentations scientifiques ont abord\u00e9 les traitements actuels, les maladies cardiovasculaires et les derni\u00e8res avanc\u00e9es en mati\u00e8re de th\u00e9rapie g\u00e9nique et d&#039;\u00e9dition g\u00e9nomique. L&#039;un des moments forts a \u00e9t\u00e9 l&#039;introduction de <strong>SamPro-2<\/strong>, une th\u00e9rapie de nouvelle g\u00e9n\u00e9ration par \u00e9dition g\u00e9nique en cours de d\u00e9veloppement pour un futur essai clinique et une \u00e9tape importante vers une gu\u00e9rison potentielle.<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>Fond\u00e9 sur la collaboration<\/strong> Des s\u00e9ances de mentorat pour jeunes chercheurs aux discussions dynamiques autour d&#039;affiches, l&#039;atelier a favoris\u00e9 la cr\u00e9ation de partenariats essentiels \u00e0 l&#039;avancement de la science. Il s&#039;est conclu en beaut\u00e9, par une conversation ouverte et constructive sur les perspectives d&#039;avenir du domaine. Ce sont ces moments qui font la singularit\u00e9 des ateliers du PRF\u00a0: ils cr\u00e9ent un espace d&#039;ouverture, de collaboration et d&#039;engagement commun pour faire progresser la science, ENSEMBLE\u00a0!<\/span><\/p>\n<p>[\/et_pb_text][et_pb_testimonial quote_icon_color=&#8221;#FFFFFF&#8221; quote_icon_background_color=&#8221;#00B2E2&#8243; disabled_on=&#8221;on|on|on&#8221; _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; border_radii=&#8221;on|30px|30px|30px|30px&#8221; border_width_all=&#8221;2px&#8221; border_color_all=&#8221;#00B2E2&#8243; disabled=&#8221;on&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><span style=\"color: #000000;\"><strong><u>Ce que disent les participants<\/u><\/strong><\/span><\/p>\n<ul>\n<li><span style=\"color: #000000;\"><em>Honor\u00e9 d&#039;avoir eu l&#039;opportunit\u00e9 d&#039;y assister.<\/em><\/span><\/li>\n<li><span style=\"color: #000000;\"><em>J&#039;ai \u00e9t\u00e9 impressionn\u00e9 par l&#039;organisation et l&#039;ambiance de l&#039;atelier\u00a0! On se sentait en famille\u00a0! Chacun avait envie d&#039;\u00e9changer et de partager ses exp\u00e9riences et ses id\u00e9es. La prestation musicale du Dr\u00a0Colins a permis de d\u00e9tendre l&#039;atmosph\u00e8re et de rendre la conf\u00e9rence plus agr\u00e9able. <\/em><\/span><\/li>\n<li><span style=\"color: #000000;\"><em>L&#039;association de la participation des patients et de pr\u00e9sentations scientifiques de grande qualit\u00e9 a permis d&#039;obtenir un aper\u00e7u complet et actualis\u00e9 de l&#039;\u00e9tat actuel et des orientations futures de la recherche sur la prog\u00e9ria.<\/em><\/span><\/li>\n<li><span style=\"color: #000000;\"><em>Incroyable le nombre de recherches en cours. Tant d&#039;espoir.<\/em><\/span><\/li>\n<li><span style=\"color: #000000;\"><em>Excellent atelier ! Un grand merci aux organisateurs ! Bon \u00e9quilibre entre les sujets cliniques et pr\u00e9cliniques. Excellentes opportunit\u00e9s de r\u00e9seautage, notamment gr\u00e2ce aux tables rondes.\u00a0<\/em><\/span><\/li>\n<li><span style=\"color: #000000;\"><em>Atelier excellent \u00e0 tous points de vue. Conservez le m\u00eame format pour les prochains ateliers.<\/em><\/span><\/li>\n<li><span style=\"color: #000000;\"><em>Un aper\u00e7u exceptionnel et complet des avanc\u00e9es les plus novatrices dans la recherche sur la prog\u00e9ria.<\/em><\/span><\/li>\n<li><span style=\"color: #000000;\"><em>Les \u00e9changes et la collaboration ont \u00e9t\u00e9 extr\u00eamement productifs\u00a0: nous avons initi\u00e9 deux pistes de collaboration prometteuses lors de ces sessions. Cela m\u2019a rappel\u00e9 l\u2019importance de travailler en \u00e9quipe.<\/em><\/span><\/li>\n<\/ul>\n<p>[\/et_pb_testimonial][et_pb_text disabled_on=&#8221;off|off|off&#8221; admin_label=&#8221;Survey Highlights&#8221; _builder_version=&#8221;4.27.5&#8243; text_text_color=&#8221;#000000&#8243; header_font=&#8221;||on||||||&#8221; header_text_color=&#8221;#00b2e2&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; custom_margin=&#8221;|20px|30px||false|false&#8221; z_index_tablet=&#8221;500&#8243; border_width_bottom=&#8221;3px&#8221; border_color_bottom=&#8221;#8FD2ED&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><strong><u>Points saillants de l&#039;enqu\u00eate<\/u><\/strong><\/p>\n<ul>\n<li>92% participants ont attribu\u00e9 \u00e0 l&#039;atelier une note globale de 5 \u00e9toiles.<\/li>\n<li>Toutes les sessions scientifiques ont obtenu des notes de 4,9 \u00e0 5,0 pour leur qualit\u00e9, leur pertinence et l&#039;efficacit\u00e9 des intervenants.<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_text disabled_on=&#8221;off|off|off&#8221; admin_label=&#8221;Sponsor TY&#8221; _builder_version=&#8221;4.27.5&#8243; text_text_color=&#8221;#000000&#8243; header_font=&#8221;||on||||||&#8221; header_text_color=&#8221;#00b2e2&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; custom_margin=&#8221;|20px|30px||false|false&#8221; z_index_tablet=&#8221;500&#8243; border_width_bottom=&#8221;3px&#8221; border_color_bottom=&#8221;#8FD2ED&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><strong><u>Merci \u00e0 nos sponsors<\/u><\/strong><\/p>\n<p>Les ateliers scientifiques internationaux de la PRF ne sont possibles que gr\u00e2ce \u00e0 la g\u00e9n\u00e9rosit\u00e9 de partenaires engag\u00e9s qui croient au pouvoir de la science pour changer des vies.<\/p>\n<p>Nous sommes profond\u00e9ment reconnaissants du soutien de <a href=\"https:\/\/www.aiprosab.org\/en\/home-english\/\">L&#039;Associazione Italiana Progeria Sammy Basso<\/a>.<\/p>\n<p><em>Restez \u00e0 l&#039;\u00e9coute pour le 13e atelier scientifique annuel de la PRF. Ensemble, nous<\/em> <strong><em>volont\u00e9<\/em><\/strong> <em>trouver le rem\u00e8de.<\/em><\/p>\n<p><em><\/em><\/p>\n<p>[\/et_pb_text][et_pb_button button_url=&#8221;https:\/\/www.progeriaresearch.org\/2025registration\/&#8221; button_text=&#8221;Registration&#8221; button_alignment=&#8221;left&#8221; disabled_on=&#8221;on|on|on&#8221; admin_label=&#8221;registration&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; button_bg_color=&#8221;#00B2E2&#8243; button_border_width=&#8221;0px&#8221; background_layout=&#8221;dark&#8221; custom_margin=&#8221;||15px|||&#8221; disabled=&#8221;on&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_button][et_pb_text admin_label=&#8221;presenting sponsors&#8221; _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||1px|||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3 style=\"text-align: center;\">Commanditaires principaux<\/h3>\n<p>&nbsp;<\/p>\n<p><a href=\"https:\/\/www.aiprosab.org\/en\/home-english\/\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-20462 size-large alignleft\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2025\/05\/APS-ONLUS-LOGO-1024x372.png\" alt=\"\" width=\"446\" height=\"162\" \/><\/a> <a href=\"https:\/\/www.nia.nih.gov\/\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-20994 alignright size-full\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2025\/09\/NIH_NIA_Master_Logo_2Color_8c3db02c789aac09497d19c3bbf7ce48.png\" alt=\"\" width=\"528\" height=\"139\" srcset=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2025\/09\/NIH_NIA_Master_Logo_2Color_8c3db02c789aac09497d19c3bbf7ce48.png 528w, https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2025\/09\/NIH_NIA_Master_Logo_2Color_8c3db02c789aac09497d19c3bbf7ce48-480x126.png 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) 528px, 100vw\" \/><\/a><\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=&#8221;4.27.5&#8243; 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