{"id":4744,"date":"2016-08-12T15:56:44","date_gmt":"2016-08-12T15:56:44","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=281"},"modified":"2025-07-01T09:38:55","modified_gmt":"2025-07-01T13:38:55","slug":"science-and-research","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/fr\/science-and-research\/","title":{"rendered":"Programmes de recherche du PRF"},"content":{"rendered":"

[et_pb_section fb_built=\u201d1\u2033 fullwidth=\u201don\u201d disabled_on=\u201doff|off|off\u201d _builder_version=\u201d4.16\u2033 border_width_bottom=\u201d55px\u201d border_color_bottom=\u201d#29327a\u201d locked=\u201doff\u201d global_colors_info=\u201d{}\u201d][et_pb_fullwidth_header _builder_version=\u201d4.16\u2033 title_font=\u201d||||||||\u201d title_font_size=\u201d55\u2033 background_color=\u201d#29327a\u201d background_image=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/12\/Alexandra_1920x687.jpg\u201d background_position=\u201dcenter_left\u201d custom_padding=\u201d9vw||9vw||true\u201d custom_padding_tablet=\u201d\u201d custom_padding_phone=\u201d|56px||\u201d custom_padding_last_edited=\u201dsur|bureau\u201d title_font_size_tablet=\u201d45px\u201d title_font_size_phone=\u201d40px\u201d title_font_size_last_edited=\u201dsur|t\u00e9l\u00e9phone\u201d z_index_tablet=\u201d500\u2033 custom_css_main_element=\u201dbackground-position: center 18% !important;\u201d global_colors_info=\u201d{}\u201d]<\/p>\n

Science &<\/h1>\n

Recherche<\/h1>\n

 <\/p>\n

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\"Megan-bearJun07\"En 1998, un couple du Massachusetts, le fils de Sam et des docteurs Leslie Gordon et Scott Berns, a \u00e9t\u00e9 diagnostiqu\u00e9 avec la prog\u00e9ria. Ils ont imm\u00e9diatement commenc\u00e9 \u00e0 recueillir toutes les informations possibles sur la maladie. Mais ils ont d\u00e9couvert qu'il n'existait pratiquement rien. Il n'existait aucun moyen de tester avec certitude la maladie, aucun financement de recherche disponible et pratiquement personne ne d\u00e9fendait ces enfants. D\u00e9but 1999, ils ont donc r\u00e9uni famille, amis et coll\u00e8gues et cr\u00e9\u00e9 la Progeria Research Foundation. La m\u00e8re de Sam est la directrice m\u00e9dicale de la PRF, responsable des efforts m\u00e9dicaux et de recherche pour les enfants atteints de prog\u00e9ria.<\/p>\n

En quelques ann\u00e9es seulement, la PRF a cr\u00e9\u00e9 et centralis\u00e9 toutes les ressources li\u00e9es \u00e0 la recherche n\u00e9cessaires pour avancer le plus rapidement possible vers des traitements et une gu\u00e9rison pour tous les enfants diagnostiqu\u00e9s avec la Progeria dans le monde. La PRF a \u00e9t\u00e9 la force motrice de la campagne Progeria de 2003 d\u00e9couverte de g\u00e8nes<\/a>; a cr\u00e9\u00e9, poss\u00e8de et exploite sa propre base de donn\u00e9es m\u00e9dicale et de recherche<\/a>, Banque de cellules et de tissus<\/a>, et programme de tests de diagnostic<\/a>; organise des r\u00e9unions scientifiques biannuelles\u00a0ateliers<\/a>; fonds bourses de recherche<\/a>\u00a0et essais cliniques de m\u00e9dicaments<\/a>; et fournit des soins m\u00e9dicaux et autres\u00a0soutien<\/a> Pour les familles. Tous les programmes et r\u00e9alisations de la PRF ont fait de la PRF le leader mondial de la recherche et de l'\u00e9ducation sur la prog\u00e9ria. Et \u00e0 mesure que la sensibilisation \u00e0 la prog\u00e9ria, \u00e0 son lien avec les maladies cardiaques et le vieillissement, et aux programmes d\u00e9sormais disponibles pour la recherche se r\u00e9pand dans le monde entier, nous nous rapprochons de notre objectif de sauver la vie de ces enfants sp\u00e9ciaux.<\/p>\n

PRF a \u00e9t\u00e9 con\u00e7u avec la vision d'une m\u00e8re qui savait que pour gagner cette course contre la montre pour son fils et les autres enfants atteints de Progeria, nous devrions construire un r\u00e9seau de besoins li\u00e9s \u00e0 la recherche pour encourager la recherche sur la Progeria.<\/p>\n

Les r\u00e9sultats ont \u00e9t\u00e9 stup\u00e9fiants ; le PRF a prosp\u00e9r\u00e9 avec le soutien <\/a>de ses b\u00e9n\u00e9voles d\u00e9vou\u00e9s, de son personnel et de ses donateurs, catapultant le domaine de la prog\u00e9ria et des troubles li\u00e9s au vieillissement (tels que les maladies cardiaques et l'ost\u00e9oporose) dans un nouveau domaine.<\/p>\n

Cliquez ici <\/a>examiner la politique de financement du PRF pour les projets externes<\/strong> \u00a0<\/span><\/p>\n

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Cliquez ici pour entendre certains de nos incroyables chercheurs<\/b>!<\/span><\/a><\/h3>\n

[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 module_class=\u201dfooter\u201d _builder_version=\u201d4.21.0\u2033 background_color=\u201d#29327a\u201d custom_margin=\u201d-2px|||||\u201d custom_padding=\u201d0|0px|0|0px|false|false\u201d z_index_tablet=\u201d500\u2033 border_width_top=\u201d12px\u201d border_color_top=\u201d#00b2e2\u2033 global_module=\u201d133\u2033 locked=\u201doff\u201d global_colors_info=\u201d{}\u201d][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 make_equal=\u201don\u201d module_class=\u201d et_pb_row_fullwidth\u201d _builder_version=\u201d4.16\u2033 width=\u201d89%\u201d width_tablet=\u201d80%\u201d width_phone=\u201d\u201d width_last_edited=\u201don|desktop\u201d max_width=\u201d89%\u201d max_width_tablet=\u201d80%\u201d max_width_phone=\u201d\u201d max_width_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 make_fullwidth=\u201don\u201d width_unit=\u201doff\u201d custom_width_percent=\u201d100%\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/lp.constantcontactpages.com\/sl\/88gWWwz\u201d button_text=\u201dS'inscrire maintenant\u201d admin_label=\u201dS'inscrire aux mises \u00e0 jour\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.27.4\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d link_option_url=\u201dhttps:\/\/lp.constantcontactpages.com\/sl\/88gWWwz\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201don|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201don\u201d button_bg_color__hover=\u201d#8fd2ed\u201d button_border_color__hover_enabled=\u201don\u201d]<\/p>\n

S'inscrire<\/h2>\n

pour notre<\/h2>\n

Mises \u00e0 jour\u00a0!<\/h2>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR\u201d button_text=\u201dFaites un don maintenant\u201d admin_label=\u201dEnsemble, nous trouverons le rem\u00e8de !\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d body_font_size_tablet=\u201d\u201d body_font_size_phone=\u201d\u201d body_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201don|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201don\u201d bouton_bg_color__hover=\u201d#8fd2ed\u201d bouton_border_color__hover_enabled=\u201don\u201d]<\/p>\n

Ensemble, nous<\/h2>\n

VOLONT\u00c9<\/em><\/h2>\n

trouve le rem\u00e8de !<\/h2>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2025\/05\/2025-strip-for-website-footer-no-years.png\u201d title_text=\u201dBande 2025 pour pied de page de site web sans ann\u00e9es\u201d _builder_version=\u201d4.27.4\u2033 _module_preset=\u201ddefault\u201d custom_margin=\u201d35px||||false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"

[et_pb_section fb_built=\u201d1\u2033 fullwidth=\u201don\u201d disabled_on=\u201doff|off|off\u201d _builder_version=\u201d4.16\u2033 border_width_bottom=\u201d55px\u201d border_color_bottom=\u201d#29327a\u201d locked=\u201doff\u201d global_colors_info=\u201d{}\u201d][et_pb_fullwidth_header _builder_version=\u201d4.16\u2033 title_font=\u201d||||||||\u201d title_font_size=\u201d55\u2033 background_color=\u201d#29327a\u201d background_image=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/12\/Alexandra_1920x687.jpg\u201d background_position=\u201dcenter_left\u201d custom_padding=\u201d9vw||9vw||true\u201d custom_padding_tablet=\u201d\u201d custom_padding_phone=\u201d|56px||\u201d custom_padding_last_edited=\u201dsur|bureau\u201d title_font_size_tablet=\u201d45px\u201d title_font_size_phone=\u201d40px\u201d title_font_size_last_edited=\u201dsur|t\u00e9l\u00e9phone\u201d z_index_tablet=\u201d500\u2033 custom_css_main_element=\u201dbackground-position: center 18% !important;\u201d global_colors_info=\u201d{}\u201d] Science et recherche [\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 specialty=\u201don\u201d padding_left_1=\u201d35px\u201d padding_left_2=\u201d35px\u201d padding_2_tablet=\u201d|||0px\u201d padding_2_phone=\u201d|||0px\u201d padding_2_last_edited=\u201don|desktop\u201d module_class_1=\u201dsidebar-secondary-nav\u201d module_class=\u201dhandprint-bg\u201d _builder_version=\u201d4.16\u2033 background_image=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/blue-handprint-only.png\u201d parallax=\u201don\u201d parallax_method=\u201doff\u201d inner_width=\u201d100%\u201d inner_max_width=\u201d100%\u201d custom_padding=\u201d0|0px|54px|0px|false|false\u201d z_index_tablet=\u201d500\u2033 border_width_top=\u201d10px\u201d border_color_top=\u201d#8fd2ed\u201d use_custom_width=\u201don\u201d [\u2026]<\/p>","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"\t\t\t\t[vc_row][vc_column][vc_custom_heading text=\"Science and Research\" font_container=\"tag:h1|text_align:center\" google_fonts=\"font_family:Open%20Sans%3A300%2C300italic%2Cregular%2Citalic%2C600%2C600italic%2C700%2C700italic%2C800%2C800italic|font_style:400%20regular%3A400%3Anormal\"][\/vc_column][\/vc_row][vc_row css=\".vc_custom_1475531690518{margin-left: -15px !important;}\"][vc_column][vc_column_text]\"Megan-bearJun07\"\r\n\r\nWhen a Massachusetts couple, Drs. Leslie Gordon and Scott Berns\u2019 child Sam was diagnosed with Progeria in 1998, they immediately began to collect as much information as they could find on the disease. But they discovered that practically nothing existed. There was no way to definitively test for the disease, no research funding available, and virtually no one advocating for these children. So in early 1999, they gathered family, friends and colleagues and established The Progeria Research Foundation. Sam\u2019s mother is PRF\u2019s Medical Director, responsible for both medical and research efforts for children with Progeria.\r\n

In just a few short years, PRF has created and centralized all of the research-related resources needed to propel forward as quickly as possible towards treatments and cure, for all children diagnosed with Progeria worldwide. PRF was the driving force behind the 2003 Progeria gene discovery<\/a>; created, owns and operates its own medical & research database<\/a>, cell & tissue bank<\/a>, and diagnostics testing program<\/a>; holds bi-annual scientific\u00a0workshops<\/a>; funds research grants<\/a>\u00a0and clinical drug trials<\/a>;\u00a0and provides medical and other\u00a0support<\/a> for the families.\u00a0All of PRF\u2019s programs and accomplishments have made PRF the world leader in Progeria research and education. And as awareness of Progeria, its link to heart disease and aging, and the programs now available for research spreads throughout the world, we move closer to saving the lives of these special children.<\/p>\r\nPRF was conceived with the vision of a mother who knew that in order to win this race against time for her son and the other children with Progeria, we would have to build the network of research-related needs to encourage Progeria research.\r\n

The results have been astounding; PRF has flourished with the support <\/a>of its dedicated volunteers, staff and donors, catapulting the field of Progeria and its aging-related disorders (such as heart disease and osteoporosis) into a new realm.<\/p>\r\n[\/vc_column_text][\/vc_column][\/vc_row]\t\t","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-4744","page","type-page","status-publish","hentry"],"yoast_head":"\nresearch programs | The Progeria Research Foundatio<\/title>\n<meta name=\"description\" content=\"Our foundation was founded based on a mother who was willing to fight against her son's race with Progeria, and have since built a network with a number of PRF Research Programs.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/fr\/science-and-research\/\" \/>\n<meta property=\"og:locale\" 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