{"id":732,"date":"2017-02-25T21:00:58","date_gmt":"2017-02-25T21:00:58","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=732"},"modified":"2026-01-20T13:52:52","modified_gmt":"2026-01-20T18:52:52","slug":"quick-facts","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/fr\/quick-facts\/","title":{"rendered":"Faits en bref"},"content":{"rendered":"<p>[et_pb_section fb_built=\u201d1\u2033 fullwidth=\u201don\u201d disabled_on=\u201doff|off|off\u201d _builder_version=\u201d4.16\u2033 border_width_bottom=\u201d55px\u201d border_color_bottom=\u201d#29327a\u201d global_colors_info=\u201d{}\u201d][et_pb_fullwidth_header _builder_version=\u201d4.16\u2033 title_font_size=\u201d55\u2033 background_color=\u201d#29327a\u201d background_image=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/About-Header.jpg\u201d background_position=\u201dcenter_left\u201d custom_padding=\u201d9vw||9vw||true\u201d custom_padding_tablet=\u201d\u201d custom_padding_phone=\u201d|56px||\u201d custom_padding_last_edited=\u201dsur|bureau\u201d title_font_size_tablet=\u201d45px\u201d title_font_size_phone=\u201d40px\u201d title_font_size_last_edited=\u201dsur|t\u00e9l\u00e9phone\u201d z_index_tablet=\u201d500\u2033 custom_css_main_element=\u201dbackground-position: center 18% !important;\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<h1>Prog\u00e9ria<\/h1>\n<h1>Faits en bref<\/h1>\n<p>[\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 specialty=\u201don\u201d padding_left_1=\u201d35px\u201d padding_left_2=\u201d35px\u201d padding_2_tablet=\u201d|||0px\u201d padding_2_phone=\u201d|||0px\u201d padding_2_last_edited=\u201don|desktop\u201d module_class_1=\u201dsidebar-secondary-nav\u201d module_class=\u201dempreinte-de-la-main-bg\u201d _builder_version=\u201d4.16\u2033 background_image=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/empreinte-de-la-main-bleue-uniquement.png\u201d parallax=\u201don\u201d parallax_method=\u201doff\u201d inner_width=\u201d100%\u201d inner_max_width=\u201d100%\u201d custom_padding=\u201d0|0px|54px|0px|false|false\u201d z_index_tablet=\u201d500\u2033 border_width_top=\u201d10px\u201d border_color_top=\u201d#8fd2ed\u201d use_custom_width=\u201don\u201d width_unit=\u201doff\u201d custom_width_percent=\u201d100%\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_sidebar area=\u201det_pb_widget_area_16\u2033 disabled_on=\u201don|on|off\u201d module_class=\u201dsubpage-sidebars\u201d _builder_version=\u201d4.16\u2033 animation_style=\u201dfade\u201d z_index_tablet=\u201d500\u2033 border_width_right=\u201d5px\u201d global_colors_info=\u201d{}\u201d]<br \/>\n[\/et_pb_sidebar][\/et_pb_column][et_pb_column type=&#8221;3_4&#8243; specialty_columns=&#8221;3&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_row_inner column_structure=&#8221;1_2,1_2&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;39.4375px|35px|0px||false|false&#8221; custom_padding_tablet=&#8221;|35px||35px||true&#8221; custom_padding_phone=&#8221;&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text admin_label=&#8221;PRF BY THE NUMBERS &#8221; _builder_version=&#8221;4.27.4&#8243; header_4_font_size=&#8221;24px&#8221; animation_direction=&#8221;top&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">\n<h4><strong>PRF EN CHIFFRES\u00a0<\/strong><\/h4>\n<p><em>Au 31 d\u00e9cembre 2025<\/em><\/p>\n<ul>\n<li>Enfants et jeunes adultes atteints de prog\u00e9ria et de laminopathies prog\u00e9ro\u00efdes identifi\u00e9s\u00a0: 213* dans 51 pays<\/li>\n<li>*155 de ces enfants\/jeunes adultes souffrent du syndrome de Hutchinson-Gilford (HGPS ou prog\u00e9ria), et les 58 autres souffrent de laminopathies prog\u00e9ro\u00efdes.<\/li>\n<li>Essais cliniques de m\u00e9dicaments contre la prog\u00e9ria financ\u00e9s par le PRF\u00a0: 5<\/li>\n<li>Subventions financ\u00e9es : 85, totalisant $9,3 millions<\/li>\n<li>Lign\u00e9es cellulaires de la banque de cellules et de tissus PRF : 211<\/li>\n<li>Enfants dans la base de donn\u00e9es m\u00e9dicales et de recherche de la PRF\u00a0: 224<\/li>\n<li>R\u00e9unions scientifiques internationales sur la prog\u00e9ria : 15<\/li>\n<li>Nombre de langues dans lesquelles les programmes et les documents de soins m\u00e9dicaux de PRF sont traduits\u00a0: 37<\/li>\n<\/ul>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column_inner][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_cta title=&#8221;Mission&#8221; button_url=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2026\/01\/Quick-Facts-December-31-2025-FINAL.pdf&#8221; url_new_window=&#8221;on&#8221; button_text=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rIiwic2V0dGluZ3MiOnsiYmVmb3JlIjoiIiwiYWZ0ZXIiOiIiLCJ0ZXh0IjoicG9zdF90aXRsZSIsImN1c3RvbV90ZXh0IjoiIn19@&#8221; admin_label=&#8221;Fact sheet pdf &#038; Call to Action&#8221; _builder_version=&#8221;4.27.4&#8243; _dynamic_attributes=&#8221;button_text&#8221; background_color=&#8221;#29327a&#8221; custom_margin=&#8221;|||35px&#8221; custom_margin_tablet=&#8221;|||0px&#8221; custom_margin_phone=&#8221;&#8221; custom_margin_last_edited=&#8221;on|desktop&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;right&#8221; animation_intensity_slide=&#8221;25%&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p>Pour d\u00e9couvrir les traitements et le rem\u00e8de contre la prog\u00e9ria de Hutchinson-Gilford et les troubles li\u00e9s au vieillissement, y compris les maladies cardiaques.<\/p>\n<p>&nbsp;<\/p>\n<p>[\/et_pb_cta][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;0px|35px|35px||false|false&#8221; custom_padding_tablet=&#8221;|35px||35px||true&#8221; custom_padding_phone=&#8221;&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text admin_label=&#8221;What is Progeria? &#8221; _builder_version=&#8221;4.27.4&#8243; header_4_font_size=&#8221;24px&#8221; custom_margin=&#8221;30px||30px||true&#8221; animation_direction=&#8221;top&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">\n<h4><strong>Qu&#039;est-ce que la prog\u00e9ria ?\u00a0<\/strong><\/h4>\n<p>La prog\u00e9ria, \u00e9galement connue sous le nom de syndrome de Hutchinson-Gilford (HGPS), est une maladie g\u00e9n\u00e9tique rare et mortelle qui se caract\u00e9rise par un \u00ab vieillissement rapide \u00bb chez les enfants. Sans traitement au lonafarnib (Zokinvy), tous les enfants atteints de prog\u00e9ria meurent de la m\u00eame maladie cardiaque qui affecte des millions d\u2019adultes vieillissants (art\u00e9rioscl\u00e9rose), mais \u00e0 un \u00e2ge moyen de seulement 14,5 ans. Fait remarquable, leur intellect n\u2019est pas affect\u00e9 et, malgr\u00e9 des changements physiques importants dans leur jeune corps, ces enfants extraordinaires sont intelligents, courageux et pleins de vie.<\/p>\n<p>Pour plus d&#039;informations sur la cause de la prog\u00e9ria, cliquez sur <a href=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/02\/What-is-Progeria-from-LATS.mp4\" target=\"_blank\" rel=\"noopener noreferrer\">ici<\/a> pour regarder une br\u00e8ve vid\u00e9o de pr\u00e9sentation racont\u00e9e par le Dr Leslie Gordon, tir\u00e9e de <em>La vie selon Sam<\/em> (2013).<\/p>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][et_pb_text admin_label=&#8221;Text&#8221; _builder_version=&#8221;4.27.4&#8243; header_font=&#8221;||||||||&#8221; header_4_font=&#8221;||||||||&#8221; header_4_font_size=&#8221;24px&#8221; animation_direction=&#8221;top&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">\n<h4><strong>\u00c0 propos de PRF<\/strong><\/h4>\n<p>La Fondation de recherche sur la prog\u00e9ria (PRF) a \u00e9t\u00e9 cr\u00e9\u00e9e en 1999 par\u00a0<a href=\"mailto:lgordon@progeriaresearch.org\">Dr Leslie Gordon<\/a> Scott Berns, parents d&#039;un enfant atteint de prog\u00e9ria, et de nombreux amis et membres de la famille d\u00e9vou\u00e9s, ont fond\u00e9 la PRF, conscients du besoin d&#039;une ressource de recherche m\u00e9dicale pour les m\u00e9decins, les patients et leurs familles. Depuis, la PRF est le moteur de la d\u00e9couverte du g\u00e8ne de la prog\u00e9ria et du tout premier traitement m\u00e9dicamenteux contre cette maladie. La PRF a d\u00e9velopp\u00e9 des programmes et des services pour soutenir les personnes touch\u00e9es par la prog\u00e9ria et les scientifiques qui m\u00e8nent des recherches sur cette maladie. Aujourd&#039;hui, la PRF est la seule organisation \u00e0 but non lucratif enti\u00e8rement d\u00e9di\u00e9e \u00e0 la recherche de traitements et d&#039;un rem\u00e8de contre la prog\u00e9ria. La PRF est reconnue comme un exemple de r\u00e9ussite en mati\u00e8re de recherche translationnelle\u00a0: en seulement 13\u00a0ans, elle est pass\u00e9e de sa cr\u00e9ation \u00e0 la d\u00e9couverte du g\u00e8ne, puis au premier traitement m\u00e9dicamenteux.<\/p>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=&#8221;1_2,1_2&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;0px|35px|0px||false|false&#8221; custom_padding_tablet=&#8221;|35px|50px|35px||true&#8221; custom_padding_phone=&#8221;&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text admin_label=&#8221;Total Dollars Raised&#8221; _builder_version=&#8221;4.16&#8243; header_text_align=&#8221;center&#8221; header_font_size=&#8221;41px&#8221; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h1>Chiffre d&#039;affaires total<\/h1>\n<p>[\/et_pb_text][et_pb_number_counter title=&#8221;1999 through December 31, 2025&#8243; number=&#8221;103,569,806&#8243; percent_sign=&#8221;off&#8221; disabled_on=&#8221;on|on|off&#8221; admin_label=&#8221;Number Counter&#8221; module_class=&#8221;dollar&#8221; _builder_version=&#8221;4.27.4&#8243; title_level=&#8221;h5&#8243; number_font_size=&#8221;65px&#8221; custom_margin=&#8221;36px||36px||true&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<br \/>\n[\/et_pb_number_counter][et_pb_number_counter title=&#8221;1999 through December 31, 2025&#8243; number=&#8221;103,569,806&#8243; percent_sign=&#8221;off&#8221; disabled_on=&#8221;off|off|on&#8221; module_class=&#8221;dollar&#8221; _builder_version=&#8221;4.27.4&#8243; title_level=&#8221;h5&#8243; title_font=&#8221;||||||||&#8221; number_font=&#8221;||||||||&#8221; number_font_size=&#8221;60px&#8221; custom_margin=&#8221;36px||36px||true&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<br \/>\n[\/et_pb_number_counter][\/et_pb_column_inner][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.24.0&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Plus de 80% des d\u00e9penses annuelles du PRF sont syst\u00e9matiquement consacr\u00e9es \u00e0 ses programmes et services \u2013 un facteur qui nous a permis d&#039;obtenir la tr\u00e8s convoit\u00e9e note de 4 \u00e9toiles de Charity Navigator dix ann\u00e9es de suite.<\/p>\n<p>Le soutien que nous avons re\u00e7u a rendu possible la d\u00e9couverte du g\u00e8ne de la Progeria, les essais cliniques sur la Progeria et tous nos autres progr\u00e8s extraordinaires. Avec l&#039;aide de nos donateurs actuels et nouveaux, nous\u00a0<em>volont\u00e9<\/em>\u00a0Il faut gagner cette course contre la montre et trouver des traitements et un rem\u00e8de pour ces enfants particuliers. De plus, les d\u00e9couvertes concernant le traitement de la prog\u00e9ria pourraient \u00e9galement aider des millions de personnes souffrant de maladies cardiaques et l&#039;ensemble de la population vieillissante.<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=&#8221;4.16&#8243; background_color=&#8221;#29327a&#8221; custom_margin=&#8221;41px||&#8221; custom_margin_tablet=&#8221;0px||&#8221; custom_margin_phone=&#8221;&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;39.4375px|20px|35px|20px|false|true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;right&#8221; animation_intensity_slide=&#8221;25%&#8221; z_index_tablet=&#8221;500&#8243; border_width_bottom=&#8221;10px&#8221; border_color_bottom=&#8221;#8fd2ed&#8221; box_shadow_style=&#8221;preset1&#8243; box_shadow_blur=&#8221;38px&#8221; box_shadow_spread=&#8221;-12px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text admin_label=&#8221;PRF\u2019S Programs &#038; Services&#8221; _builder_version=&#8221;4.16&#8243; text_orientation=&#8221;center&#8221; background_layout=&#8221;dark&#8221; custom_padding=&#8221;|10px||10px||true&#8221; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h1 data-fontsize=\"34\" data-lineheight=\"48\">Programmes et services du PRF<\/h1>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=&#8221;1_2,1_2&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;39.4375px|35px|0px||false|false&#8221; custom_padding_tablet=&#8221;|35px||35px||true&#8221; custom_padding_phone=&#8221;&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text admin_label=&#8221;First-Ever Progeria Clinical Drug Trials and Treatment&#8221; _builder_version=&#8221;4.27.4&#8243; link_text_color=&#8221;#00b2e2&#8243; header_4_font_size=&#8221;24px&#8221; custom_margin=&#8221;|||&#8221; custom_padding_tablet=&#8221;||35px&#8221; custom_padding_phone=&#8221;&#8221; custom_padding_last_edited=&#8221;on|desktop&#8221; animation_direction=&#8221;top&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">\n<h4><strong>La premi\u00e8re prog\u00e9ria\u00a0<a href=\"https:\/\/www.progeriaresearch.org\/fr\/clinical-trials\/\">Essais cliniques de m\u00e9dicaments<\/a><\/strong>\u00a0<strong>et traitement<\/strong><\/h4>\n<p>Les essais cliniques de m\u00e9dicaments sponsoris\u00e9s par le PRF rassemblent des enfants du monde entier pour des traitements prometteurs qui peuvent aider \u00e0 am\u00e9liorer la maladie et \u00e0 prolonger la vie des enfants atteints de prog\u00e9ria.<\/p>\n<p><i>En 2020, l&#039;approbation par la Food and Drug Administration (FDA) am\u00e9ricaine du lonafarnib (nom commercial Zokinvy\u2122), un inhibiteur de la farn\u00e9syltransf\u00e9rase (FTI), a marqu\u00e9 l&#039;histoire comme premier traitement contre la prog\u00e9ria et les laminopathies prog\u00e9ro\u00efdes. Le lonafarnib a d\u00e9montr\u00e9 son efficacit\u00e9 pour am\u00e9liorer de nombreux aspects de la maladie, notamment le syst\u00e8me vasculaire, et pour augmenter la dur\u00e9e de survie moyenne de 4,3 ans. Pour en savoir plus sur cette nouvelle encourageante, cliquez ici. <a href=\"https:\/\/www.progeriaresearch.org\/fr\/2023\/03\/15\/progerinbiomarker\/\">ici<\/a>. <\/i><\/p>\n<p>En 2016, le PRF a lanc\u00e9 un essai \u00e0 deux m\u00e9dicaments, ajoutant l\u2019\u00e9v\u00e9rolimus, dans l\u2019espoir que les deux m\u00e9dicaments ensemble seront encore plus efficaces que le lonafarnib seul. <i>Il s\u2019agit d\u2019avanc\u00e9es remarquables dans la recherche d\u2019un rem\u00e8de.\u00a0<\/i><\/p>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column_inner][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_cta title=&#8221;Let&#8217;s Find the Cure!&#8221; button_url=&#8221;https:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR&#8221; button_text=&#8221;Donate Now&#8221; _builder_version=&#8221;4.16&#8243; header_font=&#8221;||||||||&#8221; background_color=&#8221;#00b2e2&#8243; custom_button=&#8221;on&#8221; button_text_color=&#8221;#ffffff&#8221; button_font=&#8221;||||||||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div id=\"pastingspan1\">\n<article>Votre don aide la Fondation de recherche sur la prog\u00e9ria\u00a0<\/article>\n<article><em><strong>traiter<\/strong><\/em>\u00a0enfants atteints de prog\u00e9ria aujourd&#039;hui<\/article>\n<\/div>\n<div>et\u00a0<em><strong>gu\u00e9rir<\/strong><\/em><strong>\u00a0<\/strong>eux dans le futur.<\/div>\n<p>[\/et_pb_cta][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;39.4375px|35px|0px||false|false&#8221; custom_padding_tablet=&#8221;|35px||35px||true&#8221; custom_padding_phone=&#8221;&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_toggle title=&#8221;International Progeria Registry &#8221; open=&#8221;on&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;International Progeria Registry &#8221; _builder_version=&#8221;4.16&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Maintient des informations centralis\u00e9es sur les enfants et les familles vivant avec la prog\u00e9ria. Cela garantit une diffusion rapide de toute nouvelle information pouvant b\u00e9n\u00e9ficier aux enfants.<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/fr\/international-registry\/\" target=\"_blank\" rel=\"noopener noreferrer\">Apprendre encore plus<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;Cell &#038; Tissue Bank&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;Cell &#038; Tissue Bank&#8221; _builder_version=&#8221;4.16&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>La banque PRF fournit aux chercheurs du mat\u00e9riel g\u00e9n\u00e9tique et biologique provenant de patients atteints de Progeria et de leurs familles afin que des recherches sur la Progeria et d&#039;autres maladies li\u00e9es au vieillissement puissent \u00eatre men\u00e9es pour nous rapprocher du rem\u00e8de. PRF a collect\u00e9 un nombre impressionnant de 214 lign\u00e9es cellulaires provenant d&#039;enfants atteints et de membres de leur famille dans le monde entier, dont 10 lign\u00e9es de cellules souches pluripotentes induites (iPSC).<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/fr\/cell-and-tissue-bank\/\">Apprendre encore plus<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;Medical &#038; Research Database&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;Medical &#038; Research Database&#8221; _builder_version=&#8221;4.16&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>La base de donn\u00e9es est une collection centralis\u00e9e d&#039;informations m\u00e9dicales provenant de patients atteints de Progeria du monde entier. Les donn\u00e9es sont rigoureusement analys\u00e9es pour nous aider \u00e0 mieux comprendre la Progeria et \u00e0 \u00e9laborer des recommandations de traitement. En 2010, cette analyse a contribu\u00e9 au manuel de soins de sant\u00e9 complet de la PRF sur la Progeria visant \u00e0 optimiser la qualit\u00e9 de vie. Le manuel est disponible en anglais, en espagnol, en portugais, en russe et en italien.<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/fr\/medical-database\/\">Apprendre encore plus<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;Diagnostic Testing&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;Diagnostic Testing&#8221; _builder_version=&#8221;4.19.4&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Ce programme a \u00e9t\u00e9 d\u00e9velopp\u00e9 \u00e0 la suite de la d\u00e9couverte d&#039;un g\u00e8ne en 2003 afin que les enfants, leurs familles et les soignants puissent obtenir un diagnostic scientifique d\u00e9finitif. Cela peut se traduire par un diagnostic plus pr\u00e9coce, moins d&#039;erreurs de diagnostic et une intervention m\u00e9dicale pr\u00e9coce pour assurer une meilleure qualit\u00e9 de vie aux enfants.<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/fr\/the-prf-diagnostic-testing-program\/\">Apprendre encore plus<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;Scientific Workshops on Progeria&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;Scientific Workshops on Progeria&#8221; _builder_version=&#8221;4.27.4&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<ul>\n<li>La PRF a organis\u00e9 14 conf\u00e9rences scientifiques qui ont r\u00e9uni des scientifiques et des cliniciens du monde entier afin de partager leur expertise et des donn\u00e9es scientifiques de pointe. Ces ateliers favorisent la collaboration dans la lutte contre cette maladie d\u00e9vastatrice.<\/li>\n<\/ul>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/fr\/scientific-meetings\/\">Apprendre encore plus<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;Research Grants&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;Research Grants&#8221; _builder_version=&#8221;4.16&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Gr\u00e2ce \u00e0 l&#039;\u00e9valuation par les pairs de notre comit\u00e9 de recherche m\u00e9dicale b\u00e9n\u00e9vole, la PRF a financ\u00e9 des projets dans le monde entier qui ont conduit \u00e0 des d\u00e9couvertes importantes sur la prog\u00e9ria, les maladies cardiaques et le vieillissement. Le programme de recherche de la PRF a \u00e9t\u00e9 mis \u00e0 jour en septembre 2018 pour refl\u00e9ter les besoins de recherche actuels dans les domaines de la prog\u00e9ria, du vieillissement et des maladies cardiaques.<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/fr\/grants-funded\/\">Apprendre encore plus<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;Publications &#038; Research&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;Publications &#038; Research&#8221; _builder_version=&#8221;4.16&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Les chercheurs cliniciens et les chercheurs de base ont utilis\u00e9 les subventions du PRF, les cellules et les tissus, ainsi que la base de donn\u00e9es ; leurs d\u00e9couvertes sont publi\u00e9es dans des revues scientifiques de premier ordre. Le nombre annuel moyen de publications scientifiques sur la prog\u00e9ria depuis 2002 est plus de 20 fois sup\u00e9rieur \u00e0 celui des 50 ann\u00e9es pr\u00e9c\u00e9dentes !<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/fr\/scientific-publications\/\">Apprendre encore plus<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;PRF Translation Program&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;PRF Translation Program&#8221; _builder_version=&#8221;4.16&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><strong><em>En contact avec le monde<\/em><\/strong>. Avec une pr\u00e9sence mondiale de premier plan, PRF \u00e9limine les obstacles \u00e0 la communication pour les patients et leurs familles, partout dans le monde. Cette initiative a r\u00e9ussi \u00e0 traduire les programmes et les documents de soins m\u00e9dicaux de PRF en 38 langues.<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/fr\/translators-needed\/\">Apprendre encore plus<\/a><\/p>\n<p>[\/et_pb_toggle][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=&#8221;1_2,1_2&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;39.4375px|35px|0px||false|false&#8221; custom_padding_tablet=&#8221;|35px||35px||true&#8221; custom_padding_phone=&#8221;&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; custom_css_main_element=&#8221;width: 30% !important;&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_image src=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/Sammy-Basso-in-USA-Square.jpg&#8221; align=&#8221;center&#8221; align_tablet=&#8221;center&#8221; align_phone=&#8221;&#8221; align_last_edited=&#8221;on|desktop&#8221; _builder_version=&#8221;4.16&#8243; border_radii=&#8221;on|100%|100%|100%|100%&#8221; global_colors_info=&#8221;{}&#8221;]<br \/>\n[\/et_pb_image][\/et_pb_column_inner][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; custom_css_main_element=&#8221;width: 70% !important;&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; text_font=&#8221;||||||||&#8221; link_font=&#8221;||||||||&#8221; link_text_color=&#8221;#00b2e2&#8243; header_font=&#8221;||||||||&#8221; header_4_font=&#8221;||||||||&#8221; header_4_font_size=&#8221;24px&#8221; custom_margin=&#8221;|||&#8221; custom_margin_tablet=&#8221;|||25px&#8221; custom_margin_phone=&#8221;&#8221; custom_margin_last_edited=&#8221;on|desktop&#8221; custom_padding=&#8221;||50px&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">\n<h4>Sensibilisation du public<\/h4>\n<p>Notre site Web donne acc\u00e8s aux derni\u00e8res informations sur la recherche sur la prog\u00e9ria et au soutien aux familles. <strong><a href=\"https:\/\/www.facebook.com\/ProgeriaResearch\">Facebook<\/a>,\u00a0<a href=\"https:\/\/www.tiktok.com\/@progeriaresearch\">TikTok, <\/a><a href=\"https:\/\/www.instagram.com\/progeriaresearch\/\">Instagram<\/a>, <a href=\"http:\/\/www.youtube.com\/progeriaresearchorg\">YouTube<\/a>, <a href=\"https:\/\/www.linkedin.com\/company\/3520192\">LinkedIn<\/a>, <\/strong>et d&#039;autres m\u00e9dias, la port\u00e9e directe de PRF sur les r\u00e9seaux sociaux d\u00e9passe 1 million de personnes. L&#039;histoire de PRF est apparue sur CNN, ABC News, Primetime, Dateline, The Katie Couric Show, NPR, The Associated Press et The Today Show, dans les magazines Time et People, le New York Times, le Wall Street Journal et de nombreux autres m\u00e9dias \u00e0 grand tirage. En outre, le film prim\u00e9 de HBO en 2013 <a href=\"https:\/\/www.progeriaresearch.org\/fr\/life-according-to-sam\/\"><strong><em>La vie selon Sam<\/em><\/strong><\/a> a sensibilis\u00e9 de mani\u00e8re unique et inspirante. PRF g\u00e8re \u00e9galement\u00a0<strong><a href=\"https:\/\/www.progeriaresearch.org\/fr\/find-the-children\/\" target=\"_blank\" rel=\"noopener noreferrer\">Trouver les enfants<\/a><\/strong>, une campagne mondiale de sensibilisation visant \u00e0 trouver les enfants atteints de prog\u00e9ria dans le monde entier, afin qu&#039;ils puissent obtenir l&#039;aide unique dont ils ont besoin.<\/p>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=&#8221;4.16&#8243; background_color=&#8221;#29327a&#8221; custom_margin=&#8221;41px||&#8221; custom_margin_tablet=&#8221;0px||&#8221; custom_margin_phone=&#8221;&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;39.4375px|20px|35px|20px|false|true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;right&#8221; animation_intensity_slide=&#8221;25%&#8221; z_index_tablet=&#8221;500&#8243; border_width_bottom=&#8221;10px&#8221; border_color_bottom=&#8221;#8fd2ed&#8221; box_shadow_style=&#8221;preset1&#8243; box_shadow_blur=&#8221;38px&#8221; box_shadow_spread=&#8221;-12px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text admin_label=&#8221;Who&#8217;s Who at PRF?&#8221; _builder_version=&#8221;4.16&#8243; text_orientation=&#8221;center&#8221; background_layout=&#8221;dark&#8221; custom_padding=&#8221;|10px||10px||true&#8221; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h1 data-fontsize=\"34\" data-lineheight=\"48\">Qui est qui chez PRF ?<\/h1>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;39.4375px|35px|0px||false|false&#8221; custom_padding_tablet=&#8221;|35px||35px||true&#8221; custom_padding_phone=&#8221;&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_team_member name=&#8221; Audrey Gordon, Esq.&#8221; position=&#8221;President and Executive Director&#8221; image_url=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/Audrey-gala-09-square.jpg&#8221; admin_label=&#8221; Audrey Gordon, Esq.&#8221; module_class=&#8221;prf-person-module&#8221; _builder_version=&#8221;4.16&#8243; custom_margin=&#8221;||45px&#8221; link_option_url=&#8221;mailto:agordon@progeriaresearch.org&#8221; link_option_url_new_window=&#8221;on&#8221; z_index_tablet=&#8221;500&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Travaillant en \u00e9troite collaboration avec le conseil d&#039;administration, les dirigeants, le personnel et les b\u00e9n\u00e9voles, Mme Gordon est responsable de la gestion quotidienne et de la garantie de la croissance financi\u00e8re et du d\u00e9veloppement des programmes de la Progeria Research Foundation.<\/p>\n<p>[\/et_pb_team_member][et_pb_team_member name=&#8221;Leslie Gordon, MD, PhD&#8221; position=&#8221;Medical Director&#8221; image_url=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/Lelsiesp.jpg&#8221; admin_label=&#8221;Leslie Gordon, MD, PhD&#8221; module_class=&#8221;prf-person-module&#8221; _builder_version=&#8221;4.16&#8243; custom_margin=&#8221;||45px&#8221; link_option_url=&#8221;mailto:Leslie_Gordon@brown.edu&#8221; link_option_url_new_window=&#8221;on&#8221; z_index_tablet=&#8221;500&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Le Dr Gordon a cofond\u00e9 PRF avec des amis et des membres de sa famille apr\u00e8s que son fils, Sam, a re\u00e7u un diagnostic de prog\u00e9ria. Le Dr Gordon supervise les programmes de recherche de PRF et est copr\u00e9sidente des essais cliniques du m\u00e9dicament contre la prog\u00e9ria. Elle est professeure agr\u00e9g\u00e9e de recherche p\u00e9diatrique \u00e0 la Warren Alpert Medical School de l&#039;universit\u00e9 Brown et \u00e0 l&#039;h\u00f4pital pour enfants Hasbro de Providence, Rhode Island, et scientifique au Boston Children&#039;s Hospital et \u00e0 la Harvard Medical School.<\/p>\n<p>[\/et_pb_team_member][et_pb_team_member name=&#8221;Scott D. Berns, MD, MPH, FAAP&#8221; position=&#8221;Chair, Board of Directors&#8221; image_url=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/Scott-Berns.jpg&#8221; admin_label=&#8221;Scott D. Berns, MD, MPH, FAAP&#8221; module_class=&#8221;prf-person-module&#8221; _builder_version=&#8221;4.27.4&#8243; custom_margin=&#8221;||45px&#8221; link_option_url=&#8221;mailto:sberns@progeriaresearch.org&#8221; link_option_url_new_window=&#8221;on&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p>Le Dr Berns, le p\u00e8re de Sam, est cofondateur de la Progeria Research Foundation et pr\u00e9sident de son conseil d&#039;administration. Il est p\u00e9diatre agr\u00e9\u00e9 et professeur clinicien de p\u00e9diatrie \u00e0 la facult\u00e9 de m\u00e9decine Alpert de l&#039;universit\u00e9 Brown.<br \/>Il a r\u00e9cemment pris sa retraite de son poste de pr\u00e9sident-directeur g\u00e9n\u00e9ral du National Institute for Children&#039;s Health Quality, une organisation ind\u00e9pendante \u00e0 but non lucratif \u0153uvrant pour l&#039;am\u00e9lioration de la sant\u00e9 des enfants.<\/p>\n<p>[\/et_pb_team_member][et_pb_team_member name=&#8221;Carlos Luiz Silva&#8221; position=&#8221;PRF Ambassador&#8221; image_url=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2025\/03\/Carlos-WhatsApp-from-Tatiana-3-12-25.jpeg&#8221; admin_label=&#8221;Carlos&#8221; module_class=&#8221;prf-person-module&#8221; _builder_version=&#8221;4.27.4&#8243; position_font=&#8221;|700|||||||&#8221; position_text_color=&#8221;#00B2E2&#8243; custom_margin=&#8221;||45px&#8221; hover_enabled=&#8221;0&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p align=\"left\">Carlos est l&#039;ambassadeur jeunesse de PRF et partage son exp\u00e9rience unique de la prog\u00e9ria \u00e0 travers divers m\u00e9dias. Diagnostiqu\u00e9 \u00e0 l&#039;\u00e2ge de 4 ans, il a toujours \u00e9t\u00e9 attir\u00e9 par les jeux de construction. Carlos est surtout connu pour son incroyable gentillesse et son intelligence\u00a0; sa chaleur et son humour font toujours sourire les gens. Aujourd&#039;hui, il est en troisi\u00e8me dans un coll\u00e8ge priv\u00e9 sous contrat \u00e0 Cambridge, dans le Massachusetts, o\u00f9 ses mati\u00e8res pr\u00e9f\u00e9r\u00e9es sont les sciences et l&#039;histoire. Il envisage de faire des \u00e9tudes scientifiques ou de droit. Carlos a toujours eu une personnalit\u00e9 forte et d\u00e9termin\u00e9e\u00a0; il travaille dur pour atteindre ses objectifs et ne renonce jamais \u00e0 ses r\u00eaves.<\/p>\n<p>[\/et_pb_team_member][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 module_class=\u201dfooter\u201d _builder_version=\u201d4.21.0\u2033 background_color=\u201d#29327a\u201d custom_margin=\u201d-2px|||||\u201d custom_padding=\u201d0|0px|0|0px|false|false\u201d z_index_tablet=\u201d500\u2033 border_width_top=\u201d12px\u201d border_color_top=\u201d#00b2e2\u2033 global_module=\u201d133\u2033 locked=\u201doff\u201d global_colors_info=\u201d{}\u201d][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 make_equal=\u201don\u201d module_class=\u201d et_pb_row_fullwidth\u201d _builder_version=\u201d4.16\u2033 width=\u201d89%\u201d width_tablet=\u201d80%\u201d width_phone=\u201d\u201d width_last_edited=\u201don|desktop\u201d max_width=\u201d89%\u201d max_width_tablet=\u201d80%\u201d max_width_phone=\u201d\u201d max_width_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 make_fullwidth=\u201don\u201d width_unit=\u201doff\u201d custom_width_percent=\u201d100%\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/lp.constantcontactpages.com\/sl\/88gWWwz\u201d button_text=\u201dS&#039;inscrire maintenant\u201d admin_label=\u201dS&#039;inscrire aux mises \u00e0 jour\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.27.4\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d link_option_url=\u201dhttps:\/\/lp.constantcontactpages.com\/sl\/88gWWwz\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201don|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201don\u201d button_bg_color__hover=\u201d#8fd2ed\u201d button_border_color__hover_enabled=\u201don\u201d]<\/p>\n<h2>S&#039;inscrire<\/h2>\n<h2>pour notre<\/h2>\n<h2>Mises \u00e0 jour\u00a0!<\/h2>\n<p>[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR\u201d button_text=\u201dFaites un don maintenant\u201d admin_label=\u201dEnsemble, nous trouverons le rem\u00e8de !\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d body_font_size_tablet=\u201d\u201d body_font_size_phone=\u201d\u201d body_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201don|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201don\u201d bouton_bg_color__hover=\u201d#8fd2ed\u201d bouton_border_color__hover_enabled=\u201don\u201d]<\/p>\n<h2>Ensemble, nous<\/h2>\n<h2><em>VOLONT\u00c9<\/em><\/h2>\n<h2>trouve le rem\u00e8de !<\/h2>\n<p>[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2025\/05\/2025-strip-for-website-footer-no-years.png\u201d title_text=\u201dBande 2025 pour pied de page de site web sans ann\u00e9es\u201d _builder_version=\u201d4.27.4\u2033 _module_preset=\u201ddefault\u201d custom_margin=\u201d35px||||false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"<p>La Fondation de recherche sur la prog\u00e9ria a men\u00e9 des recherches approfondies pour sensibiliser le public \u00e0 travers le monde. Pour en savoir plus, consultez notre fiche d&#039;information.<\/p>","protected":false},"author":1,"featured_media":638,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<p>[vc_row][vc_column][vc_custom_heading text=\"Progeria Quick Facts\" font_container=\"tag:h1|text_align:center\" use_theme_fonts=\"yes\" link=\"url:https%3A%2F%2Fwww.progeriaresearch.org%2Fwp-content%2Fuploads%2F2017%2F02%2FPRF-QUICKFACTS-as-of-July-1.pdf||\"][vc_column_text]<\/p><p style=\"text-align: left;\" align=\"center\"><strong><img class=\"alignnone size-full wp-image-1469\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/04\/iconPDF.gif\" alt=\"\" width=\"34\" height=\"20\" \/> <a href=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/3REVISED-PRF-QUICKFACTS-as-of-April-1-2019.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">QUICK FACTS<\/a><\/strong><\/p><p style=\"text-align: left;\" align=\"center\"><strong>MISSION: <\/strong>To Discover Treatments and the Cure for Hutchinson-Gilford Progeria Syndrome and its Aging-related Disorders, Including Heart Disease.<\/p><p><strong>PRF BY THE NUMBERS\u00a0<\/strong>as of April 1, 2019<\/p><ul><li>Identified children living with Progeria: 157* in 49 countries<\/li><li>PRF-sponsored Progeria Clinical Drug Trials: 5<\/li><li>Grants funded: 70, totaling $7.7 million<\/li><li>Cell lines in the PRF Cell & Tissue Bank: 212<\/li><li>Children in PRF\u2019s Medical & Research Database:\u00a0 178<\/li><li>International Scientific Meetings on Progeria: 11<\/li><li>Number of languages into which PRF\u2019s program and medical care materials are translated: 38<\/li><\/ul><p>*Includes 37 children in the Progeroid Laminopathy category who have\u00a0a mutation in the Lamin pathway, but do not produce progerin.[\/vc_column_text][vc_column_text]<\/p><h1>What is Progeria?<\/h1><p>Progeria, also known as Hutchinson-Gilford Progeria Syndrome (HGPS), is a rare, fatal genetic condition of accelerated aging in children. Children with Progeria die of the same heart disease that affects millions of normally aging adults (arteriosclerosis), but at an average age of just 14 years. Remarkably, their intellect is unaffected, and despite significant physical changes in their young bodies, these extraordinary children are intelligent, courageous, and full of life.[\/vc_column_text][vc_column_text]<\/p><h1>About PRF<\/h1><p>The Progeria Research Foundation (PRF) was established in 1999 by\u00a0<a href=\"mailto:lgordon@progeriaresearch.org\">Drs. Leslie Gordon<\/a> and Scott Berns,\u00a0the parents of a child with Progeria,\u00a0along with many dedicated friends and family who saw the need for a medical research resource for the doctors, patients, and families of those with Progeria.\u00a0 Since that time, PRF has been the driving force behind the Progeria gene discovery and the first-ever Progeria drug treatment. PRF has developed programs and services to aid those affected by Progeria and the scientists who conduct Progeria research.\u00a0 Today, PRF is the only non-profit organization solely dedicated to finding treatments and the cure for Progeria. PRF is hailed as a prime example of a successful translational research organization, moving from creation, to gene discovery, to first-ever drug treatment in just 13 years.[\/vc_column_text][vc_column_text]<\/p><h1>Total Dollars Raised<\/h1><p style=\"text-align: left;\" align=\"center\"><em>1999 through December 31, 2018<\/em>: <strong>$29,821,446<\/strong><\/p><p>More than 80% of PRF\u2019s annual expenses are consistently dedicated to its programs and services - one factor in our achieving a coveted 4-star rating from Charity Navigator five years in a row.<\/p><p>The support we have received made the Progeria gene discovery, the Progeria clinical trials and all of our other extraordinary progress possible.\u00a0 With the help of current and new supporters, we <em>will<\/em> win this race against time and find treatments and the cure for these special children. Moreover, Progeria treatment discoveries may also help millions with heart disease and the entire aging population.[\/vc_column_text][vc_column_text css=\".vc_custom_1549556944835{background-color: #ffffff !important;}\"]<\/p><h1>PRF\u2019S PROGRAMS & SERVICES<\/h1><ul><li><strong>First-Ever Progeria <a href=\"https:\/\/www.progeriaresearch.org\/clinical-trials\/\">Clinical Drug Trials<\/a><\/strong> <strong>and Treatment<\/strong><strong>:<\/strong>\u00a0 PRF-Sponsored Clinical Drug Trials bring children from around the world for promising treatments that may help to improve disease and extend the lives of children with Progeria. \u00a0<i>In 2012, history was made with the discovery that lonafarnib, a farnesyltransferase inhibitor, or FTI, is the first-ever treatment for Progeria, improving many aspects of the disease including the vital vascular system . More recent studies conclude that lonafarnib extends estimated lifespan. <\/i>In 2016, PRF initiated a two-drug trial, adding Everolimus, with the hope that the two drugs together will be even more effective than lonafarnib alone.\u00a0<i>These are remarkable steps forward in the pursuit of a cure.\u00a0<\/i><\/li><\/ul><ul><li><a href=\"https:\/\/www.progeriaresearch.org\/international-progeria-registry\/\"><strong>International Progeria Registry<\/strong>\u00a0<\/a> maintains centralized information on children and families living with Progeria.\u00a0 This assures rapid distribution of any new information that may benefit the children.<\/li><\/ul><ul><li><strong><a href=\"https:\/\/www.progeriaresearch.org\/cell-and-tissue-bank\/\">Cell & Tissue Bank:<\/a> <\/strong>PRF\u2019s Bank provides researchers with genetic and biological material from Progeria patients and their families so research on Progeria and other aging-related diseases can be performed to bring us closer to the cure.\u00a0 PRF has collected an impressive 212 cell lines from affected children and their family members worldwide including 10 Induced Pluripotent Stem Cell (iPSC) lines.<\/li><\/ul><ul><li><strong><a href=\"https:\/\/www.progeriaresearch.org\/medical-database\/\">Medical & Research Database:<\/a> <\/strong>The Database is a centralized collection of medical information from Progeria patients worldwide.\u00a0 The data is rigorously analyzed to help us understand more about Progeria and devise treatment recommendations. In 2010, this analysis contributed to PRF\u2019s comprehensive healthcare Handbook on Progeria aimed at optimizing quality of life. The Handbook is available in English, Spanish and Portuguese, Russian & Italian.<\/li><\/ul><ul><li><a href=\"https:\/\/www.progeriaresearch.org\/the-prf-diagnostic-testing-program\/\"><strong>Diagnostic Testing<\/strong>:<\/a> This program was developed in the wake of the 2003 gene discovery so that children, their families and medical caretakers can get a definitive, scientific diagnosis.\u00a0 This can translate into earlier diagnosis, fewer misdiagnoses and early medical intervention to ensure a better quality of life for the children.<\/li><\/ul><ul><li><strong><a href=\"https:\/\/www.progeriaresearch.org\/scientific_meetings\/\">Scientific Workshops on Progeria:<\/a> <\/strong>PRF has organized 12 scientific conferences that have brought together scientists and clinicians from all over the world to share their expertise and cutting edge scientific data. \u00a0These workshops foster collaboration in the fight against this devastating disease. \u00a0The\u00a0next meeting is September 20-22, 2018 in Boston, MA.<\/li><\/ul><ul><li><a href=\"https:\/\/www.progeriaresearch.org\/grants-funded\/\"><strong>Research Grants:<\/strong><\/a>\u00a0Through peer review by our volunteer Medical Research Committee, PRF has funded projects throughout the world that have led to important discoveries about Progeria, heart disease and aging. PRF\u2019s research program has been updated as of September 2018 to reflect current research needs within the fields of Progeria, aging and heart disease.<\/li><\/ul><ul><li><strong><a href=\"https:\/\/www.progeriaresearch.org\/scientific-publications\/\">Publications and Research:<\/a> <\/strong>Both clinical and basic scientists have utilized the PRF grants, cells and tissues, and database; their discoveries are published in top-notch scientific journals.\u00a0 The average annual number of scientific publications on Progeria since 2002 is more than 20 times that of the previous 50 years!<\/li><\/ul><ul><li><strong><a href=\"https:\/\/www.progeriaresearch.org\/translators-needed\/\">PRF Translation Program:<\/a> <\/strong><strong><em>In touch with the world<\/em><\/strong>.\u00a0 With a prominent global presence, PRF eliminates barriers to communication for patients and their families, from around the world.\u00a0 This initiative has succeeded in translating PRF program and medical care materials into 38 languages.<\/li><\/ul><ul><li><strong>Public Awareness:<\/strong>\u00a0progeriaresearch.org provides access to the latest information on Progeria research and support for families. \u00a0Through <strong><a href=\"https:\/\/www.facebook.com\/ProgeriaResearch\">Facebook<\/a>, <a href=\"https:\/\/twitter.com\/Progeria\">Twitter<\/a><\/strong> and other mediums, PRF\u2019s direct social media reach is over 1 million. PRF\u2019s story has appeared on CNN, ABC News, Primetime, Dateline, The Katie Couric Show, and The Today Show, in Time and People magazines, The New York Times, The Wall Street Journal and many other widely-read media outlets. In addition, the award-winning 2013 HBO film <a href=\"https:\/\/www.progeriaresearch.org\/life-according-to-sam\/\"><strong><em>Life According to Sam<\/em><\/strong><\/a>\u00a0has raised awareness in a unique and inspiring way.\u00a0\u00a0PRF also manages\u00a0<strong><a href=\"https:\/\/www.findtheother150.org\/\">Find the Other 150<\/a><\/strong>,\u00a0a global awareness campaign to find children with Progeria worldwide, so they can get the unique help they need.<\/li><\/ul><p>[\/vc_column_text][vc_column_text]<\/p><h1>WHO\u2019S WHO AT PRF?<\/h1><p><strong><a href=\"mailto:agordon@progeriaresearch.org\">Audrey Gordon, Esq., President and Executive <b>Director<\/b><\/a><br \/><\/strong>Working closely with the Board of Directors, officers, staff, and volunteers, Ms. Gordon is responsible for day-to-day management and for ensuring The Progeria Research Foundation's financial growth and program development.<\/p><p><a href=\"mailto:Leslie_Gordon@brown.edu\"><strong>Leslie B. Gordon, MD, PhD, Medical Director, Co-Founder<\/strong><\/a><br \/>Dr. Gordon co-founded PRF with friends and family after her son, Sam, was diagnosed with Progeria. Dr. Gordon oversees PRF\u2019s research-related programs, and is a co-chair for the Progeria clinical drug trials.\u00a0 She is an Associate Professor of Pediatrics Research at the Warren Alpert Medical School of Brown University and Hasbro Children\u2019s Hospital in Providence, RI, and a Staff Scientist at Boston Children\u2019s Hospital and Harvard Medical School.<\/p><p><a href=\"mailto:sberns@progeriaresearch.org\"><strong>Scott D. Berns, MD, MPH, FAAP, PRF Chairman of the Board, Co-Founder<\/strong><\/a><br \/>Dr. Berns, Sam\u2019s father, is a co-founder of The Progeria Research Foundation and serves as Chairman of the Board.\u00a0 He is a Board Certified Pediatrician and Clinical Professor of Pediatrics at the Alpert Medical School of Brown University. He is also President and CEO of the National Institute for Children\u2019s Health Quality, an independent, nonprofit organization working to improve children\u2019s health.<\/p><p><b>Meghan Waldron, PRF\u2019s Youth Ambassador<br \/><\/b>Meghan serves as a spokesperson for PRF, from the perspective of a youth with Progeria. Accomplished cellist and violinist, high school cross country and track team athlete, published poet \u2013 Meghan is a talented and busy 18-year-old living in Massachusetts.[\/vc_column_text][\/vc_column][\/vc_row]<\/p>","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-732","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Quick Facts | The Progeria Research Foundation<\/title>\n<meta name=\"description\" content=\"The Progeria Research Foundation has done extensive research to bring awareness across the globe. 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