{"id":7752,"date":"2019-08-19T19:57:56","date_gmt":"2019-08-19T19:57:56","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=7752"},"modified":"2023-09-22T10:11:48","modified_gmt":"2023-09-22T14:11:48","slug":"workshop2018","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/fr\/workshop2018\/","title":{"rendered":"Septembre 2018 \u00e0 Cambridge, MA\u00a0: 9e atelier scientifique international de la PRF, \u201c\u00a0DE NOMBREUSES VOIES, UN SEUL BUT\u00a0\u201d"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; fullwidth=&#8221;on&#8221; disabled_on=&#8221;off|off|off&#8221; _builder_version=&#8221;4.16&#8243; border_width_bottom=&#8221;55px&#8221; border_color_bottom=&#8221;#29327a&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_fullwidth_image src=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/08\/Pathways_WORD_Zach.jpg&#8221; _builder_version=&#8221;4.16&#8243; z_index_tablet=&#8221;500&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<br \/>\n[\/et_pb_fullwidth_image][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; use_custom_gutter=&#8221;on&#8221; gutter_width=&#8221;1&#8243; specialty=&#8221;on&#8221; padding_left_1=&#8221;35px&#8221; padding_left_2=&#8221;35px&#8221; padding_2_tablet=&#8221;|||0px&#8221; padding_2_phone=&#8221;|||0px&#8221; padding_2_last_edited=&#8221;on|desktop&#8221; module_class_1=&#8221;sidebar-secondary-nav&#8221; module_class=&#8221;handprint-bg&#8221; _builder_version=&#8221;4.16&#8243; background_image=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/blue-handprint-only.png&#8221; parallax=&#8221;on&#8221; parallax_method=&#8221;off&#8221; inner_width=&#8221;100%&#8221; inner_max_width=&#8221;100%&#8221; custom_padding=&#8221;0|0px|54px|0px|false|false&#8221; z_index_tablet=&#8221;500&#8243; border_width_top=&#8221;10px&#8221; border_color_top=&#8221;#8fd2ed&#8221; use_custom_width=&#8221;on&#8221; width_unit=&#8221;off&#8221; custom_width_percent=&#8221;100%&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_sidebar area=&#8221;et_pb_widget_area_24&#8243; disabled_on=&#8221;on|on|off&#8221; admin_label=&#8221;Scientific meetings sidebar&#8221; module_class=&#8221;subpage-sidebars&#8221; _builder_version=&#8221;4.16&#8243; text_orientation=&#8221;left&#8221; animation_style=&#8221;fade&#8221; z_index_tablet=&#8221;500&#8243; border_width_right=&#8221;5px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_sidebar][\/et_pb_column][et_pb_column type=&#8221;3_4&#8243; specialty_columns=&#8221;3&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_row_inner custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;39.4375px|35px|35px||false|false&#8221; custom_padding_tablet=&#8221;|35px||35px||true&#8221; custom_padding_phone=&#8221;&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_image src=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/01\/PRF_Group_photo_2018-2.jpg&#8221; align=&#8221;center&#8221; admin_label=&#8221;group&#8221; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_text _builder_version=&#8221;4.16&#8243; text_font_size=&#8221;12px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p style=\"text-align: center;\"><strong>Des scientifiques, des cliniciens et des familles atteintes de Progeria du monde entier se sont r\u00e9unis lors de l&#039;atelier du PRF de septembre 2018.<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;39.4375px|35px|35px||false|false&#8221; custom_padding_tablet=&#8221;|35px||35px||true&#8221; custom_padding_phone=&#8221;&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.16&#8243; text_text_color=&#8221;#000000&#8243; header_font=&#8221;||on||||||&#8221; header_text_color=&#8221;#29327a&#8221; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>L&#039;atelier scientifique international 2018 du PRF a \u00e9t\u00e9 un succ\u00e8s retentissant, avec 163 participants de 14 pays diff\u00e9rents. Des m\u00e9decins, des scientifiques et des chercheurs pr\u00e9cliniques de premier plan, rejoints par des familles d&#039;enfants atteints de prog\u00e9ria, se sont r\u00e9unis pour partager les informations les plus r\u00e9centes sur la recherche sur la prog\u00e9ria et pr\u00e9parer le terrain pour les efforts futurs visant \u00e0 trouver de nouveaux traitements et un rem\u00e8de pour les enfants atteints de prog\u00e9ria.<\/p>\n<p>Les pr\u00e9sentations comprenaient une discussion sur le point de vue des enfants et des parents atteints de prog\u00e9ria, 28 pr\u00e9sentations orales et 52 affiches (un record historique !). Les pr\u00e9sentations et les affiches ont mis en valeur d&#039;importantes d\u00e9couvertes scientifiques, pr\u00e9sent\u00e9 les progr\u00e8s r\u00e9alis\u00e9s dans l&#039;identification de traitements th\u00e9rapeutiques potentiels et inspir\u00e9 de futures collaborations entre les communaut\u00e9s de recherche et m\u00e9dicales.<\/p>\n<div class=\"wpb_column vc_column_container vc_col-sm-12\">\n<div class=\"vc_column-inner\">\n<div class=\"wpb_wrapper\">\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">L&#039;atelier a d\u00e9but\u00e9 par une session de panel familial visant \u00e0 cr\u00e9er un lien en personne entre les familles vivant avec la prog\u00e9ria et la communaut\u00e9 scientifique. Les pr\u00e9sentations scientifiques ont ensuite mis en lumi\u00e8re les derniers d\u00e9veloppements de la recherche biologique et clinique sur la prog\u00e9ria, notamment les outils de recherche essentiels tels que les biomarqueurs, ainsi que de nouvelles donn\u00e9es sur les traitements potentiels \u00e0 base de petites mol\u00e9cules, les th\u00e9rapies \u00e0 base d&#039;ARN et l&#039;\u00e9dition g\u00e9n\u00e9tique.<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"vc_row wpb_row vc_row-fluid\">\n<div class=\"wpb_column vc_column_container vc_col-sm-8\">\n<div class=\"vc_column-inner\">\n<div class=\"wpb_wrapper\">\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">\n<p>Pour la premi\u00e8re fois, des pr\u00e9sentations \u00e9clair d&#039;une minute par des pr\u00e9sentateurs d&#039;affiches ont \u00e9t\u00e9 organis\u00e9es, ce qui leur a donn\u00e9 l&#039;occasion de se pr\u00e9senter et de relever le d\u00e9fi d&#039;attirer les participants \u00e0 l&#039;atelier vers leurs affiches pour des discussions approfondies. De plus, plusieurs participants ont profit\u00e9 des cr\u00e9dits de formation m\u00e9dicale continue (FMC) offerts par le bureau de la FMC de l&#039;Universit\u00e9 Brown. Le meilleur indicateur du succ\u00e8s de l&#039;atelier est peut-\u00eatre l&#039;\u00e9valuation mesurable de ses participants. Nous sommes fiers de partager quelques points saillants de l&#039;\u00e9valuation :<\/p>\n<ul>\n<li><strong>99%\u00a0<\/strong>a \u00e9valu\u00e9 la r\u00e9union comme Excellent (82%) ou Tr\u00e8s bien (17%)<\/li>\n<li>Des notes similaires pour le processus d&#039;inscription, le lieu, le mat\u00e9riel de conf\u00e9rence, le format de la r\u00e9union et la session \u00e9clair<\/li>\n<\/ul>\n<p>S\u00e9lectionnez des commentaires typiques\u00a0:<\/p>\n<ul>\n<li>Un atelier tr\u00e8s bien planifi\u00e9 et ex\u00e9cut\u00e9. Tr\u00e8s motivant !<\/li>\n<li>Excellente rencontre, avec des informations de haut niveau, environnement collaboratif<\/li>\n<li>Extr\u00eamement bien organis\u00e9 et professionnellement avec des conf\u00e9rences fantastiques, des \u00e9changes passionnants et stimulants entre cliniciens et chercheurs de base<\/li>\n<\/ul>\n<p>Nous sommes profond\u00e9ment reconnaissants \u00e0 tous ceux qui ont particip\u00e9 \u00e0 cet atelier. Le soutien et l\u2019int\u00e9r\u00eat pour la prog\u00e9ria augmentent chaque ann\u00e9e, et nous attendons avec impatience les prochaines \u00e9tapes de progr\u00e8s vers un rem\u00e8de, ensemble, lors du prochain atelier du PRF.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2018\/02\/DSC_7210-300&#215;214.jpg&#8221; align=&#8221;center&#8221; admin_label=&#8221;Podium Meghan&#8221; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_text _builder_version=&#8221;4.16&#8243; text_font_size=&#8221;12px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p style=\"text-align: center;\"><strong>L&#039;ambassadrice de la jeunesse du PRF, Meghan Waldron, s&#039;adresse aux participants lors de la captivante s\u00e9ance du panel familial.<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/01\/Poster-Room-3-1.jpg&#8221; align=&#8221;center&#8221; admin_label=&#8221;poster&#8221; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_text _builder_version=&#8221;4.16&#8243; text_font_size=&#8221;12px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p style=\"text-align: center;\"><strong>Des affiches expos\u00e9es pour des discussions approfondies<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/01\/Collins-1.jpg&#8221; align=&#8221;center&#8221; admin_label=&#8221;Collins&#8221; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_text _builder_version=&#8221;4.16&#8243; text_font_size=&#8221;12px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p style=\"text-align: center;\"><strong>Le conf\u00e9rencier, le Dr Francis Collins, directeur des National Institutes of Health, joue de la guitare pour Alptug, 2 ans, et Meghan, 17 ans, avant de monter sur sc\u00e8ne le premier soir de la conf\u00e9rence.<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/01\/Lander.jpg&#8221; align=&#8221;center&#8221; admin_label=&#8221;Landers&#8221; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_text _builder_version=&#8221;4.16&#8243; text_font_size=&#8221;12px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p style=\"text-align: center;\"><strong>Eric S. Lander \u2013 Broad Institute of Harvard et MIT, MIT, Harvard Medical School pr\u00e9sente \u00ab De nouvelles approches g\u00e9nomiques pour comprendre la maladie \u00bb<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/01\/Meeting-Room-1.jpg&#8221; align=&#8221;center&#8221; admin_label=&#8221;meeting room&#8221; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_text _builder_version=&#8221;4.16&#8243; text_font_size=&#8221;12px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p style=\"text-align: center;\"><strong>Les pr\u00e9sentations \u00e9taient exceptionnelles et informatives<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 module_class=\u201dfooter\u201d _builder_version=\u201d4.21.0\u2033 background_color=\u201d#29327a\u201d custom_margin=\u201d-2px|||||\u201d custom_padding=\u201d0|0px|0|0px|false|false\u201d z_index_tablet=\u201d500\u2033 border_width_top=\u201d12px\u201d border_color_top=\u201d#00b2e2\u2033 global_module=\u201d133\u2033 locked=\u201doff\u201d global_colors_info=\u201d{}\u201d][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 make_equal=\u201don\u201d module_class=\u201d et_pb_row_fullwidth\u201d _builder_version=\u201d4.16\u2033 width=\u201d89%\u201d width_tablet=\u201d80%\u201d width_phone=\u201d\u201d width_last_edited=\u201don|desktop\u201d max_width=\u201d89%\u201d max_width_tablet=\u201d80%\u201d max_width_phone=\u201d\u201d max_width_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 make_fullwidth=\u201don\u201d width_unit=\u201doff\u201d custom_width_percent=\u201d100%\u201d global_colors_info=\u201d{}\u201d][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/www.progeriaresearch.org\/newsletter-signup\/\u201d button_text=\u201dInscrivez-vous maintenant\u201d admin_label=\u201dInscrivez-vous \u00e0 la newsletter\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201dactiv\u00e9|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201dactiv\u00e9\u201d button_bg_color__hover=\u201d#8fd2ed\u201d button_border_color__hover_enabled=\u201dactiv\u00e9\u201d]<\/p>\n<h2>S&#039;inscrire<\/h2>\n<h2>pour notre<\/h2>\n<h2>Bulletin!<\/h2>\n<p>[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR\u201d button_text=\u201dFaites un don maintenant\u201d admin_label=\u201dEnsemble, nous trouverons le rem\u00e8de !\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d body_font_size_tablet=\u201d\u201d body_font_size_phone=\u201d\u201d body_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201don|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201don\u201d bouton_bg_color__hover=\u201d#8fd2ed\u201d bouton_border_color__hover_enabled=\u201don\u201d]<\/p>\n<h2>Ensemble, nous<\/h2>\n<h2><em>VOLONT\u00c9<\/em><\/h2>\n<h2>trouve le rem\u00e8de !<\/h2>\n<p>[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/06\/2023-footer-strip-5.png\u201d title_text=\u201d2023 footer strip 5\u2033 _builder_version=\u201d4.21.0\u2033 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Leading physicians, scientists and preclinical investigators, joined by families of children with Progeria, came together to share the most current information on Progeria research [&hellip;]<\/p>","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-7752","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>2018 workshop | The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/fr\/workshop2018\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"2018 workshop | The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"Scientists, clinicians, and Progeria families from around the world convened at PRF\u2019s September 2018 Workshop.The 2018 PRF International Scientific Workshop was an overwhelming success, with 163 registrants from 14 different countries. 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