{"id":16689,"date":"2023-04-06T09:34:51","date_gmt":"2023-04-06T13:34:51","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=16689"},"modified":"2023-04-24T11:06:03","modified_gmt":"2023-04-24T15:06:03","slug":"team-prf-runs-boston-marathon","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/fr\/2023\/04\/06\/team-prf-runs-boston-marathon\/","title":{"rendered":"L'\u00e9quipe PRF court \u00e0 nouveau le marathon de Boston !"},"content":{"rendered":"

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\"\"Le lundi 17 avril 2023, la Progeria Research Foundation encouragera deux partisans de longue date de la PRF qui d\u00e9fileront dans les rues du marathon de Boston au nom de la communaut\u00e9 Progeria : Paul Michienzie de Foxboro (\u00e0 droite) et Bobby Nadeau (\u00e0 gauche) de Mansfield. Les bons amis s'attaqueront au parcours convoit\u00e9 de 26,2 miles pour collecter des fonds pour le traitement de la Progeria.<\/p>\n

Paul court le marathon au nom de PRF pour la troisi\u00e8me ann\u00e9e cons\u00e9cutive, mais il s'est en fait entra\u00een\u00e9 pour quatre marathons, le premier \u00e9tant annul\u00e9 en raison du COVID. Paul et sa famille \u00e9taient de bons amis et voisins des Drs Leslie Gordon et Scott Berns (cofondateurs de PRF) et de leur fils Sam Berns, atteint de prog\u00e9ria et d\u00e9c\u00e9d\u00e9 en 2014. Sam a laiss\u00e9 un h\u00e9ritage d'inspiration qui pousse aujourd'hui PRF et ses sympathisants \u00e0 poursuivre la qu\u00eate d'un rem\u00e8de.<\/p>\n

 <\/p>\n

[\/et_pb_text][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/04\/BM2023.png” title_text=”BM2023″ align=”center” _builder_version=”4.19.5″ _module_preset=”default” width=”50%” max_width=”50%” global_colors_info=”{}”][\/et_pb_image][et_pb_testimonial portrait_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/04\/PaulBM-289×300.png” quote_icon_color=”#FFFFFF” quote_icon_background_color=”#00B2E2″ portrait_width=”115px” portrait_height=”115px” admin_label=”Paul quote” _builder_version=”4.19.5″ _module_preset=”default” background_color=”#8FD2ED” link_option_url=”https:\/\/www.givengain.com\/activist\/417713\/” global_colors_info=”{}”]<\/p>\n

Paul d\u00e9clare : \u00ab Je vais continuer \u00e0 me donner \u00e0 fond pour que nous puissions collecter des fonds pour aider ces enfants et trouver un rem\u00e8de contre la #Progeria. Si vous le pouvez, faites un don \u00e0 mon projet de collecte de fonds sur GivenGain ! Merci.<\/p>\n

Faites un don \u00e0 Paul ici<\/a><\/strong><\/span><\/p>\n

[\/et_pb_testimonial][et_pb_testimonial portrait_url=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/04\/Bobby-and-sons.png” quote_icon_color=”#FFFFFF” quote_icon_background_color=”#00B2E2″ portrait_width=”115px” portrait_height=”115px” admin_label=”Bobby quote” _builder_version=”4.19.5″ _module_preset=”default” background_color=”#8FD2ED” link_option_url=”https:\/\/www.givengain.com\/activist\/694229\/” global_colors_info=”{}”]<\/p>\n

Bobby Nadeau est tr\u00e8s heureux d'avoir l'opportunit\u00e9 de courir son premier marathon de Boston au nom de PRF et d\u00e9clare :<\/p>\n

\u00ab \u00c0 28 ans, on m\u2019a diagnostiqu\u00e9 une maladie r\u00e9nale, j\u2019\u00e9tais en surpoids et je menais une vie malsaine. J\u2019ai utilis\u00e9 le fitness dans mon parcours pour transformer mon tour de taille et j\u2019ai obtenu un bilan de sant\u00e9 parfait. Depuis, j\u2019ai appris que je peux faire tout ce que je veux et j\u2019ai r\u00eav\u00e9 de courir le marathon de Boston \u00e0 45 ans. Il n\u2019y a pas de meilleure fa\u00e7on de c\u00e9l\u00e9brer cette \u00e9tape importante que de collecter des fonds pour une cause aussi importante que la prog\u00e9ria ! \u00bb<\/p>\n

Faites un don \u00e0 Bobby ici<\/a><\/strong><\/span><\/p>\n

[\/et_pb_testimonial][et_pb_text _builder_version=”4.19.5″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”]<\/p>\n

\"\"<\/p>\n

 <\/p>\n

Les fonds collect\u00e9s par TEAM PRF lors du marathon de Boston financent directement la recherche essentielle visant \u00e0 aider les personnes atteintes de prog\u00e9ria du monde entier \u00e0 vivre plus longtemps et en meilleure sant\u00e9. Cette ann\u00e9e, nous pr\u00e9voyons de lancer un essai clinique avec un tout nouveau m\u00e9dicament appel\u00e9 Progerinin, tout en continuant \u00e0 explorer les th\u00e9rapies g\u00e9n\u00e9tiques de pointe.<\/p>\n

S'il vous pla\u00eet, montrez un peu d'amour en faisant un don \u00e0 leurs pages de collecte de fonds ci-dessous\u00a0:<\/p>\n

[\/et_pb_text][et_pb_button button_url=”https:\/\/www.givengain.com\/activist\/417713\/” button_text=”Paul Michienzie\u2019s fundraising page ” admin_label=”Paul” _builder_version=”4.19.5″ _module_preset=”default” custom_button=”on” button_text_color=”#FFFFFF” button_bg_color=”#00B2E2″ button_border_color=”#00B2E2″ background_layout=”dark” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”https:\/\/www.givengain.com\/activist\/694229\/” button_text=”Bobby Nadeau\u2019s fundraising page ” admin_label=”Bobby” _builder_version=”4.19.5″ _module_preset=”default” custom_button=”on” button_text_color=”#FFFFFF” button_bg_color=”#00B2E2″ button_border_color=”#00B2E2″ background_layout=”dark” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"

Le lundi 17 avril 2023, la Progeria Research Foundation encouragera deux partisans de longue date de la PRF qui descendront dans les rues du marathon de Boston au nom de la communaut\u00e9 Progeria.<\/p>","protected":false},"author":2,"featured_media":16730,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[3,2,1],"tags":[],"class_list":["post-16689","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-events","category-news","category-uncategorized"],"yoast_head":"\nPRF runs Boston Marathon | The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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