{"id":17925,"date":"2023-10-23T08:29:01","date_gmt":"2023-10-23T12:29:01","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=17925"},"modified":"2025-02-15T17:43:00","modified_gmt":"2025-02-15T22:43:00","slug":"global-launch-pc","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/fr\/2023\/10\/23\/global-launch-pc\/","title":{"rendered":"Lancement mondial de la toute nouvelle plateforme d&#039;engagement familial de PRF, Progeria Connect !"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;section&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;0px|||||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row admin_label=&#8221;row&#8221; _builder_version=&#8221;4.16&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_image src=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/10\/Screenshot-2023-10-20-122807.png&#8221; title_text=&#8221;Screenshot 2023-10-20 122807&#8243; align=&#8221;center&#8221; _builder_version=&#8221;4.22.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_text _builder_version=&#8221;4.22.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>En partenariat avec Sciensus, la Progeria Research Foundation (PRF) lance officiellement <em>Progeria Connect<\/em> \u00e0 notre <strong>communaut\u00e9 mondiale compl\u00e8te<\/strong> des familles. Nous avons cr\u00e9\u00e9 cette plateforme pour aider notre petite mais diversifi\u00e9e communaut\u00e9 \u00e0 \u00e9tablir des liens personnels, \u00e0 avoir acc\u00e8s aux derni\u00e8res nouvelles de la recherche et \u00e0 nouer des liens durables tout au long de leur parcours avec la prog\u00e9ria.<\/p>\n<p><strong><span style=\"color: #800080;\"><em>Progeria Connect<\/em><\/span><\/strong> vous permet, \u00e0 vous et \u00e0 votre famille, de communiquer facilement et en toute s\u00e9curit\u00e9 avec PRF et d&#039;autres personnes du monde entier qui peuvent partager des exp\u00e9riences similaires, quelle que soit votre langue ou votre emplacement.<\/p>\n<p><strong>Comme il s&#039;agit d&#039;un site v\u00e9ritablement priv\u00e9, nous invitons uniquement les groupes suivants \u00e0 s&#039;inscrire :<\/strong><\/p>\n<ul>\n<li>Parents ou tuteurs l\u00e9gaux des personnes atteintes de prog\u00e9ria\u00a0;<\/li>\n<li>Fr\u00e8res et s\u0153urs;<\/li>\n<li>Grands-parents;<\/li>\n<\/ul>\n<p><strong>Les avantages de la plateforme incluent\u00a0:<\/strong><\/p>\n<ul>\n<li>Groupes priv\u00e9s pour partager des id\u00e9es et des histoires, notamment des adolescents atteints de prog\u00e9ria, des jeunes adultes de 18 ans et plus et des parents d&#039;enfants atteints de prog\u00e9ria\u00a0;<\/li>\n<li>Mises \u00e0 jour p\u00e9riodiques sur les essais cliniques et les derniers r\u00e9sultats de la recherche ;<\/li>\n<li>Messagerie priv\u00e9e aux autres membres de <em>Progeria Connect<\/em>;<\/li>\n<li>Informations sur les \u00e9v\u00e9nements et les collectes de fonds;<\/li>\n<li>Fonctionnalit\u00e9 de chat vid\u00e9o Zoom en direct, y compris des traductions de test en temps r\u00e9el pour les appels multilingues\u00a0;<\/li>\n<li>Notre propre <em>Progeria Connect<\/em> application mobile \u2013 disponible \u00e0 la fois sur l\u2019App Store et sur Google Store pour interagir avec votre communaut\u00e9 lors de vos d\u00e9placements\u00a0!<\/li>\n<\/ul>\n<p><strong>Inscrivez-vous ici pour votre compte gratuit : <\/strong><a href=\"http:\/\/www.progeriaconnect.sciensus.com\"><strong>www.progeriaconnect.sciensus.com<\/strong><\/a><\/p>\n<p><em>Une fois inscrit, nous vous contacterons dans les 5 jours pour confirmer votre compte sur ce r\u00e9seau exclusif r\u00e9serv\u00e9 aux familles et aux soignants. <\/em><\/p>\n<p>[\/et_pb_text][et_pb_image src=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/10\/Progeria-Connect-Launch-ph.1B-Flyer-791&#215;1024.jpg&#8221; title_text=&#8221;Progeria Connect Launch ph.1B Flyer&#8221; align=&#8221;center&#8221; _builder_version=&#8221;4.22.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"<p>Appel \u00e0 toutes les familles touch\u00e9es par la prog\u00e9ria ! Il est temps de se connecter, d&#039;apprendre les unes des autres et de la PRF, de partager des ressources et des exp\u00e9riences et de s&#039;\u00e9panouir en tant que communaut\u00e9, peu importe o\u00f9 vous vivez dans le monde. <\/p>","protected":false},"author":2,"featured_media":17934,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2,1],"tags":[],"class_list":["post-17925","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-uncategorized"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Progeria Connect | The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/fr\/2023\/10\/23\/global-launch-pc\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Progeria Connect | The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"Calling all families impacted by Progeria! It\u2019s time to get connected \u2013 to learn from each other and from PRF, share resources and experiences, and thrive as a community, no matter where in the world you live.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.progeriaresearch.org\/fr\/2023\/10\/23\/global-launch-pc\/\" \/>\n<meta property=\"og:site_name\" content=\"The Progeria Research Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/ProgeriaResearch\/\" \/>\n<meta property=\"article:published_time\" content=\"2023-10-23T12:29:01+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-02-15T22:43:00+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/10\/PCpostteaser-copy.png\" \/>\n\t<meta property=\"og:image:width\" content=\"800\" \/>\n\t<meta property=\"og:image:height\" content=\"800\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" 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