Nous sommes ravis d'annoncer qu'\u00e0 partir de 20 heures le 3 mars 2015, la page Facebook de la Progeria Research Foundation a 1 000 000 d'abonn\u00e9s \u2013 INCROYABLE<\/strong>! Avec votre aide, nous faisons conna\u00eetre la mission de PRF dans le monde entier, ce qui se traduit par davantage de sympathisants, davantage d'enfants atteints de Progeria identifi\u00e9s dans le monde et davantage de progr\u00e8s vers un rem\u00e8de.<\/p>\n Rejoignez notre communaut\u00e9 sur Facebook<\/a><\/strong>et amenez vos amis pour partager notre message d\u2019espoir pour les enfants atteints de prog\u00e9ria.<\/p>\n Une chanson sp\u00e9ciale en l\u2019honneur de Sam Berns\u2026<\/strong><\/p>\n Sam et Pat en 2004<\/p><\/div>\n Pat McGee, partisan de longue date du PRF et musicien acclam\u00e9, a \u00e9crit \u00ab Prendre le chemin le plus long \u00bb<\/strong>, une chanson en l'honneur de son ami Sam Berns, d\u00e9c\u00e9d\u00e9 des suites de complications de la prog\u00e9ria le 10 janvier 2014. Enregistr\u00e9e en une seule prise, la chanson met en vedette de nombreux membres du groupe original qui connaissaient Sam, ainsi que d'autres musiciens de studio l\u00e9gendaires qui ont \u00e9t\u00e9 profond\u00e9ment \u00e9mus par l'histoire de Sam. On entend Sam jouer de la caisse claire au tout d\u00e9but et \u00e0 la fin <\/i>enregistrements tir\u00e9s de films familiaux pr\u00e9c\u00e9demment enregistr\u00e9s.<\/i><\/p>\n \u00c9COUTEZ LA CHANSON SUR SOUNDCLOUD ICI<\/a>, ET ACHETEZ LA CHANSON ICI<\/a>.<\/strong><\/p>\n Les paroles, \u00e9crites \u00e0 la premi\u00e8re personne, sont l'interpr\u00e9tation par McGee de la sagesse infinie de Sam et de son amour pour sa famille et ses amis - certains mots sont inspir\u00e9s de la r\u00e9cente chanson de Sam. Conf\u00e9rence TedX, <\/a>le documentaire HBO La vie selon Sam<\/i><\/a>, et des remarques sinc\u00e8res prononc\u00e9es lors des fun\u00e9railles de Sam par ceux qui l'ont connu et aim\u00e9.<\/p>\n \u00ab Sam a \u00e9t\u00e9 et sera toujours une source d'inspiration pour moi, ma famille et les membres de mon groupe \u00bb, d\u00e9clare Pat. \u00ab Le courage, l'altruisme, l'amour profond et l'appr\u00e9ciation de Sam pour tout ce qui est bon dans le monde sont un mode de vie qui sera partag\u00e9 et transmis plus que Sam n'aurait pu l'imaginer. \u00bb<\/p>\n<\/div>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":" [et_pb_section fb_built=”1″ _builder_version=”3.22″][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.6.5″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” hover_enabled=”0″ sticky_enabled=”0″] In a wonderful display of global support for children with Progeria, 1 million people are following PRF through its dynamic and informative Facebook page. Follow and share so everyone can be part of our quest for the cure! […]<\/p>","protected":false},"author":1,"featured_media":2012,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":" [vc_custom_heading text=\"PRF's Facebook reaches 1 MILLION FOLLOWERS!\" font_container=\"tag:h1|text_align:left\" use_theme_fonts=\"yes\"]<\/p> In a wonderful display of global support for children with Progeria, 1 million people are following PRF through its dynamic and informative Facebook page. Follow<\/a> and share so everyone can be part of our quest for the cure! In recognition of this milestone and all the people Sam Berns inspired, click here<\/a> for \u201cTake the Long Way\u201d, a special musical tribute to Sam.<\/p><\/div><\/div> We are thrilled to announce that as of 8 PM on March 3rd, 2015, The Progeria Research Foundation Facebook page has 1,000,000 followers - AMAZING<\/strong>!\u00a0With your help we are spreading awareness of PRF's mission across the globe, resulting in more supporters, more children with Progeria identified around the world, and more progress toward a cure.<\/p> Please join our community on Facebook<\/a><\/strong>, and bring your friends along to share our message of hope for children with Progeria.<\/p> A Special Song Honoring Sam Berns\u2026<\/strong><\/p>[caption id=\"\" align=\"alignright\" width=\"200\"] Long-time PRF supporter and acclaimed musician Pat McGee wrote \u201cTake The Long Way\u201c<\/strong>, a song in honor of his friend Sam Berns, who passed away from complications of Progeria on January 10, 2014.\u00a0 Recorded in just one take, the song features many of the original band members who knew Sam, as well as other legendary studio musicians who were profoundly moved by Sam's story. Sam is heard playing the marching snare drum in the very beginning and end <\/i>recordings taken from previously recorded home movies.<\/i><\/p> HEAR THE SONG ON SOUNDCLOUD HERE<\/a>, AND BUY THE SONG HERE<\/a>.<\/strong><\/p> The lyrics, written in first person, are McGee's interpretation of Sam's infinite wisdom and love for his family and friends-- some words are inspired from Sam's recent TedX talk, <\/a>the HBO Documentary Life According to Sam<\/i><\/a>, and from heartfelt remarks spoken at Sam's funeral by those who knew and loved him.<\/p> \u201cSam was and will always be an inspiration to me, my family and my band members\u201d, says Pat. \u201cSam's courage, selflessness & deep love and appreciation for all the good in the world is a way of life that will be shared and paid forward more than Sam could have ever dreamed.\u201d<\/p><\/div>","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2],"tags":[],"class_list":["post-2001","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"yoast_head":"\n![\"\"](\"https:\/\/web.archive.org\/web\/20170216034240im_\/https:\/\/www.progeriaresearch.org\/assets\/images\/news_images\/Sam-PatMcGee-Dec2004.jpg\")
Sam and Pat in 2004[\/caption]