{"id":2037,"date":"2012-09-24T12:11:18","date_gmt":"2012-09-24T12:11:18","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=2037"},"modified":"2020-12-11T11:41:51","modified_gmt":"2020-12-11T16:41:51","slug":"the-world-learns-of-progeria-treatment","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/fr\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/","title":{"rendered":"Le monde d\u00e9couvre le traitement de la prog\u00e9ria"},"content":{"rendered":"

[et_pb_section fb_built=\u201d1\u2033 _builder_version=\u201d3.22\u2033][et_pb_row _builder_version=\u201d3.25\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dr\u00e9p\u00e9ter\u201d][et_pb_column type=\u201d4_4\u2033 _builder_version=\u201d3.25\u2033 custom_padding=\u201d|||\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text _builder_version=\u201d4.6.5\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dr\u00e9p\u00e9ter\u201d hover_enabled=\u201d0\u2033 sticky_enabled=\u201d0\u2033]<\/p>\n

La nouvelle du tout premier traitement contre la prog\u00e9ria se r\u00e9pand dans le monde entier, et des dizaines de m\u00e9dias rendent compte de cette avanc\u00e9e remarquable. Cliquez ici<\/a> pour lire l'annonce, et voir ci-dessous les liens vers des dizaines d'articles, des extraits radio et des diffusions t\u00e9l\u00e9vis\u00e9es !<\/p>\n

Cliquez ici<\/a> pour lire notre newsletter sp\u00e9ciale sur les r\u00e9sultats. <\/b>En plus ! En plus ! Lisez tout \u00e0 ce sujet !<\/strong><\/p>\n

La fascination du public pour la prog\u00e9ria et son lien avec le vieillissement ne cesse de cro\u00eetre, \u00e0 mesure que la nouvelle du premier traitement pour les enfants atteints de prog\u00e9ria se r\u00e9pand. D\u00e9couvrez ces histoires en ligne et \u00e0 l'antenne des principaux m\u00e9dias.\u00a0 Soyez le premier \u00e0 \u00eatre inform\u00e9 lorsque de nouvelles histoires apparaissent<\/strong>: \u00ab\u00a0aimez-nous\u00a0\u00bb sur Facebook<\/a>, suivez-nous sur Gazouillement<\/a>, ou envoyez-nous votre adresse email<\/a>.<\/p>\n

\"\"

Devin du Canada lors d'une visite en 2008 \u00e0 l'h\u00f4pital pour enfants de Boston pour l'essai clinique du m\u00e9dicament Progeria.<\/p><\/div>\n

Ce que les gens disent\u2026<\/p>\n

\u00ab le r\u00e9sultat de un sprint scientifique<\/strong>\u00ab \u2013 Robert Siegel, NPR<\/em><\/p>\n

\u00ab Il y a eu une r\u00e9compense inattendue pour le reste de l\u2019humanit\u00e9<\/strong>\u2026 certains\u2026 chercheront des moyens d\u2019utiliser ces nouvelles informations pour pr\u00e9venir une s\u00e9rie de maladies associ\u00e9es au vieillissement\u2026 la chose la plus remarquable \u00e0 propos de ce nouveau traitement est peut-\u00eatre la rapidit\u00e9 avec laquelle il a \u00e9t\u00e9 d\u00e9velopp\u00e9. \u00bb \u2013 Jon Hamilton, NPR<\/em><\/p>\n

\u00ab Maintenant, non seulement nous avons notre premier traitement, mais nous savons pour la premi\u00e8re fois que la prog\u00e9ria peut \u00eatre am\u00e9lior\u00e9e, et cela nous inspire \u00e0 travailler plus dur et plus vite<\/strong> vers des traitements suppl\u00e9mentaires qui pourraient fonctionner en conjonction avec le Lonafarnib pour faire une diff\u00e9rence dans la sant\u00e9 des enfants atteints de prog\u00e9ria.\u201d\u00a0 \u00a0<\/em>\u2013 Dr Leslie Gordon, directrice m\u00e9dicale du PRF, CNN Health<\/em><\/p>\n

\u00ab La premi\u00e8re fois que quelqu'un fait quelque chose qui, de quelque mani\u00e8re que ce soit, modifi\u00e9 l'histoire naturelle de cette maladie<\/strong>."\u201d \u2013 Dr Mark Kieran, pr\u00e9sident de l\u2019essai clinique sur le m\u00e9dicament contre la prog\u00e9ria,<\/em> Le Boston Globe<\/em><\/p>\n

\u00ab [Ces r\u00e9sultats] montrent le d\u00e9vouement dont font preuve les parents et les organismes \u00e0 but non lucratif de la communaut\u00e9 des maladies rares pour faire avancer les choses lorsque tout semble perdu\u2026 cette \u00e9tude est un bon exemple<\/strong> \u00ab Nous voulons montrer comment une petite organisation \u00e0 but non lucratif peut contribuer \u00e0 stimuler et \u00e0 traduire la recherche biom\u00e9dicale et g\u00e9n\u00e9tique fondamentale en un traitement humain. \u00bb \u2013 <\/em>Docteur James Radke<\/em>Rapport sur les maladies rares<\/em><\/p>\n

\u00ab C'est \u00e9normeC'est un miracle<\/strong>Devin a de nouveaux espoirs, de nouveaux r\u00eaves, son dicton est : \u00ab R\u00eave grand ou rentre chez toi \u00bb \u2013 Jamie,<\/em> Sant\u00e9 de CNN<\/em><\/p>\n

\u00ab L'histoire continue de La conqu\u00eate de la Progeria est une illustration glorieuse de la valeur de la recherche fondamentale pour d\u00e9couvrir comment quelque chose se produit <\/strong>\u2013 et c\u2019est le c\u0153ur et l\u2019\u00e2me de la science. \u2013 <\/em>Ricki Lewis, Ph. D., PLOS<\/em><\/a>\u00a0 LIEN: https:\/\/blogs.plos.org\/dnascience\/2012\/10\/11\/from-rapid-aging-to-common-heart-disease\/<\/a><\/p>\n

\"\"

Frannie Marmorstein de Spectrum Health tient avec enthousiasme l'\u00e9dition du 25 septembre 2012 du Wall Street Journal, montrant l'article sur les r\u00e9sultats de l'essai au-dessus du pli de la premi\u00e8re page !<\/p><\/div>\n

Voir les articles complets ici\u2026<\/strong><\/p>\n

\"\"<\/strong><\/p>\n

WBF 88.7 \u2013 NPR News \u2013 \u00c9COUTEZ l'interview \u00ab All Things Considered \u00bb de Robert Siegel avec la directrice m\u00e9dicale de PRF et son fils Sam ! (le lien n'est plus disponible)<\/strong><\/p>\n

\"\"<\/p>\n

REGARDEZ le reportage sur la filiale locale d'ABC \u00e0 Boston, WCVB-TV (le lien n'est plus disponible)<\/strong><\/p>\n

\"\"<\/p>\n

Wall Street Journal \u2013 Market Watch (lien non disponible)<\/strong><\/p>\n

D'abord-<\/strong>Un traitement pour une maladie rare li\u00e9e au vieillissement de l'enfant montre une am\u00e9lioration chez tous les participants \u00e0 l'essai (le lien n'est plus disponible)<\/strong><\/p>\n

L'\u00e9tude d'une maladie rare aide \u00e0 la recherche d'indices sur le vieillissement \/ Un m\u00e9dicament ralentit les dommages chez les enfants qui sont \u00e9galement li\u00e9s \u00e0 des probl\u00e8mes cardiaques chez d'autres<\/strong><\/a><\/p>\n

\"\"<\/strong><\/p>\n

Sant\u00e9 de CNN<\/a><\/strong><\/p>\n

Progr\u00e8s dans le domaine des maladies li\u00e9es au vieillissement pr\u00e9coce des enfants<\/strong><\/a><\/p>\n

\"\"<\/strong><\/p>\n

Un nouvel essai cible les maladies infantiles li\u00e9es au vieillissement rapide (le lien n'est plus disponible) <\/strong><\/p>\n

\"\"
<\/strong>Science Quotidienne : <\/a><\/strong>Un m\u00e9dicament initialement d\u00e9velopp\u00e9 contre le cancer s'av\u00e8re efficace pour les enfants atteints de prog\u00e9ria<\/strong><\/a><\/p>\n

\"\"
90,9 WBUR CommonSant\u00e9 : <\/strong>Premier traitement d\u00e9couvert pour le vieillissement rapide des enfants (lien non disponible) <\/strong><\/p>\n\n\n\n
\n

Nous sommes \u00e9ternellement reconnaissants \u00e0 l'\u00e9quipe fantastique de Spectre<\/a> pour leurs efforts inlassables pour faire conna\u00eetre Proger<\/strong>ia et PRF <\/strong>travail.\u00a0<\/strong><\/p>\n

\u00a0<\/strong>\"\"<\/a><\/p>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

\u00a0<\/strong>\u00a0<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”3.22″][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.6.5″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” hover_enabled=”0″ sticky_enabled=”0″] News of the first-ever treatment for Progeria is spreading around the globe, with dozens of media outlets reporting on this remarkable advancement. Click here to read the announcement, and see below for links on dozens of articles, radio […]<\/p>","protected":false},"author":1,"featured_media":2039,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"

News of the first-ever treatment for Progeria is spreading around the globe, with dozens of media outlets reporting on this remarkable advancement. Click here<\/a> to read the announcement, and see below for links on dozens of articles, radio clips and TV airings!<\/p>

Click here<\/a> to read our special newsletter on the findings. <\/b>Extra! Extra! Read All About It!<\/strong><\/p>

The public\u2019s fascination with Progeria and its relation to aging continues to rise, as word of the first treatment for children with Progeria spreads. Check out these stories on-line and on-air from top-tier outlets.\u00a0 Be the first to know as more stories appear<\/strong>: 'like' us on Facebook<\/a>, follow us on Twitter<\/a>, or send us your email address<\/a>.<\/p>[caption id=\"attachment_2038\" align=\"alignleft\" width=\"225\"]\"\" Devin from Canada during a 2008 visit to Boston Children\u2019s Hospital for the Progeria clinical drug trial.[\/caption]

What people are saying\u2026<\/p>

\u201cthe result of a scientific sprint<\/strong>\u201d \u2013 Robert Siegel, NPR<\/em><\/p>

\u201cThere\u2019s been an unexpected payoff for the rest of humanity<\/strong>...some\u2026will be looking for ways to use this new information to ward off a range of diseases associated with aging\u2026 perhaps the most remarkable thing about the new treatment is how fast it was developed.\u201d\u00a0 \u2013 Jon Hamilton, NPR<\/em><\/p>

\u201cNow, we not only have our first treatment, but we know for the first time that Progeria can be improved, and this inspires us to work harder and faster<\/strong> toward additional treatments that could work in conjunction with Lonafarnib to make a difference in the health of children with Progeria.\u201d\u00a0 \u00a0<\/em>- PRF\u2019s Medical Director Dr. Leslie Gordon, CNN Health<\/em><\/p>

\"The first time anyone has done anything that in any way, shape or form altered the natural history of this disease<\/strong>.\" \u2013 Progeria Drug trial Chair Dr. Mark Kieran,<\/em> The Boston Globe<\/em><\/p>

\"[These results] show the dedication parents and non-profits have in the rare disease community to get things done when all seems lost\u2026 this study is a great example<\/strong> of how a small non-profit can help stimulate and translate basic biomedical and genetic research into a human treatment.\" \u2013 <\/em>James Radke PhD<\/em>, Rare Disease Report<\/em><\/p>

\"It\u2019s huge, It\u2019s a miracle<\/strong>. Devin has new hope, dreams, his saying is, \u201cDream big or go home\u201d \u2013 Jamie,<\/em> CNN Health<\/em><\/p>

\u201cThe continuing story of conquering Progeria is a glorious illustration of the value of basic research in discovering how something happens <\/strong>\u2013 and that\u2019s the heart and soul of science.\u201d \u2013 <\/em>Ricki Lewis, PhD, PLOS<\/em><\/a>\u00a0 LINK: https:\/\/blogs.plos.org\/dnascience\/2012\/10\/11\/from-rapid-aging-to-common-heart-disease\/<\/a><\/p>[caption id=\"attachment_2039\" align=\"aligncenter\" width=\"432\"]\"\" Spectrum Health's Frannie Marmorstein excitedly holds the Sept. 25, 2012 edition of the Wall Street Journal, showing the trial results article above the fold on the front page![\/caption]

See complete articles here\u2026<\/strong><\/p>

\"\"<\/strong><\/p>

WBF 88.7 \u2013 NPR News \u2013<\/a>LISTEN<\/a> to Robert Siegel\u2019s \u201cAll Things Considered\u201d interview with PRF\u2019s Medical Director and her son Sam!<\/a><\/strong><\/p>

\u00a0<\/p>

\"\"<\/p>

\u00a0<\/p>

WATCH the news report on Boston\u2019s local abc affiliate, WCVB-TV<\/a><\/strong><\/p>

\u00a0<\/p>

\"\"<\/p>

Wall Street<\/a> Journal - Market Watch<\/a><\/strong><\/p>

First-<\/strong><\/a>Ever Treatment For Rare Childhood Aging Disease Shows Improvement In All Trial Participant<\/strong><\/a><\/p>

Study of Rare Disease Helps in Search for Clues on Aging \/\u00a0 Drug Slows Damage in Children That Also Is Linked to Heart Problems in Others<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/strong><\/p>

\u00a0<\/p>

CNN Health<\/a><\/strong><\/p>

Advances in kids' early aging disease<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/strong><\/p>

WCVB.com<\/a><\/strong><\/p>

New trial targets rapid-aging childhood disease<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/strong><\/p>

Science Daily<\/a><\/strong><\/p>

Drug Originally Developed for Cancer Proves Effective for Children With Progeria<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/p>

90.9 WBUR CommonHealth<\/a><\/strong><\/p>

First Treatment Found For Rapid-Aging Disease In Children<\/strong><\/a><\/p>

\u00a0<\/p>

\u00a0<\/p>

We are eternally grateful to the fantastic team at Spectrum<\/a> for their tireless efforts to spread the word about Proger<\/strong>ia and PRF\u2019s <\/strong>work.\u00a0<\/strong><\/p>

\u00a0<\/strong>\"\"<\/a><\/p><\/td><\/tr><\/tbody><\/table>

\u00a0<\/strong>\u00a0<\/strong><\/p>","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2],"tags":[],"class_list":["post-2037","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"yoast_head":"\nThe World Learns of Progeria Treatment - The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/fr\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The World Learns of Progeria Treatment - The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"[et_pb_section fb_built=”1″ _builder_version=”3.22″][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.6.5″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” hover_enabled=”0″ sticky_enabled=”0″] News of the first-ever treatment for Progeria is spreading around the globe, with dozens of media outlets reporting on this remarkable advancement. Click here to read the announcement, and see below for links on dozens of articles, radio […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.progeriaresearch.org\/fr\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/\" \/>\n<meta property=\"og:site_name\" content=\"The Progeria Research Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/ProgeriaResearch\/\" \/>\n<meta property=\"article:published_time\" content=\"2012-09-24T12:11:18+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2020-12-11T16:41:51+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/05\/Frannnie-with-WSJ.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"432\" \/>\n\t<meta property=\"og:image:height\" content=\"324\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"gravoc\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@Progeria\" \/>\n<meta name=\"twitter:site\" content=\"@Progeria\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"gravoc\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.progeriaresearch.org\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/\"},\"author\":{\"name\":\"gravoc\",\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#\/schema\/person\/a3c935a81e92242c6a77ae0018542928\"},\"headline\":\"The World Learns of Progeria Treatment\",\"datePublished\":\"2012-09-24T12:11:18+00:00\",\"dateModified\":\"2020-12-11T16:41:51+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/\"},\"wordCount\":682,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/05\/Frannnie-with-WSJ.jpg\",\"articleSection\":[\"News\"],\"inLanguage\":\"fr-FR\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\/\/www.progeriaresearch.org\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.progeriaresearch.org\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/\",\"url\":\"https:\/\/www.progeriaresearch.org\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/\",\"name\":\"The World Learns of Progeria Treatment - 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