Le 10 septembre 2010, l'\u00e9mission 20\/20 d'ABC a diffus\u00e9 une \u00e9mission d'une heure sur la prog\u00e9ria intitul\u00e9e : Quand sept ans ressemblent \u00e0 70\u2026 Une course contre la montre pour trois jeunes filles (plus disponible en ligne).<\/em>L\u2019\u00e9mission a \u00e9t\u00e9 une merveilleuse repr\u00e9sentation de Lindsay, Kaylee et Hayley et de leurs familles, et nous remercions Barbara Walters et la productrice Muriel Pearson d\u2019avoir amen\u00e9 la Progeria dans les foyers de millions de t\u00e9l\u00e9spectateurs.<\/p>\n La Progeria Research Foundation appr\u00e9cie tous les efforts visant \u00e0 sensibiliser le public \u00e0 la Progeria et est heureuse que Barbara Walters et ABC reconnaissent la nature unique et remarquable de ces enfants sp\u00e9ciaux, ainsi que le lien de la Progeria avec le processus de vieillissement qui nous affecte tous.<\/p>\n Veuillez noter que toute information sur les effets du ou des m\u00e9dicaments utilis\u00e9s dans la prog\u00e9ria essais cliniques de m\u00e9dicaments<\/a> ce qui a \u00e9t\u00e9 partag\u00e9 dans le programme 20\/20 n'a pas \u00e9t\u00e9 fourni ni approuv\u00e9 par la Progeria Research Foundation.<\/em> Nous esp\u00e9rons que les r\u00e9sultats du tout premier essai de m\u00e9dicament seront publi\u00e9s dans un avenir proche et nous les partagerons publiquement au moment de la publication. Pour savoir comment vous pouvez aider les enfants atteints de prog\u00e9ria, cliquez ici ici<\/a>.<\/p>\n Regardez l'int\u00e9gralit\u00e9 de la diffusion ici<\/a>, et lisez les pr\u00e8s de 500 commentaires sur l'\u00e9mission ici<\/a>.<\/p>\n<\/div>\n<\/div>\n<\/div>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.6.5″ _module_preset=”default” min_height=”558px” custom_padding=”0px|||||”][et_pb_row column_structure=”1_2,1_2″ custom_padding_last_edited=”on|desktop” padding_left_right_link_1=”false” padding_left_right_link_2=”true” _builder_version=”3.25″ custom_margin=”-27px|auto||auto||” custom_padding=”39.0156px|0px|30px|0px|false|false” custom_padding_tablet=”0px|35px||35px” custom_padding_phone=”0px||0px” animation_direction=”right” locked=”off”][et_pb_column type=”1_2″ saved_specialty_column_type=”3_4″ _builder_version=”3.25″ custom_padding=”|20px||” custom_padding_tablet=”|0px||0px” custom_padding_phone=”||30px” custom_padding_last_edited=”on|phone” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2010\/05\/HayleyCloser-crpd.jpg” align=”center” admin_label=”hayley” _builder_version=”4.6.5″ _module_preset=”default”][\/et_pb_image][et_pb_text _builder_version=”4.6.5″ _module_preset=”default” text_font=”|700|||||||” text_font_size=”12px” custom_margin=”-16px|||||”]<\/p>\n Hayley fait une d\u00e9claration finale aux chercheurs lors de l'atelier de 2010 sur la prog\u00e9ria : \u00ab Merci d'avoir trouv\u00e9 un rem\u00e8de. \u00bb<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ saved_specialty_column_type=”3_4″ _builder_version=”3.25″ custom_padding=”|20px|30px|20px” custom_padding_tablet=”|0px||0px” custom_padding_phone=”” custom_padding_last_edited=”on|desktop” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2010\/05\/LindsayKaylee-trophies-crp.jpg” align=”center” admin_label=”lindsayKaylee” _builder_version=”4.6.5″ _module_preset=”default” custom_margin=”||3px|||”][\/et_pb_image][et_pb_text _builder_version=”4.6.5″ _module_preset=”default” text_font=”|700|||||||” text_font_size=”12px”]<\/p>\n Lindsay et Kaylee, \u00e0 Boston en septembre 2009 pour leur derni\u00e8re visite dans le cadre du premier essai clinique (pour lequel elles ont re\u00e7u des troph\u00e9es !) et leur premi\u00e8re visite pour le nouvel essai \u00e0 trois m\u00e9dicaments.<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":" [et_pb_section fb_built=”1″ _builder_version=”3.22″ custom_padding=”||0px|||”][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_margin=”-59px|auto||auto||”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.6.5″ background_size=”initial” background_position=”top_left” background_repeat=”repeat”] Awareness of Progeria continues with the airing of a 20\/20 special featuring Lindsay, Kaylee and Hayley, three girls with Progeria On September 10, 2010, ABC’s 20\/20 aired a 1-hour program on Progeria entitled, When Seven Looks Like 70…A […]<\/p>","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":" [vc_custom_heading text=\"Barbara Walters Reports on Progeria\" font_container=\"tag:h1|text_align:left\" use_theme_fonts=\"yes\"]<\/p> Awareness of Progeria continues with the airing of a 20\/20 special featuring Lindsay, Kaylee and Hayley, three girls with Progeria<\/p> On September 10, 2010, ABC's 20\/20 aired a 1-hour program on Progeria entitled, When Seven Looks Like 70...A Race Against Time for Three Young Girls<\/a>.<\/em> The show was a wonderful portrayal of Lindsay, Kaylee and Hayley and their families, and we thank Barbara Walters and producer Muriel Pearson for bringing Progeria into the homes of millions of viewers.<\/p> The Progeria Research Foundation appreciates every effort to raise awareness about Progeria, and is pleased that Barbara Walters and ABC recognize the unique and remarkable nature of these special children, as well as Progeria's connection to the aging process that affects us all.<\/p> Please note that any information about effects of the drug(s) used in Progeria clinical drug trials<\/a> that was shared on the 20\/20 program has not been provided by or approved by The Progeria Research Foundation.<\/em> We hope the results of the first-ever drug trial will be published in the near future, and will share those results publicly at the time of publication. To learn how you can help children with Progeria, click here<\/a>.<\/p> Watch the entire broadcast here<\/a>, and read the nearly 500 comments on the show here<\/a>.<\/p>[caption id=\"attachment_2075\" align=\"alignnone\" width=\"150\"]![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/05\/HayleyCloser-crpd.jpg\")
Hayley makes a closing statement to the researchers at the 2010 workshop on Progeria, \"Thank you for finding a cure.\"[\/caption][caption id=\"attachment_2076\" align=\"alignnone\" width=\"250\"]![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/05\/LindsayKaylee-trophies-crp.jpg\")
Lindsay and Kaylee, in Boston September 2009 for their final visit in the first clinical trial (for which they received
trophies!) and their 1st visit for the new, triple drug trial.[\/caption]<\/div><\/div><\/div>","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2],"tags":[],"class_list":["post-2074","post","type-post","status-publish","format-standard","hentry","category-news"],"yoast_head":"\n