{"id":8800,"date":"2019-09-30T16:22:23","date_gmt":"2019-09-30T16:22:23","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=8800"},"modified":"2020-12-13T17:44:07","modified_gmt":"2020-12-13T22:44:07","slug":"hot-off-the-press-prfs-2019-newsletter","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/fr\/2019\/09\/30\/hot-off-the-press-prfs-2019-newsletter\/","title":{"rendered":"Newsletter 2019 du PRF"},"content":{"rendered":"<p>[et_pb_section fb_built=\u201d1\u2033 _builder_version=\u201d3.22\u2033][et_pb_row _builder_version=\u201d3.25\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dr\u00e9p\u00e9ter\u201d][et_pb_column type=\u201d4_4\u2033 _builder_version=\u201d3.25\u2033 custom_padding=\u201d|||\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text _builder_version=\u201d4.6.5\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201dr\u00e9p\u00e9ter\u201d hover_enabled=\u201d0\u2033 sticky_enabled=\u201d0\u2033]<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-8806 alignleft\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/full-cover-page-for-landing-newsletter-teaser-229x300.png\" alt=\"\" width=\"229\" height=\"300\" \/><\/p>\n<h3>Lancement du programme d&#039;acc\u00e8s g\u00e9r\u00e9 de Lonafarnib\u00a0!<\/h3>\n<p>La participation \u00e0 l\u2019essai et le d\u00e9placement \u00e0 Boston ne sont plus n\u00e9cessaires pour la plupart des enfants afin d\u2019acc\u00e9der \u00e0 ce traitement.<\/p>\n<p><strong>Nous sommes ravis d&#039;annoncer <\/strong>Le programme d&#039;acc\u00e8s g\u00e9r\u00e9 au lonafarnib (MAP) est d\u00e9sormais op\u00e9rationnel. La PRF et le fabricant du lonafarnib, Eiger BioPharmaceuticals, ont travaill\u00e9 ensemble pour cr\u00e9er ce programme. Le MAP permet aux enfants et aux jeunes adultes \u00e9ligibles atteints de prog\u00e9ria d&#039;obtenir le m\u00e9dicament lonafarnib par l&#039;interm\u00e9diaire de leurs m\u00e9decins locaux dans les pays qui autorisent la mise en place du MAP.<\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\">Voir le PDF complet ci-dessous.<\/p>\n<p>[\/et_pb_text][et_pb_button button_url=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/2019-Newletter-For-Web.pdf&#8221; button_text=&#8221;Read More&#8221; button_alignment=&#8221;center&#8221; _builder_version=&#8221;4.6.5&#8243; _module_preset=&#8221;default&#8221; background_layout=&#8221;dark&#8221; hover_enabled=&#8221;0&#8243; sticky_enabled=&#8221;0&#8243;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"<p>Recevez des mises \u00e0 jour passionnantes sur nos progr\u00e8s au cours de l&#039;ann\u00e9e \u00e9coul\u00e9e, apprenez pourquoi nous d\u00e9signons d\u00e9sormais la population que nous servons comme des enfants - et des jeunes adultes - atteints de Progeria, d\u00e9couvrez les personnes, la science et les \u00e9v\u00e9nements qui nous ont amen\u00e9s l\u00e0 o\u00f9 nous en sommes aujourd&#039;hui, et BIEN PLUS ENCORE !<\/p>","protected":false},"author":2,"featured_media":8806,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<p><img class=\"size-medium wp-image-8806 alignleft\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/full-cover-page-for-landing-newsletter-teaser-229x300.png\" alt=\"\" width=\"229\" height=\"300\" \/><\/p><h3>Lonafarnib Managed Access Program Launched!<\/h3><p>Trial participation and travel to Boston no longer required for most children in order to access this treatment.<\/p><p><strong>We are thrilled to announce <\/strong>that the lonafarnib Managed Access Program (MAP) is now up and running. PRF and lonafarnib manufacturer, Eiger BioPharmaceuticals, have worked together to create this Program. The MAP enables eligible children and young adults with Progeria to obtain the drug lonafarnib through their local physicians in countries that allow the MAP to be offered.<\/p><p>Read more by viewing the full PDF below.<\/p><p>[button link=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/09\/2019-Newletter-For-Web.pdf\" type=\"big\" color=\"orange\" newwindow=\"yes\"] Read More[\/button]<\/p>","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2],"tags":[],"class_list":["post-8800","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>PRF&#039;s 2019 Newsletter - The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/fr\/2019\/09\/30\/hot-off-the-press-prfs-2019-newsletter\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"PRF&#039;s 2019 Newsletter - 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