{"id":4744,"date":"2016-08-12T15:56:44","date_gmt":"2016-08-12T15:56:44","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=281"},"modified":"2025-07-01T09:38:55","modified_gmt":"2025-07-01T13:38:55","slug":"science-and-research","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/id\/science-and-research\/","title":{"rendered":"Program Penelitian PRF"},"content":{"rendered":"

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Sains &<\/h1>\n

Riset<\/h1>\n

 <\/p>\n

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\n[\/et_pb_sidebar][\/et_pb_column][et_pb_column type=”3_4″ specialty_columns=”3″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_row_inner custom_padding_last_edited=”on|phone” _builder_version=”4.16″ custom_padding=”39.4375px|35px|4px||false|false” custom_padding_tablet=”|35px||35px||true” custom_padding_phone=”” animation_direction=”top” global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.27.4″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″]<\/p>\n

\"Megan-bearJun07\"Ketika pasangan Massachusetts, anak Dr. Leslie Gordon dan Scott Berns, Sam, didiagnosis menderita Progeria pada tahun 1998, mereka segera mulai mengumpulkan informasi sebanyak yang dapat mereka temukan tentang penyakit tersebut. Namun, mereka menemukan bahwa hampir tidak ada informasi yang tersedia. Tidak ada cara untuk menguji penyakit tersebut secara pasti, tidak ada dana penelitian yang tersedia, dan hampir tidak ada seorang pun yang mengadvokasi anak-anak ini. Jadi pada awal tahun 1999, mereka mengumpulkan keluarga, teman, dan kolega serta mendirikan The Progeria Research Foundation. Ibu Sam adalah Direktur Medis PRF, yang bertanggung jawab atas upaya medis dan penelitian untuk anak-anak penderita Progeria.<\/p>\n

Hanya dalam beberapa tahun, PRF telah menciptakan dan memusatkan semua sumber daya terkait penelitian yang dibutuhkan untuk mendorong maju secepat mungkin menuju pengobatan dan penyembuhan, untuk semua anak yang didiagnosis dengan Progeria di seluruh dunia. PRF adalah kekuatan pendorong di balik Progeria 2003 penemuan gen<\/a>; menciptakan, memiliki, dan mengoperasikan miliknya sendiri basis data medis & penelitian<\/a>, bank sel & jaringan<\/a>, Dan program pengujian diagnostik<\/a>; menyelenggarakan jurnal ilmiah dua tahunan\u00a0lokakarya<\/a>; dana hibah penelitian<\/a>\u00a0Dan uji klinis obat<\/a>; dan menyediakan layanan medis dan lainnya\u00a0mendukung<\/a> untuk keluarga. Semua program dan prestasi PRF telah menjadikan PRF sebagai pemimpin dunia dalam penelitian dan pendidikan Progeria. Dan seiring dengan kesadaran akan Progeria, kaitannya dengan penyakit jantung dan penuaan, serta program yang kini tersedia untuk penelitian menyebar ke seluruh dunia, kita semakin dekat untuk menyelamatkan nyawa anak-anak istimewa ini.<\/p>\n

PRF disusun berdasarkan visi seorang ibu yang tahu bahwa untuk memenangkan perlombaan melawan waktu ini demi putranya dan anak-anak lain dengan Progeria, kita harus membangun jaringan kebutuhan terkait penelitian untuk mendorong penelitian Progeria.<\/p>\n

Hasilnya sangat mencengangkan; PRF berkembang pesat dengan mendukung <\/a>para relawan, staf, dan donaturnya yang berdedikasi, melambungkan bidang Progeria dan gangguan terkait penuaan (seperti penyakit jantung dan osteoporosis) ke ranah baru.<\/p>\n

klik disini <\/a>untuk meninjau Kebijakan Pendanaan PRF untuk Proyek Eksternal<\/strong> \u00a0<\/span><\/p>\n

Bahasa Indonesia: [\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _versi_pembuat=\u201d4.16\u2033 _preset_modul=\u201ddefault\u201d info_warna_global=\u201d{}\u201d][et_pb_column_inner tipe_kolom_khusus_yang_disimpan=\u201d3_4\u2033 _versi_pembuat=\u201d4.16\u2033 _preset_modul=\u201ddefault\u201d info_warna_global=\u201d{}\u201d][et_pb_text _versi_pembuat=\u201d4.16\u2033 _preset_modul=\u201ddefault\u201d info_warna_global=\u201d{}\u201d]<\/p>\n

Klik di sini untuk mendengar dari beberapa peneliti kami yang luar biasa<\/b>!<\/span><\/a><\/h3>\n

Bahasa Indonesia: [\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 kelas_modul=\u201dfooter\u201d _builder_version=\u201d4.21.0\u2033 warna_latar_belakang=\u201d#29327a\u201d margin_khusus=\u201d-2px|||||\u201d custom_padding=\u201d0|0px|0|0px|false|false\u201d z_index_tablet=\u201d500\u2033 border_width_top=\u201d12px\u201d border_color_top=\u201d#00b2e2\u2033 global_module=\u201d133\u2033 terkunci=\u201dmati\u201d global_colors_info=\u201d{}\u201d][et_pb_row struktur_kolom=\u201d1_4,1_4,1_2\u2033 buat_sama=\u201daktif\u201d kelas_modul=\u201d et_pb_row_lebar_penuh\u201d _builder_version=\u201d4.16\u2033 lebar=\u201d89%\u201d lebar_tablet=\u201d80%\u201d lebar_ponsel=\u201d\u201d lebar_terakhir_diedit=\u201daktif|desktop\u201d lebar_maks=\u201d89%\u201d lebar_tablet=\u201d80%\u201d lebar_ponsel_maks=\u201d\u201d max_width_last_edited=\u201dpada|desktop\u201d z_index_tablet=\u201d500\u2033 buat_lebar_penuh=\u201daktif\u201d unit_lebar=\u201dnonaktif\u201d persentase_lebar_khusus=\u201d100%\u201d info_warna_global=\u201d{}\u201d][et_pb_column jenis=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 bantalan_khusus=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/lp.constantcontactpages.com\/sl\/88gWWwz\u201d button_text=\u201dDaftar Sekarang\u201d admin_label=\u201dDaftar untuk Pembaruan\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.27.4\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d link_option_url=\u201dhttps:\/\/lp.constantcontactpages.com\/sl\/88gWWwz\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201daktif|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201daktif\u201d button_bg_color__hover=\u201d#8fd2ed\u201d button_border_color__hover_enabled=\u201daktif\u201d]<\/p>\n

Mendaftar<\/h2>\n

untuk Kami<\/h2>\n

Pembaruan!<\/h2>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR\u201d button_text=\u201dDonasi Sekarang\u201d admin_label=\u201dBersama-sama, kita akan menemukan obatnya!\u201d modul_kelas=\u201dtanda-btn\u201d _builder_version=\u201d4.16\u2033 ukuran_font_header=\u201d25px\u201d warna_latar belakang=\u201d#29327a\u201d gaya_animasi=\u201dslide\u201d arah_animasi=\u201dkiri\u201d intensitas_animasi_slide=\u201d25%\u201d ukuran_font_header_tablet=\u201d\u201d ukuran_font_header_phone=\u201d30px\u201d ukuran_font_header_last_edited=\u201dpada|desktop\u201d ukuran_font_body_tablet=\u201d\u201d ukuran_font_body_phone=\u201d\u201d ukuran_font_body_last_edited=\u201dpada|desktop\u201d z_index_tablet=\u201d500\u2033 radius_batas=\u201dpada|25px|25px|25px|25px\u201d info_warna_global=\u201d{}\u201d warna_latar_belakang_tombol__hover_enabled=\u201dpada\u201d tombol_warna_latar_belakang_hover=\u201d#8fd2ed\u201d tombol_warna_batas_belakang_hover_diaktifkan=\u201daktif\u201d]<\/p>\n

Bersama-sama, kita<\/h2>\n

AKAN<\/em><\/h2>\n

temukan obatnya!<\/h2>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column tipe=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 bantalan_khusus=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2025\/05\/2025-strip-for-website-footer-no-years.png\u201d title_text=\u201dstrip 2025 untuk footer situs web tanpa tahun\u201d _builder_version=\u201d4.27.4\u2033 _module_preset=\u201ddefault\u201d custom_margin=\u201d35px||||false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"

[et_pb_section fb_built=\u201d1\u2033 lebar_penuh=\u201daktif\u201d dinonaktifkan_aktif=\u201dnonaktif|nonaktif|nonaktif\u201d _builder_version=\u201d4.16\u2033 lebar_batas_bawah=\u201d55px\u201d warna_batas_bawah=\u201d#29327a\u201d terkunci=\u201dnonaktif\u201d info_warna_global=\u201d{}\u201d][et_pb_fullwidth_header _builder_version=\u201d4.16\u2033 judul_font=\u201d|||||||||\u201d judul_font_size=\u201d55\u2033 warna_latar_belakang=\u201d#29327a\u201d gambar_latar_belakang=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/12\/Alexandra_1920x687.jpg\u201d posisi_latar_belakang=\u201dtengah_kiri\u201d bantalan_khusus=\u201d9vw||9vw||benar\u201d bantalan_khusus_tablet=\u201d\u201d bantalan_khusus_ponsel=\u201d|56px||\u201d bantalan_khusus_terakhir_diedit=\u201dpada|desktop\u201d ukuran_font_judul_tablet=\u201d45px\u201d ukuran_font_judul_ponsel=\u201d40px\u201d ukuran_font_judul_terakhir_diedit=\u201dpada|ponsel\u201d z_index_tablet=\u201d500\u2033 css_utama_element=\u201dposisi_latar_belakang: tengah 18% !penting;\u201d global_colors_info=\u201d{}\u201d] Sains & Penelitian [\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 specialty=\u201don\u201d padding_left_1=\u201d35px\u201d padding_left_2=\u201d35px\u201d padding_2_tablet=\u201d|||0px\u201d padding_2_phone=\u201d|||0px\u201d padding_2_last_edited=\u201don|desktop\u201d module_class_1=\u201dsidebar-secondary-nav\u201d module_class=\u201dhandprint-bg\u201d _builder_version=\u201d4.16\u2033 background_image=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/blue-handprint-only.png\u201d parallax=\u201don\u201d parallax_method=\u201dmati\u201d lebar_bagian dalam=\u201d100%\u201d lebar_maks_bagian dalam=\u201d100%\u201d bantalan_khusus=\u201d0|0px|54px|0px|salah|salah\u201d z_index_tablet=\u201d500\u2033 lebar_batas_atas=\u201d10px\u201d warna_batas_atas=\u201d#8fd2ed\u201d gunakan_lebar_khusus=\u201daktif\u201d [\u2026]<\/p>","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"\t\t\t\t[vc_row][vc_column][vc_custom_heading text=\"Science and Research\" font_container=\"tag:h1|text_align:center\" google_fonts=\"font_family:Open%20Sans%3A300%2C300italic%2Cregular%2Citalic%2C600%2C600italic%2C700%2C700italic%2C800%2C800italic|font_style:400%20regular%3A400%3Anormal\"][\/vc_column][\/vc_row][vc_row css=\".vc_custom_1475531690518{margin-left: -15px !important;}\"][vc_column][vc_column_text]\"Megan-bearJun07\"\r\n\r\nWhen a Massachusetts couple, Drs. Leslie Gordon and Scott Berns\u2019 child Sam was diagnosed with Progeria in 1998, they immediately began to collect as much information as they could find on the disease. But they discovered that practically nothing existed. There was no way to definitively test for the disease, no research funding available, and virtually no one advocating for these children. So in early 1999, they gathered family, friends and colleagues and established The Progeria Research Foundation. Sam\u2019s mother is PRF\u2019s Medical Director, responsible for both medical and research efforts for children with Progeria.\r\n

In just a few short years, PRF has created and centralized all of the research-related resources needed to propel forward as quickly as possible towards treatments and cure, for all children diagnosed with Progeria worldwide. PRF was the driving force behind the 2003 Progeria gene discovery<\/a>; created, owns and operates its own medical & research database<\/a>, cell & tissue bank<\/a>, and diagnostics testing program<\/a>; holds bi-annual scientific\u00a0workshops<\/a>; funds research grants<\/a>\u00a0and clinical drug trials<\/a>;\u00a0and provides medical and other\u00a0support<\/a> for the families.\u00a0All of PRF\u2019s programs and accomplishments have made PRF the world leader in Progeria research and education. And as awareness of Progeria, its link to heart disease and aging, and the programs now available for research spreads throughout the world, we move closer to saving the lives of these special children.<\/p>\r\nPRF was conceived with the vision of a mother who knew that in order to win this race against time for her son and the other children with Progeria, we would have to build the network of research-related needs to encourage Progeria research.\r\n

The results have been astounding; PRF has flourished with the support <\/a>of its dedicated volunteers, staff and donors, catapulting the field of Progeria and its aging-related disorders (such as heart disease and osteoporosis) into a new realm.<\/p>\r\n[\/vc_column_text][\/vc_column][\/vc_row]\t\t","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-4744","page","type-page","status-publish","hentry"],"yoast_head":"\nresearch programs | The Progeria Research Foundatio<\/title>\n<meta name=\"description\" content=\"Our foundation was founded based on a mother who was willing to fight against her son's race with Progeria, and have since built a network with a number of PRF Research Programs.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/id\/science-and-research\/\" \/>\n<meta property=\"og:locale\" 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