{"id":732,"date":"2017-02-25T21:00:58","date_gmt":"2017-02-25T21:00:58","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=732"},"modified":"2026-05-08T16:37:29","modified_gmt":"2026-05-08T20:37:29","slug":"quick-facts","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/id\/quick-facts\/","title":{"rendered":"Fakta Singkat"},"content":{"rendered":"<p>Bahasa Indonesia: [et_pb_section fb_built=\u201d1\u2033 lebar_penuh=\u201daktif\u201d dinonaktifkan_aktif=\u201dnonaktif|nonaktif|nonaktif\u201d _builder_version=\u201d4.16\u2033 lebar_batas_bawah=\u201d55px\u201d warna_batas_bawah=\u201d#29327a\u201d info_warna_global=\u201d{}\u201d][et_pb_fullwidth_header _builder_version=\u201d4.16\u2033 ukuran_font_judul=\u201d55\u2033 warna_latar_belakang=\u201d#29327a\u201d gambar_latar_belakang=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/About-Header.jpg\u201d posisi_latar_belakang=\u201dtengah_kiri\u201d bantalan_khusus=\u201d9vw||9vw||benar\u201d bantalan_khusus_tablet=\u201d\u201d bantalan_khusus_ponsel=\u201d|56px||\u201d custom_padding_last_edited=\u201dpada|desktop\u201d ukuran_font_judul_tablet=\u201d45px\u201d ukuran_font_judul_ponsel=\u201d40px\u201d ukuran_font_judul_terakhir_edited=\u201dpada|ponsel\u201d z_index_tablet=\u201d500\u2033 custom_css_main_element=\u201dposisi_latar belakang: tengah 18% !penting;\u201d info_warna_global=\u201d{}\u201d]<\/p>\n<h1>Penyakit Progeria<\/h1>\n<h1>Fakta Singkat<\/h1>\n<p>[\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 gunakan_talang_khusus=\u201daktif\u201d lebar_talang=\u201d1\u2033 spesialisasi=\u201daktif\u201d padding_left_1=\u201d35px\u201d padding_left_2=\u201d35px\u201d padding_2_tablet=\u201d|||0px\u201d padding_2_phone=\u201d|||0px\u201d padding_2_last_edited=\u201daktif|desktop\u201d kelas_modul_1=\u201dnavigasi-sekunder-bilah-sisi\u201d kelas_modul=\u201dcetak-tangan-bg\u201d versi_pembuat=\u201d4.16\u2033 gambar_latar_belakang=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/blue-handprint-only.png\u201d paralaks=\u201daktif\u201d metode_paralaks=\u201dnonaktif\u201d lebar_dalam=\u201d100%\u201d lebar_maks_dalam=\u201d100%\u201d bantalan_khusus=\u201d0|0px|54px|0px|salah|salah\u201d indeks_z_tablet=\u201d500\u2033 lebar_batas_atas=\u201d10px\u201d warna_batas_atas=\u201d#8fd2ed\u201d gunakan_lebar_khusus=\u201daktif\u201d satuan_lebar=\u201dmati\u201d persentase_lebar_khusus=\u201d100%\u201d info_warna_global=\u201d{}\u201d][et_pb_column jenis=\u201d1_4\u2033 versi_pembuat=\u201d4.16\u2033 bantalan_khusus=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_sidebar area=\u201det_pb_widget_area_16\u2033 dinonaktifkan_aktif=\u201daktif|aktif|nonaktif\u201d kelas_modul=\u201dsubpage-sidebars\u201d _builder_version=\u201d4.16\u2033 gaya_animasi=\u201dmemudar\u201d z_index_tablet=\u201d500\u2033 lebar_batas_kanan=\u201d5px\u201d global_colors_info=\u201d{}\u201d]<br \/>\n[\/et_pb_sidebar][\/et_pb_column][et_pb_column type=&#8221;3_4&#8243; specialty_columns=&#8221;3&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_row_inner column_structure=&#8221;1_2,1_2&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;39.4375px|35px|0px||false|false&#8221; custom_padding_tablet=&#8221;|35px||35px||true&#8221; custom_padding_phone=&#8221;&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text admin_label=&#8221;PRF BY THE NUMBERS &#8221; _builder_version=&#8221;4.27.5&#8243; header_4_font_size=&#8221;24px&#8221; animation_direction=&#8221;top&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">\n<h4><strong>PRF DENGAN ANGKA\u00a0<\/strong><\/h4>\n<p><em>As of March 31, 2026<\/em><\/p>\n<ul>\n<li>Identified children\/young adults living with Progeria and Progeroid Laminopathies: 216* in 52 countries<\/li>\n<li>*155 dari anak-anak\/remaja ini mengidap Sindrom Progeria Hutchinson-Gilford (HGPS, atau Progeria), dan 58 lainnya mengidap laminopati progeroid.<\/li>\n<li>Uji Klinis Obat Progeria yang didanai PRF: 5<\/li>\n<li>Hibah yang didanai: 85, total $9,3 juta<\/li>\n<li>Garis sel di Bank Sel &amp; Jaringan PRF: 211<\/li>\n<li>Anak-anak dalam Basis Data Medis &amp; Penelitian PRF: 224<\/li>\n<li>Pertemuan Ilmiah Internasional tentang Progeria: 15<\/li>\n<li>Jumlah bahasa yang digunakan untuk menerjemahkan program dan materi perawatan medis PRF: 38<\/li>\n<\/ul>\n<p>*157 of these children\/young adults have Hutchinson-Gilford Progeria Syndrome (HGPS or Progeria) and the other 59 have Progeroid Laminopathies.<\/p>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column_inner][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_cta title=&#8221;Mission&#8221; button_url=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2026\/05\/Quick-Facts-March-31-2026-Final.pdf&#8221; url_new_window=&#8221;on&#8221; button_text=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rIiwic2V0dGluZ3MiOnsiYmVmb3JlIjoiIiwiYWZ0ZXIiOiIiLCJ0ZXh0IjoicG9zdF90aXRsZSIsImN1c3RvbV90ZXh0IjoiIn19@&#8221; admin_label=&#8221;Fact sheet pdf &#038; Call to Action&#8221; _builder_version=&#8221;4.27.5&#8243; _dynamic_attributes=&#8221;button_text&#8221; background_color=&#8221;#29327a&#8221; custom_margin=&#8221;|||35px&#8221; custom_margin_tablet=&#8221;|||0px&#8221; custom_margin_phone=&#8221;&#8221; custom_margin_last_edited=&#8221;on|desktop&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;right&#8221; animation_intensity_slide=&#8221;25%&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p>Untuk Menemukan Perawatan dan Penyembuhan Progeria Hutchinson-Gilford dan Gangguan Terkait Penuaan, Termasuk Penyakit Jantung.<\/p>\n<p>&nbsp;<\/p>\n<p>[\/et_pb_cta][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;0px|35px|35px||false|false&#8221; custom_padding_tablet=&#8221;|35px||35px||true&#8221; custom_padding_phone=&#8221;&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text admin_label=&#8221;What is Progeria? &#8221; _builder_version=&#8221;4.27.5&#8243; header_4_font_size=&#8221;24px&#8221; custom_margin=&#8221;30px||30px||true&#8221; animation_direction=&#8221;top&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">\n<h4><strong>Apa itu Progeria?\u00a0<\/strong><\/h4>\n<p>Progeria, also known as Hutchinson-Gilford Progeria Syndrome (HGPS), is a rare, fatal genetic condition of accelerated aging in children. <span>Without treatment, c<\/span>hildren with Progeria die of the same heart disease that affects millions of normally aging adults (arteriosclerosis), but at an average age of just 14.5 years. Remarkably, their intellect is unaffected, and despite significant physical changes in their young bodies, these extraordinary children are intelligent, courageous, and full of life.<\/p>\n<p>Untuk informasi lebih lanjut tentang penyebab Progeria, klik <a href=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2020\/02\/What-is-Progeria-from-LATS.mp4\" target=\"_blank\" rel=\"noopener noreferrer\">Di Sini<\/a> untuk menonton video ikhtisar singkat yang dinarasikan oleh Dr. Leslie Gordon, diambil dari <em>Hidup Menurut Sam<\/em> (2013).<\/p>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][et_pb_text admin_label=&#8221;Text&#8221; _builder_version=&#8221;4.27.5&#8243; header_font=&#8221;||||||||&#8221; header_4_font=&#8221;||||||||&#8221; header_4_font_size=&#8221;24px&#8221; animation_direction=&#8221;top&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">\n<h4><strong>Tentang PRF<\/strong><\/h4>\n<p>The Progeria Research Foundation (PRF) is the driving force behind the global effort to understand, treat and ultimately cure Hutchinson-Gilford Progeria Syndrome (Progeria), a rare and fatal genetic disease that causes rapid aging in children. Founded by the family of Sam Berns after his diagnosis in 1999, PRF has enabled or led every major scientific breakthrough in the field, from discovery of the gene that causes the disease to the first FDA-approved treatment, lonafarnib, to the advancement of gene-editing approaches now in development. Through rigorous science, global research infrastructure and close partnership with the worldwide patient community, PRF is advancing next-generation therapies, expanding diagnosis and care, and leading the Path to Cure Progeria program to determine whether a one-time gene-editing therapy can offer a durable, potentially curative treatment.<o:p><\/o:p><\/p>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner struktur_kolom=\u201d1_2,1_2\u2033 bantalan_khusus_terakhir_diedit=\u201ddi|ponsel\u201d _builder_version=\u201d4.16\u2033 bantalan_khusus_terakhir_diedit=\u201ddi|ponsel\u201d _builder_version=\u201d4.16\u2033 bantalan_khusus_terakhir_diedit=\u201d0px|35px|0px||false|false\u201d bantalan_khusus_terakhir_diedit=\u201d|35px|50px|35px||true\u201d bantalan_khusus_telepon=\u201d\u201d arah_animasi=\u201datas\u201d info_warna_global=\u201d{}\u201d][et_pb_column_inner jenis=\u201d1_2\u2033 jenis_kolom_khusus_tersimpan=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 bantalan_khusus_terakhir_diedit=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dTotal Dolar yang Dikumpulkan\u201d _builder_version=\u201d4.16\u2033 header_text_align=\u201dcenter\u201d header_font_size=\u201d41px\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n<h1>Total Pendapatan<\/h1>\n<p>[\/et_pb_text][et_pb_number_counter title=&#8221;1999 through March 31, 2026&#8243; number=&#8221;100,293,936&#8243; percent_sign=&#8221;off&#8221; disabled_on=&#8221;on|on|off&#8221; admin_label=&#8221;Number Counter&#8221; module_class=&#8221;dollar&#8221; _builder_version=&#8221;4.27.5&#8243; title_level=&#8221;h5&#8243; number_font_size=&#8221;65px&#8221; custom_margin=&#8221;36px||36px||true&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<br \/>\n[\/et_pb_number_counter][et_pb_number_counter title=&#8221;1999 through March 31, 2026&#8243; number=&#8221;100,293,936&#8243; percent_sign=&#8221;off&#8221; disabled_on=&#8221;off|off|on&#8221; module_class=&#8221;dollar&#8221; _builder_version=&#8221;4.27.5&#8243; title_level=&#8221;h5&#8243; title_font=&#8221;||||||||&#8221; number_font=&#8221;||||||||&#8221; number_font_size=&#8221;60px&#8221; custom_margin=&#8221;36px||36px||true&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<br \/>\n[\/et_pb_number_counter][\/et_pb_column_inner][et_pb_column_inner tipe=\u201d1_2\u2033 tipe_kolom_khusus_yang_disimpan=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 bantalan_kustom=\u201d|||\u201d info_warna_global=\u201d{}\u201d bantalan_kustom__hover=\u201d|||\u201d][et_pb_text _builder_version=\u201d4.24.0\u2033 bantalan_kustom=\u201d|||\u201d info_warna_global=\u201d{}\u201d]<\/p>\n<p>Lebih dari 80% pengeluaran tahunan PRF secara konsisten didedikasikan untuk program dan layanannya \u2013 salah satu faktor dalam pencapaian peringkat bintang 4 yang didambakan dari Charity Navigator selama sepuluh tahun berturut-turut.<\/p>\n<p>Dukungan yang kami terima memungkinkan penemuan gen Progeria, uji klinis Progeria, dan semua kemajuan luar biasa lainnya. Dengan bantuan pendukung saat ini dan yang baru, kami\u00a0<em>akan<\/em>\u00a0menangkan perlombaan melawan waktu ini dan temukan perawatan dan obat untuk anak-anak istimewa ini. Selain itu, penemuan perawatan Progeria juga dapat membantu jutaan orang yang menderita penyakit jantung dan seluruh populasi lanjut usia.<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=\u201d4.16\u2033 warna_latar_belakang=\u201d#29327a\u201d margin_khusus=\u201d41px||\u201d margin_khusus_tablet=\u201d0px||\u201d custom_margin_phone=\u201d\u201d custom_margin_last_edited=\u201don|phone\u201d custom_padding=\u201d39.4375px|20px|35px|20px|false|true\u201d animation_style=\u201dslide\u201d animation_direction=\u201dright\u201d animation_intensity_slide=\u201d25%\u201d z_index_tablet=\u201d500\u2033 border_width_bottom=\u201d10px\u201d border_color_bottom=\u201d#8fd2ed\u201d box_shadow_style=\u201dpreset1\u2033 box_shadow_blur=\u201d38px\u201d box_shadow_spread=\u201d-12px\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dProgram &amp; Layanan PRF\u201d _builder_version=\u201d4.16\u2033 text_orientation=\u201dcenter\u201d background_layout=\u201ddark\u201d custom_padding=\u201d|10px||10px||true\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n<h1 data-fontsize=\"34\" data-lineheight=\"48\">Program &amp; Layanan PRF<\/h1>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner column_structure=&#8221;1_2,1_2&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;39.4375px|35px|0px||false|false&#8221; custom_padding_tablet=&#8221;|35px||35px||true&#8221; custom_padding_phone=&#8221;&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text admin_label=&#8221;First-Ever Progeria Clinical Drug Trials and Treatment&#8221; _builder_version=&#8221;4.27.5&#8243; link_text_color=&#8221;#00b2e2&#8243; header_4_font_size=&#8221;24px&#8221; custom_margin=&#8221;|||&#8221; custom_padding_tablet=&#8221;||35px&#8221; custom_padding_phone=&#8221;&#8221; custom_padding_last_edited=&#8221;on|desktop&#8221; animation_direction=&#8221;top&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">\n<h4><strong>Progeria Pertama Kali\u00a0<a href=\"https:\/\/www.progeriaresearch.org\/id\/clinical-trials\/\">Uji Klinis Obat<\/a><\/strong>\u00a0<strong>dan Perawatan<\/strong><\/h4>\n<p>Uji Coba Obat Klinis yang Disponsori PRF menghadirkan anak-anak dari seluruh dunia untuk perawatan menjanjikan yang dapat membantu memperbaiki penyakit dan memperpanjang hidup anak-anak penderita Progeria. <strong><em>In 2020, history was made with the United States Food and Drug Administration (FDA) approval of lonafarnib (trade name Zokinvy<\/em><\/strong><strong><em>\u2122), a farnesyltransferase inhibitor, as the first-ever treatment for Progeria and Progeroid Laminopathies<\/em><\/strong>.\u00a0 Lonafarnib has been shown to improve many aspects of the disease including the vital vascular system and <span>a 30% <\/span><span>average <\/span>increase <span>di dalam <\/span><span>lifesp<\/span><span>A<\/span><span>n<\/span><span> with long-term treatment<\/span><span>. For more information on this exciting news, click <a href=\"https:\/\/www.progeriaresearch.org\/id\/2023\/03\/15\/progerinbiomarker\/\">Di Sini<\/a>. <\/span><strong><em><span>PRF is now developing <\/span><span>A\u00a0<\/span><\/em><\/strong><span style=\"box-sizing: border-box; margin: 0px; padding: 0px;\"><em><strong>gene-editing drug designed to correct the mutation that causes Progeria<\/strong><\/em><\/span><span>\u00a0and advancing this <\/span><span>gen <\/span><span>therapy toward clinical trials. <\/span><span>\u00a0<\/span><strong><em> Ini adalah langkah maju yang luar biasa dalam upaya menemukan pengobatan.\u00a0<\/em><\/strong><i><\/i><\/p>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column_inner][et_pb_column_inner type=\u201d1_2\u2033 saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta title=\u201dMari Temukan Penyembuhannya!\u201d button_url=\u201dhttps:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR\u201d button_text=\u201dDonasi Sekarang\u201d _builder_version=\u201d4.16\u2033 header_font=\u201d||||||||\u201d warna_latar_belakang=\u201d#00b2e2\u2033 tombol_kustom=\u201daktif\u201d warna_teks_tombol=\u201d#ffffff\u201d font_tombol=\u201d|||||||||\u201d info_warna_global=\u201d{}\u201d]<\/p>\n<div id=\"pastingspan1\">\n<article>Donasi Anda membantu Yayasan Penelitian Progeria\u00a0<\/article>\n<article><em><strong>merawat<\/strong><\/em>\u00a0anak-anak penderita Progeria saat ini<\/article>\n<\/div>\n<div>Dan\u00a0<em><strong>menyembuhkan<\/strong><\/em><strong>\u00a0<\/strong>mereka di masa mendatang.<\/div>\n<p>[\/et_pb_cta][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;39.4375px|35px|0px||false|false&#8221; custom_padding_tablet=&#8221;|35px||35px||true&#8221; custom_padding_phone=&#8221;&#8221; animation_direction=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_toggle title=&#8221;International Progeria Registry &#8221; open=&#8221;on&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;International Progeria Registry &#8221; _builder_version=&#8221;4.27.5&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p>Menyimpan informasi terpusat tentang anak-anak dan keluarga yang hidup dengan Progeria. Hal ini memastikan distribusi cepat informasi baru yang dapat bermanfaat bagi anak-anak.<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/id\/international-registry\/\" target=\"_blank\" rel=\"noopener noreferrer\">Pelajari lebih lanjut<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;Cell &#038; Tissue Bank&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;Cell &#038; Tissue Bank&#8221; _builder_version=&#8221;4.27.5&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p>Bank PRF menyediakan materi genetik dan biologis dari pasien Progeria dan keluarga mereka kepada para peneliti sehingga penelitian tentang Progeria dan penyakit terkait penuaan lainnya dapat dilakukan untuk membawa kita lebih dekat ke penyembuhannya. PRF telah mengumpulkan 214 lini sel yang mengesankan dari anak-anak yang terkena dampak dan anggota keluarga mereka di seluruh dunia termasuk 10 lini Sel Punca Pluripoten Terinduksi (iPSC).<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/id\/cell-and-tissue-bank\/\">Pelajari lebih lanjut<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;Medical &#038; Research Database&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;Medical &#038; Research Database&#8221; _builder_version=&#8221;4.27.5&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p>The Database is a centralized collection of medical information from Progeria patients worldwide.\u00a0 The data is rigorously analyzed to help us understand more about Progeria and devise treatment recommendations. In 2010, this analysis contributed to PRF\u2019s comprehensive healthcare Handbook on Progeria aimed at optimizing quality of life. The <span>2019, 2<sup>dan<\/sup> Edition of the <\/span>Handbook is available in English, Spanish and Portuguese, Russian &amp; Italian.<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/id\/medical-database\/\">Pelajari lebih lanjut<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;Diagnostic Testing&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;Diagnostic Testing&#8221; _builder_version=&#8221;4.27.5&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p>Program ini dikembangkan setelah penemuan gen pada tahun 2003 sehingga anak-anak, keluarga mereka, dan pengasuh medis dapat memperoleh diagnosis ilmiah yang pasti. Hal ini dapat menghasilkan diagnosis lebih awal, lebih sedikit kesalahan diagnosis, dan intervensi medis dini untuk memastikan kualitas hidup yang lebih baik bagi anak-anak.<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/id\/the-prf-diagnostic-testing-program\/\">Pelajari lebih lanjut<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;Scientific Workshops on Progeria&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;Scientific Workshops on Progeria&#8221; _builder_version=&#8221;4.27.5&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<ul>\n<li>PRF has organized 15 scientific conferences that have brought together scientists and clinicians from all over the world to share their expertise and cutting-edge scientific data.\u00a0 These workshops foster collaboration in the fight against this devastating disease.<\/li>\n<\/ul>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/id\/scientific-meetings\/\">Pelajari lebih lanjut<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;Research Grants&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;Research Grants&#8221; _builder_version=&#8221;4.27.5&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p>Through peer review by our volunteer Medical Research Committee, PRF has funded projects throughout the world that have led to important discoveries about Progeria, heart disease, and <span>This <\/span>program <span>w<\/span>as updated <span>di dalam <\/span><span>December<\/span> <span>2024 <\/span>to reflect current research needs<span>;<\/span> <span>There <\/span><span>adalah <\/span><span>now<\/span> <span> a proactive pathway, in which PRF identifies research needs and engages laboratories best suited to address them, and an investigator-driven pathway, in which PRF reviews investigator-initiated proposals.<\/span><\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/id\/grants-funded\/\">Pelajari lebih lanjut<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;Publications &#038; Research&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;Publications &#038; Research&#8221; _builder_version=&#8221;4.27.5&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p>Baik ilmuwan klinis maupun ilmuwan dasar telah memanfaatkan hibah PRF, sel dan jaringan, serta basis data; penemuan mereka dipublikasikan di jurnal ilmiah terkemuka. Jumlah rata-rata publikasi ilmiah tahunan tentang Progeria sejak 2002 lebih dari 20 kali lipat dari 50 tahun sebelumnya!<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/id\/scientific-publications\/\">Pelajari lebih lanjut<\/a><\/p>\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;PRF Translation Program&#8221; open_toggle_background_color=&#8221;#f7f7f7&#8243; closed_toggle_text_color=&#8221;#ffffff&#8221; closed_toggle_background_color=&#8221;#00b2e2&#8243; icon_color=&#8221;#ffc15e&#8221; open_icon_color=&#8221;#ffc15e&#8221; admin_label=&#8221;PRF Translation Program&#8221; _builder_version=&#8221;4.27.5&#8243; title_text_color=&#8221;#00b2e2&#8243; background_color=&#8221;#ffffff&#8221; custom_margin=&#8221;10px||10px||true&#8221; custom_padding=&#8221;|50px||50px||true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;25%&#8221; hover_enabled=&#8221;0&#8243; z_index_tablet=&#8221;500&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p><strong><em>Berhubungan dengan dunia<\/em><\/strong>Dengan kehadiran global yang menonjol, PRF menghilangkan hambatan komunikasi bagi pasien dan keluarga mereka, dari seluruh dunia. Inisiatif ini telah berhasil menerjemahkan program PRF dan materi perawatan medis ke dalam 38 bahasa.<\/p>\n<p><a href=\"https:\/\/www.progeriaresearch.org\/id\/translators-needed\/\">Pelajari lebih lanjut<\/a><\/p>\n<p>[\/et_pb_toggle][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner struktur_kolom=\u201d1_2,1_2\u2033 bantalan_khusus_terakhir_diedit=\u201ddi|ponsel\u201d _builder_version=\u201d4.16\u2033 bantalan_khusus=\u201d39.4375px|35px|0px||false|false\u201d bantalan_khusus_tablet=\u201d|35px||35px||true\u201d bantalan_khusus_ponsel=\u201d\u201d arah_animasi=\u201datas\u201d info_warna_global=\u201d{}\u201d][et_pb_column_inner jenis=\u201d1_2\u2033 jenis_kolom_khusus_tersimpan=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 bantalan_khusus=\u201d|||\u201d custom_css_main_element=\u201dlebar: 30% !penting;\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/Sammy-Basso-in-USA-Square.jpg\u201d align=\u201dtengah\u201d align_tablet=\u201dtengah\u201d align_phone=\u201d\u201d align_last_edited=\u201dpada|desktop\u201d _builder_version=\u201d4.16\u2033 border_radii=\u201dpada|100%|100%|100%|100%\u201d global_colors_info=\u201d{}\u201d]<br \/>\n[\/et_pb_image][\/et_pb_column_inner][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; custom_css_main_element=&#8221;width: 70% !important;&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.27.5&#8243; text_font=&#8221;||||||||&#8221; link_font=&#8221;||||||||&#8221; link_text_color=&#8221;#00b2e2&#8243; header_font=&#8221;||||||||&#8221; header_4_font=&#8221;||||||||&#8221; header_4_font_size=&#8221;24px&#8221; custom_margin=&#8221;|||&#8221; custom_margin_tablet=&#8221;|||25px&#8221; custom_margin_phone=&#8221;&#8221; custom_margin_last_edited=&#8221;on|desktop&#8221; custom_padding=&#8221;||50px&#8221; animation_direction=&#8221;top&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">\n<h4>Kesadaran Publik<\/h4>\n<p>Situs web kami menyediakan akses ke informasi terbaru tentang penelitian dan dukungan Progeria untuk keluarga. Melalui <strong><a href=\"https:\/\/www.facebook.com\/ProgeriaResearch\">Indonesia<\/a>,\u00a0<a href=\"https:\/\/www.tiktok.com\/@progeriaresearch\">TikTok, <\/a><a href=\"https:\/\/www.instagram.com\/progeriaresearch\/\">Instagram<\/a>, <a href=\"http:\/\/www.youtube.com\/progeriaresearchorg\">Youtube<\/a>, <a href=\"https:\/\/www.linkedin.com\/company\/3520192\">LinkedIn<\/a>, <\/strong>dan media lainnya, jangkauan media sosial langsung PRF lebih dari 1 juta. Kisah PRF telah muncul di CNN, ABC News, Primetime, Dateline, The Katie Couric Show, NPR, The Associated Press, dan The Today Show, di majalah Time dan People, The New York Times, The Wall Street Journal, dan banyak media lain yang banyak dibaca. Selain itu, film HBO tahun 2013 yang memenangkan penghargaan <a href=\"https:\/\/www.progeriaresearch.org\/id\/life-according-to-sam\/\"><strong><em>Hidup Menurut Sam<\/em><\/strong><\/a> telah meningkatkan kesadaran dengan cara yang unik dan inspiratif. PRF juga mengelola\u00a0<strong><a href=\"https:\/\/www.progeriaresearch.org\/id\/find-the-children\/\" target=\"_blank\" rel=\"noopener noreferrer\">Temukan Anak-Anak<\/a><\/strong>, kampanye kesadaran global untuk menemukan anak-anak dengan Progeria di seluruh dunia, sehingga mereka bisa mendapatkan bantuan unik yang mereka butuhkan.<\/p>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=\u201d4.16\u2033 warna_latar_belakang=\u201d#29327a\u201d margin_khusus=\u201d41px||\u201d margin_khusus_tablet=\u201d0px||\u201d custom_margin_phone=\u201d\u201d custom_margin_last_edited=\u201don|phone\u201d custom_padding=\u201d39.4375px|20px|35px|20px|false|true\u201d animation_style=\u201dslide\u201d animation_direction=\u201dright\u201d animation_intensity_slide=\u201d25%\u201d z_index_tablet=\u201d500\u2033 border_width_bottom=\u201d10px\u201d border_color_bottom=\u201d#8fd2ed\u201d box_shadow_style=\u201dpreset1\u2033 box_shadow_blur=\u201d38px\u201d box_shadow_spread=\u201d-12px\u201d global_colors_info=\u201d{}\u201d][et_pb_column_inner saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dSiapa Saja yang Ada di PRF?\u201d _builder_version=\u201d4.16\u2033 text_orientation=\u201dcenter\u201d background_layout=\u201ddark\u201d custom_padding=\u201d|10px||10px||true\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n<h1 data-fontsize=\"34\" data-lineheight=\"48\">Siapa saja di PRF?<\/h1>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner bantalan_khusus_terakhir_diedit=\u201ddi|ponsel\u201d _builder_version=\u201d4.16\u2033 bantalan_khusus=\u201d39.4375px|35px|0px||false|false\u201d bantalan_khusus_tablet=\u201d|35px||35px||true\u201d bantalan_khusus_ponsel=\u201d\u201d arah_animasi=\u201datas\u201d info_warna_global=\u201d{}\u201d][et_pb_column_inner tipe_kolom_khusus_yang_disimpan=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 bantalan_khusus=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_team_member name=\u201d Audrey Gordon, Esq.\u201d position=\u201dPresiden dan Direktur Eksekutif\u201d image_url=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/Audrey-gala-09-square.jpg\u201d admin_label=\u201d Audrey Gordon, Esq.\u201d module_class=\u201dprf-person-module\u201d _builder_version=\u201d4.16\u2033 custom_margin=\u201d||45px\u201d link_option_url=\u201dmailto:agordon@progeriaresearch.org\u201d link_option_url_new_window=\u201don\u201d z_index_tablet=\u201d500\u2033 locked=\u201doff\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p>Bekerja sama erat dengan Dewan Direksi, pejabat, staf, dan relawan, Ibu Gordon bertanggung jawab atas manajemen sehari-hari dan memastikan pertumbuhan keuangan dan pengembangan program Yayasan Penelitian Progeria.<\/p>\n<p>[\/et_pb_team_member][et_pb_team_member name=\u201dLeslie Gordon, MD, PhD\u201d position=\u201dDirektur Medis\u201d image_url=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/Lelsiesp.jpg\u201d admin_label=\u201dLeslie Gordon, MD, PhD\u201d module_class=\u201dprf-person-module\u201d _builder_version=\u201d4.16\u2033 custom_margin=\u201d||45px\u201d link_option_url=\u201dmailto:Leslie_Gordon@brown.edu\u201d link_option_url_new_window=\u201don\u201d z_index_tablet=\u201d500\u2033 locked=\u201doff\u201d global_colors_info=\u201d{}\u201d]<\/p>\n<p>Dr. Gordon mendirikan PRF bersama teman-teman dan keluarganya setelah putranya, Sam, didiagnosis menderita Progeria. Dr. Gordon mengawasi program-program terkait penelitian PRF, dan merupakan salah satu ketua uji klinis obat Progeria. Ia adalah Associate Professor Penelitian Pediatri di Warren Alpert Medical School, Brown University, dan Hasbro Children&#039;s Hospital di Providence, RI, serta Staf Ilmuwan di Boston Children&#039;s Hospital dan Harvard Medical School.<\/p>\n<p>[\/et_pb_team_member][et_pb_team_member name=&#8221;Scott D. Berns, MD, MPH, FAAP&#8221; position=&#8221;Chair, Board of Directors&#8221; image_url=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/Scott-Berns.jpg&#8221; admin_label=&#8221;Scott D. Berns, MD, MPH, FAAP&#8221; module_class=&#8221;prf-person-module&#8221; _builder_version=&#8221;4.27.4&#8243; custom_margin=&#8221;||45px&#8221; link_option_url=&#8221;mailto:sberns@progeriaresearch.org&#8221; link_option_url_new_window=&#8221;on&#8221; z_index_tablet=&#8221;500&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Dr. Berns, ayah Sam, adalah salah satu pendiri The Progeria Research Foundation dan menjabat sebagai Ketua Dewan. Beliau adalah Dokter Spesialis Anak Bersertifikasi dan Profesor Klinis Pediatri di Alpert Medical School, Brown University.<br \/>Ia baru-baru ini pensiun sebagai Presiden dan CEO dari National Institute for Children&#039;s Health Quality, sebuah organisasi nirlaba independen yang bekerja untuk meningkatkan kesehatan anak-anak.<\/p>\n<p>[\/et_pb_team_member][et_pb_team_member name=&#8221;Carlos Luiz Silva&#8221; position=&#8221;PRF Ambassador&#8221; image_url=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2025\/03\/Carlos-WhatsApp-from-Tatiana-3-12-25.jpeg&#8221; admin_label=&#8221;Carlos&#8221; module_class=&#8221;prf-person-module&#8221; _builder_version=&#8221;4.27.4&#8243; position_font=&#8221;|700|||||||&#8221; position_text_color=&#8221;#00B2E2&#8243; custom_margin=&#8221;||45px&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p align=\"left\">Carlos menjabat sebagai duta muda PRF, berbagi perspektif unik tentang perjalanannya dengan Progeria melalui berbagai kesempatan media. Didiagnosis menderita Progeria pada usia 4 tahun, ia selalu tertarik pada mainan yang melibatkan pembangunan dan konstruksi. Carlos dikenal sebagai sosok yang sangat baik dan cerdas, serta selalu membuat orang tersenyum dengan kehangatan dan humornya. Saat ini, ia berada di kelas 9 di sebuah sekolah swasta di Cambridge, Massachusetts, di mana mata pelajaran favoritnya adalah Sains dan Sejarah, dengan rencana untuk lulus di bidang sains atau hukum. Carlos selalu memiliki kepribadian yang sangat berani dan kuat, bekerja keras dalam segala hal yang ia tekuni dan tidak pernah menyerah pada mimpinya.<\/p>\n<p>[\/et_pb_team_member][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; module_class=&#8221;footer&#8221; _builder_version=&#8221;4.21.0&#8243; background_color=&#8221;#29327a&#8221; custom_margin=&#8221;-2px|||||&#8221; custom_padding=&#8221;0|0px|0|0px|false|false&#8221; z_index_tablet=&#8221;500&#8243; border_width_top=&#8221;12px&#8221; border_color_top=&#8221;#00b2e2&#8243; global_module=&#8221;133&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_4,1_4,1_2&#8243; make_equal=&#8221;on&#8221; module_class=&#8221; et_pb_row_fullwidth&#8221; _builder_version=&#8221;4.16&#8243; width=&#8221;89%&#8221; width_tablet=&#8221;80%&#8221; width_phone=&#8221;&#8221; width_last_edited=&#8221;on|desktop&#8221; max_width=&#8221;89%&#8221; max_width_tablet=&#8221;80%&#8221; max_width_phone=&#8221;&#8221; max_width_last_edited=&#8221;on|desktop&#8221; z_index_tablet=&#8221;500&#8243; make_fullwidth=&#8221;on&#8221; width_unit=&#8221;off&#8221; custom_width_percent=&#8221;100%&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_cta button_url=&#8221;https:\/\/lp.constantcontactpages.com\/sl\/88gWWwz&#8221; button_text=&#8221;Sign Up Now&#8221; admin_label=&#8221;Sign Up for Updates&#8221; module_class=&#8221;sign-btn&#8221; _builder_version=&#8221;4.27.4&#8243; header_font_size=&#8221;25px&#8221; background_color=&#8221;#29327a&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;left&#8221; animation_intensity_slide=&#8221;25%&#8221; link_option_url=&#8221;https:\/\/lp.constantcontactpages.com\/sl\/88gWWwz&#8221; header_font_size_tablet=&#8221;&#8221; header_font_size_phone=&#8221;30px&#8221; header_font_size_last_edited=&#8221;on|desktop&#8221; z_index_tablet=&#8221;500&#8243; border_radii=&#8221;on|25px|25px|25px|25px&#8221; global_colors_info=&#8221;{}&#8221; button_bg_color__hover_enabled=&#8221;on&#8221; button_bg_color__hover=&#8221;#8fd2ed&#8221; button_border_color__hover_enabled=&#8221;on&#8221;]<\/p>\n<h2>Mendaftar<\/h2>\n<h2>untuk Kami<\/h2>\n<h2>Pembaruan!<\/h2>\n<p>[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR\u201d button_text=\u201dDonasi Sekarang\u201d admin_label=\u201dBersama-sama, kita akan menemukan obatnya!\u201d modul_kelas=\u201dtanda-btn\u201d _builder_version=\u201d4.16\u2033 ukuran_font_header=\u201d25px\u201d warna_latar belakang=\u201d#29327a\u201d gaya_animasi=\u201dslide\u201d arah_animasi=\u201dkiri\u201d intensitas_animasi_slide=\u201d25%\u201d ukuran_font_header_tablet=\u201d\u201d ukuran_font_header_phone=\u201d30px\u201d ukuran_font_header_last_edited=\u201dpada|desktop\u201d ukuran_font_body_tablet=\u201d\u201d ukuran_font_body_phone=\u201d\u201d ukuran_font_body_last_edited=\u201dpada|desktop\u201d z_index_tablet=\u201d500\u2033 radius_batas=\u201dpada|25px|25px|25px|25px\u201d info_warna_global=\u201d{}\u201d warna_latar_belakang_tombol__hover_enabled=\u201dpada\u201d tombol_warna_latar_belakang_hover=\u201d#8fd2ed\u201d tombol_warna_batas_belakang_hover_diaktifkan=\u201daktif\u201d]<\/p>\n<h2>Bersama-sama, kita<\/h2>\n<h2><em>AKAN<\/em><\/h2>\n<h2>temukan obatnya!<\/h2>\n<p>[\/et_pb_cta][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_image src=&#8221;https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2026\/03\/2026-footer-image-copy.png&#8221; title_text=&#8221;2026 footer image copy&#8221; _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;35px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"<p>Yayasan Penelitian Progeria telah melakukan penelitian ekstensif untuk meningkatkan kesadaran di seluruh dunia. Pelajari lebih lanjut melalui lembar fakta singkat kami.<\/p>","protected":false},"author":1,"featured_media":638,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<p>[vc_row][vc_column][vc_custom_heading text=\"Progeria Quick Facts\" font_container=\"tag:h1|text_align:center\" use_theme_fonts=\"yes\" link=\"url:https%3A%2F%2Fwww.progeriaresearch.org%2Fwp-content%2Fuploads%2F2017%2F02%2FPRF-QUICKFACTS-as-of-July-1.pdf||\"][vc_column_text]<\/p><p style=\"text-align: left;\" align=\"center\"><strong><img class=\"alignnone size-full wp-image-1469\" src=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/04\/iconPDF.gif\" alt=\"\" width=\"34\" height=\"20\" \/> <a href=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/3REVISED-PRF-QUICKFACTS-as-of-April-1-2019.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">QUICK FACTS<\/a><\/strong><\/p><p style=\"text-align: left;\" align=\"center\"><strong>MISSION: <\/strong>To Discover Treatments and the Cure for Hutchinson-Gilford Progeria Syndrome and its Aging-related Disorders, Including Heart Disease.<\/p><p><strong>PRF BY THE NUMBERS\u00a0<\/strong>as of April 1, 2019<\/p><ul><li>Identified children living with Progeria: 157* in 49 countries<\/li><li>PRF-sponsored Progeria Clinical Drug Trials: 5<\/li><li>Grants funded: 70, totaling $7.7 million<\/li><li>Cell lines in the PRF Cell & Tissue Bank: 212<\/li><li>Children in PRF\u2019s Medical & Research Database:\u00a0 178<\/li><li>International Scientific Meetings on Progeria: 11<\/li><li>Number of languages into which PRF\u2019s program and medical care materials are translated: 38<\/li><\/ul><p>*Includes 37 children in the Progeroid Laminopathy category who have\u00a0a mutation in the Lamin pathway, but do not produce progerin.[\/vc_column_text][vc_column_text]<\/p><h1>What is Progeria?<\/h1><p>Progeria, also known as Hutchinson-Gilford Progeria Syndrome (HGPS), is a rare, fatal genetic condition of accelerated aging in children. Children with Progeria die of the same heart disease that affects millions of normally aging adults (arteriosclerosis), but at an average age of just 14 years. Remarkably, their intellect is unaffected, and despite significant physical changes in their young bodies, these extraordinary children are intelligent, courageous, and full of life.[\/vc_column_text][vc_column_text]<\/p><h1>About PRF<\/h1><p>The Progeria Research Foundation (PRF) was established in 1999 by\u00a0<a href=\"mailto:lgordon@progeriaresearch.org\">Drs. Leslie Gordon<\/a> and Scott Berns,\u00a0the parents of a child with Progeria,\u00a0along with many dedicated friends and family who saw the need for a medical research resource for the doctors, patients, and families of those with Progeria.\u00a0 Since that time, PRF has been the driving force behind the Progeria gene discovery and the first-ever Progeria drug treatment. PRF has developed programs and services to aid those affected by Progeria and the scientists who conduct Progeria research.\u00a0 Today, PRF is the only non-profit organization solely dedicated to finding treatments and the cure for Progeria. PRF is hailed as a prime example of a successful translational research organization, moving from creation, to gene discovery, to first-ever drug treatment in just 13 years.[\/vc_column_text][vc_column_text]<\/p><h1>Total Dollars Raised<\/h1><p style=\"text-align: left;\" align=\"center\"><em>1999 through December 31, 2018<\/em>: <strong>$29,821,446<\/strong><\/p><p>More than 80% of PRF\u2019s annual expenses are consistently dedicated to its programs and services - one factor in our achieving a coveted 4-star rating from Charity Navigator five years in a row.<\/p><p>The support we have received made the Progeria gene discovery, the Progeria clinical trials and all of our other extraordinary progress possible.\u00a0 With the help of current and new supporters, we <em>will<\/em> win this race against time and find treatments and the cure for these special children. Moreover, Progeria treatment discoveries may also help millions with heart disease and the entire aging population.[\/vc_column_text][vc_column_text css=\".vc_custom_1549556944835{background-color: #ffffff !important;}\"]<\/p><h1>PRF\u2019S PROGRAMS & SERVICES<\/h1><ul><li><strong>First-Ever Progeria <a href=\"https:\/\/www.progeriaresearch.org\/clinical-trials\/\">Clinical Drug Trials<\/a><\/strong> <strong>and Treatment<\/strong><strong>:<\/strong>\u00a0 PRF-Sponsored Clinical Drug Trials bring children from around the world for promising treatments that may help to improve disease and extend the lives of children with Progeria. \u00a0<i>In 2012, history was made with the discovery that lonafarnib, a farnesyltransferase inhibitor, or FTI, is the first-ever treatment for Progeria, improving many aspects of the disease including the vital vascular system . More recent studies conclude that lonafarnib extends estimated lifespan. <\/i>In 2016, PRF initiated a two-drug trial, adding Everolimus, with the hope that the two drugs together will be even more effective than lonafarnib alone.\u00a0<i>These are remarkable steps forward in the pursuit of a cure.\u00a0<\/i><\/li><\/ul><ul><li><a href=\"https:\/\/www.progeriaresearch.org\/international-progeria-registry\/\"><strong>International Progeria Registry<\/strong>\u00a0<\/a> maintains centralized information on children and families living with Progeria.\u00a0 This assures rapid distribution of any new information that may benefit the children.<\/li><\/ul><ul><li><strong><a href=\"https:\/\/www.progeriaresearch.org\/cell-and-tissue-bank\/\">Cell & Tissue Bank:<\/a> <\/strong>PRF\u2019s Bank provides researchers with genetic and biological material from Progeria patients and their families so research on Progeria and other aging-related diseases can be performed to bring us closer to the cure.\u00a0 PRF has collected an impressive 212 cell lines from affected children and their family members worldwide including 10 Induced Pluripotent Stem Cell (iPSC) lines.<\/li><\/ul><ul><li><strong><a href=\"https:\/\/www.progeriaresearch.org\/medical-database\/\">Medical & Research Database:<\/a> <\/strong>The Database is a centralized collection of medical information from Progeria patients worldwide.\u00a0 The data is rigorously analyzed to help us understand more about Progeria and devise treatment recommendations. In 2010, this analysis contributed to PRF\u2019s comprehensive healthcare Handbook on Progeria aimed at optimizing quality of life. The Handbook is available in English, Spanish and Portuguese, Russian & Italian.<\/li><\/ul><ul><li><a href=\"https:\/\/www.progeriaresearch.org\/the-prf-diagnostic-testing-program\/\"><strong>Diagnostic Testing<\/strong>:<\/a> This program was developed in the wake of the 2003 gene discovery so that children, their families and medical caretakers can get a definitive, scientific diagnosis.\u00a0 This can translate into earlier diagnosis, fewer misdiagnoses and early medical intervention to ensure a better quality of life for the children.<\/li><\/ul><ul><li><strong><a href=\"https:\/\/www.progeriaresearch.org\/scientific_meetings\/\">Scientific Workshops on Progeria:<\/a> <\/strong>PRF has organized 12 scientific conferences that have brought together scientists and clinicians from all over the world to share their expertise and cutting edge scientific data. \u00a0These workshops foster collaboration in the fight against this devastating disease. \u00a0The\u00a0next meeting is September 20-22, 2018 in Boston, MA.<\/li><\/ul><ul><li><a href=\"https:\/\/www.progeriaresearch.org\/grants-funded\/\"><strong>Research Grants:<\/strong><\/a>\u00a0Through peer review by our volunteer Medical Research Committee, PRF has funded projects throughout the world that have led to important discoveries about Progeria, heart disease and aging. PRF\u2019s research program has been updated as of September 2018 to reflect current research needs within the fields of Progeria, aging and heart disease.<\/li><\/ul><ul><li><strong><a href=\"https:\/\/www.progeriaresearch.org\/scientific-publications\/\">Publications and Research:<\/a> <\/strong>Both clinical and basic scientists have utilized the PRF grants, cells and tissues, and database; their discoveries are published in top-notch scientific journals.\u00a0 The average annual number of scientific publications on Progeria since 2002 is more than 20 times that of the previous 50 years!<\/li><\/ul><ul><li><strong><a href=\"https:\/\/www.progeriaresearch.org\/translators-needed\/\">PRF Translation Program:<\/a> <\/strong><strong><em>In touch with the world<\/em><\/strong>.\u00a0 With a prominent global presence, PRF eliminates barriers to communication for patients and their families, from around the world.\u00a0 This initiative has succeeded in translating PRF program and medical care materials into 38 languages.<\/li><\/ul><ul><li><strong>Public Awareness:<\/strong>\u00a0progeriaresearch.org provides access to the latest information on Progeria research and support for families. \u00a0Through <strong><a href=\"https:\/\/www.facebook.com\/ProgeriaResearch\">Facebook<\/a>, <a href=\"https:\/\/twitter.com\/Progeria\">Twitter<\/a><\/strong> and other mediums, PRF\u2019s direct social media reach is over 1 million. PRF\u2019s story has appeared on CNN, ABC News, Primetime, Dateline, The Katie Couric Show, and The Today Show, in Time and People magazines, The New York Times, The Wall Street Journal and many other widely-read media outlets. In addition, the award-winning 2013 HBO film <a href=\"https:\/\/www.progeriaresearch.org\/life-according-to-sam\/\"><strong><em>Life According to Sam<\/em><\/strong><\/a>\u00a0has raised awareness in a unique and inspiring way.\u00a0\u00a0PRF also manages\u00a0<strong><a href=\"https:\/\/www.findtheother150.org\/\">Find the Other 150<\/a><\/strong>,\u00a0a global awareness campaign to find children with Progeria worldwide, so they can get the unique help they need.<\/li><\/ul><p>[\/vc_column_text][vc_column_text]<\/p><h1>WHO\u2019S WHO AT PRF?<\/h1><p><strong><a href=\"mailto:agordon@progeriaresearch.org\">Audrey Gordon, Esq., President and Executive <b>Director<\/b><\/a><br \/><\/strong>Working closely with the Board of Directors, officers, staff, and volunteers, Ms. Gordon is responsible for day-to-day management and for ensuring The Progeria Research Foundation's financial growth and program development.<\/p><p><a href=\"mailto:Leslie_Gordon@brown.edu\"><strong>Leslie B. Gordon, MD, PhD, Medical Director, Co-Founder<\/strong><\/a><br \/>Dr. Gordon co-founded PRF with friends and family after her son, Sam, was diagnosed with Progeria. Dr. Gordon oversees PRF\u2019s research-related programs, and is a co-chair for the Progeria clinical drug trials.\u00a0 She is an Associate Professor of Pediatrics Research at the Warren Alpert Medical School of Brown University and Hasbro Children\u2019s Hospital in Providence, RI, and a Staff Scientist at Boston Children\u2019s Hospital and Harvard Medical School.<\/p><p><a href=\"mailto:sberns@progeriaresearch.org\"><strong>Scott D. Berns, MD, MPH, FAAP, PRF Chairman of the Board, Co-Founder<\/strong><\/a><br \/>Dr. Berns, Sam\u2019s father, is a co-founder of The Progeria Research Foundation and serves as Chairman of the Board.\u00a0 He is a Board Certified Pediatrician and Clinical Professor of Pediatrics at the Alpert Medical School of Brown University. He is also President and CEO of the National Institute for Children\u2019s Health Quality, an independent, nonprofit organization working to improve children\u2019s health.<\/p><p><b>Meghan Waldron, PRF\u2019s Youth Ambassador<br \/><\/b>Meghan serves as a spokesperson for PRF, from the perspective of a youth with Progeria. Accomplished cellist and violinist, high school cross country and track team athlete, published poet \u2013 Meghan is a talented and busy 18-year-old living in Massachusetts.[\/vc_column_text][\/vc_column][\/vc_row]<\/p>","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-732","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Quick Facts | The Progeria Research Foundation<\/title>\n<meta name=\"description\" content=\"The Progeria Research Foundation has done extensive research to bring awareness across the globe. Learn more through our quick facts sheet.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/id\/quick-facts\/\" \/>\n<meta property=\"og:locale\" content=\"id_ID\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Quick Facts | The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"The Progeria Research Foundation has done extensive research to bring awareness across the globe. Learn more through our quick facts sheet.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.progeriaresearch.org\/id\/quick-facts\/\" \/>\n<meta property=\"og:site_name\" content=\"The Progeria Research Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/ProgeriaResearch\/\" \/>\n<meta property=\"article:modified_time\" content=\"2026-05-08T20:37:29+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2016\/03\/Sammy-Basso-in-USA.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1280\" \/>\n\t<meta property=\"og:image:height\" content=\"960\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:title\" content=\"Quick Facts | The Progeria Research Foundation\" \/>\n<meta name=\"twitter:description\" content=\"The Progeria Research Foundation has done extensive research to bring awareness across the globe. Learn more through our quick facts sheet.\" \/>\n<meta name=\"twitter:image\" content=\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2016\/03\/Sammy-Basso-in-USA.jpg\" \/>\n<meta name=\"twitter:site\" content=\"@Progeria\" \/>\n<meta name=\"twitter:label1\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"8 menit\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.progeriaresearch.org\/quick-facts\/\",\"url\":\"https:\/\/www.progeriaresearch.org\/quick-facts\/\",\"name\":\"Quick Facts | The Progeria Research Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/quick-facts\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/quick-facts\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2016\/03\/Sammy-Basso-in-USA.jpg\",\"datePublished\":\"2017-02-25T21:00:58+00:00\",\"dateModified\":\"2026-05-08T20:37:29+00:00\",\"description\":\"The Progeria Research Foundation has done extensive research to bring awareness across the globe. Learn more through our quick facts sheet.\",\"breadcrumb\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/quick-facts\/#breadcrumb\"},\"inLanguage\":\"id\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.progeriaresearch.org\/quick-facts\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"id\",\"@id\":\"https:\/\/www.progeriaresearch.org\/quick-facts\/#primaryimage\",\"url\":\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2016\/03\/Sammy-Basso-in-USA.jpg\",\"contentUrl\":\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2016\/03\/Sammy-Basso-in-USA.jpg\",\"width\":1280,\"height\":960,\"caption\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.progeriaresearch.org\/quick-facts\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.progeriaresearch.org\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Quick Facts\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#website\",\"url\":\"https:\/\/www.progeriaresearch.org\/ta\/\",\"name\":\"The Progeria Research Foundation\",\"description\":\"For the Children \u2665 For the Cure\",\"publisher\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.progeriaresearch.org\/ta\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"id\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#organization\",\"name\":\"The Progeria Research Foundation\",\"url\":\"https:\/\/www.progeriaresearch.org\/ta\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"id\",\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/05\/PRF_Logo_2019_optimized.png\",\"contentUrl\":\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/05\/PRF_Logo_2019_optimized.png\",\"width\":300,\"height\":86,\"caption\":\"The Progeria Research Foundation\"},\"image\":{\"@id\":\"https:\/\/www.progeriaresearch.org\/ta\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/ProgeriaResearch\/\",\"https:\/\/x.com\/Progeria\",\"https:\/\/www.instagram.com\/progeriaresearch\/\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Quick Facts | The Progeria Research Foundation","description":"Yayasan Penelitian Progeria telah melakukan penelitian ekstensif untuk meningkatkan kesadaran di seluruh dunia. Pelajari lebih lanjut melalui lembar fakta singkat kami.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.progeriaresearch.org\/id\/quick-facts\/","og_locale":"id_ID","og_type":"article","og_title":"Quick Facts | The Progeria Research Foundation","og_description":"The Progeria Research Foundation has done extensive research to bring awareness across the globe. Learn more through our quick facts sheet.","og_url":"https:\/\/www.progeriaresearch.org\/id\/quick-facts\/","og_site_name":"The Progeria Research Foundation","article_publisher":"https:\/\/www.facebook.com\/ProgeriaResearch\/","article_modified_time":"2026-05-08T20:37:29+00:00","og_image":[{"width":1280,"height":960,"url":"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2016\/03\/Sammy-Basso-in-USA.jpg","type":"image\/jpeg"}],"twitter_card":"summary_large_image","twitter_title":"Quick Facts | The Progeria Research Foundation","twitter_description":"The Progeria Research Foundation has done extensive research to bring awareness across the globe. Learn more through our quick facts sheet.","twitter_image":"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2016\/03\/Sammy-Basso-in-USA.jpg","twitter_site":"@Progeria","twitter_misc":{"Est. reading time":"8 menit"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/www.progeriaresearch.org\/quick-facts\/","url":"https:\/\/www.progeriaresearch.org\/quick-facts\/","name":"Quick Facts | The Progeria Research Foundation","isPartOf":{"@id":"https:\/\/www.progeriaresearch.org\/ta\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.progeriaresearch.org\/quick-facts\/#primaryimage"},"image":{"@id":"https:\/\/www.progeriaresearch.org\/quick-facts\/#primaryimage"},"thumbnailUrl":"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2016\/03\/Sammy-Basso-in-USA.jpg","datePublished":"2017-02-25T21:00:58+00:00","dateModified":"2026-05-08T20:37:29+00:00","description":"Yayasan Penelitian Progeria telah melakukan penelitian ekstensif untuk meningkatkan kesadaran di seluruh dunia. Pelajari lebih lanjut melalui lembar fakta singkat kami.","breadcrumb":{"@id":"https:\/\/www.progeriaresearch.org\/quick-facts\/#breadcrumb"},"inLanguage":"id","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.progeriaresearch.org\/quick-facts\/"]}]},{"@type":"ImageObject","inLanguage":"id","@id":"https:\/\/www.progeriaresearch.org\/quick-facts\/#primaryimage","url":"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2016\/03\/Sammy-Basso-in-USA.jpg","contentUrl":"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2016\/03\/Sammy-Basso-in-USA.jpg","width":1280,"height":960,"caption":""},{"@type":"BreadcrumbList","@id":"https:\/\/www.progeriaresearch.org\/quick-facts\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.progeriaresearch.org\/"},{"@type":"ListItem","position":2,"name":"Quick Facts"}]},{"@type":"WebSite","@id":"https:\/\/www.progeriaresearch.org\/ta\/#website","url":"https:\/\/www.progeriaresearch.org\/ta\/","name":"Yayasan Penelitian Progeria","description":"Untuk Anak-anak \u2665 Untuk Penyembuhan","publisher":{"@id":"https:\/\/www.progeriaresearch.org\/ta\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.progeriaresearch.org\/ta\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"id"},{"@type":"Organization","@id":"https:\/\/www.progeriaresearch.org\/ta\/#organization","name":"Yayasan Penelitian Progeria","url":"https:\/\/www.progeriaresearch.org\/ta\/","logo":{"@type":"ImageObject","inLanguage":"id","@id":"https:\/\/www.progeriaresearch.org\/ta\/#\/schema\/logo\/image\/","url":"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/05\/PRF_Logo_2019_optimized.png","contentUrl":"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/05\/PRF_Logo_2019_optimized.png","width":300,"height":86,"caption":"The Progeria Research Foundation"},"image":{"@id":"https:\/\/www.progeriaresearch.org\/ta\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/ProgeriaResearch\/","https:\/\/x.com\/Progeria","https:\/\/www.instagram.com\/progeriaresearch\/"]}]}},"_links":{"self":[{"href":"https:\/\/www.progeriaresearch.org\/id\/wp-json\/wp\/v2\/pages\/732","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.progeriaresearch.org\/id\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.progeriaresearch.org\/id\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.progeriaresearch.org\/id\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.progeriaresearch.org\/id\/wp-json\/wp\/v2\/comments?post=732"}],"version-history":[{"count":2,"href":"https:\/\/www.progeriaresearch.org\/id\/wp-json\/wp\/v2\/pages\/732\/revisions"}],"predecessor-version":[{"id":21712,"href":"https:\/\/www.progeriaresearch.org\/id\/wp-json\/wp\/v2\/pages\/732\/revisions\/21712"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.progeriaresearch.org\/id\/wp-json\/wp\/v2\/media\/638"}],"wp:attachment":[{"href":"https:\/\/www.progeriaresearch.org\/id\/wp-json\/wp\/v2\/media?parent=732"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}