{"id":9181,"date":"2019-12-24T19:32:53","date_gmt":"2019-12-24T19:32:53","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?page_id=9181"},"modified":"2024-04-22T09:35:55","modified_gmt":"2024-04-22T13:35:55","slug":"international-registry-2","status":"publish","type":"page","link":"https:\/\/www.progeriaresearch.org\/id\/international-registry-2\/","title":{"rendered":"Program Registrasi Internasional"},"content":{"rendered":"

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PRF (Perdana Menteri) <\/span><\/span><\/h1>\n

Internasional <\/span><\/span><\/h1>\n

Pasien Progeria <\/span><\/span><\/h1>\n

Registri<\/span><\/span><\/span><\/h1>\n

<\/span><\/span><\/p>\n

 <\/p>\n

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\n[\/et_pb_sidebar][\/et_pb_column][et_pb_column type=\u201d3_4\u2033 specialty_columns=\u201d3\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_row_inner custom_padding_last_edited=\u201don|telepon\u201d disabled_on=\u201don|on|\u201d Bahasa Indonesia: _builder_version=\u201d4.16\u2033 bantalan_kustom=\u201d39.4375px|35px|0px||false|false\u201d bantalan_kustom_tablet=\u201d|35px||35px||true\u201d bantalan_kustom_ponsel=\u201d\u201d arah_animasi=\u201datas\u201d indeks_z_tablet=\u201d500\u2033 info_warna_global=\u201d{}\u201d][et_pb_column_inner tipe_kolom_khusus_yang_disimpan=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 bantalan_kustom=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dPENGANTAR HALAMAN PROGRAM PENELITIAN\u201d _builder_version=\u201d4.24.3\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d hover_enabled=\u201d0\u2033 z_index_tablet=\u201d500\u2033 box_shadow_horizontal_tablet=\u201d0px\u201d box_shadow_vertical_tablet=\u201d0px\u201d box_shadow_blur_tablet=\u201d40px\u201d box_shadow_spread_tablet=\u201d0px\u201d global_colors_info=\u201d{}\u201d sticky_enabled=\u201d0\u2033]<\/p>\n

Yayasan Penelitian Progeria merupakan sumber daya global untuk penelitian dan pendidikan Progeria. Progeria merupakan kondisi yang sangat langka. Untuk lebih memahami patologi dan perjalanan alami sindrom ini, kami membentuk Program Registrasi Internasional.<\/p>\n

Registri menyediakan sumber daya untuk studi Progeria dan memelihara basis data terpusat tentang anak-anak penderita Progeria di seluruh dunia, sekaligus berfungsi untuk meningkatkan komunikasi gagasan di antara para peneliti, guna memastikan distribusi cepat informasi baru apa pun yang dapat bermanfaat bagi pasien dan keluarga mereka.<\/p>\n

Registri dapat diaudit oleh lembaga pemerintah, seperti Badan Pengawas Obat dan Makanan Amerika Serikat, dalam situasi seperti pengembangan obat.<\/p>\n

Kerjasama Anda dalam pendaftaran dan membantu memberikan informasi tentang anak-anak dengan Progeria ke Registri sangat kami hargai. Jika Anda adalah orang tua, dokter, atau perwakilan lain dari anak dengan Progeria, silakan isi Formulir Registri, dan kirimkan ke\u00a0<\/span>info@progeriaresearch.org<\/a>.<\/strong><\/p>\n

Terima kasih sebelumnya atas partisipasinya Registri Pasien Progeria Internasional PRF<\/span>.<\/p>\n

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button_url=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2022\/01\/PRF-Registry-Form-Dutch-2021.docx\u201d button_text=\u201dFormulir Pendaftaran Belanda\u201d button_alignment=\u201dcenter\u201d admin_label=\u201dFormulir Pendaftaran Belanda\u201d _builder_version=\u201d4.17.3\u2033 background_layout=\u201ddark\u201d custom_margin=\u201d||20px||false|false\u201d custom_padding=\u201d|29px||28px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_button][et_pb_button button_url=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/01\/PRF-Registry-Form-French-2021.docx\u201d button_text=\u201dFormulir Pendaftaran Prancis\u201d button_alignment=\u201dcenter\u201d admin_label=\u201dFormulir Pendaftaran Prancis\u201d _builder_version=\u201d4.23.1\u2033 background_layout=\u201ddark\u201d custom_margin=\u201d||20px||false|false\u201d custom_padding=\u201d|32px||30px|false|false\u201d 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button_alignment=\u201dleft\u201d admin_label=\u201dFormulir Pendaftaran Rusia\u201d _builder_version=\u201d4.17.3\u2033 background_layout=\u201ddark\u201d custom_margin=\u201d||20px||false|false\u201d custom_padding=\u201d|33px|||false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_button][et_pb_button button_url=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/10\/PRF-Registry-Form-Russian-2023.doc\u201d button_text=\u201dFormulir Pendaftaran Rusia\u201d button_alignment=\u201dleft\u201d admin_label=\u201dFormulir Pendaftaran Rusia\u201d _builder_version=\u201d4.22.1\u2033 background_layout=\u201ddark\u201d custom_margin=\u201d||20px||false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_button][et_pb_button button_url=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2022\/01\/PRF-Registry-Form-Spanish-2021.docx\u201d button_text=\u201dFormulir Registri Spanyol\u201d button_alignment=\u201dleft\u201d admin_label=\u201dFormulir Registri 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Mendaftar<\/h2>\n

untuk Kami<\/h2>\n

Buletin!<\/h2>\n

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Bersama-sama, kita<\/h2>\n

AKAN<\/em><\/h2>\n

temukan obatnya!<\/h2>\n

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Registri Pasien Progeria Internasional PRF Yayasan Riset Progeria adalah sumber daya global untuk riset dan edukasi Progeria. Progeria adalah kondisi yang sangat langka. Untuk lebih memahami patologi dan perjalanan alami sindrom ini, kami membentuk Program Registri Internasional. Registri ini menyediakan sumber daya untuk studi Progeria dan mengelola [\u2026]<\/p>","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-9181","page","type-page","status-publish","hentry"],"yoast_head":"\nInternational registry | The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/id\/international-registry-2\/\" \/>\n<meta property=\"og:locale\" content=\"id_ID\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"International registry | The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"The PRF International Progeria Patient Registry   The Progeria Research Foundation is the global resource for Progeria research and education. Progeria is an ultra-rare condition. In order to better understand the pathology and natural course of the syndrome, we established an International Registry Program. 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