Selamat kepada pemenang Amy Award 2024, Kevin Tierney dan North Shore Bank!<\/span><\/b><\/h4>\n![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/05\/Kevin-amy-award.png\")
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Pada tahun 2024, PRF memberikan Penghargaan Amy kepada individu\/kombinasi bisnis pertamanya: North Shore Bank (NSB) dan CEO-nya Kevin Tierney.<\/p>\n
Kevin mendapat penghargaan atas kemurahan hatinya yang tak terbatas, pengabdiannya, kasih sayang, dan dukungannya yang luar biasa terhadap misi PRF, baik secara pribadi maupun dalam kapasitas kepemimpinannya di NSB. Bank tersebut juga mendapat pengakuan atas komitmen perusahaan yang mendalam terhadap PRF.<\/span><\/p>\nKevin dan NSB telah menjadi pendukung PRF yang setia dan murah hati selama lebih dari 20 tahun, termasuk mensponsori setiap acara khusus PRF setempat. Di bawah kepemimpinan Kevin, NSB telah mendukung lebih dari 200 badan amal pada tahun 2023 saja, ditambah karyawan yang menjadi relawan di puluhan badan amal lainnya. NSB benar-benar menganut budaya yang mengakar dalam menyumbangkan waktu, bakat, dan harta mereka, memberi kembali kepada masyarakat lokal tempat mereka beroperasi, dan kami khususnya berterima kasih kepada mereka atas dedikasi mereka kepada komunitas Progeria di seluruh dunia.<\/p>\n
[\/et_pb_text][et_pb_text admin_label=\u201dRobyn dan Tom Milbury\u201d _builder_version=\u201d4.17.4\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d z_index_tablet=\u201d500\u2033 saved_tabs=\u201dall\u201d global_colors_info=\u201d{}\u201d]<\/p>\n
Robyn dan Tom Milbury menerima Penghargaan Amy 2022!<\/b><\/h4>\n
![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2022\/05\/Robyn-and-Tom-1-150x150.jpg\")
Pada tahun 2022, Penghargaan Amy diberikan kepada pasangan pertamanya: Robyn dan Tom. Mereka telah terlibat dengan PRF selama 25 tahun dan tanpa lelah serta tanpa pamrih mengabdikan waktu, bakat, dan harta mereka untuk memajukan misi kami. Bersama-sama, mereka telah membantu menyelenggarakan 9 pesta, 3 turnamen golf, selusin perlombaan, dan banyak acara lain yang sangat sukses selama bertahun-tahun \u2013 WOW! Mereka sekarang menginspirasi generasi Milbury berikutnya untuk bergabung dengan mereka dalam kemurahan hati, pengabdian, dan cinta mereka yang tak pernah berakhir untuk anak-anak yang luar biasa ini.<\/p>\n
[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner bantalan_khusus_terakhir_diedit=\u201ddi|ponsel\u201d _builder_version=\u201d4.16\u2033 bantalan_khusus=\u201d39.4375px|35px|35px||false|false\u201d bantalan_khusus_tablet=\u201d|35px||35px||true\u201d bantalan_khusus_ponsel=\u201d\u201d arah_animasi=\u201datas\u201d info_warna_global=\u201d{}\u201d][et_pb_column_inner tipe_kolom_khusus_yang_disimpan=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 bantalan_khusus=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dJodi Mitchell\u201d _builder_version=\u201d4.17.4\u2033 ukuran_latar_belakang=\u201dawal\u201d posisi_latar_belakang=\u201dkiri_atas\u201d pengulangan_latar_belakang=\u201dulangi\u201d z_index_tablet=\u201d500\u2033 tab_tersimpan=\u201dsemua\u201d info_warna_global=\u201d{}\u201d]<\/p>\n
Jodi Mitchell adalah penerima Penghargaan Amy 2018 kami!<\/strong><\/h4>\n![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2018\/05\/JMitchell-Amy-award-300x200.jpg\")
Jodi telah terlibat dengan PRF sejak tahun 2004 saat ia mengikuti salah satu lomba lari jalan raya pertama kami. Setelah itu, ia terpikat. Sejak saat itu, ia telah menyelenggarakan belasan penggalangan dana di Champions Pub dan tempat lainnya, mengumpulkan tim terbesar untuk menjalankan Lomba Tahunan Riset kami, menjalankan Lomba Jalan Raya Falmouth di TEAM PRF, menjadi relawan rutin di kantor kami, dan pada dasarnya berkata kepada kami, "apa yang dapat saya lakukan untuk membantu?". Segala yang Jodi lakukan untuk PRF dilakukan dengan antusiasme, kebaikan, dan cinta yang menjadikannya pilihan yang tepat untuk penghargaan tahun ini.<\/p>\n
[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner bantalan_khusus_terakhir_diedit=\u201ddi|ponsel\u201d _builder_version=\u201d4.16\u2033 bantalan_khusus=\u201d0px|35px|35px||false|false\u201d bantalan_khusus_tablet=\u201d|35px||35px||true\u201d bantalan_khusus_ponsel=\u201d\u201d arah_animasi=\u201datas\u201d info_warna_global=\u201d{}\u201d][et_pb_column_inner tipe_kolom_khusus_yang_disimpan=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 bantalan_khusus=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dBob Morrison\u201d _builder_version=\u201d4.17.4\u2033 ukuran_latar_belakang=\u201dawal\u201d posisi_latar_belakang=\u201dkiri_atas\u201d pengulangan_latar_belakang=\u201dulangi\u201d indeks_z_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n
Bob Morrison \u2013 Mendukung PRF Sejak Hari Pertama \u2013 adalah pemenang Penghargaan Amy 2016!\u00a0<\/strong><\/h4>\n![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/Bob-M-2.jpg\")
Bob adalah anggota dewan pendiri (bertugas di Dewan Direktur PRF dari tahun 1999-2007). Ia membawa pandangan bisnis yang cerdas ke dalam dewan, sehingga PRF memperoleh manfaat dari keahliannya. Salah satu suara terakhirnya sebagai anggota dewan adalah apakah akan mendanai uji klinis obat pertama atau tidak \u2013 momen bersejarah dan menentukan bagi PRF karena uji klinis tersebut merupakan langkah maju yang besar dalam misi kami, tetapi kami tidak memiliki uang untuk mendanainya sepenuhnya saat itu. Ada hening sejenak setelah presentasi tentang uji klinis tersebut, sementara kami menunggu seseorang mengajukan usulan dan Bob berkata, "Nah, bukankah ini tujuan kita di sini? Kita harus mewujudkan uji klinis ini." Pemungutan suara segera dilakukan, dan hasilnya bulat. Bob terus menyediakan diri untuk memberikan nasihat tentang berbagai masalah bisnis, dan sangat bangga mendukung PRF, dengan rendah hati menambahkan bahwa ia senang "memainkan peran kecil" di dalamnya. Atas kemurahan hati, kasih sayang, dan kesederhanaannya yang tiada henti, ia menerima Penghargaan Amy 2016.<\/p>\n
[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner bantalan_khusus_terakhir_diedit=\u201ddi|ponsel\u201d _builder_version=\u201d4.16\u2033 bantalan_khusus=\u201d0px|35px|35px||false|false\u201d bantalan_khusus_tablet=\u201d|35px||35px||true\u201d bantalan_khusus_ponsel=\u201d\u201d arah_animasi=\u201datas\u201d info_warna_global=\u201d{}\u201d][et_pb_column_inner tipe_kolom_khusus_yang_disimpan=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 bantalan_khusus=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dKevin King\u201d _builder_version=\u201d4.17.4\u2033 ukuran_latar_belakang=\u201dawal\u201d posisi_latar_belakang=\u201dkiri_atas\u201d pengulangan_latar_belakang=\u201dulangi\u201d indeks_z_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n
Kevin King \u2013 pemenang tahun 2013 \u2013 Penggerak<\/em>\u00a0Dukungan untuk Anak-anak dengan Progeria<\/strong><\/h4>\n![](\"https:\/\/www.progeriaresearch.org\/assets\/images\/about_prf_images\/KevinChipZachon-car-2013-crop.jpg\")
<\/strong>Sejak 2005, Kevin dan timnya di YearOne, bersama saudara laki-laki Amy, Chip Foose, telah mendukung PRF melalui pameran mobil tahunan \u201cBraselton Bash\u201d di Georgia. Seluruh staf bekerja tanpa lelah untuk memastikan akhir pekan yang sukses. Mereka semua dengan senang hati menyumbangkan waktu mereka. Sikap seperti ini datang dari atas \u2013 dari Kevin \u2013 yang benar-benar berkomitmen untuk membantu anak-anak penderita Progeria semampu yang ia dan YearOne bisa lakukan. Ini adalah kerja keras yang tulus, dan ia merasa terhormat dapat membantu seperti kami merasa memilikinya di tim kami. Kevin mencontohkan jenis dedikasi tanpa lelah yang pasti akan mendorong penyembuhan Progeria.<\/p>\n[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner bantalan_khusus_terakhir_diedit=\u201ddi|ponsel\u201d _builder_version=\u201d4.16\u2033 bantalan_khusus=\u201d0px|35px|35px||false|false\u201d bantalan_khusus_tablet=\u201d|35px||35px||true\u201d bantalan_khusus_ponsel=\u201d\u201d arah_animasi=\u201datas\u201d info_warna_global=\u201d{}\u201d][et_pb_column_inner tipe_kolom_khusus_yang_disimpan=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 bantalan_khusus=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dMaura Smith\u201d _builder_version=\u201d4.17.4\u2033 ukuran_latar_belakang=\u201dawal\u201d posisi_latar_belakang=\u201dkiri_atas\u201d latar_belakang_repeat=\u201dulangi\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n
Maura Smith adalah pemenang Penghargaan Amy tahun 2011<\/strong><\/h4>\n![\"\"](\"https:\/\/www.progeriaresearch.org\/assets\/images\/events_images\/Amy-Award-winner-and-family.jpg\")
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Sebagai relawan sejati, Maura telah menjadi bagian tak terpisahkan dari setiap panitia Night of Wonder, memimpin acara Texas Hold 'Em PRF, dan membantu acara serta pekerjaan kantor kapan pun dibutuhkan. Namun, ia tidak berhenti di situ: Maura telah merekrut seluruh keluarganya dan puluhan teman untuk mendukung anak-anak penderita Progeria juga. Kepribadiannya yang menyenangkan dan wataknya yang baik membuatnya menjadi pilihan yang tepat untuk tahun ini!<\/p>\n
[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner bantalan_khusus_terakhir_diedit=\u201ddi|ponsel\u201d _builder_version=\u201d4.16\u2033 bantalan_khusus=\u201d0px|35px|35px||false|false\u201d bantalan_khusus_tablet=\u201d|35px||35px||true\u201d bantalan_khusus_ponsel=\u201d\u201d arah_animasi=\u201datas\u201d info_warna_global=\u201d{}\u201d][et_pb_column_inner tipe_kolom_khusus_yang_disimpan=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 bantalan_khusus=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dDebbie Ponn\u201d _builder_version=\u201d4.17.4\u2033 ukuran_latar_belakang=\u201dawal\u201d posisi_latar_belakang=\u201dkiri_atas\u201d pengulangan_latar_belakang=\u201dulangi\u201d indeks_z_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n
![](\"https:\/\/www.progeriaresearch.org\/assets\/images\/DebbieBernsEdit2.jpg\")
Mengumumkan Debbie Ponn sebagai pemenang Amy Award 2009!<\/strong><\/h4>\nDebbie pertama kali terlibat dengan PRF ketika ia datang ke Night of Wonder (NOW) 2003 sebagai tamu pendukung lama Robyn dan Tom Milbury. Di penghujung acara, ia mendekati direktur PRF Audrey Gordon dan berkata, "Jika Anda butuh bantuan apa pun, silakan hubungi saya". Keduanya tidak tahu seberapa besar tawaran itu akan memengaruhi kehidupan anak-anak penderita Progeria. Sejak saat itu Debbie menjadi salah satu ketua NOW 2005, 2007, dan 2011, menjadi salah satu penyelenggara acara Chicago pada bulan Juni 2009, dan terus membantu PRF dalam banyak hal lainnya. Ia SELALU siap membantu, seperti Amy yang selalu siap membantu teman-teman dan keluarganya.<\/p>\n
[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner bantalan_khusus_terakhir_diedit=\u201ddi|ponsel\u201d _builder_version=\u201d4.16\u2033 bantalan_khusus=\u201d0px|35px|35px||false|false\u201d bantalan_khusus_tablet=\u201d|35px||35px||true\u201d bantalan_khusus_ponsel=\u201d\u201d arah_animasi=\u201datas\u201d info_warna_global=\u201d{}\u201d][et_pb_column_inner tipe_kolom_khusus_yang_disimpan=\u201d3_4\u2033 _builder_version=\u201d4.16\u2033 bantalan_khusus=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text admin_label=\u201dJulie Pritchard\u201d _builder_version=\u201d4.17.4\u2033 ukuran_latar_belakang=\u201dawal\u201d posisi_latar_belakang=\u201dkiri_atas\u201d latar_belakang_repeat=\u201dulangi\u201d z_index_tablet=\u201d500\u2033 global_colors_info=\u201d{}\u201d]<\/p>\n
Selamat kepada Julie Pritchard, pemenang Amy Award 2007!<\/strong><\/h4>\n![\"\"](\"https:\/\/www.progeriaresearch.org\/assets\/images\/about_prf_images\/Rickers.jpg\")
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Julie adalah seorang desainer grafis yang telah menjadi relawan tanpa kenal lelah untuk PRF sejak didirikan pada tahun 1998. Ia membuat brosur, poster, kaus oblong, dan banyak karya lain PRF yang memungkinkan kami menjangkau dan menyampaikan pesan kami.<\/p>\n
\u201cHal yang paling menarik bagi saya tentang Julie\u201d, kata Leslie Gordon, yang memberikan penghargaan di Night of Wonder 2007, \u201cadalah, sejak 1000 kali pertama ia berkata, 'Oh, bolehkah saya melakukannya untuk Anda?', kedermawanannya benar-benar merupakan hasil kerja keras yang penuh cinta. Ia merasa terhormat karena dapat membantu seperti halnya kami merasa terhormat memilikinya di tim kami. Julie, Anda adalah contoh dari Amy \u2013 cinta, keberanian, dan dedikasi tanpa lelah yang pasti akan mendorong penyembuhan Progeria.\u201d<\/p>\n
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2005: Chip Foose dan Kim Paratore menerima Penghargaan Amy pertama kami<\/strong><\/h4>\n![](\"https:\/\/www.progeriaresearch.org\/assets\/images\/meet_kids_images\/ChipKim05.jpg\")
PRF dan Panitia The Night of Wonder 2005 mempersembahkan Penghargaan Amy pertama kepada tamu kehormatan kami, Chip Foose, saudara laki-laki Amy. Chip dengan cepat menjadi tidak hanya dikenal secara internasional di dunia otomotif, tetapi juga juru bicara PRF, mengajak produser acaranya \u201cOverhaulin'\u201d dan banyak orang lain untuk mendukung PRF.<\/p>\n
Chip berkata, \u201cOrang-orang terus bertanya kepada saya bagaimana saya bisa terus menjalani hidup dengan sedikit waktu istirahat dan tetap positif. Saya menjawab mereka dengan mengatakan, 'Saya melihat adik perempuan saya Amy terus-menerus pergi tanpa pernah mendengar satu keluhan pun. Dia adalah inspirasi dan kekuatan saya yang terus-menerus.'\u201d<\/p>\n
Penghargaan Amy juga diberikan pada Malam Keajaiban 2005 kepada Kim Paratore, yang sekarang menjadi anggota Dewan Direktur PRF. Kim telah terlibat sebagai relawan PRF sejak awal, memimpin tiga acara gala Malam Keajaiban pertama, dan berbagai acara penggalangan dana PRF lainnya.<\/p>\n
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Pemenang dipilih oleh panitia yang terdiri dari ibu Amy, Terry Foose, Direktur Eksekutif dan Direktur Medis PRF, serta penerima penghargaan sebelumnya. Pengumuman pemenang dilakukan pada Malam Gala Keajaiban PRF yang diadakan setiap 2 tahun.<\/em><\/p>\nBahasa Indonesia: [\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 kelas_modul=\u201dfooter\u201d _builder_version=\u201d4.21.0\u2033 warna_latar_belakang=\u201d#29327a\u201d margin_khusus=\u201d-2px|||||\u201d custom_padding=\u201d0|0px|0|0px|false|false\u201d z_index_tablet=\u201d500\u2033 border_width_top=\u201d12px\u201d border_color_top=\u201d#00b2e2\u2033 global_module=\u201d133\u2033 terkunci=\u201dnonaktif\u201d global_colors_info=\u201d{}\u201d][et_pb_row_inner column_structure=\u201d1_3,1_3,1_3\u2033 dinonaktifkan_aktif=\u201daktif|aktif|aktif\u201d admin_label=\u201dBaris\u201d _builder_version=\u201d4.21.0\u2033 _module_preset=\u201ddefault\u201d min_height=\u201d277px\u201d custom_margin=\u201d|20px|30px||false|false\u201d custom_padding=\u201d0px|30px|0px||false|false\u201d dinonaktifkan=\u201daktif\u201d info_warna_global=\u201d{}\u201d][et_pb_column_inner type=\u201d1_3\u2033 tipe_kolom_khusus_yang_disimpan=\u201d3_4\u2033 _versi_pembuat=\u201d4.21.0\u2033 _preset_modul=\u201ddefault\u201d info_warna_global=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/08\/Startbanner-1.png\u201d title_text=\u201dSpanduk_Pembuat\u201d url=\u201dhttps:\/\/www.gravoc.com\/\u201d align=\u201dright\u201d _versi_pembuat=\u201d4.21.0\u2033 _preset_modul=\u201ddefault\u201d margin_kustom=\u201d|-50px||20px|false|false\u201d Bahasa Indonesia: info_warna_global=\u201d{}\u201d][\/et_pb_image][\/et_pb_column_inner][et_pb_column_inner type=\u201d1_3\u2033 saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.21.0\u2033 _module_preset=\u201ddefault\u201d info_warna_global=\u201d{}\u201d][\/et_pb_column_inner][et_pb_column_inner type=\u201d1_3\u2033 saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d4.21.0\u2033 _module_preset=\u201ddefault\u201d info_warna_global=\u201d{}\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2023\/07\/RFRFinish.png\u201d title_text=\u201dRFRFinish\u201d _builder_version=\u201d4.21.0\u2033 _module_preset=\u201ddefault\u201d custom_margin=\u201d|20px||-50px|false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row column_structure=\u201d1_4,1_4,1_2\u2033 make_equal=\u201don\u201d module_class=\u201d et_pb_row_fullwidth\u201d _builder_version=\u201d4.16\u2033 width=\u201d89%\u201d width_tablet=\u201d80%\u201d width_phone=\u201d\u201d width_last_edited=\u201don|desktop\u201d max_width=\u201d89%\u201d max_width_tablet=\u201d80%\u201d max_width_phone=\u201d\u201d max_width_last_edited=\u201dpada|desktop\u201d z_index_tablet=\u201d500\u2033 buat_lebar_penuh=\u201daktif\u201d unit_lebar=\u201dnonaktif\u201d persentase_lebar_khusus=\u201d100%\u201d info_warna_global=\u201d{}\u201d][et_pb_column jenis=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 bantalan_khusus=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/www.progeriaresearch.org\/newsletter-signup\/\u201d button_text=\u201dDaftar Sekarang\u201d admin_label=\u201dDaftar untuk Newsletter\u201d module_class=\u201dsign-btn\u201d _builder_version=\u201d4.16\u2033 header_font_size=\u201d25px\u201d background_color=\u201d#29327a\u201d animation_style=\u201dslide\u201d animation_direction=\u201dleft\u201d animation_intensity_slide=\u201d25%\u201d header_font_size_tablet=\u201d\u201d header_font_size_phone=\u201d30px\u201d header_font_size_last_edited=\u201don|desktop\u201d z_index_tablet=\u201d500\u2033 border_radii=\u201daktif|25px|25px|25px|25px\u201d global_colors_info=\u201d{}\u201d button_bg_color__hover_enabled=\u201daktif\u201d button_bg_color__hover=\u201d#8fd2ed\u201d button_border_color__hover_enabled=\u201daktif\u201d]<\/p>\n
Mendaftar<\/h2>\nuntuk Kami<\/h2>\nBuletin!<\/h2>\n
[\/et_pb_cta][\/et_pb_column][et_pb_column type=\u201d1_4\u2033 _builder_version=\u201d4.16\u2033 custom_padding=\u201d|||\u201d global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_cta button_url=\u201dhttps:\/\/progeriaresearch.donorsupport.co\/-\/XZHJVWZR\u201d button_text=\u201dDonasi Sekarang\u201d admin_label=\u201dBersama-sama, kita akan menemukan obatnya!\u201d modul_kelas=\u201dtanda-btn\u201d _builder_version=\u201d4.16\u2033 ukuran_font_header=\u201d25px\u201d warna_latar belakang=\u201d#29327a\u201d gaya_animasi=\u201dslide\u201d arah_animasi=\u201dkiri\u201d intensitas_animasi_slide=\u201d25%\u201d ukuran_font_header_tablet=\u201d\u201d ukuran_font_header_phone=\u201d30px\u201d ukuran_font_header_last_edited=\u201dpada|desktop\u201d ukuran_font_body_tablet=\u201d\u201d ukuran_font_body_phone=\u201d\u201d ukuran_font_body_last_edited=\u201dpada|desktop\u201d z_index_tablet=\u201d500\u2033 radius_batas=\u201dpada|25px|25px|25px|25px\u201d info_warna_global=\u201d{}\u201d warna_latar_belakang_tombol__hover_enabled=\u201dpada\u201d tombol_warna_latar_belakang_hover=\u201d#8fd2ed\u201d tombol_warna_batas_belakang_hover_diaktifkan=\u201daktif\u201d]<\/p>\n
Bersama-sama, kita<\/h2>\nAKAN<\/em><\/h2>\ntemukan obatnya!<\/h2>\n
[\/et_pb_cta][\/et_pb_column][et_pb_column tipe=\u201d1_2\u2033 _builder_version=\u201d4.16\u2033 bantalan_khusus=\u201d|||\u201d Bahasa Indonesia: global_colors_info=\u201d{}\u201d custom_padding__hover=\u201d|||\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/08\/2024-strip-footer-strip-copy.png\u201d title_text=\u201d2024 strip footer strip copy\u201d _builder_version=\u201d4.27.0\u2033 _module_preset=\u201ddefault\u201d custom_margin=\u201d35px||||false|false\u201d global_colors_info=\u201d{}\u201d][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"
Bahasa Indonesia: [et_pb_section fb_built=\u201d1\u2033 lebar_penuh=\u201daktif\u201d dinonaktifkan_aktif=\u201dnonaktif|nonaktif|nonaktif\u201d _builder_version=\u201d4.16\u2033 lebar_batas_bawah=\u201d55px\u201d warna_batas_bawah=\u201d#29327a\u201d info_warna_global=\u201d{}\u201d][et_pb_fullwidth_header _builder_version=\u201d4.27.0\u2033 ukuran_font_judul=\u201d55\u2033 warna_latar_belakang=\u201d#29327a\u201d gambar_latar_belakang=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/About-Header.jpg\u201d posisi_latar_belakang=\u201dtengah_kiri\u201d bantalan_khusus=\u201d9vw||9vw||benar\u201d bantalan_khusus_tablet=\u201d\u201d bantalan_khusus_ponsel=\u201d|56px||\u201d custom_padding_last_edited=\u201dpada|desktop\u201d ukuran_font_judul_tablet=\u201d45px\u201d ukuran_font_judul_ponsel=\u201d40px\u201d ukuran_font_judul_tablet=\u201d500\u2033 custom_css_main_element=\u201dposisi-latar belakang: tengah 18% !penting;\u201d global_colors_info=\u201d{}\u201d] Pemenang Penghargaan SAM & Amy [\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 use_custom_gutter=\u201don\u201d gutter_width=\u201d1\u2033 specialty=\u201don\u201d padding_left_1=\u201d35px\u201d padding_left_2=\u201d35px\u201d padding_2_tablet=\u201d|||0px\u201d padding_2_phone=\u201d|||0px\u201d padding_2_last_edited=\u201don|desktop\u201d module_class_1=\u201dsidebar-secondary-nav\u201d module_class=\u201dhandprint-bg\u201d _builder_version=\u201d4.16\u2033 background_image=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/blue-handprint-only.png\u201d parallax=\u201don\u201d parallax_method=\u201dmati\u201d inner_width=\u201d100%\u201d inner_max_width=\u201d100%\u201d custom_padding=\u201d0|0px|54px|0px|false|false\u201d z_index_tablet=\u201d500\u2033 border_width_top=\u201d10px\u201d border_color_top=\u201d#8fd2ed\u201d use_custom_width=\u201daktif\u201d width_unit=\u201dmati\u201d [\u2026]<\/p>","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"\t\t\t\t[vc_row][vc_column][vc_custom_heading text=\"Amy Award Winners\" font_container=\"tag:h1|text_align:center\" use_theme_fonts=\"yes\"][vc_column_text]\r\n
The Progeria Research Foundation Presents:\u00a0The Amy Award<\/h1>\r\n[caption id=\"\" align=\"alignright\" width=\"168\"]![\"\"](\"https:\/\/www.progeriaresearch.org\/assets\/images\/meet_kids_images\/amy20.jpg\")
Amy Foose: 9\/12\/69 \u2013 12\/19\/85.[\/caption]\r\n\r\nThe Progeria Research Foundation announces the creation of The Amy Award. Dedicated to Amy Foose, whose sunny personality and love of life continue to inspire all those that knew her, this award is for the PRF supporter who meets the following criteria, of which Amy is most remembered for:\r\n<\/b>\r\n\r\n\u2022 A role model for how to live a life of joy and optimism;\r\n\u2022 A good friend, sibling, and daughter\/son;\r\n\u2022 A person with a sense of humor and positive attitude;\r\n\u2022 Someone who strives to make the most out of every situation and takes on challenges with grace, hope and determination; and\r\n\u2022 an individual who has applied the above qualities by tirelessly devoting time, talent and energy to advancing PRF's mission.[\/vc_column_text][vc_column_text]\r\n
Jodi Mitchell is our 2018 Amy Award recipient!<\/strong><\/p>\r\n![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2018\/05\/JMitchell-Amy-award.jpg\")
Jodi has been involved with PRF since 2004 when she ran in one of our first road races.\u00a0 After that, she was hooked. Since then, she\u2019s organized a dozen fundraisers at Champions Pub and elsewhere, gotten the biggest team together to run our annual Race for Research, run the Falmouth Road Race on TEAM PRF, volunteers regularly at our office, and basically says to us, \u201cwhat can I do to help?\u201d.\u00a0 Everything Jodi does for PRF is done with enthusiasm, kindness, and love which makes her the perfect choice for this year\u2019s award.<\/p>\r\n[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column][vc_empty_space][vc_column_text]Bob Morrison \u2013 Supporting PRF Since Day 1 - is our\u00a02016 Amy Award winner!\u00a0![](\"https:\/\/www.progeriaresearch.org\/assets\/images\/about_prf_images\/Bob-M-2.jpg\")
<\/strong>\r\n\r\nBob was a founding board member (serving on PRF\u2019s Board of Directors from 1999-2007). He brought a savvy business outlook to the board, giving PRF the benefit of his expertise. One of his last votes as a board member was whether or not to fund the first clinical drug trial \u2013 an historic and defining moment for PRF because the trial was a big step forward in our mission, but we didn\u2019t have the money to fully fund it at the time. There was a short moment of silence after the presentation on the trial, while we waited for someone to make a motion and Bob said \u201cWell, isn\u2019t this what we\u2019re here for? We\u2019ve got to make this trial happen.\u201d The vote immediately followed, and it was unanimous. Bob continues to make himself available to give advice on a variety of business matters, and is extremely proud to support PRF, humbly adding that he\u2019s glad to \u201cplay a small part\u201d in it. For his never-ending generosity, compassion and modesty, he received the 2016 Amy Award.\r\n\r\n\u00a0\r\n\r\n[\/vc_column_text][vc_empty_space][vc_row_inner][vc_column_inner][vc_column_text]\r\nKevin King \u2013 the 2013 winner - Drives<\/em> the Support for Children with Progeria<\/strong>\r\n\r\nSince 2005, Kevin and his team at YearOne, together with Amy\u2019s brother Chip Foose, have supported PRF through an annual \u201cBraselton Bash\u201d car show in Georgia. The entire staff works tirelessly to ensure a successful weekend. They all happily volunteer their time. This kind of attitude comes from the top \u2013 from Kevin \u2013 who is totally committed to helping children with Progeria as much as he and YearOne possibly can. It is a true labor of love, and he feels as honored to be able to help as we feel to have him on our team. Kevin exemplifies the kind of tireless dedication that will surely drive the cure for Progeria.[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_empty_space][vc_row_inner][vc_column_inner][vc_column_text]\r\nMaura Smith is the 2011 Amy Award winner<\/strong>\r\n\r\n[caption id=\"\" align=\"alignright\" width=\"350\"] Maura Smith, with daughters Amanda and Holly, and husband Robert.[\/caption]\r\n\r\nThe ultimate volunteer, Maura has been an integral part of every Night of Wonder committee, chaired PRF\u2019s Texas Hold \u2018Em events, and assists with events and office work whenever needed. But she doesn\u2019t stop there: Maura has recruited her entire family and dozens of friends to support children with Progeria as well. Her pleasant personality and kind disposition made her the perfect choice for this year!\r\n\r\n[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][\/vc_column][\/vc_row][vc_row][vc_column][vc_column_text]\r\n\r\n\r\nAnnouncing Debbie Ponn as our 2009 Amy Award winner!<\/strong><\/p>\r\nDebbie first became involved with PRF when she came to Night of Wonder (NOW) 2003 as the guest of long-time supporters Robyn and Tom M<\/p>\r\n
ilbury. At the end of the night, she approached PRF\u2019s director Audrey Gordon and said, \u201cIf you ever need help with anything, please call me\u201d. Little did either of them know how much that offer would affect the lives of children with Progeria. Since that time Debbie co-chaired NOWs 2005, 2007 and 2011, co-organized the Chicago event in June 2009, and continues to help PRF in many other ways. She is ALWAYS there to help, as Amy was for her friends and family.<\/p>\r\n[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column][vc_empty_space][vc_column_text]Congratulations to Julie Pritchard, the 2007 Amy Award winner!<\/strong>\r\n\r\n[caption id=\"\" align=\"alignright\" width=\"250\"] Julie (top row, 2nd from left) and five of her sisters are all smiles at the Night of Wonder 2007.[\/caption]\r\n\r\nJulie is a graphic designer who has been volunteering tirelessly for PRF since its inception in 1998. She created PRF\u2019s brochures, posters, t-shirts and many other pieces that allow us to reach out and deliver our message.\r\n\r\n\u201cThe thing I find most fascinating about Julie\u201d, says Leslie Gordon, who presented the award at Night of Wonder 2007, \u201cis that, from the first 1000 times that she said \u2018Oh, can I do that for you?\u2019, her philanthropy has truly been a labor of love. She feels as honored to be able to help as we feel to have her on our team. Julie, you are what Amy exemplified \u2013 love, courage, and the kind of tireless dedication that will surely drive the cure for Progeria.\u201d[\/vc_column_text][\/vc_column][vc_column][\/vc_column][\/vc_row][vc_row][vc_column][vc_column_text]2005: Chip Foose and Kim Paratore receive our first Amy Award<\/strong>\r\n\r\nPRF and The Night of Wonder 2005 Committee presented the first Amy Award to our honored guest, Chip Foose, Amy\u2019s brother. Chip is fast becoming not only internationally recognized in the auto world, but also a\r\n\r\n\r\n\r\nspokesman for PRF, engaging the producer of his show \u201cOverhaulin\u2019\u201d and many others to support PRF.\r\n\r\nChip says, \u201cPeople constantly ask me how I keep going with so little rest and stay so positive. I answer them by saying, \u2018I watched my sister Amy go and go and go without ever hearing a single complaint. She is my constant inspiration and strength.\u2019\u201d\r\n\r\nAlso given the Amy Award at the 2005 Night of Wonder was Kim Paratore, now a member of PRF\u2019s Board of Directors. Kim has been involved as a PRF volunteer since its inception, having chaired the first three Night of Wonder galas, and numerous other PRF fundraising events.\r\n\r\n
\r\n\r\nWinners are chosen by a committee comprised of Amy\u2019s mother Terry Foose, PRF\u2019s Executive Director and Medical Director, and past awardees. They are announced at PRF\u2019s Night of Wonder Gala, held every 2 years.<\/em>[\/vc_column_text][\/vc_column][\/vc_row]\t\t","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-966","page","type-page","status-publish","hentry"],"yoast_head":"\nAmy Award | The Progeria Research Foundation<\/title>\n<meta name=\"description\" content=\"Amy Award Winners are for supporters that win the Amy Award dedicated to Amy Foose, whose sunny personality and love of life continue to inspire all those that knew her.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/id\/amy-award-winners\/\" \/>\n<meta property=\"og:locale\" content=\"id_ID\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Amy Award | The Progeria Research Foundation\" \/>\n<meta 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![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/10\/Sammy-Basso-accepts-SAM-Award_cropped-171x300.jpg\")
Duta Besar PRF Sammy Basso, yang merupakan sahabat karib Sam Berns, mendapat tepuk tangan meriah saat menerima penghargaan SAM terbaru. Sebagai warga Tezze sul Brenta, Italia, Sammy didiagnosis menderita Progeria pada usia dua tahun dan menjadi juru bicara Asosiasi Progeria Italia Sammy Basso (AIPro.SB) saat ia baru berusia 10 tahun. Ia termasuk orang pertama yang bergabung dalam uji klinis PRF, menguji obat lonafarnib yang kini telah disetujui FDA, pengobatan pertama untuk Progeria.<\/p>\n![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/10\/SamSammy-wine-2-300x180.jpg\")
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Uji klinis obat Progeria. Mark adalah direktur Pediatric Medical Neuro-Oncology di Dana Farber Cancer Institute, yang memimpin uji coba lonafarnib untuk pasien kanker muda. Pengalamannya yang luas dengan lonafarnib menjadikannya pemimpin yang ideal dalam upaya ini dalam kemitraan dengan PRF dan Rumah Sakit Anak Boston, dan ketika ditanya, orang yang sangat sibuk ini langsung menjawab "ya"!<\/p>\n![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2024\/10\/Sam-and-Francis-Collins-300x280.jpg\")
dimulai, menjadi sahabat dekat Sam Berns dan keluarganya, dan memainkan peran penting dalam kemajuan pesat PRF. Saat menjabat sebagai Direktur National Human Genome Research Institute (NHGRI), labnya memimpin penemuan gen Progeria pada tahun 2003.<\/p>\n