{"id":12877,"date":"2022-11-15T11:20:35","date_gmt":"2022-11-15T16:20:35","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=12877"},"modified":"2026-04-13T16:57:30","modified_gmt":"2026-04-13T20:57:30","slug":"prfs-11th-international-scientific-workshop","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/id\/2022\/11\/15\/prfs-11th-international-scientific-workshop\/","title":{"rendered":"Lokakarya Ilmiah Internasional PRF ke-11 berlangsung sukses!"},"content":{"rendered":"

[et_pb_section fb_built=”1″ fullwidth=”on” disabled_on=”off|off|off” _builder_version=”4.16″ border_width_bottom=”55px” border_color_bottom=”#29327a” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_fullwidth_image src=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2021\/11\/2022-Banner-NewDates.jpg” title_text=”2022 Banner NewDates” _builder_version=”4.16″ custom_padding=”20px|||” z_index_tablet=”500″ global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_fullwidth_image][\/et_pb_section][et_pb_section fb_built=”1″ use_custom_gutter=”on” gutter_width=”1″ specialty=”on” padding_left_1=”35px” padding_left_2=”35px” padding_2_tablet=”|||0px” padding_2_phone=”|||0px” padding_2_last_edited=”on|desktop” module_class_1=”sidebar-secondary-nav” module_class=”handprint-bg” _builder_version=”4.16″ background_image=”https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2019\/04\/blue-handprint-only.png” parallax=”on” parallax_method=”off” inner_width=”100%” inner_max_width=”100%” custom_padding=”0|0px|0px|0px|false|false” z_index_tablet=”500″ border_width_top=”10px” border_color_top=”#8fd2ed” use_custom_width=”on” width_unit=”off” custom_width_percent=”100%” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”1_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||” theme_builder_area=”post_content”][et_pb_sidebar area=”et_pb_widget_area_24″ disabled_on=”on|on|off” admin_label=”Scientific meetings sidebar” module_class=”subpage-sidebars” _builder_version=”4.16″ text_orientation=”left” animation_style=”fade” z_index_tablet=”500″ border_width_right=”5px” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_sidebar][\/et_pb_column][et_pb_column type=”3_4″ specialty_columns=”3″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||” theme_builder_area=”post_content”][et_pb_row_inner custom_padding_last_edited=”on|phone” _builder_version=”4.16″ custom_padding=”39.4375px|35px|35px|12px|false|false” custom_padding_tablet=”|35px||35px||true” custom_padding_phone=”” animation_direction=”top” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

PRF itu Lokakarya Ilmiah Internasional PRF 2022<\/strong> \u2013 Perlombaan Progeria untuk Penyembuhannya,<\/em> merupakan sebuah kesuksesan yang luar biasa, menyatukan 124 pendaftar dari 14 negara<\/strong>Para dokter, peneliti, dan keluarga terkemuka penderita Progeria bertemu di Boston, MA, untuk berbagi temuan terbaru dalam penelitian Progeria dan menyiapkan landasan bagi upaya masa depan untuk menemukan perawatan baru dan penyembuhan bagi anak-anak dan dewasa muda penderita Progeria.<\/p>\n

Kami memulai malam pembukaan dengan panel pertama yang dimoderatori oleh orang dewasa dengan Progeria<\/strong>, Sammy Basso, 27 tahun, dari Tezze sul Brenta, Italia. Panel tersebut juga menampilkan dua orang lainnya yang hidup dengan Progeria, Meg dan Carlos, yang memikat hadirin dengan berbagi kegiatan baru dan menarik yang baru-baru ini mereka capai tahun lalu. Yang cukup menggembirakan, Meg lulus kuliah lebih awal, sebulan setelah lokakarya! Malam pembukaan juga mencakup live zoom dengan anak-anak di seluruh dunia<\/strong>, diikuti dengan kejutan pertunjukan musik oleh Dr. Francis Collins<\/strong>, Penasihat Sains Presiden AS dan yang labnya memimpin penemuan gen Progeria. Dr. Collins menghibur hadirin dengan beberapa lagu populer dengan lirik yang dimodifikasi tentang kemajuan PRF menuju penyembuhan. Sungguh istimewa!<\/p>\n

Kemajuan yang mendalam dan kolaborasi seperti ini hanya dapat terjadi bila komunitas ilmiah yang berkomitmen penuh berkumpul seperti yang telah kita lakukan dalam 11 pertemuan internasional.<\/strong><\/p>\n

Kecintaan dan semangat untuk membantu anak-anak dan dewasa muda ini diungkapkan dalam setiap presentasi, dan telah menghasilkan banyak kolaborasi lintas benua untuk mengeksplorasi perawatan dan jalur tambahan menuju penyembuhan.<\/p>\n

Kami sangat gembira bisa berbagi malam pertama ini dengan Anda.<\/p>\n

[\/et_pb_text][et_pb_button button_url=”https:\/\/www.youtube.com\/watch?v=dkADdswqWN0″ button_text=”Click Here to Watch the Opening Night of the 2022 Workshop” admin_label=”wkshp video” _builder_version=”4.19.5″ _module_preset=”default” button_text_color=”#FFFFFF” button_bg_color=”#00B2E2″ button_border_width=”6px” button_border_color=”#00B2E2″ background_layout=”dark” custom_margin=”30px||30px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_text _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Hari kedua dan ketiga lokakarya berpusat pada 28 presentasi ilmiah lisan dan 26 poster<\/strong>Kami memulai hari ketiga dengan tambahan baru pada lokakarya: Sesi Sunrise, yang mempertemukan peneliti junior dengan pimpinan senior di lapangan dalam suasana kelompok kecil, yang memicu dialog menarik di antara berbagai kelompok peneliti.<\/p>\n

Menghadirkan kembali topik favorit lokakarya lainnya, sesi kilat kami memberi para presenter poster sebuah platform untuk menyampaikan kepada rekan-rekan mereka cuplikan poster yang akan mereka presentasikan malam itu. Presentasi ini menyoroti perkembangan terbaru dalam penelitian klinis tentang Progeria, termasuk pendalaman transformasi kemajuan terapi RNA dan penyuntingan gen<\/strong> dalam studi praklinis, serta sesi jantung yang menyoroti strategi intervensi untuk stenosis aorta kritis<\/strong> pada orang dewasa muda penderita Progeria. Presentasi dan poster merinci kedalaman kemajuan dalam pengobatan Progeria yang potensial, dan mengilhami kolaborasi di masa mendatang antara komunitas penelitian dan medis.<\/p>\n

Selain itu, beberapa peserta memanfaatkan kredit pendidikan kedokteran berkelanjutan (CME) yang ditawarkan melalui kantor CME Rumah Sakit Lifespan Rhode Island.<\/p>\n

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Berikut ini adalah beberapa contoh umpan balik dari lokakarya:<\/strong><\/p>\n

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\"\"<\/p>\n

\u201cPertemuan yang luar biasa. Saya pikir Rabu malam itu fantastis. Leslie memberikan ceramah yang luar biasa. Senang sekali ada pasien progeria yang memimpin panel. Panel selalu menjadi sorotan. Terima kasih telah meminta Francis untuk kembali bernyanyi. Saya juga suka bagian itu! Pertemuannya terorganisasi dengan sangat baik. Terima kasih!\u201d<\/strong><\/p>\n

\u201cSaya selalu menantikan pertemuan ini. [Lokasi lokakarya] Royal Sonesta adalah tempat yang luar biasa untuk pertemuan tersebut; setiap aspek direncanakan dengan sempurna!\u201d<\/strong><\/p>\n

\u201cSetiap kali, saya melihat peningkatan\u2026 teruskan saja dengan cara ini! Sangat mengesankan bahwa \u201csuasana kekeluargaan\u201d mampu membuat semua orang lebih rileks dan lebih nyaman untuk belajar dan mengajukan pertanyaan. Menyenangkan dan instruktif, suntikan harapan yang luar biasa!\u201d<\/strong><\/p>\n

\u201cKonferensi yang luar biasa dengan pembicara yang fenomenal!\u201d<\/strong><\/p>\n

\u201cSeperti biasa, Lokakarya yang luar biasa, jangan sampai terlewatkan!\u201d<\/strong><\/p>\n

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Sammy dan Carlos berbicara sebelum mereka memberikan presentasi panel mereka<\/strong><\/p>\n

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Francis Collins, MD, PhD menampilkan beberapa lagu populer untuk penonton<\/strong><\/p>\n

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Para peneliti, dokter, dan keluarga Progeria dari seluruh dunia berkumpul di PRF ke-11th<\/sup> Lokakarya Ilmiah Internasional.<\/strong><\/p>\n

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Komite Penelitian Medis sukarelawan bertemu sebelum konferensi untuk meninjau proposal hibah yang baru dan menarik.<\/strong><\/p>\n

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Terima kasih kepada Sponsor kami:<\/h3>\n

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Terima kasih kepada semua yang menghadiri Lokakarya Ilmiah Internasional ke-11 Yayasan Penelitian Progeria \u2013 RACE Progeria to the Cure!<\/p>","protected":false},"author":2,"featured_media":13885,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2,1],"tags":[],"class_list":["post-12877","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-uncategorized"],"yoast_head":"\nPRF\u2019s 11th International Scientific Workshop | The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/id\/2022\/11\/15\/prfs-11th-international-scientific-workshop\/\" \/>\n<meta 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