{"id":2037,"date":"2012-09-24T12:11:18","date_gmt":"2012-09-24T12:11:18","guid":{"rendered":"https:\/\/www.progeriaresearch.org\/?p=2037"},"modified":"2020-12-11T11:41:51","modified_gmt":"2020-12-11T16:41:51","slug":"the-world-learns-of-progeria-treatment","status":"publish","type":"post","link":"https:\/\/www.progeriaresearch.org\/id\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/","title":{"rendered":"Dunia Belajar tentang Pengobatan Progeria"},"content":{"rendered":"

[et_pb_section fb_built=\u201d1\u2033 _builder_version=\u201d3.22\u2033][et_pb_row _builder_version=\u201d3.25\u2033 ukuran_latar belakang=\u201dawal\u201d posisi_latar belakang=\u201dkiri_atas\u201d pengulangan_latar belakang=\u201dulangi\u201d][et_pb_column jenis=\u201d4_4\u2033 _builder_version=\u201d3.25\u2033 bantalan_khusus=\u201d|||\u201d bantalan_khusus__hover=\u201d|||\u201d][et_pb_text _builder_version=\u201d4.6.5\u2033 ukuran_latar belakang=\u201dawal\u201d posisi_latar belakang=\u201dkiri_atas\u201d pengulangan_latar belakang=\u201dulangi\u201d hover_enabled=\u201d0\u2033 sticky_enabled=\u201d0\u2033]<\/p>\n

Berita tentang pengobatan pertama untuk Progeria menyebar ke seluruh dunia, dengan puluhan media melaporkan kemajuan luar biasa ini. klik disini<\/a> untuk membaca pengumuman tersebut, dan lihat di bawah ini untuk tautan ke puluhan artikel, klip radio, dan siaran TV!<\/p>\n

klik disini<\/a> untuk membaca buletin khusus kami tentang temuan tersebut. <\/b>Ekstra! Ekstra! Baca Semua Tentang Itu!<\/strong><\/p>\n

Ketertarikan masyarakat terhadap Progeria dan hubungannya dengan penuaan terus meningkat, seiring tersebarnya berita tentang pengobatan pertama untuk anak-anak penderita Progeria. Simak kisah-kisah ini secara daring dan langsung dari media-media terkemuka.\u00a0 Jadilah orang pertama yang tahu saat lebih banyak cerita muncul<\/strong>: 'sukai' kami di Indonesia<\/a>Ikuti kami di Twitter<\/a>, atau kirimkan alamat email anda kepada kami<\/a>.<\/p>\n

\"\"

Devin dari Kanada saat kunjungan tahun 2008 ke Rumah Sakit Anak Boston untuk uji klinis obat Progeria.<\/p><\/div>\n

Apa yang orang katakan\u2026<\/p>\n

\u201chasil dari lari cepat ilmiah<\/strong>" \u2013 Robert Siegel, penulis NPR<\/em><\/p>\n

\u201cSudah ada sebuah hasil yang tak terduga bagi seluruh umat manusia<\/strong>\u2026beberapa orang\u2026akan mencari cara untuk menggunakan informasi baru ini untuk menangkal berbagai penyakit yang berhubungan dengan penuaan\u2026 mungkin hal yang paling luar biasa tentang pengobatan baru ini adalah seberapa cepat ia dikembangkan.\u201d \u2013 Jon Hamilton, Direktur Utama NPR<\/em><\/p>\n

\u201cKini, kami tidak hanya mendapatkan pengobatan pertama, tetapi kami juga mengetahui untuk pertama kalinya bahwa Progeria dapat disembuhkan, dan ini menginspirasi kita untuk bekerja lebih keras dan lebih cepat<\/strong> menuju perawatan tambahan yang dapat bekerja sama dengan Lonafarnib untuk membuat perbedaan dalam kesehatan anak-anak dengan Progeria.\u201d\u00a0 \u00a0<\/em>\u2013 Direktur Medis PRF Dr. Leslie Gordon, CNN Health<\/em><\/p>\n

\u201cPertama kali seseorang melakukan sesuatu dengan cara, bentuk atau rupa apapun mengubah sejarah alami penyakit ini<\/strong>.\u201d \u2013 Ketua Uji Coba Obat Progeria Dr. Mark Kieran,<\/em> Bola Dunia Boston<\/em><\/p>\n

\u201c[Hasil ini] menunjukkan dedikasi orang tua dan lembaga nirlaba di komunitas penyakit langka untuk melakukan sesuatu ketika semuanya tampak sia-sia\u2026 penelitian ini contoh yang bagus<\/strong> tentang bagaimana sebuah lembaga nirlaba kecil dapat membantu merangsang dan menerjemahkan penelitian biomedis dan genetika dasar menjadi pengobatan manusia.\u201d \u2013 <\/em>James Radke, Doktor<\/em>Laporan Penyakit Langka<\/em><\/p>\n

\u201cItu sangat besarItu adalah sebuah keajaiban<\/strong>Devin punya harapan dan mimpi baru, pepatahnya adalah, \u201cBermimpilah besar atau pulang saja\u201d \u2013Jamie,<\/em> CNN Kesehatan<\/em><\/p>\n

\u201cKisah lanjutan dari menaklukkan Progeria adalah ilustrasi yang luar biasa tentang nilai penelitian dasar dalam menemukan bagaimana sesuatu terjadi <\/strong>\u2013 dan itulah inti dan jiwa sains.\u201d \u2013 <\/em>Ricki Lewis, PhD, dari PLOS<\/em><\/a>\u00a0 LINK: https:\/\/blogs.plos.org\/dnascience\/2012\/10\/11\/from-rapid-aging-to-common-heart-disease\/<\/a><\/p>\n

\"\"

Frannie Marmorstein dari Spectrum Health dengan gembira memegang edisi Wall Street Journal tanggal 25 September 2012, yang memperlihatkan artikel hasil uji coba di atas lipatan halaman depan!<\/p><\/div>\n

Lihat artikel selengkapnya di sini\u2026<\/strong><\/p>\n

\"\"<\/strong><\/p>\n

WBF 88.7 \u2013 NPR News \u2013DENGARKAN wawancara Robert Siegel dalam \u201cAll Things Considered\u201d dengan Direktur Medis PRF dan putranya Sam! (tautan tidak tersedia lagi)<\/strong><\/p>\n

\"\"<\/p>\n

TONTON laporan berita di afiliasi abc lokal Boston, WCVB-TV (tautan tidak tersedia lagi)<\/strong><\/p>\n

\"\"<\/p>\n

Wall Street Journal \u2013 Market Watch (tautan tidak tersedia lagi)<\/strong><\/p>\n

Pertama-<\/strong>Pengobatan untuk Penyakit Langka pada Anak-anak yang Menua Menunjukkan Perbaikan pada Semua Peserta Uji Coba (tautan tidak tersedia lagi)<\/strong><\/p>\n

Studi Penyakit Langka Membantu Pencarian Petunjuk tentang Penuaan \/ Obat Memperlambat Kerusakan pada Anak-anak yang Juga Terkait dengan Masalah Jantung pada Orang Lain<\/strong><\/a><\/p>\n

\"\"<\/strong><\/p>\n

CNN Kesehatan<\/a><\/strong><\/p>\n

Kemajuan dalam penyakit penuaan dini pada anak-anak<\/strong><\/a><\/p>\n

\"\"<\/strong><\/p>\n

Uji coba baru menargetkan penyakit penuaan dini pada anak-anak (tautan tidak tersedia lagi) <\/strong><\/p>\n

\"\"
<\/strong>Sains Harian: <\/a><\/strong>Obat yang Awalnya Dikembangkan untuk Kanker Terbukti Efektif untuk Anak-anak dengan Progeria<\/strong><\/a><\/p>\n

\"\"
90,9 WBUR Kesehatan Umum: <\/strong>Pengobatan Pertama Ditemukan untuk Penyakit Penuaan Cepat pada Anak-anak (tautan tidak tersedia lagi) <\/strong><\/p>\n\n\n\n
\n

Kami sangat berterima kasih kepada tim yang fantastis di Spektrum<\/a> atas usaha mereka yang tak kenal lelah untuk menyebarkan berita tentang Proger<\/strong>ia dan PRF <\/strong>bekerja.\u00a0<\/strong><\/p>\n

\u00a0<\/strong>\"\"<\/a><\/p>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

\u00a0<\/strong>\u00a0<\/strong><\/p>\n

[\/et_pb_teks][\/et_pb_kolom][\/et_pb_baris][\/et_pb_bagian]<\/p>","protected":false},"excerpt":{"rendered":"

[et_pb_section fb_built=\u201d1\u2033 _builder_version=\u201d3.22\u2033][et_pb_row _builder_version=\u201d3.25\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d][et_pb_column type=\u201d4_4\u2033 _builder_version=\u201d3.25\u2033 custom_padding=\u201d|||\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text _builder_version=\u201d4.6.5\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d hover_enabled=\u201d0\u2033 sticky_enabled=\u201d0\u2033] Berita tentang pengobatan pertama untuk Progeria menyebar ke seluruh dunia, dengan puluhan media melaporkan kemajuan yang luar biasa ini. Klik di sini untuk membaca pengumumannya, dan lihat di bawah ini untuk tautan ke puluhan artikel, radio [\u2026]<\/p>","protected":false},"author":1,"featured_media":2039,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"

News of the first-ever treatment for Progeria is spreading around the globe, with dozens of media outlets reporting on this remarkable advancement. Click here<\/a> to read the announcement, and see below for links on dozens of articles, radio clips and TV airings!<\/p>

Click here<\/a> to read our special newsletter on the findings. <\/b>Extra! Extra! Read All About It!<\/strong><\/p>

The public\u2019s fascination with Progeria and its relation to aging continues to rise, as word of the first treatment for children with Progeria spreads. Check out these stories on-line and on-air from top-tier outlets.\u00a0 Be the first to know as more stories appear<\/strong>: 'like' us on Facebook<\/a>, follow us on Twitter<\/a>, or send us your email address<\/a>.<\/p>[caption id=\"attachment_2038\" align=\"alignleft\" width=\"225\"]\"\" Devin from Canada during a 2008 visit to Boston Children\u2019s Hospital for the Progeria clinical drug trial.[\/caption]

What people are saying\u2026<\/p>

\u201cthe result of a scientific sprint<\/strong>\u201d \u2013 Robert Siegel, NPR<\/em><\/p>

\u201cThere\u2019s been an unexpected payoff for the rest of humanity<\/strong>...some\u2026will be looking for ways to use this new information to ward off a range of diseases associated with aging\u2026 perhaps the most remarkable thing about the new treatment is how fast it was developed.\u201d\u00a0 \u2013 Jon Hamilton, NPR<\/em><\/p>

\u201cNow, we not only have our first treatment, but we know for the first time that Progeria can be improved, and this inspires us to work harder and faster<\/strong> toward additional treatments that could work in conjunction with Lonafarnib to make a difference in the health of children with Progeria.\u201d\u00a0 \u00a0<\/em>- PRF\u2019s Medical Director Dr. Leslie Gordon, CNN Health<\/em><\/p>

\"The first time anyone has done anything that in any way, shape or form altered the natural history of this disease<\/strong>.\" \u2013 Progeria Drug trial Chair Dr. Mark Kieran,<\/em> The Boston Globe<\/em><\/p>

\"[These results] show the dedication parents and non-profits have in the rare disease community to get things done when all seems lost\u2026 this study is a great example<\/strong> of how a small non-profit can help stimulate and translate basic biomedical and genetic research into a human treatment.\" \u2013 <\/em>James Radke PhD<\/em>, Rare Disease Report<\/em><\/p>

\"It\u2019s huge, It\u2019s a miracle<\/strong>. Devin has new hope, dreams, his saying is, \u201cDream big or go home\u201d \u2013 Jamie,<\/em> CNN Health<\/em><\/p>

\u201cThe continuing story of conquering Progeria is a glorious illustration of the value of basic research in discovering how something happens <\/strong>\u2013 and that\u2019s the heart and soul of science.\u201d \u2013 <\/em>Ricki Lewis, PhD, PLOS<\/em><\/a>\u00a0 LINK: https:\/\/blogs.plos.org\/dnascience\/2012\/10\/11\/from-rapid-aging-to-common-heart-disease\/<\/a><\/p>[caption id=\"attachment_2039\" align=\"aligncenter\" width=\"432\"]\"\" Spectrum Health's Frannie Marmorstein excitedly holds the Sept. 25, 2012 edition of the Wall Street Journal, showing the trial results article above the fold on the front page![\/caption]

See complete articles here\u2026<\/strong><\/p>

\"\"<\/strong><\/p>

WBF 88.7 \u2013 NPR News \u2013<\/a>LISTEN<\/a> to Robert Siegel\u2019s \u201cAll Things Considered\u201d interview with PRF\u2019s Medical Director and her son Sam!<\/a><\/strong><\/p>

\u00a0<\/p>

\"\"<\/p>

\u00a0<\/p>

WATCH the news report on Boston\u2019s local abc affiliate, WCVB-TV<\/a><\/strong><\/p>

\u00a0<\/p>

\"\"<\/p>

Wall Street<\/a> Journal - Market Watch<\/a><\/strong><\/p>

First-<\/strong><\/a>Ever Treatment For Rare Childhood Aging Disease Shows Improvement In All Trial Participant<\/strong><\/a><\/p>

Study of Rare Disease Helps in Search for Clues on Aging \/\u00a0 Drug Slows Damage in Children That Also Is Linked to Heart Problems in Others<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/strong><\/p>

\u00a0<\/p>

CNN Health<\/a><\/strong><\/p>

Advances in kids' early aging disease<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/strong><\/p>

WCVB.com<\/a><\/strong><\/p>

New trial targets rapid-aging childhood disease<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/strong><\/p>

Science Daily<\/a><\/strong><\/p>

Drug Originally Developed for Cancer Proves Effective for Children With Progeria<\/strong><\/a><\/p>

\u00a0<\/p>

\"\"<\/p>

90.9 WBUR CommonHealth<\/a><\/strong><\/p>

First Treatment Found For Rapid-Aging Disease In Children<\/strong><\/a><\/p>

\u00a0<\/p>

\u00a0<\/p>

We are eternally grateful to the fantastic team at Spectrum<\/a> for their tireless efforts to spread the word about Proger<\/strong>ia and PRF\u2019s <\/strong>work.\u00a0<\/strong><\/p>

\u00a0<\/strong>\"\"<\/a><\/p><\/td><\/tr><\/tbody><\/table>

\u00a0<\/strong>\u00a0<\/strong><\/p>","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2],"tags":[],"class_list":["post-2037","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"yoast_head":"\nThe World Learns of Progeria Treatment - The Progeria Research Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.progeriaresearch.org\/id\/2012\/09\/24\/the-world-learns-of-progeria-treatment\/\" \/>\n<meta property=\"og:locale\" content=\"id_ID\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The World Learns of Progeria Treatment - The Progeria Research Foundation\" \/>\n<meta property=\"og:description\" content=\"[et_pb_section fb_built=”1″ _builder_version=”3.22″][et_pb_row _builder_version=”3.25″ background_size=”initial” background_position=”top_left” background_repeat=”repeat”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.6.5″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” hover_enabled=”0″ sticky_enabled=”0″] News of the first-ever treatment for Progeria is spreading around the globe, with dozens of media outlets reporting on this remarkable advancement. 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