Pada tanggal 10 September 2010, program 20\/20 dari ABC menayangkan program berdurasi 1 jam tentang Progeria yang berjudul, Ketika Usia Tujuh Tahun Tampak Seperti 70 Tahun\u2026Perlombaan Melawan Waktu bagi Tiga Gadis Muda (tidak tersedia lagi secara daring).<\/em>Pertunjukan itu merupakan penggambaran yang luar biasa tentang Lindsay, Kaylee, dan Hayley serta keluarga mereka, dan kami berterima kasih kepada Barbara Walters dan produser Muriel Pearson karena telah membawa Progeria ke rumah jutaan pemirsa.<\/p>\n Yayasan Penelitian Progeria menghargai setiap upaya untuk meningkatkan kesadaran tentang Progeria, dan senang bahwa Barbara Walters dan ABC mengakui sifat unik dan luar biasa dari anak-anak istimewa ini, serta hubungan Progeria dengan proses penuaan yang memengaruhi kita semua.<\/p>\n Harap dicatat bahwa informasi apa pun tentang efek obat yang digunakan pada Progeria uji klinis obat<\/a> yang dibagikan pada program 20\/20 belum disediakan oleh atau disetujui oleh Yayasan Penelitian Progeria.<\/em> Kami berharap hasil uji coba obat pertama ini akan dipublikasikan dalam waktu dekat, dan akan membagikan hasil tersebut kepada publik pada saat publikasi. Untuk mempelajari cara membantu anak-anak penderita Progeria, klik Di Sini<\/a>.<\/p>\n Tonton siaran lengkapnya Di Sini<\/a>, dan membaca hampir 500 komentar di acara tersebut Di Sini<\/a>.<\/p>\n<\/div>\n<\/div>\n<\/div>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u201d1\u2033 _builder_version=\u201d4.6.5\u2033 _module_preset=\u201ddefault\u201d min_height=\u201d558px\u201d custom_padding=\u201d0px|||||\u201d][et_pb_row column_structure=\u201d1_2,1_2\u2033 custom_padding_last_edited=\u201don|desktop\u201d padding_left_right_link_1=\u201dfalse\u201d padding_left_right_link_2=\u201dtrue\u201d _builder_version=\u201d3.25\u2033 custom_margin=\u201d-27px|auto||auto||\u201d bantalan_khusus=\u201d39,0156 piksel|0 piksel|30 piksel|0 piksel|salah|salah\u201d bantalan_khusus_tablet=\u201d0 piksel|35 piksel||35 piksel\u201d bantalan_khusus_ponsel=\u201d0 piksel||0 piksel\u201d arah_animasi=\u201dkanan\u201d terkunci=\u201dmati\u201d][et_pb_column type=\u201d1_2\u2033 tipe_kolom_khusus_yang_disimpan=\u201d3_4\u2033 versi_pembuat=\u201d3,25\u2033 bantalan_khusus=\u201d|20 piksel||\u201d custom_padding_tablet=\u201d|0px||0px\u201d custom_padding_phone=\u201d||30px\u201d custom_padding_last_edited=\u201ddi|ponsel\u201d custom_padding__hover=\u201d|||\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2010\/05\/HayleyCloser-crpd.jpg\u201d align=\u201dcenter\u201d admin_label=\u201dhayley\u201d _builder_version=\u201d4.6.5\u2033 _module_preset=\u201ddefault\u201d][\/et_pb_image][et_pb_text _builder_version=\u201d4.6.5\u2033 _module_preset=\u201ddefault\u201d text_font=\u201d|700|||||||\u201d text_font_size=\u201d12px\u201d custom_margin=\u201d-16px|||||\u201d]<\/p>\n Hayley menyampaikan pernyataan penutup kepada para peneliti di lokakarya Progeria tahun 2010, \u201cTerima kasih telah menemukan obatnya.\u201d<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=\u201d1_2\u2033 saved_specialty_column_type=\u201d3_4\u2033 _builder_version=\u201d3.25\u2033 custom_padding=\u201d|20px|30px|20px\u201d custom_padding_tablet=\u201d|0px||0px\u201d custom_padding_phone=\u201d\u201d custom_padding_last_edited=\u201don|desktop\u201d custom_padding__hover=\u201d|||\u201d][et_pb_image src=\u201dhttps:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2010\/05\/LindsayKaylee-trophies-crp.jpg\u201d align=\u201dcenter\u201d admin_label=\u201dlindsayKaylee\u201d _builder_version=\u201d4.6.5\u2033 _module_preset=\u201ddefault\u201d margin_khusus=\u201d||3px|||\u201d][\/et_pb_image][et_pb_text _builder_version=\u201d4.6.5\u2033 _module_preset=\u201ddefault\u201d font_teks=\u201d|700|||||||\u201d ukuran_font_teks=\u201d12px\u201d]<\/p>\n Lindsay dan Kaylee, di Boston, September 2009 untuk kunjungan terakhir mereka dalam uji klinis pertama (yang mana mereka menerima trofi!) dan kunjungan pertama mereka untuk uji coba tiga obat baru.<\/p>\n [\/et_pb_teks][\/et_pb_kolom][\/et_pb_baris][\/et_pb_bagian]<\/p>","protected":false},"excerpt":{"rendered":" [et_pb_section fb_built=\u201d1\u2033 _builder_version=\u201d3.22\u2033 bantalan_kustom=\u201d||0px|||\u201d][et_pb_row _builder_version=\u201d3.25\u2033 ukuran_latar_belakang=\u201dawal\u201d posisi_latar_belakang=\u201dkiri_atas\u201d pengulangan_latar_belakang=\u201dulangi\u201d margin_kustom=\u201d-59px|otomatis||otomatis||\u201d][et_pb_column tipe=\u201d4_4\u2033 _builder_version=\u201d3.25\u2033 bantalan_kustom=\u201d|||\u201d custom_padding__hover=\u201d|||\u201d][et_pb_text _builder_version=\u201d4.6.5\u2033 background_size=\u201dinitial\u201d background_position=\u201dtop_left\u201d background_repeat=\u201drepeat\u201d] Kesadaran akan Progeria berlanjut dengan penayangan acara spesial 20\/20 yang menampilkan Lindsay, Kaylee, dan Hayley, tiga gadis penderita Progeria. Pada tanggal 10 September 2010, acara 20\/20 di ABC menayangkan program berdurasi 1 jam tentang Progeria berjudul, Ketika Usia Tujuh Tahun Terlihat Seperti Usia 70 Tahun\u2026 [\u2026]<\/p>","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":" [vc_custom_heading text=\"Barbara Walters Reports on Progeria\" font_container=\"tag:h1|text_align:left\" use_theme_fonts=\"yes\"]<\/p> Awareness of Progeria continues with the airing of a 20\/20 special featuring Lindsay, Kaylee and Hayley, three girls with Progeria<\/p> On September 10, 2010, ABC's 20\/20 aired a 1-hour program on Progeria entitled, When Seven Looks Like 70...A Race Against Time for Three Young Girls<\/a>.<\/em> The show was a wonderful portrayal of Lindsay, Kaylee and Hayley and their families, and we thank Barbara Walters and producer Muriel Pearson for bringing Progeria into the homes of millions of viewers.<\/p> The Progeria Research Foundation appreciates every effort to raise awareness about Progeria, and is pleased that Barbara Walters and ABC recognize the unique and remarkable nature of these special children, as well as Progeria's connection to the aging process that affects us all.<\/p> Please note that any information about effects of the drug(s) used in Progeria clinical drug trials<\/a> that was shared on the 20\/20 program has not been provided by or approved by The Progeria Research Foundation.<\/em> We hope the results of the first-ever drug trial will be published in the near future, and will share those results publicly at the time of publication. To learn how you can help children with Progeria, click here<\/a>.<\/p> Watch the entire broadcast here<\/a>, and read the nearly 500 comments on the show here<\/a>.<\/p>[caption id=\"attachment_2075\" align=\"alignnone\" width=\"150\"]![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/05\/HayleyCloser-crpd.jpg\")
Hayley makes a closing statement to the researchers at the 2010 workshop on Progeria, \"Thank you for finding a cure.\"[\/caption][caption id=\"attachment_2076\" align=\"alignnone\" width=\"250\"]![\"\"](\"https:\/\/www.progeriaresearch.org\/wp-content\/uploads\/2017\/05\/LindsayKaylee-trophies-crp.jpg\")
Lindsay and Kaylee, in Boston September 2009 for their final visit in the first clinical trial (for which they received
trophies!) and their 1st visit for the new, triple drug trial.[\/caption]<\/div><\/div><\/div>","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[2],"tags":[],"class_list":["post-2074","post","type-post","status-publish","format-standard","hentry","category-news"],"yoast_head":"\n