International Progeria
Patient Registry
Every child with Progeria matters. And every child registered brings us closer to a cure.
The PRF International Progeria Registry is a centralized, global database of children and young adults living with Progeria. The Registry serves to ensure that new findings and clinical trial enrollment opportunities reach the families and physicians who need them as quickly as possible.
Who should register: Parents, physicians, or representatives of any child or young adult with a Progeria diagnosis are encouraged to participate. Registration is simple and confidential.
To register, complete a Registry Form and submit it to [email protected]. Our team will be in touch to guide you through next steps.
The Registry is maintained to the highest standards of data integrity and may be audited by governmental agencies, including the U.S. Food and Drug Administration, in connection with drug development.
